Re: More Venting!Why do parents of autistic kids feed them junk...

April 23, 2008

The girl thats almost recovered is not the child with the mito issue.

That child ( boy)was dx with SCAD ( mito disorder - short chain

fatty acids) at age 3 after lumps of fat were stickng out of his

forehead. many sttes in the US now creen for many diff mito issues

at the afterbirth screening... hd his been done then, he wouldn't

have regressed into autism. he started using words the same month

that they started with his mito supps for his disorder.He sill has a

long way too , but has come far .

Xna

>

> > > > I don't think anyone should judge another parent. This battle

> we

> > > are facing is difficult enough and some of us didn't stumble

onto

> > > this sight until our children were much older (10, 11, 12). It

is

> > so

> > > much easier to deal with a younger child and sometimes maybe it

> > isn't

> > > but when they have been eating a certain way for such a long

time

> > it

> > > is much harder to break habits.

> > > Dianne

> > > >

> > > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> > > Time, pudgeo9999@ writes:

> > > > learn in school??? I sub-teach alot in my schools school!

> > > I was so

> > > > upset today..there is a 10yr old autistic boy in the

> > > class, this is

> > > > what he ate, doritos for snack and for lunch frosted

> > > flakes and a fruit

> > > > roll up. So he ran out of the class twice and was defiant

> > > all day..hmmm

> > > > wonder why?? SO I wrote a note to the parents that I felt

> > > his behavior

> > > > was linked to the poor food choices he had today!!AM I

> > > really off here?

> > > > How can a kid learn when they are fed JUNK?

> > > > Do schools ever suggest special diets to parents who

> > > don't get it??

> > > > or is that crossing the line??

> > > > Thanks for letting me vent!!!

> > > >

> > > > ----------------------------------------------------------

> > > ----

> > > > Need a new ride? Check out the largest site for U.S. used

> > > car listings at AOL Autos.

> > > >

> > >

> > > " To accomplish great things, we must not only act, we

> > > must dream; not only plan but also believe. "

> > >

> > > ---------------------------------

> > > Instant message from any web browser! Try the new Yahoo!

Canada

> > Messenger for the Web BETA

> > >

> >

>

April 23, 2008

Thanks for the info..I do realise it is for e to maybe see something

I migh have missed but his issues are not diet related any more...

coz we have beaten that horse to death in the last 5 1/2 yrs.To

begin with when he was severe, only few foods came up on food

allergy test, even the DAN was so stumped... & wrote on his test NO

leaky gut !! wow!!.We did the peptide test again clean test. Recently

did it again at the french lab.. again clean.

yeast has never been an issue on his test either... not on organix,

not on CDSA etc & we have done sooo many of them

.. He has been GFCF & all the free's i can think of sine he was 21

months old... nitrite free, certified organic only, sulphite free,

msg free, colour, flavour, preservative etc etc free.All our house

hold cleaners etc are all natural no pesticides etc... we r doing

all of that & a ton more.

We did SCD to for a bit...low oxylate this & that u name it.Pulled it

all out.. & started from scratch.. to see if we could see any thing

that for some reason didn't show on the test. nada.. zilch.. zippo.

he is still GFCF everything else Free...lol..The diet helped him

I'm 100% sure the first 2 yrs.. but the improvements that came after

the 2 yrs I cannot credit diet with.. coz he plateaued & each " other "

treatment we did

( & we did MANY)hlped him mov along, small improvements.. with some

nothing ..

I do feel mito issue could be a huge possibility coz for a start he

regressed very visibly after being sick for few weeks ( high fever

etc after vax),he is rail thin & doesn't put on weight & had th cold

hand feet thing reasonably often ( temp reg.).. & few othe things on

the mito list.If it is a mito issue then that is what is undoing

suff for him.. not a food.

so i will keep at the diet, coz i do know that milk is one of his no-

no's 100% ..but na not gonna beat that horse any more.still GFCF but

need to move on from looking in there. one can also injest

allergens from the air.. dust, grass..notjust food .

He has come a loooong way from where he was once & I'm certain will

continue & keep mproving

xena

>

> > > > I don't think anyone should judge another parent. This battle

> we

> > > are facing is difficult enough and some of us didn't stumble

onto

> > > this sight until our children were much older (10, 11, 12). It

is

> > so

> > > much easier to deal with a younger child and sometimes maybe it

> > isn't

> > > but when they have been eating a certain way for such a long

time

> > it

> > > is much harder to break habits.

> > > Dianne

> > > >

> > > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> > > Time, pudgeo9999@ writes:

> > > > learn in school??? I sub-teach alot in my schools school!

> > > I was so

> > > > upset today..there is a 10yr old autistic boy in the

> > > class, this is

> > > > what he ate, doritos for snack and for lunch frosted

> > > flakes and a fruit

> > > > roll up. So he ran out of the class twice and was defiant

> > > all day..hmmm

> > > > wonder why?? SO I wrote a note to the parents that I felt

> > > his behavior

> > > > was linked to the poor food choices he had today!!AM I

> > > really off here?

> > > > How can a kid learn when they are fed JUNK?

> > > > Do schools ever suggest special diets to parents who

> > > don't get it??

> > > > or is that crossing the line??

> > > > Thanks for letting me vent!!!

> > > >

> > > > ----------------------------------------------------------

> > > ----

> > > > Need a new ride? Check out the largest site for U.S. used

> > > car listings at AOL Autos.

> > > >

> > >

> > > " To accomplish great things, we must not only act, we

> > > must dream; not only plan but also believe. "

> > >

> > > ---------------------------------

> > > Instant message from any web browser! Try the new Yahoo!

Canada

> > Messenger for the Web BETA

> > >

> >

>

April 23, 2008

you won't find anything on a peptide test if you don't have those things in your diet, you would EXPECT it to come back that way. from the not gaining weight is he on enzymes? carnitine? taurine? what kinds of fats and proteins is he getting in his diet? is he showing on CSA testing that he isn't breaking down fats and proteins? did you ever try secretin? you also are mentioning some of the red flags for thyroid disorder as well

Recovering from Autism is a marathon NOT a sprint, but FULLY possible! Read more about it on my BLOGs athttp://www.myspace.com/christelking

Re: More Venting!Why do parents of autistic kids feed them junk...

Thanks for the info..I do realise it is for e to maybe see something I migh have missed but his issues are not diet related any more... coz we have beaten that horse to death in the last 5 1/2 yrs.To begin with when he was severe, only few foods came up on food allergy test, even the DAN was so stumped... & wrote on his test NO leaky gut !! wow!!.We did the peptide test again clean test. Recently did it again at the french lab.. again clean.yeast has never been an issue on his test either... not on organix, not on CDSA etc & we have done sooo many of them. He has been GFCF & all the free's i can think of sine he was 21 months old... nitrite free, certified organic only, sulphite free, msg free, colour, flavour, preservative etc etc free.All our house hold cleaners etc are all natural no pesticides etc... we r doing all of that & a ton more.We did SCD to for a bit...low oxylate this & that u name it.Pulled it all out.. & started from scratch.. to see if we could see any thing that for some reason didn't show on the test. nada.. zilch.. zippo. he is still GFCF everything else Free...lol..The diet helped him I'm 100% sure the first 2 yrs.. but the improvements that came after the 2 yrs I cannot credit diet with.. coz he plateaued & each "other" treatment we did ( & we did MANY)hlped him mov along, small improvements.. with some nothing ..I do feel mito issue could be a huge possibility coz for a start he regressed very visibly after being sick for few weeks ( high fever etc after vax),he is rail thin & doesn't put on weight & had th cold hand feet thing reasonably often ( temp reg.).. & few othe things on the mito list.If it is a mito issue then that is what is undoing suff for him.. not a food.so i will keep at the diet, coz i do know that milk is one of his no-no's 100% ..but na not gonna beat that horse any more.still GFCF butneed to move on from looking in there. one can also injest allergens from the air.. dust, grass..notjust food . He has come a loooong way from where he was once & I'm certain will continue & keep mprovingxena > > > > > I don't think anyone should judge another parent. This battle > we > > > are facing is difficult enough and some of us didn't stumble onto > > > this sight until our children were much older (10, 11, 12). It is > > so > > > much easier to deal with a younger child and sometimes maybe it > > isn't > > > but when they have been eating a certain way for such a long time > > it > > > is much harder to break habits.> > > Dianne> > > > > > > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight > > > Time, pudgeo9999@ writes:> > > > learn in school??? I sub-teach alot in my schools school! > > > I was so > > > > upset today..there is a 10yr old autistic boy in the > > > class, this is > > > > what he ate, doritos for snack and for lunch frosted > > > flakes and a fruit > > > > roll up. So he ran out of the class twice and was defiant > > > all day..hmmm > > > > wonder why?? SO I wrote a note to the parents that I felt > > > his behavior > > > > was linked to the poor food choices he had today!!AM I > > > really off here? > > > > How can a kid learn when they are fed JUNK?> > > > Do schools ever suggest special diets to parents who > > > don't get it??> > > > or is that crossing the line??> > > > Thanks for letting me vent!!! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----> > > > Need a new ride? Check out the largest site for U.S. used > > > car listings at AOL Autos.> > > >> > > > > > > > > > > > > > > > > > > > > > > > "To accomplish great things, we must not only act, we> > > must dream; not only plan but also believe."> > > > > > > > > > > > > > > ---------------------------------> > > Instant message from any web browser! Try the new Yahoo! Canada > > Messenger for the Web BETA> > >> >>

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.3/1393 - Release Date: 4/23/2008 8:12 AM

April 23, 2008

Thanks Christel,

hmm ya, I should look into thyroid as well... good idea.

Yes, tried TD secretin for a bit.. nothing.

yes, use L carnitine.

Breaks down protein well, fats a one stage was slighhlty out of

range..but after that i did use more enzymes carnitine too..I will

try increasing carnitine .

Always supplemented with taurine until after Yasko's nutrigenomics

test.. & MAT so pulled taurine out.

My hubby's family is on the very skinny side.. but his sister went

from rail thin to putting on a fai bit of weight & has been told

thyrpoid disorder...so hmm yes.. should look there too.

I do remember testing thyroid a few times.. all seemed in the

range..once T3 ( think it was T3 was high)..

do u know anything about thyroid issues..

thanks again

Xena

>

> you won't find anything on a peptide test if you don't have those

things in your diet, you would EXPECT it to come back that way. from

the not gaining weight is he on enzymes? carnitine? taurine? what

kinds of fats and proteins is he getting in his diet? is he showing

on CSA testing that he isn't breaking down fats and proteins? did

you ever try secretin? you also are mentioning some of the red flags

for thyroid disorder as well

>

> Recovering from Autism is a marathon

> NOT a sprint, but FULLY possible!

> Read more about it on my BLOGs at

> http://www.myspace.com/christelking

>

April 23, 2008

I would LOVE your recipes Cheryl, if you dont mind! LOL! They sound

YUMMY!

I really think that your lunch, even though it may 'look' unhealthy,

the other poster's student had a bunch of processed snack foods, that

is junk in any child...homemade pizza with or without veggies hidden

is still much better than doritos! LOL!

I know, I know, dont judge...I dont think its a judgement as much as

its a disappointment because we know how hard we work (those of us on

different varying diets) to give our children the nutrition they need

and keep them away from the stuff that makes them sick...and the

GREAT benefits we see when we are on the right diet for our

child/family...so I am willing to bet she felt frustration not

judgement...

At least I know that when I am frustrated and see someone that could

use some help/guidance with something that has been proven to help

improve behavior...no matter WHAT the dietary changes/restrictions

may be.... but to see ANY child eating what that child did, its no

wonder why the child's behavior was 'off' that day...ANY child

would...

Its hard to talk to someone though with good intentions and make sure

it doesnt come across as judgement...its a fine line...maybe the

teacher could start a lesson on Healthy food, teaching the children

about healthy choices and options, maybe doing some cooking

lessons/etc...and also during that time, send some research and info

home to the parents of the whole class about Nutrition and how it

affects behaviors, especially with Special Needs Children.

At least that can open up a discussion with not only the one child

and their parent, but the whole class...lets face it, we ALL could

use Nutrition brush=ups now and then...

There are MANY things that could be going on at home, maybe they dont

even know about any Nutritional interventions, maybe they had tried a

diet in the past, given this child is 10 years old, maybe the parents

(or even harder maybe a single mother) tried when the child was 2 or

3 or 4, even when these types of diets werent what they are today,

and science wasnt was what it is...so maybe she did try...

I have met SO many parents who have children over 8=10 years old and

older who say 'oh, getting rid of milk and wheat doesnt do anything

for us and we tried it for 3 weeks and it was awful, it made

everything worse...it doesnt work, so we dont even fight anymore, he

can eat what he wants, at lesat I know he WILL eat doritos and

nuggets and ketchup only..at least he is eating... "

LOTS of parents....Other than a few in these boards around here...I

would have to say there is a nice big line down the parents of

children over 8 and under 8 about the benefits and willingness to try

whole-heartedly to revamp their Nutrition....just the amount of info

we have discovered over the years, like changing it from GFCF to

GFCFSF because the soys protein is very chemically similar to casein,

so most who react to casien also react to soy....

and also, now we know that we need to do a specific nutritional

overhaul for each of our children, Autism or not, and then for us

moms and dads....its worked for our whole family...we have had good

times and bad times, and its just a literal puzzle for each child and

family member..

Before I started our journey into all of this...we had already

started to clean our kitchen and get rid of the plastics, purchase

organic foods, as much as we can to start, and then as we went on, we

are now able to spend the same as when we went non-organic...and we

buy 99.99% organic, only in an extreme pinch, a day of errand

running, not enough snacks packed, I might stop somewhere and get

some raisins/plain chip///something from a quick grocery ...but other

than that, all organic...and the biggest thing for us, was NO

artificials...colors,flavlors,sweeteners, no

preservatives...nitrates, nitrites...all that icky stuff

We get the BIGGEST reactions to infractions of preservatives, just as

bad or even worse than the gluten infracion...Nitrites in hot

dogs...YUCK...lasted for DAYSl...poor boys...thankfully our old " ball

parks' (the only hot dogs I would even eat) have been replaced and

accepted by the kids really easily...the Applegate farms beef dogs...

Anyway...I think the best thing to do would be to do a class lesson

on nutrition, involve the kids in cooking, and maybe they will even

start to look into possibly tasting new foods...

HTH

Angie R

Mom to Ethan , , and Megam

>

> > Obviously, you feel strongly about different therapies for

autism.

> >

> > I think we need to be careful though not to judge the actions or

> > perceived lack of action by other parents. Honestly, we really

> > don't know what another parent may have already tried with his

or

> > her child. And it's not our business. I think we need to

consider

> > that someone else might look at our choices of treatments as

poor

> > ones.

> >

> > I've tried pretty much everything with my son, who will be 10 in

6

> > weeks. No diet ever made a discernible difference for him.

> > Neither did enzymes. He's not on any special diet now. He eats

> > fairly healthy but he took cheese crackers in for snack today.

> > Does that make me a bad parent? I certainly don't think so.

> >

> > So I guess vent away here, but I wouldn't be presuming anything

> > where other parents are concerned. We all have extremely tough

> > roads to travel and we do the best we can.

> >

> > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight Time,

> > pudgeo9999@... writes:

> > learn in school??? I sub-teach alot in my schools school! I was so

> > upset today..there is a 10yr old autistic boy in the class, this

is

> > what he ate, doritos for snack and for lunch frosted flakes and

a

> > fruit

> > roll up. So he ran out of the class twice and was defiant all

> > day..hmmm

> > wonder why?? SO I wrote a note to the parents that I felt his

behavior

> > was linked to the poor food choices he had today!!AM I really

off

> > here?

> > How can a kid learn when they are fed JUNK?

> > Do schools ever suggest special diets to parents who don't get

it??

> > or is that crossing the line??

> > Thanks for letting me vent!!!

> >

> > Need a new ride? Check out the largest site for U.S. used car

> > listings at AOL Autos.

> >

>

April 23, 2008

> >

> >> Obviously, you feel strongly about different therapies for

> >> autism.

> >>

> >> I think we need to be careful though not to judge the

actions or

> >> perceived lack of action by other parents. Honestly, we

really

> >> don't know what another parent may have already tried with

his or

> >> her child. And it's not our business. I think we need to

> >> consider that someone else might look at our choices of

> >> treatments as poor ones.

> >>

> >> I've tried pretty much everything with my son, who will be

10 in

> >> 6 weeks. No diet ever made a discernible difference for

him.

> >> Neither did enzymes. He's not on any special diet now. He

eats

> >> fairly healthy but he took cheese crackers in for snack

today.

> >> Does that make me a bad parent? I certainly don't think so.

> >>

> >> So I guess vent away here, but I wouldn't be presuming

anything

> >> where other parents are concerned. We all have extremely

tough

> >> roads to travel and we do the best we can.

> >>

> >> In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

Time,

> >> pudgeo9999@... writes:

> >>

> >> learn in school??? I sub-teach alot in my schools

school! I

> >> was so

> >> upset today..there is a 10yr old autistic boy in the

class,

> >> this is

> >> what he ate, doritos for snack and for lunch frosted

flakes

> >> and a fruit

> >> roll up. So he ran out of the class twice and was

defiant all

> >> day..hmmm

> >> wonder why?? SO I wrote a note to the parents that I

felt his

> >> behavior

> >> was linked to the poor food choices he had today!!AM I

really

> >> off here?

> >> How can a kid learn when they are fed JUNK?

> >> Do schools ever suggest special diets to parents who

don't

> >> get it??

> >> or is that crossing the line??

> >> Thanks for letting me vent!!!

> >>

> >> -------------------------------------------------------------

-----------

> >> Need a new ride? Check out the largest site for U.S. used car

> >> listings at AOL Autos

> >> <http://autos.aol.com/used?NCID=aolcmp00300000002851>.

> >

>

April 23, 2008

I dont think was saying that about YOU or your life....

or anyone HERE....but its true, there are parents who are like that

and just are too overwhelmed THEMSELVES they 'treat' their child with

medicines so that they are not a burden to the already stressed out

family....without any concern for nutrition/diet/etc...

Not you, you are here working/trying/DOING to help your child life

the life he is meant to live and to better his health...YOU are a

hero!

We ALL are heros here! We just have to find a way to get the 'hero'

OUT of the parents that arent changing anything because they are

overwhelmed, because they dont even konw about the options out there,

or the ones that think they tried something for a week or 2 or

nothing happened, OR the parents just giving medication making the

kids zoombies (their words)...

I will post about this in another post...

Angie

>

> FWIW, , there is nothing easy about my life. I have been

actively

> treating my son for EIGHT YEARS with biomedical treatments...and

yet, he's still

> here, dealing with his disability. To imply that there are kids

out there

> still living with autism because their parents didn't try hard

enough is

> insulting. Many of us continue to try and plow through and live

on the planet with

> hope in spite of people like you.

>

> In a message dated 4/21/2008 11:12:25 P.M. Eastern Daylight Time,

> peter@... writes:

>

> For some people it would seem that living with a life time of

autism is

> easier that treating it. Its not a decision I can relate to, but

there it is.

>

> Its a bit like a lot of people know that smoking will cause them

harm, but

> they still do it. People get addicted to smoking. I'm sure a lot

of people

> are addicted to their current way of life and find the concept of

change just

> too difficult.

>

> **************Need a new ride? Check out the largest site for U.S.

used car

> listings at AOL Autos.

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

April 23, 2008

Wow. Did you see Cheryl's post on food intolerances in the absence

of leaky gut...her kid is a big viral case, not gut one...could yours

be viral too? >

> > > > > I don't think anyone should judge another parent. This

battle

> > we

> > > > are facing is difficult enough and some of us didn't stumble

> onto

> > > > this sight until our children were much older (10, 11, 12).

It

> is

> > > so

> > > > much easier to deal with a younger child and sometimes maybe

it

> > > isn't

> > > > but when they have been eating a certain way for such a long

> time

> > > it

> > > > is much harder to break habits.

> > > > Dianne

> > > > >

> > > > > In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> > > > Time, pudgeo9999@ writes:

> > > > > learn in school??? I sub-teach alot in my schools school!

> > > > I was so

> > > > > upset today..there is a 10yr old autistic boy in the

> > > > class, this is

> > > > > what he ate, doritos for snack and for lunch frosted

> > > > flakes and a fruit

> > > > > roll up. So he ran out of the class twice and was defiant

> > > > all day..hmmm

> > > > > wonder why?? SO I wrote a note to the parents that I felt

> > > > his behavior

> > > > > was linked to the poor food choices he had today!!AM I

> > > > really off here?

> > > > > How can a kid learn when they are fed JUNK?

> > > > > Do schools ever suggest special diets to parents who

> > > > don't get it??

> > > > > or is that crossing the line??

> > > > > Thanks for letting me vent!!!

> > > > >

> > > > > ----------------------------------------------------------

> > > > ----

> > > > > Need a new ride? Check out the largest site for U.S. used

> > > > car listings at AOL Autos.

> > > > >

> > > >

> > > > " To accomplish great things, we must not only act, we

> > > > must dream; not only plan but also believe. "

> > > >

> > > > ---------------------------------

> > > > Instant message from any web browser! Try the new Yahoo!

> Canada

> > > Messenger for the Web BETA

> > > >

> > >

> >

>

April 23, 2008

Calm down ...I meant that I would send a note to parents that I had

SOME relationship with already or who had noticed the big gains Matt

had made on the diet changes...I did not mean to piss anyone off and

I would not ahve done it if I was a sub and had one exposure to a

student's diet. LOL. You never know when a thing you suggest is

going to matter....it was a couple months AFTER someone suggested to

cut out all sugar that I came to the conclusion that doing so was

IMPERATIVE...my initial response was, What will (I put on his

pancakes though....ha ha ha. Ah, me. So to each there own, but

sometimes you ARE helping when you share info....Di

>

> I feed my grandson cereal w/banana on the rare occasion for supper

when the

> cupboard is bare or I don't have time to cook something special for

> him..(now I feel guilty) shhh. don't tell anyone but sometimes when

no one

> is looking I eat ice cream for lunch! On ice cream days I pick

fights with

> my co-workers and run around the parking lot a couple of times but

no one

> seems to notice..or suggest the salad would have been a better

choice.

>

> If you were only subbing and not even this child's regular teacher

I would

> be highly offended if you had sent that note home.....it is

crossing the

> line IMHO

>

> Chris

>

> _____

>

> From: mb12 valtrex

[mailto:mb12 valtrex ] On

> Behalf Of Trish64@...

> Sent: Monday, April 21, 2008 9:01 PM

> To: mb12 valtrex

> Subject: Re: More Venting!Why do parents of autistic

kids feed

> them junk...

>

> Obviously, you feel strongly about different therapies for

autism.

>

> I think we need to be careful though not to judge the actions or

perceived

> lack of action by other parents. Honestly, we really don't know

what

> another parent may have already tried with his or her child. And

it's not

> our business. I think we need to consider that someone else might

look at

> our choices of treatments as poor ones.

>

> I've tried pretty much everything with my son, who will be 10 in 6

weeks.

> No diet ever made a discernible difference for him. Neither did

enzymes.

> He's not on any special diet now. He eats fairly healthy but he

took cheese

> crackers in for snack today. Does that make me a bad parent? I

certainly

> don't think so.

>

> So I guess vent away here, but I wouldn't be presuming anything

where other

> parents are concerned. We all have extremely tough roads to travel

and we

> do the best we can.

>

> In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight Time,

> pudgeo9999@... writes:

>

> learn in school??? I sub-teach alot in my schools school! I was so

> upset today..there is a 10yr old autistic boy in the class, this is

> what he ate, doritos for snack and for lunch frosted flakes and a

fruit

> roll up. So he ran out of the class twice and was defiant all

day..hmmm

> wonder why?? SO I wrote a note to the parents that I felt his

behavior

> was linked to the poor food choices he had today!!AM I really off

here?

> How can a kid learn when they are fed JUNK?

> Do schools ever suggest special diets to parents who don't get it??

> or is that crossing the line??

> Thanks for letting me vent!!!

>

> _____

>

> Need a new ride? Check out the largest site for U.S. used car

listings at

> AOL Autos <http://autos.aol.com/used?NCID=aolcmp00300000002851> .

>

April 23, 2008

We do not do milk, but is it good for some...bc I thought raw milk

was supposed to be good for you if you did not have leaky gut or

immune issues. Di

> > >

> > >> Obviously, you feel strongly about different therapies for

> > >> autism.

> > >>

> > >> I think we need to be careful though not to judge the

> actions or

> > >> perceived lack of action by other parents. Honestly, we

> really

> > >> don't know what another parent may have already tried with

> his or

> > >> her child. And it's not our business. I think we need to

> > >> consider that someone else might look at our choices of

> > >> treatments as poor ones.

> > >>

> > >> I've tried pretty much everything with my son, who will be

> 10 in

> > >> 6 weeks. No diet ever made a discernible difference for

> him.

> > >> Neither did enzymes. He's not on any special diet now.

He

> eats

> > >> fairly healthy but he took cheese crackers in for snack

> today.

> > >> Does that make me a bad parent? I certainly don't think

so.

> > >>

> > >> So I guess vent away here, but I wouldn't be presuming

> anything

> > >> where other parents are concerned. We all have extremely

> tough

> > >> roads to travel and we do the best we can.

> > >>

> > >> In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> Time,

> > >> pudgeo9999@ writes:

> > >>

> > >> learn in school??? I sub-teach alot in my schools

> school! I

> > >> was so

> > >> upset today..there is a 10yr old autistic boy in the

> class,

> > >> this is

> > >> what he ate, doritos for snack and for lunch frosted

> flakes

> > >> and a fruit

> > >> roll up. So he ran out of the class twice and was

> defiant all

> > >> day..hmmm

> > >> wonder why?? SO I wrote a note to the parents that I

> felt his

> > >> behavior

> > >> was linked to the poor food choices he had today!!AM I

> really

> > >> off here?

> > >> How can a kid learn when they are fed JUNK?

> > >> Do schools ever suggest special diets to parents who

> don't

> > >> get it??

> > >> or is that crossing the line??

> > >> Thanks for letting me vent!!!

> > >>

> > >> -----------------------------------------------------------

--

> -----------

> > >> Need a new ride? Check out the largest site for U.S. used

car

> > >> listings at AOL Autos

> > >> <http://autos.aol.com/used?NCID=aolcmp00300000002851>.

> > >

> >

>

April 24, 2008

----- Original Message -----

From: diatplay

We do not do milk, but is it good for some...bc I thought raw milk was supposed to be good for you if you did not have leaky gut or immune issues. Di---

====>The Weston Price Society recommends raw milk as it is antibacterial and antifungal. I have talked with more than a few mothers whose child had their first ever yeast infection when they withdrew milk, probably because milk contains lactoferrin.

Again, good food is not the problem, remember Stan said his child couldn't eat bananas, an innocent banana. Can you eat well without bananas? Sure, but bananas aren't evil, they have enzymes, vitamins and minerals that are good for you. Food is innocuous, the fault always lies with digestion as anything your child is not digesting properly is food for the yeast.

mb12 valtrex , "love3fantastickids" wrote:>> > > >> > >> Obviously, you feel strongly about different therapies for> > >> autism. > > >> > > >> I think we need to be careful though not to judge the > actions or> > >> perceived lack of action by other parents. Honestly, we > really> > >> don't know what another parent may have already tried with > his or> > >> her child. And it's not our business. I think we need to> > >> consider that someone else might look at our choices of> > >> treatments as poor ones.> > >> > > >> I've tried pretty much everything with my son, who will be > 10 in> > >> 6 weeks. No diet ever made a discernible difference for > him. > > >> Neither did enzymes. He's not on any special diet now. He > eats> > >> fairly healthy but he took cheese crackers in for snack > today. > > >> Does that make me a bad parent? I certainly don't think so.> > >> > > >> So I guess vent away here, but I wouldn't be presuming > anything> > >> where other parents are concerned. We all have extremely > tough> > >> roads to travel and we do the best we can.> > >> > > >> > > >> > > >> In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight > Time,> > >> pudgeo9999@ writes:> > >>> > >> learn in school??? I sub-teach alot in my schools > school! I> > >> was so> > >> upset today..there is a 10yr old autistic boy in the > class,> > >> this is> > >> what he ate, doritos for snack and for lunch frosted > flakes> > >> and a fruit> > >> roll up. So he ran out of the class twice and was > defiant all> > >> day..hmmm> > >> wonder why?? SO I wrote a note to the parents that I > felt his> > >> behavior> > >> was linked to the poor food choices he had today!!AM I > really> > >> off here?> > >> How can a kid learn when they are fed JUNK?> > >> Do schools ever suggest special diets to parents who > don't> > >> get it??> > >> or is that crossing the line??> > >> Thanks for letting me vent!!! > > >>> > >>> > >>> > >>> > >> ------------------------------------------------------------> -----------> > >> Need a new ride? Check out the largest site for U.S. used car> > >> listings at AOL Autos> > >> <http://autos.aol.com/used?NCID=aolcmp00300000002851>.> > >> > >> >>

April 24, 2008

There is a lot of evidence that raw dairy is very good for you. Most people handle much better than pastuerized dairy. www.westonaprice.org is a great resource to learn about raw milk. Neither of my kids (nor I) could handle pastuerized dairy. We did much better off of the stuff. But, I started making kefir out of raw milk, and we have done beautifully on it. We also do raw cheese and now plain raw milk. My kids love it and so do my pets. I've read that zoos order raw cow dairy because their animals actually get sick and die on pastuerized dairy. Humans are not an exception! Pastuerization changes milk molecules and our bodies do not know what to do with it. By the way, contrary to

popular belief, raw dairy is VERY safe if the source is organic, range fed and clean with no hormones or antibiotic use.

Jenn

Re: More Venting!Why do parents of autistic kids feed them junk...

We do not do milk, but is it good for some...bc I thought raw milk was supposed to be good for you if you did not have leaky gut or immune issues. Di> > >> > >> Obviously, you feel strongly about different therapies for> > >> autism. > > >> > >

>> I think we need to be careful though not to judge the > actions or> > >> perceived lack of action by other parents. Honestly, we > really> > >> don't know what another parent may have already tried with > his or> > >> her child. And it's not our business. I think we need to> > >> consider that someone else might look at our choices of> > >> treatments as poor ones.> > >> > > >> I've tried pretty much everything with my son, who will be > 10 in> > >> 6 weeks. No diet ever made a discernible difference for > him. > > >> Neither did enzymes. He's not on any special diet now. He > eats> > >> fairly healthy but he took cheese crackers in for snack > today. > > >> Does that make me a bad parent? I certainly don't think

so.> > >> > > >> So I guess vent away here, but I wouldn't be presuming > anything> > >> where other parents are concerned. We all have extremely > tough> > >> roads to travel and we do the best we can.> > >> > > >> > > >> > > >> In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight > Time,> > >> pudgeo9999@ writes:> > >>> > >> learn in school??? I sub-teach alot in my schools > school! I> > >> was so> > >> upset today..there is a 10yr old autistic boy in the > class,> > >> this is> > >> what he ate, doritos for snack and for lunch frosted > flakes> > >> and a fruit> > >> roll up. So he ran out of the class twice and was >

defiant all> > >> day..hmmm> > >> wonder why?? SO I wrote a note to the parents that I > felt his> > >> behavior> > >> was linked to the poor food choices he had today!!AM I > really> > >> off here?> > >> How can a kid learn when they are fed JUNK?> > >> Do schools ever suggest special diets to parents who > don't> > >> get it??> > >> or is that crossing the line??> > >> Thanks for letting me vent!!! > > >>> > >>> > >>> > >>> > >> ------------ --------- --------- --------- --------- --------- ---> -----------> > >> Need a new ride? Check out the largest site for U.S. used car> > >> listings at AOL Autos> > >> <http://autos. aol.com/used? NCID=aolcmp00300 000002851>.> > >> > >> >>

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

April 24, 2008

>

> Calm down ...I meant that I would send a note to parents that I had

> SOME relationship with already or who had noticed the big gains Matt

> had made on the diet changes...I did not mean to piss anyone off and

> I would not ahve done it if I was a sub and had one exposure to a

> student's diet. LOL. You never know when a thing you suggest is

> going to matter....it was a couple months AFTER someone suggested to

> cut out all sugar that I came to the conclusion that doing so was

> IMPERATIVE...my initial response was, What will (I put on his

> pancakes though....ha ha ha. Ah, me. So to each there own, but

> sometimes you ARE helping when you share info....Di--- In

When was diagnosed two years ago, a neighbor was talking to a

woman with 2 autistic boys at a basketball game. The woman was kind

enough to write down " gluten free/casein free " and the name of a book.

When my neighbor handed it to me, I couldn't have been more thankful.

I was able to get started with it within a few months. In the newly

diagnosed haze of medicaid application, ABA therapist hiring, and

dealing with this kid, I don't know how long it might have been until

i found the biomedical world. The docs certainly didn't bring it up.

I don't think mentioning biomed, telling about how it has helped can

be a bad thing. as long as it doesn't get preachy. at my local

support group, i've mentioned it, even presented on it when asked.

others have climbed aboard. others continue to push meds and meds

alone. i've done my part. people will do it when/if they're ready,

but in order to get ready, they have to know about it

Kari

April 25, 2008

Jenn - where do you source good raw dairy? I canot find raw goat

milk anywhere...Whole Foods has some raw cow dairy.

> > > >

> > > >> Obviously, you feel strongly about different therapies for

> > > >> autism.

> > > >>

> > > >> I think we need to be careful though not to judge the

> > actions or

> > > >> perceived lack of action by other parents. Honestly, we

> > really

> > > >> don't know what another parent may have already tried with

> > his or

> > > >> her child. And it's not our business. I think we need to

> > > >> consider that someone else might look at our choices of

> > > >> treatments as poor ones.

> > > >>

> > > >> I've tried pretty much everything with my son, who will be

> > 10 in

> > > >> 6 weeks. No diet ever made a discernible difference for

> > him.

> > > >> Neither did enzymes. He's not on any special diet now.

> He

> > eats

> > > >> fairly healthy but he took cheese crackers in for snack

> > today.

> > > >> Does that make me a bad parent? I certainly don't think

> so.

> > > >>

> > > >> So I guess vent away here, but I wouldn't be presuming

> > anything

> > > >> where other parents are concerned. We all have extremely

> > tough

> > > >> roads to travel and we do the best we can.

> > > >>

> > > >> In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight

> > Time,

> > > >> pudgeo9999@ writes:

> > > >>

> > > >> learn in school??? I sub-teach alot in my schools

> > school! I

> > > >> was so

> > > >> upset today..there is a 10yr old autistic boy in the

> > class,

> > > >> this is

> > > >> what he ate, doritos for snack and for lunch frosted

> > flakes

> > > >> and a fruit

> > > >> roll up. So he ran out of the class twice and was

> > defiant all

> > > >> day..hmmm

> > > >> wonder why?? SO I wrote a note to the parents that I

> > felt his

> > > >> behavior

> > > >> was linked to the poor food choices he had today!!AM I

> > really

> > > >> off here?

> > > >> How can a kid learn when they are fed JUNK?

> > > >> Do schools ever suggest special diets to parents who

> > don't

> > > >> get it??

> > > >> or is that crossing the line??

> > > >> Thanks for letting me vent!!!

> > > >>

> > > >> ------------ --------- --------- --------- --------- --------

- -

> --

> > -----------

> > > >> Need a new ride? Check out the largest site for U.S. used

> car

> > > >> listings at AOL Autos

> > > >> <http://autos. aol.com/used? NCID=aolcmp00300 000002851>.

> > > >

> > >

> >

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

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>

April 25, 2008

I found my source through Weston A Price - www.westonaprice.org. They have a list of suppliers/farmers by state. The farmer we use is out of PA and does offer raw goat milk - I'm sure there are more out there.

Jenn

Re: More Venting!Why do parents of autistic kids feed them junk...

Jenn - where do you source good raw dairy? I canot find raw goat milk anywhere...Whole Foods has some raw cow dairy.> > > >> > > >> Obviously, you feel strongly about different therapies for> > > >> autism. > > > >> > > > >> I think

we need to be careful though not to judge the > > actions or> > > >> perceived lack of action by other parents. Honestly, we > > really> > > >> don't know what another parent may have already tried with > > his or> > > >> her child. And it's not our business. I think we need to> > > >> consider that someone else might look at our choices of> > > >> treatments as poor ones.> > > >> > > > >> I've tried pretty much everything with my son, who will be > > 10 in> > > >> 6 weeks. No diet ever made a discernible difference for > > him. > > > >> Neither did enzymes. He's not on any special diet now. > He > > eats> > > >> fairly healthy but he took cheese crackers in for snack > > today. >

> > >> Does that make me a bad parent? I certainly don't think > so.> > > >> > > > >> So I guess vent away here, but I wouldn't be presuming > > anything> > > >> where other parents are concerned. We all have extremely > > tough> > > >> roads to travel and we do the best we can.> > > >> > > > >> > > > >> > > > >> In a message dated 4/21/2008 9:54:34 P.M. Eastern Daylight > > Time,> > > >> pudgeo9999@ writes:> > > >>> > > >> learn in school??? I sub-teach alot in my schools > > school! I> > > >> was so> > > >> upset today..there is a 10yr old autistic boy in the > > class,> > > >> this is> > > >> what

he ate, doritos for snack and for lunch frosted > > flakes> > > >> and a fruit> > > >> roll up. So he ran out of the class twice and was > > defiant all> > > >> day..hmmm> > > >> wonder why?? SO I wrote a note to the parents that I > > felt his> > > >> behavior> > > >> was linked to the poor food choices he had today!!AM I > > really> > > >> off here?> > > >> How can a kid learn when they are fed JUNK?> > > >> Do schools ever suggest special diets to parents who > > don't> > > >> get it??> > > >> or is that crossing the line??> > > >> Thanks for letting me vent!!! > > > >>> > > >>> > > >>> > >

>>> > > >> ------------ --------- --------- --------- --------- --------- -> --> > -----------> > > >> Need a new ride? Check out the largest site for U.S. used > car> > > >> listings at AOL Autos> > > >> <http://autos. aol.com/used? NCID=aolcmp00300 000002851>.> > > >> > > >> > >> >> > > > > > ____________ _________ _________ _________ _________ _________ _____________ __> Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA

cJ>

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