Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 Sue, I am sorry to say we don't have a rep at this time in New York. I know that is one of the areas they are looking to expand in the very near future. Until then you might want to call our National Office for more information. They have a nice patient pack that they will send you. It is free of charge and it has a wonderful patient and family handbook. This info might be of help to your dr as well. Jeanette von Gunten is our new patient services director. She can be reached at . If you are interested or know of someone who might want to be consider for a chapter leader or patient contact let her know as well. Hope that you are feeling better!! And your daughter is just adorable! Take Care Gail Kinsey - CVID IDF Volunteer Quote Link to comment Share on other sites More sharing options...
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