YOU are NOT blessed to have a child with DS!

[Guest guest]

Now....hold on.... I was just getting your attention. I wasn't the person who said this! I just wanted you to be aware of it... Here is the link http://tinyurl.com/5suto2 (I made it smaller so it would work) In case you would like to send a comment and tell the person why you feel 'blessed' for having your child with Ds...... This is what the person said in their blog... Please stop making me roll my eyes at you I have officially added “Garden of Eagan” to my blog checks.

The author is now urging people to send back all of the Ben Stiller movies that she owns. Except she’s not sending back the only one that she owns, which is…wait for it…The Ringer, because it “was endorsed and supported by the National Special Olympics organization.” Irony. I love it. And then today’s post is regarding a video that she and her daughter will appear in that will be broadcast on the jumbotron in Times Square. Mad props, that’s awesome! Except for this sentence: These funds are NOT for and I, but for the National Down Syndrome Society, who helps new and existing families who have members blessed with DS. I’m sorry, but there is

nothing that will ever convince me that someone is “blessed” with a disability. Definitions of blessed: 1. consecrated; sacred; holy; sanctified: the Blessed Sacrament. 2. worthy of adoration, reverence, or worship: the Blessed Trinity. 3. divinely or supremely favored; fortunate: to be blessed with a strong, healthy body; blessed with an ability to find friends. 4. blissfully happy or

contented. 5. Roman Catholic Church. beatified. 6. bringing happiness and thankfulness: the blessed assurance of a steady income. 7. Informal. damned: I’m blessed if I know. 8. Informal. (used as an intensifier): every blessed cent. And complications of Downs’ Syndrome: Heart defects. Approximately half of children with Down syndrome are born with some type of heart defect. These heart problems can be life-threatening and may require surgery in early infancy. Leukemia. Young children with Down syndrome are more likely to develop leukemia than are children who don’t have Down syndrome. Infectious diseases. Because of abnormalities in their immune systems, those with Down syndrome are much more susceptible to infectious diseases. For example, their risk of contracting pneumonia is much higher than that of others without this disorder. Dementia. Later in life, people with Down syndrome have a greatly increased risk of dementia.

Signs and symptoms of dementia often appear before age 40 in people with Down syndrome. Other problems. Down syndrome may also be associated with a variety of other health conditions, including gastrointestinal blockage, thyroid problems, hearing loss and poor vision. I don’t think that blessed and a disability of that magnitude can be used in the same sentence. So why write it in that way? The presence of a child is a blessing. Their life can, and does, enrich our own. But to in any way shape or form pretend that this is a gift to both your child and your family? I don’t get it. I have my own medical conditions that I deal with. They are not a blessing. Do they shape the course of my life and who I am? Of course. I believe that things happen for a reason. That fate does exist. But it doesn’t mean you view everything as a gift from God. So, please, stop

writing things that make me roll my eyes. Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com

[Guest guest]

All comments await moderation !! As of writing this post there are no responses published and I am sure there are very many people who have written them.

How likely is it that our responses will be published ?? Is there any point ?? My grandmother had a favourite saying " you cant teach a pig sing" . For me that sums up this situation.

This person simply does not have a clue and never will . I advising sticking to discussing beer and other similar areas of expressed expertise. There may be some knowledge on that topic !!

[DownSyndromeInfoExchange] YOU are NOT blessed to have a child with DS!

Now....hold on.... I was just getting your attention.

I wasn't the person who said this! I just wanted you to be aware of it...

Here is the link http://tinyurl.com/5suto2 (I made it smaller so it would work) In case you would like to send a comment and tell the person why you feel 'blessed' for having your child with Ds......

This is what the person said in their blog...

Please stop making me roll my eyes at you

I have officially added “Garden The author is now urging people to send back all of the Ben Stiller movies that she owns. Except she’s not sending back the only one that she owns, which is…wait for it…The Ringer, because it “was endorsed and supported by the National Special Olympics organization.”

Irony. I love it.

And then today’s post is regarding a video that she and her daughter will appear in that will be broadcast on the jumbotron in Times Square. Mad props, that’s awesome! Except for this sentence:

These funds are NOT for and I, but for the National Down Syndrome Society, who helps new and existing families who have members blessed with DS.

I’m sorry, but there is nothing that will ever convince me that someone is “blessed” with a disability. Definitions of blessed:

1.

consecrated; sacred; holy; sanctified: the Blessed Sacrament.

2.

worthy of adoration, reverence, or worship: the Blessed Trinity.

3.

divinely or supremely favored; fortunate: to be blessed with a strong, healthy body; blessed with an ability to find friends.

4.

blissfully h contented.

5.

Roman Catholic Church. beatified.

6.

bringing happiness and thankfulness: the blessed assurance of a steady income.

7.

Informal. damned: I’m blessed if I know.

8.

Informa Signs and symptoms of dementia often appear before age 40 in people with Down syndrome. Other problems. Down syndrome may also be associated with a variety of other health conditions, including gastrointestinal blockage, thyroid problems, hearing loss and poor vision.

I don’t think that blessed and a disability of that magnitude can be used in the same sentence.

So why write it in that way? The presence of a child is a blessing. Their life can, and does, enrich our own. But to in any way shape or form pretend that this is a gift to both your child and your family? I don’t get it.

I have my own medical conditions that I deal with. They are not a blessing. Do they shape the course of my life and who I am? Of course. I believe that things happen for a reason. That fate does exist. But it doesn’t mean you view everything as a gift from God.

So, please, stop writing things that make me roll my eyes.

Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com

[Guest guest]

Kristy, Are you SURE this person is saying that the CHILD is not a blessing???That is not how I read the post- they seem to be saying that down syndrome is not a blessing, but the child IS-"I don¢t think that blessed and a disability of that magnitude can be used in the same sentence. So

why write it in that way? The presence of a child is a blessing. Their

life can, and does, enrich our own. But to in any way shape or form

pretend that this( down syndrome) is a gift to both your child and your family?"I would have to agree that Down Syndrome is NOT a blessing. IS a blessing, but not because she has DS, because she a person. The DS has enriched our lives, as any challenge does, but I would never go so far as to say that Down Syndrome is a blessing. Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - http://health.groups.yahoo.com/group/DownSyndromeInfoExchange/ Listen to oldest dd's music http://www.myspace.com/vennamusic_

[Guest guest]

I added this comment to the ignorance...wow, so much proof that we need a positive ability awareness campaign!

The reason the request to send back Dreamworks films is because they use the word 'Retarded' as an insult, as a slur AND because McConnaey's character in the movie Tropic Thunder comments that he's 'stuck' with his child who appears disabled in a photo. These images are completely damaging to people with intellectual disabilities and sets them up for bullying and hate crimes. Definition of Retarded: slow or limited in intellectual or emotional development or academic progress----It's pretty demeaning when it is used as an insult. I prefer blessing, because my son IS a blessing because he is my child. And simply being a human being comes with it many possible complications, top of your list is ignorance and the seeming need to take a percieved blessing away. So, please stop making me toss my Cherrios, you have a choice to not roll your eyes.

, Mom to 14, DS, Southern CaliforniaTo succeed in life,you need three things:a wishbone, a backbone and a funny bone.~ Reba McIntyre

Diagnosis Down Syndrome: A Site of Hope for New Parents or Parents with a Prenatal Diagnosishttp://www.leeworks.net/DDS/What to Say to Parents of a Child with a Diagnosishttp://www.leeworks.net/DDS/speech.html

[DownSyndromeInfoExchange] YOU are NOT blessed to have a child with DS!

Now....hold on.... I was just getting your attention.

I wasn't the person who said this! I just wanted you to be aware of it...

Here is the link http://tinyurl.com/5suto2 (I made it smaller so it would work) In case you would like to send a comment and tell the person why you feel 'blessed' for having your child with Ds......

This is what the person said in their blog...

Please stop making me roll my eyes at you

I have officially added “Garden of Eagan” to my blog checks. The author is now urging people to send back all of the Ben Stiller movies that she owns. Except she’s not sending back the only one that she owns, which is…wait for it…The Ringer, because it “was endorsed and supported by the National Special Olympics organization.”

Irony. I love it.

And then today’s post is regarding a video that she and her daughter will appear in that will be broadcast on the jumbotron in Times Square. Mad props, that’s awesome! Except for this sentence:

These funds are NOT for and I, but for the National Down Syndrome Society, who helps new and existing families who have members blessed with DS.

I’m sorry, but there is nothing that will ever convince me that someone is “blessed” with a disability. Definitions of blessed:

1.

consecrated; sacred; holy; sanctified: the Blessed Sacrament.

2.

worthy of adoration, reverence, or worship: the Blessed Trinity.

3.

divinely or supremely favored; fortunate: to be blessed with a strong, healthy body; blessed with an ability to find friends.

4.

blissfully happy or contented.

5.

Roman Catholic Church. beatified.

6.

bringing happiness and thankfulness: the blessed assurance of a steady income.

7.

Informal. damned: I’m blessed if I know.

8.

Informal. (used as an intensifier): every blessed cent.

And complications of Downs’ Syndrome:

Heart defects. Approximately half of children with Down syndrome are born with some type of heart defect. These heart problems can be life-threatening and may require surgery in early infancy. Leukemia. Young children with Down syndrome are more likely to develop leukemia than are children who don’t have Down syndrome. Infectious diseases. Because of abnormalities in their immune systems, those with Down syndrome are much more susceptible to infectious diseases. For example, their risk of contracting pneumonia is much higher than that of others without this disorder. Dementia. Later in life, people with Down syndrome have a greatly increased risk of dementia. Signs and symptoms of dementia often appear before age 40 in people with Down syndrome. Other problems. Down syndrome may also be associated with a variety of other health conditions, including gastrointestinal blockage, thyroid problems, hearing loss and poor vision.

I don’t think that blessed and a disability of that magnitude can be used in the same sentence.

So why write it in that way? The presence of a child is a blessing. Their life can, and does, enrich our own. But to in any way shape or form pretend that this is a gift to both your child and your family? I don’t get it.

I have my own medical conditions that I deal with. They are not a blessing. Do they shape the course of my life and who I am? Of course. I believe that things happen for a reason. That fate does exist. But it doesn’t mean you view everything as a gift from God.

So, please, stop writing things that make me roll my eyes.

Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com

[Guest guest]

Carol,

With all due respect, I would have to disagree with you. I'm not saying that you are wrong to think the way you do, rather I am just giving a different perspective. What I am saying is that I believe that God gave my dd an extra chromosome for a reason, on purpose. I believe one of those reasons was to change hearts and to teach. She has taught my family so much and continually reminds us what is truly important in this life. Part of that reminding comes from the fact that she has a cognitive disability - and yet, she still has dignity and worth. I believe that God has a plan and that He doesn't make mistakes. If you take DS out of this world, would the world be a better place or a worse place? I think the later. Many people on this planet who have a disability are here to teach us. They have taught us perseverance, courage, diligence, humility and most of all, unconditional love. In fact, I spend a great deal of my time trying to teach my other children some of those virtues.... makes all easier for my family. Oh...and don't forget patience (that one's for me) LOL. So, is my daughter a blessing? Absolutely. Is the Ds a blessings? I would also have to answer, yes, it is. I would not change her if I could. Will I continue to provide therapy to help her to learn to the best of her ability? Yes. Just as I do my other children. I know that this may not be a popular opinion here, but that is how I feel. Thanks for allowing me to explain myself on this group .

NOTE*** I am NOT talking about medical issues. I would never say that, in general, medial issues are a blessing. My dd happens to be perfectly healthy at the moment, thank God. She did require OHS at six months. I'm not talking about that. Any child can have medical issues, and that is always tough. I do not want my child to have Alzheimer's as she ages, and I will do anything I can to prevent that. But that is not DS to me.

Many blessings,

Kris

From: Carol in IL

Sent: Friday, August 15, 2008 8:51 AM

To: DownSyndromeInfoExchange ; dsalf

Subject: Re: [DownSyndromeInfoExchange] YOU are NOT blessed to have a child with DS!

Kristy, Are you SURE this person is saying that the CHILD is not a blessing???That is not how I read the post- they seem to be saying that down syndrome is not a blessing, but the child IS-"I don¢t think that blessed and a disability of that magnitude can be used in the same sentence. So why write it in that way? The presence of a child is a blessing. Their life can, and does, enrich our own. But to in any way shape or form pretend that this( down syndrome) is a gift to both your child and your family?"I would have to agree that Down Syndrome is NOT a blessing. IS a blessing, but not because she has DS, because she a person. The DS has enriched our lives, as any challenge does, but I would never go so far as to say that Down Syndrome is a blessing.

Carol in IL

AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me.

Join our Down Syndrome information group -

http://health.groups.yahoo.com/group/DownSyndromeInfoExchange/

Listen to oldest dd's music http://www.myspace.com/vennamusic

_

[Guest guest]

I have to agree with Carol - in some cases, DS is a real hardship.

I have heard a comment about a mom with a teenage son in Chicago

area who said to an acquaintance of mine " You have no idea what I go

through " and I believe it. It depends on how severe the disability

is.

Marsha

Carol in IL wrote:

>

> Kristy,

>

> Are you SURE this person is saying that the CHILD is not a

blessing???

> That is not how I read the post- they seem to be saying that down

syndrome is not a blessing, but the child IS-

>

> " I don¢t think that blessed and a disability of that magnitude can

be used in the same sentence. So

> why write it in that way? The presence of a child is a blessing.

Their

> life can, and does, enrich our own. But to in any way shape or form

> pretend that this( down syndrome) is a gift to both your child and

your family? "

>

>

> I would have to agree that Down Syndrome is NOT a blessing.

IS a blessing, but not because she has DS, because she a

person. The DS has enriched our lives, as any challenge does, but I

would never go so far as to say that Down Syndrome is a blessing.

>

>

> Carol in IL

>

> AIM doihavtasay1 GigaTribe doihavtasay

> Mom to seven including , 7 with TOF, AVcanal, GERD, LS,

Asthma, subglottal stenosis, and DS.

>

> My problem is not how I look. It's how you see me.

>

>

> Join our Down Syndrome information group -

> http://health.groups.yahoo.com/group/DownSyndromeInfoExchange/

>

> Listen to oldest dd's music http://www.myspace.com/vennamusic

>

>

>

> _

>

[Guest guest]

I think the presence of a clhild is always a blessing, with or without down

sindrome. The desability isn't the blessig, the child is.But I understand

that some things in down syndrome or another desability may be very

difficult for the family and to person with desability.

My opinion is about my experience only with my children, all oh them.

I am brasiliam and we have many problems here about poorness, also

the acessibility is not so real at this time, but I think we all together

can improve this society.For many people a child with desability must

be a big problem because the conditons,and so many things, and anyway

people are different. but what I mean about blessing is life is always a blessing

so all the children are blessed or should be...

I'd like to talk with the group more but my english isn't good, so sorry

for my mistakes and I hope you understand what I mean.

Mom to Raquel 10 DS,, Tali and

To: DownSyndromeInfoExchange From: mscheitlin@...Date: Sat, 16 Aug 2008 14:53:04 +0000Subject: [DownSyndromeInfoExchange] Re: YOU are NOT blessed to have a child with DS!

I have to agree with Carol - in some cases, DS is a real hardship. I have heard a comment about a mom with a teenage son in Chicago area who said to an acquaintance of mine "You have no idea what I go through" and I believe it. It depends on how severe the disability is. MarshaCarol in IL wrote:>> Kristy,> > Are you SURE this person is saying that the CHILD is not a blessing???> That is not how I read the post- they seem to be saying that down syndrome is not a blessing, but the child IS-> > "I don¢t think that blessed and a disability of that magnitude can be used in the same sentence. So> why write it in that way? The presence of a child is a blessing. Their> life can, and does, enrich our own. But to in any way shape or form> pretend that this( down syndrome) is a gift to both your child and your family?"> > > I would have to agree that Down Syndrome is NOT a blessing. IS a blessing, but not because she has DS, because she a person. The DS has enriched our lives, as any challenge does, but I would never go so far as to say that Down Syndrome is a blessing.> > > Carol in IL > > AIM doihavtasay1 GigaTribe doihavtasay> Mom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.> > My problem is not how I look. It's how you see me.> > > Join our Down Syndrome information group - > http://health.groups.yahoo.com/group/DownSyndromeInfoExchange/> > Listen to oldest dd's music http://www.myspace.com/vennamusic> > > > _> Conheça já o Windows Live Spaces, o site de relacionamentos do Messenger! Crie já o seu!

[Guest guest]

, I understood you perfectly! Please do talk more, I have horrible english too and it's my only language.....you know two!! That impresses me right off. :-) Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - http://health.groups.yahoo.com/group/DownSyndromeInfoExchange/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----To: downsyndromeinfoexchange Sent: Saturday, August 16, 2008 12:05:22 PMSubject: RE: [DownSyndromeInfoExchange] Re: YOU are NOT blessed to have a child with DS!

I think the presence of a clhild is always a blessing, with or without down

sindrome. The desability isn't the blessig, the child is.But I understand

that some things in down syndrome or another desability may be very

difficult for the family and to person with desability.

My opinion is about my experience only with my children, all oh them.

I am brasiliam and we have many problems here about poorness, also

the acessibility is not so real at this time, but I think we all together

can improve this society.For many people a child with desability must

be a big problem because the conditons,and so many things, and anyway

people are different. but what I mean about blessing is life is always a blessing

so all the children are blessed or should be...

I'd like to talk with the group more but my english isn't good, so sorry

for my mistakes and I hope you understand what I mean.

Mom to Raquel 10 DS,, Tali and

To: DownSyndromeInfoExc hange@yahoogroup s.comFrom: mscheitlinverizon (DOT) netDate: Sat, 16 Aug 2008 14:53:04 +0000Subject: [DownSyndromeInfoEx change] Re: YOU are NOT blessed to have a child with DS!

I have to agree with Carol - in some cases, DS is a real hardship. I have heard a comment about a mom with a teenage son in Chicago area who said to an acquaintance of mine "You have no idea what I go through" and I believe it. It depends on how severe the disability is. MarshaCarol in IL <ps1272000@. ..> wrote:>> Kristy,> > Are you SURE this person is saying that the CHILD is not a blessing???> That is not how I read the post- they seem to be saying that down syndrome is not a blessing, but the child IS-> > "I don¢t think that blessed and a disability of that magnitude can be used in the same sentence. So> why write it in that way? The presence of a child is a blessing. Their> life can, and does, enrich our own. But to in any way shape or form> pretend that this( down syndrome) is a gift to both your child and your

family?"> > > I would have to agree that Down Syndrome is NOT a blessing. IS a blessing, but not because she has DS, because she a person. The DS has enriched our lives, as any challenge does, but I would never go so far as to say that Down Syndrome is a blessing.> > > Carol in IL > > AIM doihavtasay1 GigaTribe doihavtasay> Mom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.> > My problem is not how I look. It's how you see me.> > > Join our Down Syndrome information group - > http://health. groups.yahoo. com/group/ DownSyndromeInfo Exchange/> > Listen to oldest dd's music http://www.myspace. com/vennamusic> > > > _> Conheça já o Windows Live Spaces, o site de relacionamentos do Messenger! Crie já o seu!