Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 We have started on a supplement called ProBio. It creates the environment necessary in your gut in order to support all 19 species of beneficial gut flora. You can buy it at www.precisionherbs.com. It comes in a liquid that doesn't taste bad in juice. Dr. Overman is the dr that created this supplement. He believes that instead of TAKING probiotics, you can grow your own if you have the proper environment for them to flourish. > > > > > > > > Hi > > > > > > > > My son just turned two. We have had some success using GF/CF/SF > > > diet > > > > and many supplements. We also had started the Cutler protocol > > with > > > > lots of gains. Took a small break after finding my sons zinc > > levels > > > > were very low. The test was done before we started chelating. > Now > > > > having major gut issues, bacteria not yeast ( not because of > > > > chelation ) this has been getting worse and worse for 4 months > > > now.He > > > > is on Nystatin. Our GI doc recommends a endoscopy and > > sigmoidoscopy > > > > ugggh. So thats a bit of background. > > > > > > > > We started 3 days ago giving my son one drop of OLE 2 times a > > day. > > > > Trying to use something different than uva ursi for bacteria. > He > > is > > > > on lots of good probiotics which are not colonizing. He has > > hardly > > > > any beneficial bacteria per stool test...Anyways today he woke > up > > > > with a rash on and around his lips. Its not horrible but he > never > > > has > > > > had any kind of rash ( even on his rear end lol ) > > > > > > > > I cant quite make out if they are like cold sores as cold sores > > > > usually are not weepie in the beginning. The ones on his lips > do > > > look > > > > a bit raised. I put 2 photos in the photos files if anyone > would > > > like > > > > to give me some input. They are under Elijah B. Oh but they > have > > > not > > > > been approved yet. > > > > > > > > Thanks so much for any advice. Should I keep going? Not sure if > > > this > > > > is common with OLE? > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2008 Report Share Posted July 2, 2008 That is what I am concerned about. THE ENVIRONMENT. For her, I question whether anything is taking. We did the 20 billion INNATE for 2 months. I thought I saw stuff in the beginning but then ran out and decided to try something I purchased @ Earthfare. It had 70 billion per cap. I ended up giving her 2 a day after 3 days. I saw nothing. Now we are trying VSL3. She is smearing in her panties. I always have to give her Oxypowder capsules and alot to get her to go 2x a week. She is severe and finding out that her gut has been like this for 14 years tells me that it may take time. I am considering a diet change. She has been GF/YF since March. Now her DAn and Dr. G wants her to do low carb due to HIGH triglycerides. She only eats 5 foods as it is. I have really stressed out over all this going on and need to slow down in order to find out what will be best for her. This one says this on this group....another says that on another group....I have to think of what is best overall. Shanna -- In mb12 valtrex , " kbelmquist " wrote: > > We have started on a supplement called ProBio. It creates the > environment necessary in your gut in order to support all 19 species > of beneficial gut flora. You can buy it at www.precisionherbs.com. > It comes in a liquid that doesn't taste bad in juice. Dr. Overman is > the dr that created this supplement. He believes that instead of > TAKING probiotics, you can grow your own if you have the proper > environment for them to flourish. > > > > > > > > > > > > > > > Hi > > > > > > > > > > My son just turned two. We have had some success using > GF/CF/SF > > > > diet > > > > > and many supplements. We also had started the Cutler protocol > > > with > > > > > lots of gains. Took a small break after finding my sons zinc > > > levels > > > > > were very low. The test was done before we started chelating. > > Now > > > > > having major gut issues, bacteria not yeast ( not because of > > > > > chelation ) this has been getting worse and worse for 4 > months > > > > now.He > > > > > is on Nystatin. Our GI doc recommends a endoscopy and > > > sigmoidoscopy > > > > > ugggh. So thats a bit of background. > > > > > > > > > > We started 3 days ago giving my son one drop of OLE 2 times a > > > day. > > > > > Trying to use something different than uva ursi for bacteria. > > He > > > is > > > > > on lots of good probiotics which are not colonizing. He has > > > hardly > > > > > any beneficial bacteria per stool test...Anyways today he > woke > > up > > > > > with a rash on and around his lips. Its not horrible but he > > never > > > > has > > > > > had any kind of rash ( even on his rear end lol ) > > > > > > > > > > I cant quite make out if they are like cold sores as cold > sores > > > > > usually are not weepie in the beginning. The ones on his lips > > do > > > > look > > > > > a bit raised. I put 2 photos in the photos files if anyone > > would > > > > like > > > > > to give me some input. They are under Elijah B. Oh but they > > have > > > > not > > > > > been approved yet. > > > > > > > > > > Thanks so much for any advice. Should I keep going? Not sure > if > > > > this > > > > > is common with OLE? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2008 Report Share Posted July 3, 2008 Oh, hon...ouch. I am so sorry for all of it - what a nightmare...BUT I can tell you that the smearing thing is answered in Konstantin's stuff - that fecal incontinence is due to the insoluble fiber in the oxypowder...it had the same effect on my duaghter and K said stop that immediately...but in her case she had not been on it that long...the smears went awy in two and half weeks - it took that long though she only took it twice! " Soluble fiber takes a good ling while to work its way out of a weak or injured intestinal system - that's why for healing it must be avoided at all costs and in all foods, per K. So your d is much older and may require fiber supp to move now or she may be able to use the hydro c and not need to the fiber - K would know and is likely to answer such a specific question. If a product is not a match he will not steer you to it - Matt uses only one of the things he distributes and he told us not to get others like the intestinal flora bc Matt does not have a gut that requires it...healing GIs is his passion and he isn;t into selling things people cannot use. He helped Beth o this list too....to FINALLY pull apples. Bam rsults within 24 hours - it will be even better for her and her son once the damage from those apples begins to reverse itself and her son's gut heals an dcan start getting nutrition on board again, per him. Removing the ofending items is only the first step...and the results from positive changes are not always immediate - the healing, the actual healing, is never immediate with gut stuff. " Your body desires to heal. Never forget that. " K has a good friend who is quadrapalegic and has no anorectal sensitivity and he has helped him with his " issues " so there must be strategies, even if she is permanently injured in this part of her physiology. Yes, take her low carb if that is what G advises, it is what K advocates too, he is almost no carb, personally...but eats and recs white rice with lots of fat to get fat in for the absorption of vits and minerals and bc is usually well-liked, well digested, and satisfies the hunger while the gut is healing. Matt will not eat rice, if your dd will - good. It is his am recommendation. No snacks so she isn;t digesting all day. Lunch - rice again, and dinner protein for heling and rebuilding while she sleeps - this is the best time for someone who is sick like our kids to do their digesting. Supplement for nutirtion for now, per him. Get The Fiber Menace book and read the protocols for easing the stress of transition to a very low carb and no carb lifestyle as these are the same things that will work to restore your dd gut from its injuries- it explains how and what to do. It takes 2-3 days for stools to form and if she is on a low density liet - all explained in the book - there will no longer be all the fiber creating the bulk of what she passes and leaving some unpassed to further injure her gut and make it an inhospitable place for the good bacteria to grow and colonize - fiber that is undigested in a weak gut disrupts the absorption of nutrition as well as the proper colonization by good bacteria. Stools are almost 75% dead bacteria in healthy guts - our kids do not have robust flora and you are not going to see those stools for a long time, if ever. Oxypowder is really milk of mylanta - just $$ per K, with a couple of useless but fancy sounding ingredients so they can charge a bunch...it is really a trick having nothing to do with oxygen at all - just old fashioned soluble fiber and ingredients that work like a laxative...better to give magnesium or milk of magneium, much cheaper, exact same effect...but magnesium should not be given for extended periods of time - also could be why you cannot colonize her...we are using his hydro c right now with Matt and I use it on myself and I have been able to go very low carb without constipation or creating an IBS type dilemma for myself. It is not a laxative and it is not a fiber supp...it is what people like his friend who are permanently injured can use safely and others like those with diabetic nerve damage and others with damage from fiber supps creating the need to just use more and more of such things...which is BAD bc she cannot get nutrition right now, the fiber in the oxypowder hurts, and other fiber supps like psylium REALLY HURT and injure the guts and anuses of those who use them....he lays down the whole medical school and fiber as a rec treatment strategy for constipation and IBS etc in his book - this is all recent and bad medicine...and reallly bad for OUR kids, per K. Your dd cannot heal her gut to begin producing the b and k vits again if you continue giving soluble fiber, more and more of it...as for a limited diet, K is on one of the most limited I have ever heard of and by choice...limit it to GOOD for her things and he will tell you, great, much better for healing...he eats lamb at dinner, hardly any vegetables whatsoever bc of his own gut injuries and he gets his vits and minerals from meat and fat - odd to our generation , but absolutely commonplace in previous ones esp in Russia and other places wehre weather conditions forced this lifestyle...nobody muches oranges in the Ukraine in December - or did, and people there live into their hundreds, stong and healthy for their ages. Stan's kid did great on the Paleo diet - probably bc he did NOT have a bunch of undigested fiber from veggies mucking things up - only useful to healthy guts that can greak it down into useable nutrition, not good for our kids...I stopped green beans and broccoli for now and Matt's stools improved, inflamation reduced - go figure! Some white rice with lots of raw butter, an omelet now and then...that's what he eats and all his info about whjat he calls ageless nutrition is covered on his site. In many places like Sardinia or Soviet Georgia diets are very limited and people live into their 100s - healthy....there is SO much misinformation about diet, nutrition and how our guts really work. He likes Pro Stat 64, but we have not used it for Matt yet..which annoys him bc he thinks we should be addressing the low muscle tone now as it is not a sign of autism, but of acute malnutrition and malabsorption....there is hope for your daughter as you learn more about that specific part of her body and how it functions...even if she needs hydro c bc of illness or injury for the rest of her life she will not be on harmful laxatives or damaging fiber - and she will start to absorb the nutrition in the foods you feed...flora WILL be able to colonize, though not right away, but it will - she is alive and her body wants to heal. K wants Matt on rice cakes - he would prefer rice actually, white, with lots of good fat on it...if butter is out on G's protocol you could perhaps use garlic and olive oil and a bit of sea salt to make it yummy...no bread even though G allows bc K says stay away from gluten in all forms for now and casein as well until the flora is there to deal with the casein so as to avoid fermentation - her gut isn't leaky, its sterile most likely. He says ghee could work though - and he much prefers butter fat to olive oil bc butter has the highest concentration of water soluble vit a and d - more than CLO in fact. make the last meal of her day the protein one...lamb meatballs, chicken, beef if she will eat it - ground will be easier to digest than a steak of course... " use some common sense " he says...the protein at night so that it is there for healing and rebuilding and not interfereing with learning and activity during the day - don;t distract her with digestion during the day...probiotics on an ampty stomache in the am after Hydro c in any liquid...and you also may be trying the oxypodwetr before theri si really anything to move - 2-3 days to form stools esp after using something like any of these things to liquify impacted ones and move them out. Between G's antiviral therapy for her brain and other viral affected organs and K's help with her gut and bowels...you have every reason to hope, mom. She is alive and her body wants to heal itself...so stoip feeding her anything " healthy " she cannot digest, per him...we yanked apples and it DID make a big difference...they do not feed the yeast, but Matt has an injured and inflammed gut and the pectin in them was extremely irritating to the villi in his small intestine...it is not healthy or needed if it is not digested and assisting her in her recovery...best thing you can do is esy to digest brk pro stat 64 and protein meal at night, try the anorectal recovery program - or simply wait on that - some people and he explains who cannot recover their ability to go without assistance bc of injuries and nerve damage and he is one of those people die to an illness, so he understands and also understands why those people especially CANNOT do fiber long term and create other woes for themselves like innaproriate weight gain, increasing malabsorption issues requiring more and more supplementation over the years...he believes in som supps, but not megadoisn and nothing manufactured in places like china and sold over the counter in most stores bc of quality control etc....his site, FIber Menace, and his book by the same name will help you turn arund MANY things in your daughter...I read stories on the SCD site about parents of much oler very affected kids who were helped enormously by that diet strategy..this very simplified one 2 to three meals a day, no snacks until healing bc you do not want to set the body's peristaltic ations in motion making these kids zombies bc they are really just little digesting machines 24/7...all his stuff will start to put importatn pieces of your d's puzzle together. I wihs you luck and your daughter and full recovery - why not? This is illness that we are looking at, not autism, and you have a good doctor and now help on the gut front too...it is going to get better...it is going to take at least three to six months or longer to really reverse the gut damage and see things start to turn around. THe body desires to heal itself, enable it, mom. Di > > > > > > > > > > > > Hi > > > > > > > > > > > > My son just turned two. We have had some success using > > GF/CF/SF > > > > > diet > > > > > > and many supplements. We also had started the Cutler > protocol > > > > with > > > > > > lots of gains. Took a small break after finding my sons > zinc > > > > levels > > > > > > were very low. The test was done before we started > chelating. > > > Now > > > > > > having major gut issues, bacteria not yeast ( not because > of > > > > > > chelation ) this has been getting worse and worse for 4 > > months > > > > > now.He > > > > > > is on Nystatin. Our GI doc recommends a endoscopy and > > > > sigmoidoscopy > > > > > > ugggh. So thats a bit of background. > > > > > > > > > > > > We started 3 days ago giving my son one drop of OLE 2 times > a > > > > day. > > > > > > Trying to use something different than uva ursi for > bacteria. > > > He > > > > is > > > > > > on lots of good probiotics which are not colonizing. He has > > > > hardly > > > > > > any beneficial bacteria per stool test...Anyways today he > > woke > > > up > > > > > > with a rash on and around his lips. Its not horrible but he > > > never > > > > > has > > > > > > had any kind of rash ( even on his rear end lol ) > > > > > > > > > > > > I cant quite make out if they are like cold sores as cold > > sores > > > > > > usually are not weepie in the beginning. The ones on his > lips > > > do > > > > > look > > > > > > a bit raised. I put 2 photos in the photos files if anyone > > > would > > > > > like > > > > > > to give me some input. They are under Elijah B. Oh but they > > > have > > > > > not > > > > > > been approved yet. > > > > > > > > > > > > Thanks so much for any advice. Should I keep going? Not > sure > > if > > > > > this > > > > > > is common with OLE? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 this has the strep strain in it, so if you have a PANDAS kid watch careful with this one Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes Re: Sterile Gut - Here's a solution!! We have started on a supplement called ProBio. It creates the environment necessary in your gut in order to support all 19 species of beneficial gut flora. You can buy it at www.precisionherbs.com. It comes in a liquid that doesn't taste bad in juice. Dr. Overman is the dr that created this supplement. He believes that instead of TAKING probiotics, you can grow your own if you have the proper environment for them to flourish.> > > >> > > > Hi> > > > > > > > My son just turned two. We have had some success using GF/CF/SF > > > diet > > > > and many supplements. We also had started the Cutler protocol > > with > > > > lots of gains. Took a small break after finding my sons zinc > > levels > > > > were very low. The test was done before we started chelating. > Now > > > > having major gut issues, bacteria not yeast ( not because of > > > > chelation ) this has been getting worse and worse for 4 months > > > now.He > > > > is on Nystatin. Our GI doc recommends a endoscopy and > > sigmoidoscopy > > > > ugggh. So thats a bit of background.> > > > > > > > We started 3 days ago giving my son one drop of OLE 2 times a > > day. > > > > Trying to use something different than uva ursi for bacteria. > He > > is > > > > on lots of good probiotics which are not colonizing. He has > > hardly > > > > any beneficial bacteria per stool test...Anyways today he woke > up > > > > with a rash on and around his lips. Its not horrible but he > never > > > has > > > > had any kind of rash ( even on his rear end lol ) > > > > > > > > I cant quite make out if they are like cold sores as cold sores > > > > usually are not weepie in the beginning. The ones on his lips > do > > > look > > > > a bit raised. I put 2 photos in the photos files if anyone > would > > > like > > > > to give me some input. They are under Elijah B. Oh but they > have > > > not > > > > been approved yet. > > > > > > > > Thanks so much for any advice. Should I keep going? Not sure if > > > this > > > > is common with OLE? > > > > > > > > > > > > > > > >> > >> >> No virus found in this incoming message.Checked by AVG. Version: 8.0.134 / Virus Database: 270.4.4/1532 - Release Date: 7/3/2008 8:32 AM Quote Link to comment Share on other sites More sharing options...
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