3-D Brain Scans/Are they worth it??

[Guest guest]

My 10 yr old has had PANDAS for 17 months with no relief in site! My

DAN! Dr suggested this may be really helpful and could really help with

treatment esp if it shows brain inflammation. I am at my wits end..my

son has had 2 IVIG's and he seems to get worse to me all the time! His

concentration and retention are horrible. Have anyother parents done

this???

[Guest guest]

Suggest doing brain scan with 24 hour EEG

Subject: 3-D Brain Scans/Are they worth it??To: mb12 valtrex Date: Monday, July 14, 2008, 7:29 PM

My 10 yr old has had PANDAS for 17 months with no relief in site! My DAN! Dr suggested this may be really helpful and could really help with treatment esp if it shows brain inflammation. I am at my wits end..my son has had 2 IVIG's and he seems to get worse to me all the time! His concentration and retention are horrible. Have anyother parents done this???

[Guest guest]

My son has had 3 eeg's and a 24 hr VEEG all were abnormal...but did

not show seizures//

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>

> Subject: 3-D Brain Scans/Are they worth it??

> To: mb12 valtrex

> Date: Monday, July 14, 2008, 7:29 PM

>

>

>

>

>

>

> My 10 yr old has had PANDAS for 17 months with no relief in site!

My

> DAN! Dr suggested this may be really helpful and could really help

with

> treatment esp if it shows brain inflammation. I am at my wits

end..my

> son has had 2 IVIG's and he seems to get worse to me all the time!

His

> concentration and retention are horrible. Have anyother parents

done

> this???

>

[Guest guest]

We recently did 3D SPECT scans on our twins. Just got the report a

few days ago but it does offer some better understanding of problems

with blood flow in the brain (primarily in temporal lobes which

happens to be where most of the EEG abnormalities show up). Cost was

$2500 each including anesthesiologist's fee. I may not have done it

if not covered by insurance but it was preauthorized and we did it in-

network at Santa Imaging (Dr. Uszler).

Our reports do not refer to inflammation, although I suspect that is

was is decreasing flow within the temporal lobes.

Vance

>

> My 10 yr old has had PANDAS for 17 months with no relief in site! My

> DAN! Dr suggested this may be really helpful and could really help

with

> treatment esp if it shows brain inflammation. I am at my wits

end..my

> son has had 2 IVIG's and he seems to get worse to me all the time!

His

> concentration and retention are horrible. Have anyother parents done

> this???

>

[Guest guest]

Read the attached. It provides one reason for obtaining an MRI:

http://abcnews.go.com/GMA/OnCall/story?id=4882297 & page=1

Subject: Re: 3-D Brain Scans/Are they worth it??To: mb12 valtrex Date: Monday, July 14, 2008, 10:23 PM

My son has had 3 eeg's and a 24 hr VEEG all were abnormal...but did not show seizures//> > From: pudgeo9999 <pudgeo9999@ ...>> Subject: 3-D Brain Scans/Are they worth it??> To: mb12 valtrex@ yahoogroups. com> Date: Monday, July 14, 2008, 7:29 PM> > > > > > > My 10 yr old has had PANDAS for 17 months with no relief in site! My > DAN! Dr suggested this may be really helpful and could really help with > treatment esp if it shows brain inflammation. I

am at my wits end..my > son has had 2 IVIG's and he seems to get worse to me all the time! His > concentration and retention are horrible. Have anyother parents done > this??? >

[Guest guest]

Thanks for the comments! My son has had 2 MRI's this year that came

back normal..MRI's cannot be relied upon to show brain inflammation.

I appreciate all the help with this...

> >

> > From: pudgeo9999 <pudgeo9999@ ...>

> > Subject: 3-D Brain Scans/Are they worth it??

> > To: mb12 valtrex@ yahoogroups. com

> > Date: Monday, July 14, 2008, 7:29 PM

> >

> >

> >

> >

> >

> >

> > My 10 yr old has had PANDAS for 17 months with no relief in site!

> My

> > DAN! Dr suggested this may be really helpful and could really

help

> with

> > treatment esp if it shows brain inflammation. I am at my wits

> end..my

> > son has had 2 IVIG's and he seems to get worse to me all the

time!

> His

> > concentration and retention are horrible. Have anyother parents

> done

> > this???

> >

>