Re: MB12, GFCF diet - no change.....at all :(

[Guest guest]

Chris:

Don't get caught up in science. I have a Master's Degree in Science. I have done hundred of scientific studies. Thus, I can read them, do them, and pick them apart. For nearly every scientific study that says there is no difference in A plus B, there will be a scientific study that says basically the opposite. There are even scientific studies that say most scientific studies are biased and not credible. Thus, realize that science is always changing its mind, does not have many answers, and is not very reliable and valid. Do you really trust science now that you come on this Internet and see a whole different world than what the media and your local doctor portrays? I still look at scientific reports, but know I recovered my child based on parental reports. I trusted them; they have no money to make. They don't represent a company; they are just people on a journey. People on these forums told me what works, how to do things, what to expect, etc. They also gave me links and pointed me to websites that were priceless. But the bottom line is, are you going to believe a bunch of scientists who have already let us all down, or you going to believe people like me who have kids in regular school after their docs said NOTHING could be done for them. Take the word of those who have had success. If you look for a study that says Z works, you will find it. If you look for a study that says Z doesn't work, you will find that too. You will find whatever you are looking for. If you are looking for recovery, ask those who are doing it. I know diets and MB 12 shots are expensive, but the pay-off is priceless. My now 16 year old was on MB 12 shots about 6 months and then I switched to Kirkman's powdered methyl B12 (methylcolbamin) and the powder worked even better than the shots and was much cheaper. Thus, once you see the gains after a few months from the shots, you can transfer over to the inexpensive powder and see if your child keeps his gains, mine did. I imagine everyone is different and its impossible to tell, but since you say you are seeing regression, that's a great sign that the MB 12 shots are going to work.

Love and prayers,

Heidi N

I read those articles. However, it is always dangerous to not take into consideration for example, the medical literature. Let's take the Journal of Autism and Developmental Disorders, April issue of 2006 where they had a randomized double blinded clinical trial which showed no difference :This study tested the efficacy of a gluten-free and casein-free (GFCF) diet in treating autism using a randomized, double blind repeated measures crossover design. The sample included 15 children aged 2-16 years with autism spectrum disorder. Data on autistic symptoms and urinary peptide levels were collected in the subjects' homes over the 12 weeks that they were on the diet. Group data indicated no statistically significant findings even though several parents reported improvement in their children. Or even better : A Cochrane Database review of all medical literature ever published about GFCF diets. Article published April 18, 2008.AUTHORS' CONCLUSIONS: Research has shown of high rates of use of complementary and alternative therapies (CAM) for children with autism including gluten and/or casein exclusion diets. Current evidence for efficacy of these diets is poor. This seems more plausible to me.ChrisChrisGas prices getting you down? Search AOL Autos for fuel-efficient used cars.

[Guest guest]

What we are trying to address with MB12 is methylation. And a lot of

the time we need to do more than MB12 to address this.

Methylation can be disrupted in many ways and you need to get to the

bottom of where it is going wrong with your child.

You need to read up on methylation.

Removing casein from the diet, casein should be out of the system within

a week.

However gluten can stay in the body for months.

Big changes didn't happen for my daughter within 5 weeks either.

And just because something doesn't work now, doesn't mean it will never

work.

bogner81 wrote:

>

> My son is almost 3 1/2 years old. Have been giving him daily MB12

> injections for 5 weeks. Overall we have seen absolutely no change.

> Before we started all he could ever verbalize is counting to 10...not

> even mom or dad. Now after 5 weeks of MB12...he doesnt say one word

> anymore. He regressed even more. Became more irritable on top of it.

> He never had bowel issues in his life. All his labwork came back

> negative. Gluten free, casein free diet (noooo more milk at

> all)...for 5 weeks : no change AT ALL !!!

>

> I am so disappointed and frustrated. I feel i had the perfect

> solution. But now I feel I was so wrong. After all he became worse.

> Lost even the last words that he had. It took a lot to convince my

> wife to poke my son with those MB12 injections...spent a fortune to

> see a dan doctor that wasnt covered by my insurance. I am giving up

> on MB12 and GFCF diet. I am happy it works for so many others...i

> really am. But I guess my thinking was flawed. I have to rethink

> autism for my son.

>

> Thanks everyone for the help you offered in the few posts that I had.

> And good luck

>

> Chris

>

>

[Guest guest]

You might consider sticking with the GF/CF diet and mB12 injections for a while longer. Dr. Ed Yazbak (who writes extensively about autism) says GF/CF diet needs to be strictly followed for 1 year before you can decide whether it works! He even recommends having a separate toaster for GF bread so there is no risk of cross-contamination. Also, enzymes with DPPIV, along with the GF/CF diet can help clear the peptides (that result from the incomplete breakdown of the casein and gluten) from the blood.

Yes, read on methylation - there are many other things that can help. Dr. Amy Yasko's protocol has been the most effective at correcting our son's methylation cycle. With impaired methylation, the body cannot handle viruses, bacteria, yeast, etc.

Also, I think the DAN protocol book (by Dr. Sydney Baker and Jon Pangborn) says to try the mB12 shots for a few months before you decide whether to continue.

Re: MB12, GFCF diet - no change.....at all

What we are trying to address with MB12 is methylation. And a lot of the time we need to do more than MB12 to address this.Methylation can be disrupted in many ways and you need to get to the bottom of where it is going wrong with your child.You need to read up on methylation.Removing casein from the diet, casein should be out of the system within a week.However gluten can stay in the body for months.Big changes didn't happen for my daughter within 5 weeks either.And just because something doesn't work now, doesn't mean it will never work.bogner81 wrote:>> My son is almost 3 1/2 years old. Have been giving him daily MB12> injections for 5 weeks. Overall we have seen absolutely no change.> Before we started all he could ever verbalize is counting to 10...not> even mom or dad. Now after 5 weeks of MB12...he doesnt say one word>

anymore. He regressed even more. Became more irritable on top of it.> He never had bowel issues in his life. All his labwork came back> negative. Gluten free, casein free diet (noooo more milk at> all)...for 5 weeks : no change AT ALL !!!>> I am so disappointed and frustrated. I feel i had the perfect> solution. But now I feel I was so wrong. After all he became worse.> Lost even the last words that he had. It took a lot to convince my> wife to poke my son with those MB12 injections.. .spent a fortune to> see a dan doctor that wasnt covered by my insurance. I am giving up> on MB12 and GFCF diet. I am happy it works for so many others...i> really am. But I guess my thinking was flawed. I have to rethink> autism for my son.>> Thanks everyone for the help you offered in the few posts that I had.> And good luck >> Chris>>

[Guest guest]

I am not sure about the methylation theory. What do you want me to

read about about it. I studied the pathway in detail. Had

biochemistry as undergrad and went to medical school.

Tell me your evidence on how it is linked to autistic signs and

symptoms. Or show me a randomized controlled, double blinded study

comparing MB12 with placebo. If you want to talk scientific, let's

get the ball rolling. I gave MB12 a chance because of some feedback

from other parents in whom it seemed to work. But retrospectively,

his B12 levels in his blood were normal. That the methylation pathway

is defect is an assumption only. If he would have a gluten

sensitivity then his IgG and IgM levels would have been elevated.

They were in the normal range. So gluten here gluten there, his

immune system is not sensitized to it.

I would love to keep going, but the more I think about it, the more

frustrating it gets.

Maybe it will work one day ? Well, they said after 5 weeks...you

should see a difference. Per DAN doc. So I did not. Am I going to

inject him for another year ? I think it's rediculous. After all, it

was worth a try, at least I can tell him one day that.

chris

> >

> > My son is almost 3 1/2 years old. Have been giving him daily MB12

> > injections for 5 weeks. Overall we have seen absolutely no change.

> > Before we started all he could ever verbalize is counting to

10...not

> > even mom or dad. Now after 5 weeks of MB12...he doesnt say one

word

> > anymore. He regressed even more. Became more irritable on top of

it.

> > He never had bowel issues in his life. All his labwork came back

> > negative. Gluten free, casein free diet (noooo more milk at

> > all)...for 5 weeks : no change AT ALL !!!

> >

> > I am so disappointed and frustrated. I feel i had the perfect

> > solution. But now I feel I was so wrong. After all he became

worse.

> > Lost even the last words that he had. It took a lot to convince my

> > wife to poke my son with those MB12 injections...spent a fortune

to

> > see a dan doctor that wasnt covered by my insurance. I am giving

up

> > on MB12 and GFCF diet. I am happy it works for so many others...i

> > really am. But I guess my thinking was flawed. I have to rethink

> > autism for my son.

> >

> > Thanks everyone for the help you offered in the few posts that I

had.

> > And good luck

> >

> > Chris

> >

> >

>

[Guest guest]

Ok, so here is a medical fact. His IgG and IgM levels against Gluten

and Casein were within the normal range. Hence, medically speaking,

his immune system is not sensitized to those 2. Why in the world

would I restrict him from those now...this is ludacris. It's like

saying: " mom looks like she has cancer, let's give her radiation and

adjuvant chemotherapy...because it will kill all cancer cells. " . It

all sounds good...but has absolutely no scientific backbone.

C.

> >

> > My son is almost 3 1/2 years old. Have been giving him daily MB12

> > injections for 5 weeks. Overall we have seen absolutely no change.

> > Before we started all he could ever verbalize is counting to

10...not

> > even mom or dad. Now after 5 weeks of MB12...he doesnt say one

word

> > anymore. He regressed even more. Became more irritable on top of

it.

> > He never had bowel issues in his life. All his labwork came back

> > negative. Gluten free, casein free diet (noooo more milk at

> > all)...for 5 weeks : no change AT ALL !!!

> >

> > I am so disappointed and frustrated. I feel i had the perfect

> > solution. But now I feel I was so wrong. After all he became

worse.

> > Lost even the last words that he had. It took a lot to convince my

> > wife to poke my son with those MB12 injections.. .spent a fortune

to

> > see a dan doctor that wasnt covered by my insurance. I am giving

up

> > on MB12 and GFCF diet. I am happy it works for so many others...i

> > really am. But I guess my thinking was flawed. I have to rethink

> > autism for my son.

> >

> > Thanks everyone for the help you offered in the few posts that I

had.

> > And good luck

> >

> > Chris

> >

> >

>

[Guest guest]

so did you start the diet and shots at the same time? did you take out soy? what did you sub in for the things you took out? type out what he is eating and perhaps we can help more. sometimes it takes more fine tuning., it's never just gfcf

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

MB12, GFCF diet - no change.....at all

My son is almost 3 1/2 years old. Have been giving him daily MB12 injections for 5 weeks. Overall we have seen absolutely no change. Before we started all he could ever verbalize is counting to 10...not even mom or dad. Now after 5 weeks of MB12...he doesnt say one word anymore. He regressed even more. Became more irritable on top of it. He never had bowel issues in his life. All his labwork came back negative. Gluten free, casein free diet (noooo more milk at all)...for 5 weeks : no change AT ALL !!! I am so disappointed and frustrated. I feel i had the perfect solution. But now I feel I was so wrong. After all he became worse. Lost even the last words that he had. It took a lot to convince my wife to poke my son with those MB12 injections...spent a fortune to see a dan doctor that wasnt covered by my insurance. I am giving up on MB12 and GFCF diet. I am happy it works for so many others...i really am. But I guess my thinking was flawed. I have to rethink autism for my son.Thanks everyone for the help you offered in the few posts that I had. And good luck :)ChrisNo virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1541 - Release Date: 7/8/2008 7:50 PM

[Guest guest]

GFCF all the way. Bought only products from Whole Foods here in

Michigan that are GFCF. Pancakes, waffles, no soy, gluten free

cookies, gfcf noodles, etc...

Still, my bottom punch line is this. If his IgG and IgM

immunoglobulins were within the normal reference range before I

started the diet, why would he have issues with those 2, since his

immune system clearly is not sensitized ?

Chris

>

> so did you start the diet and shots at the same time? did you take

out soy? what did you sub in for the things you took out? type out

what he is eating and perhaps we can help more. sometimes it takes

more fine tuning., it's never just gfcf

>

> Recovering from Autism is a marathon

> NOT a sprint, but FULLY possible!

> Read more about it on my BLOGs at

> http://www.myspace.com/christelking

> http://foggyrock.com/MyPage/recoveringwishes

>

>

> MB12, GFCF diet - no change.....at all

>

>

> My son is almost 3 1/2 years old. Have been giving him daily MB12

> injections for 5 weeks. Overall we have seen absolutely no

change.

> Before we started all he could ever verbalize is counting to

10...not

> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

word

> anymore. He regressed even more. Became more irritable on top of

it.

> He never had bowel issues in his life. All his labwork came back

> negative. Gluten free, casein free diet (noooo more milk at

> all)...for 5 weeks : no change AT ALL !!!

>

> I am so disappointed and frustrated. I feel i had the perfect

> solution. But now I feel I was so wrong. After all he became

worse.

> Lost even the last words that he had. It took a lot to convince

my

> wife to poke my son with those MB12 injections...spent a fortune

to

> see a dan doctor that wasnt covered by my insurance. I am giving

up

> on MB12 and GFCF diet. I am happy it works for so many others...i

> really am. But I guess my thinking was flawed. I have to rethink

> autism for my son.

>

> Thanks everyone for the help you offered in the few posts that I

had.

> And good luck

>

> Chris

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.138 / Virus Database: 270.4.7/1541 - Release Date:

7/8/2008 7:50 PM

>

[Guest guest]

Well if you've already studied biochemistry and went to medical school,

it sounds like you've already got all the answers.

Do you really want a response?

It sounds more like you are trying to justify a position to yourself.

bogner81 wrote:

I am not sure about the methylation theory. What do you want me to

read about about it. I studied the pathway in detail. Had

biochemistry as undergrad and went to medical school.

Tell me your evidence on how it is linked to autistic signs and

symptoms. Or show me a randomized controlled, double blinded study

comparing MB12 with placebo. If you want to talk scientific, let's

get the ball rolling. I gave MB12 a chance because of some feedback

from other parents in whom it seemed to work. But retrospectively,

his B12 levels in his blood were normal. That the methylation pathway

is defect is an assumption only. If he would have a gluten

sensitivity then his IgG and IgM levels would have been elevated.

They were in the normal range. So gluten here gluten there, his

immune system is not sensitized to it.

I would love to keep going, but the more I think about it, the more

frustrating it gets.

Maybe it will work one day ? Well, they said after 5 weeks...you

should see a difference. Per DAN doc. So I did not. Am I going to

inject him for another year ? I think it's rediculous. After all, it

was worth a try, at least I can tell him one day that.

chris

> >

> > My son is almost 3 1/2 years old. Have been giving him daily

MB12

> > injections for 5 weeks. Overall we have seen absolutely no

change.

> > Before we started all he could ever verbalize is counting to

10...not

> > even mom or dad. Now after 5 weeks of MB12...he doesnt say

one

word

> > anymore. He regressed even more. Became more irritable on top

of

it.

> > He never had bowel issues in his life. All his labwork came

back

> > negative. Gluten free, casein free diet (noooo more milk at

> > all)...for 5 weeks : no change AT ALL !!!

> >

> > I am so disappointed and frustrated. I feel i had the perfect

> > solution. But now I feel I was so wrong. After all he became

worse.

> > Lost even the last words that he had. It took a lot to

convince my

> > wife to poke my son with those MB12 injections...spent a

fortune

to

> > see a dan doctor that wasnt covered by my insurance. I am

giving

up

> > on MB12 and GFCF diet. I am happy it works for so many

others...i

> > really am. But I guess my thinking was flawed. I have to

rethink

> > autism for my son.

> >

> > Thanks everyone for the help you offered in the few posts

that I

had.

> > And good luck

> >

> > Chris

> >

> >

>

[Guest guest]

You are missing the point and take it too personal.

I dont have all the answers, but you told me to read up on it. So you

should have came back and tell me what to read up on. Let's discuss

the medical literature about the pathway. It's not a challenge, it's

a follow up invitation to your suggestion.

Chris

> > > >

> > > > My son is almost 3 1/2 years old. Have been giving him daily

MB12

> > > > injections for 5 weeks. Overall we have seen absolutely no

change.

> > > > Before we started all he could ever verbalize is counting to

> > 10...not

> > > > even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> > word

> > > > anymore. He regressed even more. Became more irritable on top

of

> > it.

> > > > He never had bowel issues in his life. All his labwork came

back

> > > > negative. Gluten free, casein free diet (noooo more milk at

> > > > all)...for 5 weeks : no change AT ALL !!!

> > > >

> > > > I am so disappointed and frustrated. I feel i had the perfect

> > > > solution. But now I feel I was so wrong. After all he became

> > worse.

> > > > Lost even the last words that he had. It took a lot to

convince my

> > > > wife to poke my son with those MB12 injections...spent a

fortune

> > to

> > > > see a dan doctor that wasnt covered by my insurance. I am

giving

> > up

> > > > on MB12 and GFCF diet. I am happy it works for so many

others...i

> > > > really am. But I guess my thinking was flawed. I have to

rethink

> > > > autism for my son.

> > > >

> > > > Thanks everyone for the help you offered in the few posts

that I

> > had.

> > > > And good luck

> > > >

> > > > Chris

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

One thing to consider is that it's not just IgG and IgM levels to

think about. You can have normal levels and still have high peptides

and opiate response. Have you done a urinary peptides test?

Cheryl

> Ok, so here is a medical fact. His IgG and IgM levels against Gluten

> and Casein were within the normal range. Hence, medically speaking,

> his immune system is not sensitized to those 2. Why in the world

> would I restrict him from those now...this is ludacris. It's like

> saying: " mom looks like she has cancer, let's give her radiation and

> adjuvant chemotherapy...because it will kill all cancer cells. " . It

> all sounds good...but has absolutely no scientific backbone.

> C.

>

>

>

>>>

>>> My son is almost 3 1/2 years old. Have been giving him daily MB12

>>> injections for 5 weeks. Overall we have seen absolutely no change.

>>> Before we started all he could ever verbalize is counting to

> 10...not

>>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> word

>>> anymore. He regressed even more. Became more irritable on top of

> it.

>>> He never had bowel issues in his life. All his labwork came back

>>> negative. Gluten free, casein free diet (noooo more milk at

>>> all)...for 5 weeks : no change AT ALL !!!

>>>

>>> I am so disappointed and frustrated. I feel i had the perfect

>>> solution. But now I feel I was so wrong. After all he became

> worse.

>>> Lost even the last words that he had. It took a lot to convince my

>>> wife to poke my son with those MB12 injections.. .spent a fortune

> to

>>> see a dan doctor that wasnt covered by my insurance. I am giving

> up

>>> on MB12 and GFCF diet. I am happy it works for so many others...i

>>> really am. But I guess my thinking was flawed. I have to rethink

>>> autism for my son.

>>>

>>> Thanks everyone for the help you offered in the few posts that I

> had.

>>> And good luck

>>>

>>> Chris

>>>

>>>

>>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hey Cheryl,

Thank you for responding. Can you tell me what you mean by " high

peptides " and " opiates " ? and no,I have not done a urinary peptide

test. How does gluten and casein break down to those " peptides "

and " opiates " and how does it adversely affect the nervous system ?

Chris

> >>>

> >>> My son is almost 3 1/2 years old. Have been giving him daily

MB12

> >>> injections for 5 weeks. Overall we have seen absolutely no

change.

> >>> Before we started all he could ever verbalize is counting to

> > 10...not

> >>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> > word

> >>> anymore. He regressed even more. Became more irritable on top of

> > it.

> >>> He never had bowel issues in his life. All his labwork came back

> >>> negative. Gluten free, casein free diet (noooo more milk at

> >>> all)...for 5 weeks : no change AT ALL !!!

> >>>

> >>> I am so disappointed and frustrated. I feel i had the perfect

> >>> solution. But now I feel I was so wrong. After all he became

> > worse.

> >>> Lost even the last words that he had. It took a lot to convince

my

> >>> wife to poke my son with those MB12 injections.. .spent a

fortune

> > to

> >>> see a dan doctor that wasnt covered by my insurance. I am giving

> > up

> >>> on MB12 and GFCF diet. I am happy it works for so many

others...i

> >>> really am. But I guess my thinking was flawed. I have to rethink

> >>> autism for my son.

> >>>

> >>> Thanks everyone for the help you offered in the few posts that I

> > had.

> >>> And good luck

> >>>

> >>> Chris

> >>>

> >>>

> >>

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

My suggestion on reading about the methylation pathway would be to

take a look at Yasko's books. She explains her views on it in much

detail (way over my head as I don't know much about biochemistry or

genetics so I rely on her beautiful diagrams!). But essentially, not

everyone needs MB12 - some need HB12 and some even need a mixture.

Our DAN will Rx shots with MB12, HB12, glut, etc. that she has

compounded. So it's not always just straight MB12 or even MB12 at

all. Of course, it helps to get the genetics test from her to know

which one it is for sure but it's pricey.

Cheryl

> You are missing the point and take it too personal.

> I dont have all the answers, but you told me to read up on it. So you

> should have came back and tell me what to read up on. Let's discuss

> the medical literature about the pathway. It's not a challenge, it's

> a follow up invitation to your suggestion.

> Chris

>

>

>

>>>>>

>>>>> My son is almost 3 1/2 years old. Have been giving him daily

> MB12

>>>>> injections for 5 weeks. Overall we have seen absolutely no

> change.

>>>>> Before we started all he could ever verbalize is counting to

>>> 10...not

>>>>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

>>> word

>>>>> anymore. He regressed even more. Became more irritable on top

> of

>>> it.

>>>>> He never had bowel issues in his life. All his labwork came

> back

>>>>> negative. Gluten free, casein free diet (noooo more milk at

>>>>> all)...for 5 weeks : no change AT ALL !!!

>>>>>

>>>>> I am so disappointed and frustrated. I feel i had the perfect

>>>>> solution. But now I feel I was so wrong. After all he became

>>> worse.

>>>>> Lost even the last words that he had. It took a lot to

> convince my

>>>>> wife to poke my son with those MB12 injections...spent a

> fortune

>>> to

>>>>> see a dan doctor that wasnt covered by my insurance. I am

> giving

>>> up

>>>>> on MB12 and GFCF diet. I am happy it works for so many

> others...i

>>>>> really am. But I guess my thinking was flawed. I have to

> rethink

>>>>> autism for my son.

>>>>>

>>>>> Thanks everyone for the help you offered in the few posts

> that I

>>> had.

>>>>> And good luck

>>>>>

>>>>> Chris

>>>>>

>>>>>

>>>>

>>>

>>>

>>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Too many if's. Too many different injections. Too little evidence. My

child is not a lab rat in which I see what sticks and helps.

If this stuff doesnt work in 5 weeks, like in my case why would I do

it for another year ? And if he then improves in 1 year...how do i

know that not just simple time has made him better ? That the B12 did

it is then just a blind assumption. It's like saying once a day for 8

years i whisper in his ear " autism go away " and in 8 years it will be

gone. will it be due to my whispering efforts ? Same logic.

Chris

> >>>>>

> >>>>> My son is almost 3 1/2 years old. Have been giving him daily

> > MB12

> >>>>> injections for 5 weeks. Overall we have seen absolutely no

> > change.

> >>>>> Before we started all he could ever verbalize is counting to

> >>> 10...not

> >>>>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> >>> word

> >>>>> anymore. He regressed even more. Became more irritable on top

> > of

> >>> it.

> >>>>> He never had bowel issues in his life. All his labwork came

> > back

> >>>>> negative. Gluten free, casein free diet (noooo more milk at

> >>>>> all)...for 5 weeks : no change AT ALL !!!

> >>>>>

> >>>>> I am so disappointed and frustrated. I feel i had the perfect

> >>>>> solution. But now I feel I was so wrong. After all he became

> >>> worse.

> >>>>> Lost even the last words that he had. It took a lot to

> > convince my

> >>>>> wife to poke my son with those MB12 injections...spent a

> > fortune

> >>> to

> >>>>> see a dan doctor that wasnt covered by my insurance. I am

> > giving

> >>> up

> >>>>> on MB12 and GFCF diet. I am happy it works for so many

> > others...i

> >>>>> really am. But I guess my thinking was flawed. I have to

> > rethink

> >>>>> autism for my son.

> >>>>>

> >>>>> Thanks everyone for the help you offered in the few posts

> > that I

> >>> had.

> >>>>> And good luck

> >>>>>

> >>>>> Chris

> >>>>>

> >>>>>

> >>>>

> >>>

> >>>

> >>

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

It's not an IgG or IgM or IgE issue. The problem results from incomplete breakdown of the casein and gluten proteins which then enter the bloodstream and the brain. There is lots of info online about this. The test is a Urinary Peptides test. It tests for Casomorphin and Gliadorphin. The most accurate results come when the test is performed prior to GF/CF diet, however.

GF/CF is not a cure, but addresses the problem caused by the incomplete digestion or breakdown of the casein and gluten.

Dr. Amy Yasko has a book called The Puzzle of Autism - talks extensively about methylation and the specific areas in the cycle where there can be problems. Also, the DAN "protocol" book, which you can find at the Autism Research Institute website - called Autism: Effective Biomedical Treatments.

Just one last thing - just for some encouragement... Many times, kids can have a healing crisis and act worse before they get better. We have been pursuing biomedical treatments for our son for almost three years. The first year was incredibly tough. We had to try a lot of things until we got the right combination of things he needed. Now, you couldn't pick him out from a room of neurotypical children. He is now happy and very, very close to losing his diagnosis and what remains are mostly sensory integration issues - minor compared to what they were. The struggle and expense was definitely worth it!

I hope you find the right things for your son. All the best to you.

Re: MB12, GFCF diet - no change.....at all

Ok, so here is a medical fact. His IgG and IgM levels against Gluten and Casein were within the normal range. Hence, medically speaking, his immune system is not sensitized to those 2. Why in the world would I restrict him from those now...this is ludacris. It's like saying: "mom looks like she has cancer, let's give her radiation and adjuvant chemotherapy. ..because it will kill all cancer cells.". It all sounds good...but has absolutely no scientific backbone.C.> >> > My son is almost 3 1/2 years old. Have been giving him daily MB12> > injections for 5 weeks. Overall we have seen absolutely no change.> > Before we started all he could ever verbalize is counting to 10...not> > even mom or dad. Now after 5 weeks of MB12...he doesnt say one word> > anymore. He regressed even more. Became more irritable on top of it.> > He never had bowel issues in his life. All his labwork came back> > negative. Gluten free, casein free diet (noooo more milk at> > all)...for 5 weeks : no change AT ALL !!!> >> > I am so disappointed and frustrated. I feel i had the perfect> > solution. But now I feel I was so wrong. After all he became worse.> > Lost even the last words that he had. It took a lot to convince my> > wife to poke my son with those MB12

injections.. .spent a fortune to> > see a dan doctor that wasnt covered by my insurance. I am giving up> > on MB12 and GFCF diet. I am happy it works for so many others...i> > really am. But I guess my thinking was flawed. I have to rethink> > autism for my son.> >> > Thanks everyone for the help you offered in the few posts that I had.> > And good luck > >> > Chris> >> >>

[Guest guest]

Some lucky kids recover with diet, MB12 and treating yeast alone.

Most do not. I did MB12 for 18 months, LDN for 18 months, TD-DMPS

for 14 months. Valtrex, DAN for 1 1/2 years, Yasko for 2 1/2 years

now I've added in IV chelation. My 5yr old son has progressed but is

still severe. He does have words but no functional language. His

stools have normalized but we still have a long way to go. We can't

get haircuts or clip nails. Five weeks of one kind of treatment means

you tried it for 5 weeks. There are many other things to try. For

most of us it isn't an easy road.

>

> My son is almost 3 1/2 years old. Have been giving him daily MB12

> injections for 5 weeks. Overall we have seen absolutely no change.

> Before we started all he could ever verbalize is counting to

10...not

> even mom or dad. Now after 5 weeks of MB12...he doesnt say one word

> anymore. He regressed even more. Became more irritable on top of

it.

> He never had bowel issues in his life. All his labwork came back

> negative. Gluten free, casein free diet (noooo more milk at

> all)...for 5 weeks : no change AT ALL !!!

>

> I am so disappointed and frustrated. I feel i had the perfect

> solution. But now I feel I was so wrong. After all he became worse.

> Lost even the last words that he had. It took a lot to convince my

> wife to poke my son with those MB12 injections...spent a fortune to

> see a dan doctor that wasnt covered by my insurance. I am giving up

> on MB12 and GFCF diet. I am happy it works for so many others...i

> really am. But I guess my thinking was flawed. I have to rethink

> autism for my son.

>

> Thanks everyone for the help you offered in the few posts that I

had.

> And good luck

>

> Chris

>

[Guest guest]

Thanks for your words of encouragement.

Chris

> > >

> > > My son is almost 3 1/2 years old. Have been giving him daily

MB12

> > > injections for 5 weeks. Overall we have seen absolutely no

change.

> > > Before we started all he could ever verbalize is counting to

> 10...not

> > > even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> word

> > > anymore. He regressed even more. Became more irritable on top

of

> it.

> > > He never had bowel issues in his life. All his labwork came back

> > > negative. Gluten free, casein free diet (noooo more milk at

> > > all)...for 5 weeks : no change AT ALL !!!

> > >

> > > I am so disappointed and frustrated. I feel i had the perfect

> > > solution. But now I feel I was so wrong. After all he became

> worse.

> > > Lost even the last words that he had. It took a lot to convince

my

> > > wife to poke my son with those MB12 injections.. .spent a

fortune

> to

> > > see a dan doctor that wasnt covered by my insurance. I am

giving

> up

> > > on MB12 and GFCF diet. I am happy it works for so many

others...i

> > > really am. But I guess my thinking was flawed. I have to rethink

> > > autism for my son.

> > >

> > > Thanks everyone for the help you offered in the few posts that

I

> had.

> > > And good luck

> > >

> > > Chris

> > >

> > >

> >

>

[Guest guest]

It isn't, you are right. But I decided I will stick with what modern

medicine is suggesting to do. ABA, speech therapy, etc...

Any more needles, chelations or antivirals are experiments on your

child. Too many of those theories sound good, seem to make sense, but

in the end are just a " hypothesis " . And a hypothesis is not the

truth. The truth is, we have no clue what is going on in autistic

children. This is were we stand. I will accept it until we know and

then treat per recommendation, rather than blindly injecting vitamins.

Chris

> >

> > My son is almost 3 1/2 years old. Have been giving him daily MB12

> > injections for 5 weeks. Overall we have seen absolutely no

change.

> > Before we started all he could ever verbalize is counting to

> 10...not

> > even mom or dad. Now after 5 weeks of MB12...he doesnt say one

word

> > anymore. He regressed even more. Became more irritable on top of

> it.

> > He never had bowel issues in his life. All his labwork came back

> > negative. Gluten free, casein free diet (noooo more milk at

> > all)...for 5 weeks : no change AT ALL !!!

> >

> > I am so disappointed and frustrated. I feel i had the perfect

> > solution. But now I feel I was so wrong. After all he became

worse.

> > Lost even the last words that he had. It took a lot to convince

my

> > wife to poke my son with those MB12 injections...spent a fortune

to

> > see a dan doctor that wasnt covered by my insurance. I am giving

up

> > on MB12 and GFCF diet. I am happy it works for so many others...i

> > really am. But I guess my thinking was flawed. I have to rethink

> > autism for my son.

> >

> > Thanks everyone for the help you offered in the few posts that I

> had.

> > And good luck

> >

> > Chris

> >

>

[Guest guest]

Forgive me if I don't have all the technical terms - remember, I'm no biochemist!  Amino acids are peptides.  When you do an urinary peptides test, you are looking at how much and how many different peptides are coming out in the urine.  This can indicate leaky gut - even if you are "apparently" symptom free of gut issues.  Gluten peptides can be incredibly high, in which case, you'd want to cut the gluten to help heal the gut as it's passing through the gut and into the bloodstream if you have high urinary peptides.The opiate response is when you get a high from eating these foods as if taking opiates.  Likely, you would know this if you've removed gluten but then again, if you were only gfcf for 5 weeks, you may not as it can take a long time to leave the body.Here's a study:http://www.autism.com/treatable/diet_reichelt.htmIf you go to autism.com and do a search for "urinary peptides" you'll get a lot of infoHope that helps.  I know, I'm not so scientific!  :)CherylHey Cheryl,Thank you for responding. Can you tell me what you mean by "high peptides" and "opiates" ? and no,I have not done a urinary peptide test. How does gluten and casein break down to those "peptides" and "opiates" and how does it adversely affect the nervous system ?My son is almost 3 1/2 years old. Have been giving him daily  MB12 injections for 5 weeks. Overall we have seen absolutely no  change. Before we started all he could ever verbalize is counting to 10...not even mom or dad. Now after 5 weeks of MB12...he doesnt say one word anymore. He regressed even more. Became more irritable on top of it. He never had bowel issues in his life. All his labwork came backnegative. Gluten free, casein free diet (noooo more milk atall)...for 5 weeks : no change AT ALL !!!I am so disappointed and frustrated. I feel i had the perfectsolution. But now I feel I was so wrong. After all he became worse. Lost even the last words that he had. It took a lot to convince  my wife to poke my son with those MB12 injections.. .spent a  fortune to see a dan doctor that wasnt covered by my insurance. I am giving up on MB12 and GFCF diet. I am happy it works for so many  others...i really am. But I guess my thinking was flawed. I have to rethinkautism for my son.Thanks everyone for the help you offered in the few posts that I had. And good luck ------------------------------------

[Guest guest]

You probably don't want to hear this, because it is frustrating beyond belief, but gluten-free products are usually not totally gluten-free. Some brands have strict gluten-free facilities. Some have gluten-free lines for manufacturing. Most do not. Most have shared equipment which is disastrous in our house. We only eat a ridiculously small amount of processed food and I have to call every single company to verify the manufacturing process. The smallest cross contamination gets our whole house sick and brings on terrible behavior problems (even in the adults.)

Also, as someone else mentioned, if your ds does need to be gluten-free, the house needs to be cleared of gluten containing products and the kitchen needs to be purged of anything that could still have gluten in it because it can't be thoroughly cleaned (colanders, can openers, non-stick cookware, toaster, wooden cutting boards, etc.) The products that need to be changed are anything that could inadvertently end up in the mouth (shampoo, soaps, bandaids, dogfood, playdoh, sunscreen, etc.) Your dc doesn't have to actually eat the product, just touch it and then put fingers in the mouth. It is a huge commitment!

I cannot stress enough how many "gluten-free" products have gotten us sick and how little of an amount it takes to affect us!

As far as the IgG and IgM goes, did you test for IgA? IgA is what is tested in celiac disease and it is the antibody that my whole family produces against gluten. Only my oldest dd had the endoscopy to confirm upper intestinal damage to the villi, but the rest of us tested positive by IgA response. We didn't bother with the endoscopy for everyone else. Five of us also have an IgA response to casein (one can do dairy) and the two we tested for soy have an IgA response to it (we didn't test the others, but we can tell we all react to soy.) I have no idea whether or not we would have an IgG response, but IgA "trumps" IgG, so to speak, so there is no point in our testing IgG.

One problem at this point though, if your dc has been mostly gluten-free for five weeks, he would not likely show up positive on the IgA blood test.

I can't speak to the MB12.

I do hear your frustration. It is a lot of work and lifestyle change to not see immediate encouragement. I guess the question is - is there any harm in trying to go a little longer? It is a pain, but if you do start to see results, all the work is worth it! On an encouraging note, we went through withdrawal from gluten and all got worse before we got better. Then when we did get a trace amount, the reaction was worse than before and then took two weeks to clear each time. BUT...my 3 yo ds is SO close to recovery and 99% of that is due to STRICTLY removing gluten, casein, and soy.

I only hope the best for your ds. Keep on keepin' on. Vent to those of us who understand when you need to.

Blessings,

MB12, GFCF diet - no change.....at all > > > My son is almost 3 1/2 years old. Have been giving him daily MB12 > injections for 5 weeks. Overall we have seen absolutely no change. > Before we started all he could ever verbalize is counting to 10...not > even mom or dad. Now after 5 weeks of MB12...he doesnt say one word > anymore. He regressed even more. Became more irritable on top of it. > He never had bowel issues in his life. All his labwork came back > negative. Gluten free, casein free diet (noooo more milk at > all)...for 5 weeks : no change AT ALL !!! > > I am so disappointed and frustrated. I feel i had the perfect > solution. But now I feel I was so wrong. After all he became worse. > Lost even the last words that he had. It took a lot to convince my > wife to poke my son with those MB12 injections...spent a fortune to > see a dan doctor that wasnt covered by my insurance. I am giving up > on MB12 and GFCF diet. I am happy it works for so many others...i > really am. But I guess my thinking was flawed. I have to rethink > autism for my son.> > Thanks everyone for the help you offered in the few posts that I had. > And good luck > > Chris> > > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.138 / Virus Database: 270.4.7/1541 - Release Date: 7/8/2008 7:50 PM>

[Guest guest]

I read those articles. However, it is always dangerous to not take

into consideration for example, the medical literature.

Let's take the Journal of Autism and Developmental Disorders, April

issue of 2006 where they had a randomized double blinded clinical

trial which showed no difference :

This study tested the efficacy of a gluten-free and casein-free

(GFCF) diet in treating autism using a randomized, double blind

repeated measures crossover design. The sample included 15 children

aged 2-16 years with autism spectrum disorder. Data on autistic

symptoms and urinary peptide levels were collected in the subjects'

homes over the 12 weeks that they were on the diet. Group data

indicated no statistically significant findings even though several

parents reported improvement in their children.

Or even better : A Cochrane Database review of all medical literature

ever published about GFCF diets. Article published April 18, 2008.

AUTHORS' CONCLUSIONS: Research has shown of high rates of use of

complementary and alternative therapies (CAM) for children with

autism including gluten and/or casein exclusion diets. Current

evidence for efficacy of these diets is poor.

This seems more plausible to me.

Chris

Chris

> >>>>>

> >>>>> My son is almost 3 1/2 years old. Have been giving him daily

> > MB12

> >>>>> injections for 5 weeks. Overall we have seen absolutely no

> > change.

> >>>>> Before we started all he could ever verbalize is counting to

> >>> 10...not

> >>>>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> >>> word

> >>>>> anymore. He regressed even more. Became more irritable on top

of

> >>> it.

> >>>>> He never had bowel issues in his life. All his labwork came

back

> >>>>> negative. Gluten free, casein free diet (noooo more milk at

> >>>>> all)...for 5 weeks : no change AT ALL !!!

> >>>>>

> >>>>> I am so disappointed and frustrated. I feel i had the perfect

> >>>>> solution. But now I feel I was so wrong. After all he became

> >>> worse.

> >>>>> Lost even the last words that he had. It took a lot to

convince

> > my

> >>>>> wife to poke my son with those MB12 injections.. .spent a

> > fortune

> >>> to

> >>>>> see a dan doctor that wasnt covered by my insurance. I am

giving

> >>> up

> >>>>> on MB12 and GFCF diet. I am happy it works for so many

> > others...i

> >>>>> really am. But I guess my thinking was flawed. I have to

rethink

> >>>>> autism for my son.

> >>>>>

> >>>>> Thanks everyone for the help you offered in the few posts

that I

> >>> had.

> >>>>> And good luck

> >>>>>

> >>>>> Chris

> >>>>>

> >>>>>

> >>>>

> >>>

> >>>

> >>>

> >>> ------------------------------------

> >>>

> >>>

[Guest guest]

I've never " blindly " given my child anything. Everything I've ever

done with my son for the last 2 years has been based labs. I started

out with DAN without a DAN dr. and saw no response whatsoever. As

far as I was concerned, he was a non-responder so I switched to

NIDS. My son needed immune help, not metabolic help. As we've gone

on with this my son has improved greatly and now I find that many of

the DAN things are actually starting to work. And it's all been

based on labs. I am not chelating, I am not giving my son shots or

needles. His DAN supps are literally: MB12 nasal spray, 5-MTHF (same

as Folapro), Deproloft (proteins), and 2 types of Transfer Factor.

His NIDS Rx's are currently Famvir, Diflucan, Paxil, Tenex, and

Allegra. My son is very viral and he's not on the GFCF diet

currently. We've done it twice. I will probably try again after we

get some more work done on his immune system. I'm sure we'll get a

little heavier in his DAN stuff once his labs come back but we won't

be going too much heavier. But none of the DAN stuff worked until we

had antivirals in place for a while.

If it's science you want to read, try digging through autism.com.

They have *many* studies with lots of science behind it. From there,

it's your choice to believe it or not. But I can tell you right now

that there is no " science " that I'm aware of that proves that

antivirals help anyone on the spectrum and yet all our labs point to

needing it. My son is very viral. And they worked miracles on my

son. That's enough science for me.

There is quite a bit of science, though, when you look at CFIDS and

HHV6, CMV and EBV. And most believe that CFIDS and autism are very

related.

Cheryl

> It isn't, you are right. But I decided I will stick with what modern

> medicine is suggesting to do. ABA, speech therapy, etc...

> Any more needles, chelations or antivirals are experiments on your

> child. Too many of those theories sound good, seem to make sense, but

> in the end are just a " hypothesis " . And a hypothesis is not the

> truth. The truth is, we have no clue what is going on in autistic

> children. This is were we stand. I will accept it until we know and

> then treat per recommendation, rather than blindly injecting vitamins.

> Chris

>

>

>>>

>>> My son is almost 3 1/2 years old. Have been giving him daily MB12

>>> injections for 5 weeks. Overall we have seen absolutely no

> change.

>>> Before we started all he could ever verbalize is counting to

>> 10...not

>>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> word

>>> anymore. He regressed even more. Became more irritable on top of

>> it.

>>> He never had bowel issues in his life. All his labwork came back

>>> negative. Gluten free, casein free diet (noooo more milk at

>>> all)...for 5 weeks : no change AT ALL !!!

>>>

>>> I am so disappointed and frustrated. I feel i had the perfect

>>> solution. But now I feel I was so wrong. After all he became

> worse.

>>> Lost even the last words that he had. It took a lot to convince

> my

>>> wife to poke my son with those MB12 injections...spent a fortune

> to

>>> see a dan doctor that wasnt covered by my insurance. I am giving

> up

>>> on MB12 and GFCF diet. I am happy it works for so many others...i

>>> really am. But I guess my thinking was flawed. I have to rethink

>>> autism for my son.

>>>

>>> Thanks everyone for the help you offered in the few posts that I

>> had.

>>> And good luck

>>>

>>> Chris

>>>

>>

>

>

>

> ------------------------------------

>

>

[Guest guest]

you don't typically test IGM levels, as for IGG, if you aren't eating it, it won't show as an issue till you DO eat it. so that being said it will be to late after you put it back in. gluten effects more then just IGG and IGE as well., it effects gut lining, and opiate issues as well

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: MB12, GFCF diet - no change.....at all

Ok, so here is a medical fact. His IgG and IgM levels against Gluten and Casein were within the normal range. Hence, medically speaking, his immune system is not sensitized to those 2. Why in the world would I restrict him from those now...this is ludacris. It's like saying: "mom looks like she has cancer, let's give her radiation and adjuvant chemotherapy...because it will kill all cancer cells.". It all sounds good...but has absolutely no scientific backbone.C.> >> > My son is almost 3 1/2 years old. Have been giving him daily MB12> > injections for 5 weeks. Overall we have seen absolutely no change.> > Before we started all he could ever verbalize is counting to 10...not> > even mom or dad. Now after 5 weeks of MB12...he doesnt say one word> > anymore. He regressed even more. Became more irritable on top of it.> > He never had bowel issues in his life. All his labwork came back> > negative. Gluten free, casein free diet (noooo more milk at> > all)...for 5 weeks : no change AT ALL !!!> >> > I am so disappointed and frustrated. I feel i had the perfect> > solution. But now I feel I was so wrong. After all he became worse.> > Lost even the last words that he had. It took a lot to convince my> > wife to poke my son with those MB12 injections.. .spent a fortune to> > see a dan doctor that wasnt covered by my insurance. I am giving up> > on MB12 and GFCF diet. I am happy it works for so many others...i> > really am. But I guess my thinking was flawed. I have to rethink> > autism for my son.> >> > Thanks everyone for the help you offered in the few posts that I had.> > And good luck > >> > Chris> >> >>No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1541 - Release Date: 7/8/2008 7:50 PM

[Guest guest]

hey, thank you for your response...

Can you elaborate what you mean by your son being " viral " ?

Which labwork indicated this ?

thanks,

Chris

> >>>

> >>> My son is almost 3 1/2 years old. Have been giving him daily

MB12

> >>> injections for 5 weeks. Overall we have seen absolutely no

> > change.

> >>> Before we started all he could ever verbalize is counting to

> >> 10...not

> >>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> > word

> >>> anymore. He regressed even more. Became more irritable on top of

> >> it.

> >>> He never had bowel issues in his life. All his labwork came back

> >>> negative. Gluten free, casein free diet (noooo more milk at

> >>> all)...for 5 weeks : no change AT ALL !!!

> >>>

> >>> I am so disappointed and frustrated. I feel i had the perfect

> >>> solution. But now I feel I was so wrong. After all he became

> > worse.

> >>> Lost even the last words that he had. It took a lot to convince

> > my

> >>> wife to poke my son with those MB12 injections...spent a fortune

> > to

> >>> see a dan doctor that wasnt covered by my insurance. I am giving

> > up

> >>> on MB12 and GFCF diet. I am happy it works for so many

others...i

> >>> really am. But I guess my thinking was flawed. I have to rethink

> >>> autism for my son.

> >>>

> >>> Thanks everyone for the help you offered in the few posts that I

> >> had.

> >>> And good luck

> >>>

> >>> Chris

> >>>

> >>

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

I don't know of any premade waffles at whole foods that are gfcfsf, or cookies for that matter either. we can't have all those things and there are very few things whole foods carries that we can have. we can't do 365 things as there is CC issues with all there stuff as well. IGm is past exposure so not sure why you keep refering to that., that is tested with vaccinations not foods, IGE is typically tested and IGG. IGG only shows when you are eating it and it's an issue and IGE is commonly not done right so I would have to know what KIND of test you had done and which labs to know if they are ones to be looking at it. also there is still peptide issues to look at if you are looking at gluten being an issue with a spectrum kid. soy and milk would be the same way. kids don't make gains till ALL there foods that they show IGG and IGE issues are out. I don't really know many people that going JUST gfcf has been the answer. it takes soy, many times eggs, nuts, for some rice or corn ect what ever shows up on their childs testing ect.

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

MB12, GFCF diet - no change.....at all > > > My son is almost 3 1/2 years old. Have been giving him daily MB12 > injections for 5 weeks. Overall we have seen absolutely no change. > Before we started all he could ever verbalize is counting to 10...not > even mom or dad. Now after 5 weeks of MB12...he doesnt say one word > anymore. He regressed even more. Became more irritable on top of it. > He never had bowel issues in his life. All his labwork came back > negative. Gluten free, casein free diet (noooo more milk at > all)...for 5 weeks : no change AT ALL !!! > > I am so disappointed and frustrated. I feel i had the perfect > solution. But now I feel I was so wrong. After all he became worse. > Lost even the last words that he had. It took a lot to convince my > wife to poke my son with those MB12 injections...spent a fortune to > see a dan doctor that wasnt covered by my insurance. I am giving up > on MB12 and GFCF diet. I am happy it works for so many others...i > really am. But I guess my thinking was flawed. I have to rethink > autism for my son.> > Thanks everyone for the help you offered in the few posts that I had. > And good luck > > Chris> > > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.138 / Virus Database: 270.4.7/1541 - Release Date: 7/8/2008 7:50 PM>No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1541 - Release Date: 7/8/2008 7:50 PM

[Guest guest]

opiates in foods is when foods don't break down properly and go through a leaking gut from either things like celiac disease, on going yeast issues, metal issues, cronic measels in the gut ect that are common in our kids and then go in to the blood stream and react in the brain just like opium. for my son he has opiate issues with milk and soy. if he gets them he walks around drunk and looses lang. he will walk into walls like they aren't there. this is why I asked about you haveing soy in there still. we can't even do soy oil or leithin either as he reacts the same way to it. same with CC issues with foods, so for sensitive kids it has to ALL be out in any form to see gains

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: MB12, GFCF diet - no change.....at all

Hey Cheryl,Thank you for responding. Can you tell me what you mean by "high peptides" and "opiates" ? and no,I have not done a urinary peptide test. How does gluten and casein break down to those "peptides" and "opiates" and how does it adversely affect the nervous system ?Chris> >>>> >>> My son is almost 3 1/2 years old. Have been giving him daily MB12> >>> injections for 5 weeks. Overall we have seen absolutely no change.> >>> Before we started all he could ever verbalize is counting to> > 10...not> >>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one> > word> >>> anymore. He regressed even more. Became more irritable on top of> > it.> >>> He never had bowel issues in his life. All his labwork came back> >>> negative. Gluten free, casein free diet (noooo more milk at> >>> all)...for 5 weeks : no change AT ALL !!!> >>>> >>> I am so disappointed and frustrated. I feel i had the perfect> >>> solution. But now I feel I was so wrong. After all he became> > worse.> >>> Lost even the last words that he had. It took a lot to convince my> >>> wife to poke my son with those MB12 injections.. .spent a fortune> > to> >>> see a dan doctor that wasnt covered by my insurance. I am giving> > up> >>> on MB12 and GFCF diet. I am happy it works for so many others...i> >>> really am. But I guess my thinking was flawed. I have to rethink> >>> autism for my son.> >>>> >>> Thanks everyone for the help you offered in the few posts that I> > had.> >>> And good luck > >>>> >>> Chris> >>>> >>>> >>> >> >> >> > ------------------------------------> >> >