Re: MB12, GFCF diet - no change.....at all :(

[Guest guest]

some other reading on this would be Dr Shaws Book, Biological treatments off Autism and PDD, or Dr McCandless book, Children with Starving Brains. I suggest her 2nd addition to the book as it's the easest read of the 3 ones

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: MB12, GFCF diet - no change.....at all

Ok, so here is a medical fact. His IgG and IgM levels against Gluten and Casein were within the normal range. Hence, medically speaking, his immune system is not sensitized to those 2. Why in the world would I restrict him from those now...this is ludacris. It's like saying: "mom looks like she has cancer, let's give her radiation and adjuvant chemotherapy. ..because it will kill all cancer cells.". It all sounds good...but has absolutely no scientific backbone.C.> >> > My son is almost 3 1/2 years old. Have been giving him daily MB12> > injections for 5 weeks. Overall we have seen absolutely no change.> > Before we started all he could ever verbalize is counting to 10...not> > even mom or dad. Now after 5 weeks of MB12...he doesnt say one word> > anymore. He regressed even more. Became more irritable on top of it.> > He never had bowel issues in his life. All his labwork came back> > negative. Gluten free, casein free diet (noooo more milk at> > all)...for 5 weeks : no change AT ALL !!!> >> > I am so disappointed and frustrated. I feel i had the perfect> > solution. But now I feel I was so wrong. After all he became worse.> > Lost even the last words that he had. It took a lot to convince my> > wife to poke my son with those MB12 injections.. .spent a fortune to> > see a dan doctor that wasnt covered by my insurance. I am giving up> > on MB12 and GFCF diet. I am happy it works for so many others...i> > really am. But I guess my thinking was flawed. I have to rethink> > autism for my son.> >> > Thanks everyone for the help you offered in the few posts that I had.> > And good luck > >> > Chris> >> >>

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[Guest guest]

Studies are studies no matter what or who does them. They are all

flawed to some degree. I haven't even read this study and I can

already see one major flaw in it - 12 weeks is not long enough and

nor would I trust a study that had so few children with an age range

that large. I would prefer to see a larger study but if I can't get

a larger one, I would prefer to see one that has 2-5 year olds

instead of going all the way to 16. And yes, I'm sure I can point

out flaws in studies that I agree with so I'm not trying to bash

anyone or any particular study. I just think that you are going to

find studies that support what you are saying no matter what your

argument happens to be. It's not hard. The CDC, FDA and AAP have

plenty of studies that support them and we have plenty studies that

refute them. Now it's a matter of choice. Gather your evidence and

decide.

And may I add, without trying to be rude, that just because your

child didn't respond (to your knowledge) to the diet, doesn't mean it

isn't true for other kids. Plausible, yes, but does it mean it

applies to all our kids, absolutely not. None of our kids are the

same. That's why some respond to one thing and another doesn't. My

son didn't respond to diet either, that doesn't mean it isn't true

that these issues occur. If only approximately 30% respond to diet

alone, that leave a whopping 70% that don't so it's not shocking that

your child didn't respond immediately, just incredibly disappointing.

Cheryl

> I read those articles. However, it is always dangerous to not take

> into consideration for example, the medical literature.

>

> Let's take the Journal of Autism and Developmental Disorders, April

> issue of 2006 where they had a randomized double blinded clinical

> trial which showed no difference :

>

> This study tested the efficacy of a gluten-free and casein-free

> (GFCF) diet in treating autism using a randomized, double blind

> repeated measures crossover design. The sample included 15 children

> aged 2-16 years with autism spectrum disorder. Data on autistic

> symptoms and urinary peptide levels were collected in the subjects'

> homes over the 12 weeks that they were on the diet. Group data

> indicated no statistically significant findings even though several

> parents reported improvement in their children.

>

> Or even better : A Cochrane Database review of all medical literature

> ever published about GFCF diets. Article published April 18, 2008.

>

> AUTHORS' CONCLUSIONS: Research has shown of high rates of use of

> complementary and alternative therapies (CAM) for children with

> autism including gluten and/or casein exclusion diets. Current

> evidence for efficacy of these diets is poor.

>

> This seems more plausible to me.

> Chris

>

>

>

>

> Chris

>

>

>

>

>>>>>>>

>>>>>>> My son is almost 3 1/2 years old. Have been giving him daily

>>> MB12

>>>>>>> injections for 5 weeks. Overall we have seen absolutely no

>>> change.

>>>>>>> Before we started all he could ever verbalize is counting to

>>>>> 10...not

>>>>>>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one

>>>>> word

>>>>>>> anymore. He regressed even more. Became more irritable on top

> of

>>>>> it.

>>>>>>> He never had bowel issues in his life. All his labwork came

> back

>>>>>>> negative. Gluten free, casein free diet (noooo more milk at

>>>>>>> all)...for 5 weeks : no change AT ALL !!!

>>>>>>>

>>>>>>> I am so disappointed and frustrated. I feel i had the perfect

>>>>>>> solution. But now I feel I was so wrong. After all he became

>>>>> worse.

>>>>>>> Lost even the last words that he had. It took a lot to

> convince

>>> my

>>>>>>> wife to poke my son with those MB12 injections.. .spent a

>>> fortune

>>>>> to

>>>>>>> see a dan doctor that wasnt covered by my insurance. I am

> giving

>>>>> up

>>>>>>> on MB12 and GFCF diet. I am happy it works for so many

>>> others...i

>>>>>>> really am. But I guess my thinking was flawed. I have to

> rethink

>>>>>>> autism for my son.

>>>>>>>

>>>>>>> Thanks everyone for the help you offered in the few posts

> that I

>>>>> had.

>>>>>>> And good luck

>>>>>>>

>>>>>>> Chris

>>>>>>>

>>>>>>>

>>>>>>

>>>>>

>>>>>

>>>>>

>>>>> ------------------------------------

>>>>>

>>>>>

[Guest guest]

if 5 weeks is enough to throw in the towel (I am not saying this to be mean but just straight) then you are right you probley aren't going to be the right fit for biomedical. it's takes time, testing, research and patients to find out what YOUR childs issues are, what has caused the damage and then work backwards to heal those things. it's NOT going to happen in 5 weeks. it takes time. my son lost his dx this oct. it took over 2 years to get him caught up to his peers and then 2 set backs and reworking things totally 5 years to get there. it took lots of testing, watching stools, looking at digestion, GI specialists that are familiar with our kids, urine tests to see where he was and what things we needed to work on (called OATS testing), blood tests for viral titers, and then working on THOSE results, allergy testing and removing and makeing SURE we removed everything we needed to and then rotating what we had left, testing for yeast and bacteria issues and treating those, finding out where he was with nutrition like minierials, vitamines, essential fatty acids, amino acids, enzymes ect and treating what we found off. working with a DAN dr who knew what they were doing SINCE we aren't all brillant and don't have the background to run those tests on our own, and to KNOW all our kids issues, no matter HOW great we think we are.....lot of patients, lots of testing, lots of changes and "experient" if you will. if you have cancer and surgary doesn't work, you do chemo mabey even radiation ect. you don't get rid of cancer in 5 weeks., you don't get rid of autism in 5 weeks. even with cancer if you find it in one place you check the whole body out to make sure it's not in other spots., it's no different with autism, you need to find out what your childs issues are., if what you are doing isn't working, then you haven't found YOUR childs issues yet, and you certain can't and won't fix it in just 5 weeks. it's a journey and a marathon NOT a sprint

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: MB12, GFCF diet - no change.....at all

Too many if's. Too many different injections. Too little evidence. My child is not a lab rat in which I see what sticks and helps. If this stuff doesnt work in 5 weeks, like in my case why would I do it for another year ? And if he then improves in 1 year...how do i know that not just simple time has made him better ? That the B12 did it is then just a blind assumption. It's like saying once a day for 8 years i whisper in his ear "autism go away" and in 8 years it will be gone. will it be due to my whispering efforts ? Same logic.Chris> >>>>>> >>>>> My son is almost 3 1/2 years old. Have been giving him daily> > MB12> >>>>> injections for 5 weeks. Overall we have seen absolutely no> > change.> >>>>> Before we started all he could ever verbalize is counting to> >>> 10...not> >>>>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one> >>> word> >>>>> anymore. He regressed even more. Became more irritable on top> > of> >>> it.> >>>>> He never had bowel issues in his life. All his labwork came> > back> >>>>> negative. Gluten free, casein free diet (noooo more milk at> >>>>> all)...for 5 weeks : no change AT ALL !!!> >>>>>> >>>>> I am so disappointed and frustrated. I feel i had the perfect> >>>>> solution. But now I feel I was so wrong. After all he became> >>> worse.> >>>>> Lost even the last words that he had. It took a lot to> > convince my> >>>>> wife to poke my son with those MB12 injections...spent a> > fortune> >>> to> >>>>> see a dan doctor that wasnt covered by my insurance. I am> > giving> >>> up> >>>>> on MB12 and GFCF diet. I am happy it works for so many> > others...i> >>>>> really am. But I guess my thinking was flawed. I have to> > rethink> >>>>> autism for my son.> >>>>>> >>>>> Thanks everyone for the help you offered in the few posts> > that I> >>> had.> >>>>> And good luck > >>>>>> >>>>> Chris> >>>>>> >>>>>> >>>>> >>>> >>>> >>> >> >> >> > ------------------------------------> >> >

[Guest guest]

were not injecting vitamines, we are giving what there body aren't getting because they are broken, best of luck with your modern approach.... there isn't much hope there. there is with biomedical. we execpt autism, just like one with a dx excepts cancer. you say ok I have this but then you still treat and don't just throw in the towel and say. ok my body is toxic so we'll just stay that way

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: MB12, GFCF diet - no change.....at all

It isn't, you are right. But I decided I will stick with what modern medicine is suggesting to do. ABA, speech therapy, etc...Any more needles, chelations or antivirals are experiments on your child. Too many of those theories sound good, seem to make sense, but in the end are just a "hypothesis". And a hypothesis is not the truth. The truth is, we have no clue what is going on in autistic children. This is were we stand. I will accept it until we know and then treat per recommendation, rather than blindly injecting vitamins.Chris> >> > My son is almost 3 1/2 years old. Have been giving him daily MB12 > > injections for 5 weeks. Overall we have seen absolutely no change. > > Before we started all he could ever verbalize is counting to > 10...not > > even mom or dad. Now after 5 weeks of MB12...he doesnt say one word > > anymore. He regressed even more. Became more irritable on top of > it. > > He never had bowel issues in his life. All his labwork came back > > negative. Gluten free, casein free diet (noooo more milk at > > all)...for 5 weeks : no change AT ALL !!! > > > > I am so disappointed and frustrated. I feel i had the perfect > > solution. But now I feel I was so wrong. After all he became worse. > > Lost even the last words that he had. It took a lot to convince my > > wife to poke my son with those MB12 injections...spent a fortune to > > see a dan doctor that wasnt covered by my insurance. I am giving up > > on MB12 and GFCF diet. I am happy it works for so many others...i > > really am. But I guess my thinking was flawed. I have to rethink > > autism for my son.> > > > Thanks everyone for the help you offered in the few posts that I > had. > > And good luck > > > > Chris> >>No virus found in this incoming message.

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[Guest guest]

- The frustration in your messages jumps off my computer screen when I read your messages. I know exactly how you feel. We've been at this with our son since he was not quite 2 years old and we have made very very little progress. Autism really sucks and this whole process of deciphering and implementing dietary/biomed treatments can greatly add to the stress of having an autistic child, in my opinion. My husband calls it "the great witch hunt." Still, I hang in there with the hopes that at some point we'll see a breakthrough. It's very easy to get discouraged, but just realize that 5 weeks of "treatment" won't do the trick. Best wishes and try not to let it get you down!

H.

Re: MB12, GFCF diet - no change.....at all

Too many if's. Too many different injections. Too little evidence. My child is not a lab rat in which I see what sticks and helps. If this stuff doesnt work in 5 weeks, like in my case why would I do it for another year ? And if he then improves in 1 year...how do i know that not just simple time has made him better ? That the B12 did it is then just a blind assumption. It's like saying once a day for 8 years i whisper in his ear "autism go away" and in 8 years it will be gone. will it be due to my whispering efforts ? Same logic.Chris> >>>>>> >>>>> My son is almost 3 1/2 years old. Have been giving him daily> > MB12> >>>>> injections for 5 weeks. Overall we have seen absolutely no> > change.> >>>>> Before we started all he could ever verbalize is counting to> >>> 10...not> >>>>> even mom or dad. Now after 5 weeks of MB12...he doesnt say one> >>> word> >>>>> anymore. He regressed even more. Became more irritable on top> > of> >>> it.> >>>>> He never had bowel issues in his life. All his labwork came> > back> >>>>> negative. Gluten free, casein free diet (noooo more milk at> >>>>> all)...for 5 weeks : no change AT ALL !!!> >>>>>> >>>>> I am so disappointed and frustrated. I feel i had the perfect> >>>>> solution. But now I feel I was so wrong. After all he became> >>> worse.> >>>>> Lost even the last words that he had. It took a lot to> > convince my> >>>>> wife to poke my son with those MB12 injections...spent a> > fortune> >>> to> >>>>> see a dan doctor that wasnt covered by my insurance. I am> > giving> >>> up> >>>>> on MB12 and GFCF diet. I am happy it works for so many> > others...i> >>>>> really am. But I guess my thinking was flawed. I have to> > rethink> >>>>> autism for my son.> >>>>>> >>>>> Thanks everyone for the help you offered in the few posts> > that I> >>> had.> >>>>> And good luck > >>>>>> >>>>> Chris> >>>>>> >>>>>> >>>>> >>>> >>>> >>> >> >> >> > ------------------------------------> >> >

[Guest guest]

you made some good points here, things like utensils that absorb gluten would have to be replaced, dishes all done through the dishwasher for dishes to be gluten free, no shared pans or pots unless they have been through the dishwasher, no toaster ovens or toasters being shared ect.....many people THINK they are gluten free casein free and aren't. things like rice dream milk is a no no, when people that that is safe ect

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

MB12, GFCF diet - no change.....at all > > > My son is almost 3 1/2 years old. Have been giving him daily MB12 > injections for 5 weeks. Overall we have seen absolutely no change. > Before we started all he could ever verbalize is counting to 10...not > even mom or dad. Now after 5 weeks of MB12...he doesnt say one word > anymore. He regressed even more. Became more irritable on top of it. > He never had bowel issues in his life. All his labwork came back > negative. Gluten free, casein free diet (noooo more milk at > all)...for 5 weeks : no change AT ALL !!! > > I am so disappointed and frustrated. I feel i had the perfect > solution. But now I feel I was so wrong. After all he became worse. > Lost even the last words that he had. It took a lot to convince my > wife to poke my son with those MB12 injections...spent a fortune to > see a dan doctor that wasnt covered by my insurance. I am giving up > on MB12 and GFCF diet. I am happy it works for so many others...i > really am. But I guess my thinking was flawed. I have to rethink > autism for my son.> > Thanks everyone for the help you offered in the few posts that I had. > And good luck > > Chris> > > > > No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.138 / Virus Database: 270.4.7/1541 - Release Date: 7/8/2008 7:50 PM>

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[Guest guest]

This happened when we took ours off milk for three weeks, she lost language. We put her right back on the milk and the language came back. Try to use raw goat's milk, or goat's milk which can now be found at Super WalMarts.

Ours also did not need mb12, we used TMG which made her language explode so much in 5 days that she then scored two years above age level.

A lot of this is trial and error, if what you are doing is not working don't continue, try something else.

MB12, GFCF diet - no change.....at all

My son is almost 3 1/2 years old. Have been giving him daily MB12 injections for 5 weeks. Overall we have seen absolutely no change. Before we started all he could ever verbalize is counting to 10...not even mom or dad. Now after 5 weeks of MB12...he doesnt say one word anymore. He regressed even more. Became more irritable on top of it. He never had bowel issues in his life. All his labwork came back negative. Gluten free, casein free diet (noooo more milk at all)...for 5 weeks : no change AT ALL !!! I am so disappointed and frustrated. I feel i had the perfect solution. But now I feel I was so wrong. After all he became worse. Lost even the last words that he had. It took a lot to convince my wife to poke my son with those MB12 injections...spent a fortune to see a dan doctor that wasnt covered by my insurance. I am giving up on MB12 and GFCF diet. I am happy it works for so many others...i really am. But I guess my thinking was flawed. I have to rethink autism for my son.Thanks everyone for the help you offered in the few posts that I had. And good luck :)Chris

[Guest guest]

Hi

Why are you on this group site? Gosh, you nearly sound like a mole of

some sort sent here to bash biomed treatments. I have been trying to

follow this conversation, I can hear your frustration with the way

things are progressing for your child. I feel for you. This is a long

process. There is no magic pill for our kids. It is the big picture

process, instead. That is immensely frustrating, but the truth.

You are getting lots of good feedback from a lot of knowledgeable

parents on here. Take the advice, dump the advice, do whatever. Point

being, most people on this group believe " modern medicine " like you

said is what caused their child's autism to begin with.

You are giving up GFCF because you saw " no change " in 5 weeks. Person

after person is telling you that's not long enough to see change for

most kids. But that's not good enough for you, fine. Your allergy

tests came back " normal " for your child. Good. But ASD kids don't

have " allergies " to gluten and casein, their bodies don't absorb and

process it the same way as other kids. Someone mentioned that SOY is

can mimic casein, that if you haven't removed soy you may not see any

changes. It is all people's opinions based on their own research and

doctor recommendations, and you are entitled to yours.

Let me tell you all the ABA and ST in the world did not help my son

until we started the mB-12 shots and began other biomedical

treatments. He tripled his vocabularly the two months after we began

the shots, after having a year of ST. So once again, what works for

my kid may not work for your kid. But don't trash the other parents

or try to make us sound like wack jobs for finding treatments that

work. You wouldn't have had a problem " blindly injecting " vitamins

into your child if you had seen improvement! But now that you

haven't, all of a sudden it is crazy. Dr. Neubrander has a few videos

on his site of people that didn't have improvement with the mB-12

shots as well, as nothing is 100%.

I hope things improve for you. But I think you just sound too closed

off to any other constructive advice, so I offer none.

> > >

> > > My son is almost 3 1/2 years old. Have been giving him daily

MB12

> > > injections for 5 weeks. Overall we have seen absolutely no

> change.

> > > Before we started all he could ever verbalize is counting to

> > 10...not

> > > even mom or dad. Now after 5 weeks of MB12...he doesnt say one

> word

> > > anymore. He regressed even more. Became more irritable on top

of

> > it.

> > > He never had bowel issues in his life. All his labwork came

back

> > > negative. Gluten free, casein free diet (noooo more milk at

> > > all)...for 5 weeks : no change AT ALL !!!

> > >

> > > I am so disappointed and frustrated. I feel i had the perfect

> > > solution. But now I feel I was so wrong. After all he became

> worse.

> > > Lost even the last words that he had. It took a lot to convince

> my

> > > wife to poke my son with those MB12 injections...spent a

fortune

> to

> > > see a dan doctor that wasnt covered by my insurance. I am

giving

> up

> > > on MB12 and GFCF diet. I am happy it works for so many

others...i

> > > really am. But I guess my thinking was flawed. I have to

rethink

> > > autism for my son.

> > >

> > > Thanks everyone for the help you offered in the few posts that

I

> > had.

> > > And good luck

> > >

> > > Chris

> > >

> >

>

[Guest guest]

I agree.  It's not always all or nothing.  I would look at your methods of what you've done and see if you can change your approach.  Did you go GF and CF at the same time?  If you did, you may find that maybe it's not gluten but casein or vice versa.  If you started all 3 at once then you really don't know any more than you did when you first started.  You want to start everything one at a time so you can know what's doing what.  You want to first eliminate one, watch for a few weeks, then eliminate the other.  Add one thing at a time so you technically shouldn't have been on all 3 for at least 2 months.  Right now, from what I can tell, you only know that GFCF and MB12 caused loss of speech and regression.  But which one was it?  It's unlikely that it was all 3 that did it.  If you know which one it is, you can reevaluate.  My son does fine on goat milk products but if I give him a glass of cow's milk, he has bloody stool.  So if you don't know, you can't reevaluate and tweak the approach.  Soy has already been mentioned several times.  So before giving up on anything, I would restart one at a time and keep a journal so you know what's doing what - if anything.Cheryl This happened when we took ours off milk for three weeks, she lost language. We put her right back on the milk and the language came back. Try to use raw goat's milk, or goat's milk which can now be found at Super WalMarts.   Ours also did not need mb12, we used TMG which made her language explode so much in 5 days that she then scored two years above age level.   A lot of this is trial and error, if what you are doing is not working don't continue, try something else.   MB12, GFCF diet - no change.....at all My son is almost 3 1/2 years old. Have been giving him daily MB12 injections for 5 weeks. Overall we have seen absolutely no change. Before we started all he could ever verbalize is counting to 10...not even mom or dad. Now after 5 weeks of MB12...he doesnt say one word anymore. He regressed even more. Became more irritable on top of it. He never had bowel issues in his life. All his labwork came back negative. Gluten free, casein free diet (noooo more milk at all)...for 5 weeks : no change AT ALL !!! I am so disappointed and frustrated. I feel i had the perfect solution. But now I feel I was so wrong. After all he became worse. Lost even the last words that he had. It took a lot to convince my wife to poke my son with those MB12 injections...spent a fortune to see a dan doctor that wasnt covered by my insurance. I am giving up on MB12 and GFCF diet. I am happy it works for so many others...i really am. But I guess my thinking was flawed. I have to rethink autism for my son.Thanks everyone for the help you offered in the few posts that I had. And good luck :)Chris

[Guest guest]

I agree with your feelings that your son is not a lab rat. I

don't know what issues your specific son is having, but yet another

wonderful thing about Dr. Geier is that he tests for virtually

anything that can be tested for in two rounds of blood draws. Yes,

it's traumatic at the time, but now we have answers about some of the

things you mentioned, such as MTHFR, b-12/folate, etc. Maybe you can

get your child better health care than I have been able to find, save

our DAN! who was somewhat limited by the insurance companies.

Has your son had his glutathione, homocysteine, amino acids tested? I

believe it was Dr. who stated what, about 60% of kids with

autism in her study showed skewed methylation/oxidative stress issues.

Perhaps your son is the 40% who is not in that category, and I would

make rationalize if he is then mb-12 or other protocols to promote

that pathway would not help.

I also don't believe a child has to be on a gfcf diet for a year. I

think 6-8 wks of 100% (that's often the key, parents do it 70-80% &

say they were totally on it) then you will likely see what you will

see, unless there are other offending foods of which have been

unidentified. Like us, our daughter made a huge gain within days of

gfcf, but within a couple of weeks I realized that foods high in

salicylates were giving her a fit, then cut those out & she did even

better. If a parent eliminates truly everything that needs to be

eliminated, I have yet to see any proof that 1 yr will make a

difference. There's that mantra of " it takes a year to get out the

gluten " which is obviously not true; it may take a year for IgG levels

to decrease, for the immune system to heal, etc, but if I eat a

molecule of gluten it is not going to mysteriously float around in my

body for a year, at least I've yet to see anything proving it does.

I hope you can find a protocol that can help your son, for the sake of

helping your son. I have a couple of friends who have found little/no

help with biomed. It's very frustrating for them to keep being told

they weren't doing it right, in their cases they wanted so badly for

it to help and did everything they could to help it.

Debi

[Guest guest]

I didn't even think about that, is his urine coming out pink, it may be the angle you are injecting at is wrong, i have an aspie friend who had her urine coming out pink when doing it and come to find out she wasn't seeing the most from her shots due to the way she was doing them

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: MB12, GFCF diet - no change.....at all

-By the way if your kid is a nonresponder to b12 shots he merely pees them away...it is hardly that big of a deal - there are other far worse or rather riskier interventions and sometimes doing nothing at all if there is something afoot is also the worst thing you can do...so easy there, fella, everyone here is doing the best they can and EVERYONE here loves their child just as much as you love yours....Di-- In mb12 valtrex , " Fithen" wrote:>> Hi > > Why are you on this group site? Gosh, you nearly sound like a mole of > some sort sent here to bash biomed treatments. I have been trying to > follow this conversation, I can hear your frustration with the way > things are progressing for your child. I feel for you. This is a long > process. There is no magic pill for our kids. It is the big picture > process, instead. That is immensely frustrating, but the truth.> > You are getting lots of good feedback from a lot of knowledgeable > parents on here. Take the advice, dump the advice, do whatever. Point > being, most people on this group believe "modern medicine" like you > said is what caused their child's autism to begin with.> > You are giving up GFCF because you saw "no change" in 5 weeks. Person > after person is telling you that's not long enough to see change for > most kids. But that's not good enough for you, fine. Your allergy > tests came back "normal" for your child. Good. But ASD kids don't > have "allergies" to gluten and casein, their bodies don't absorb and > process it the same way as other kids. Someone mentioned that SOY is > can mimic casein, that if you haven't removed soy you may not see any > changes. It is all people's opinions based on their own research and > doctor recommendations, and you are entitled to yours. > > Let me tell you all the ABA and ST in the world did not help my son > until we started the mB-12 shots and began other biomedical > treatments. He tripled his vocabularly the two months after we began > the shots, after having a year of ST. So once again, what works for > my kid may not work for your kid. But don't trash the other parents > or try to make us sound like wack jobs for finding treatments that > work. You wouldn't have had a problem "blindly injecting" vitamins > into your child if you had seen improvement! But now that you > haven't, all of a sudden it is crazy. Dr. Neubrander has a few videos > on his site of people that didn't have improvement with the mB-12 > shots as well, as nothing is 100%.> > I hope things improve for you. But I think you just sound too closed > off to any other constructive advice, so I offer none. > > > > > > > >> > > > My son is almost 3 1/2 years old. Have been giving him daily > MB12 > > > > injections for 5 weeks. Overall we have seen absolutely no > > change. > > > > Before we started all he could ever verbalize is counting to > > > 10...not > > > > even mom or dad. Now after 5 weeks of MB12...he doesnt say one > > word > > > > anymore. He regressed even more. Became more irritable on top > of > > > it. > > > > He never had bowel issues in his life. All his labwork came > back > > > > negative. Gluten free, casein free diet (noooo more milk at > > > > all)...for 5 weeks : no change AT ALL !!! > > > > > > > > I am so disappointed and frustrated. I feel i had the perfect > > > > solution. But now I feel I was so wrong. After all he became > > worse. > > > > Lost even the last words that he had. It took a lot to convince > > my > > > > wife to poke my son with those MB12 injections...spent a > fortune > > to > > > > see a dan doctor that wasnt covered by my insurance. I am > giving > > up > > > > on MB12 and GFCF diet. I am happy it works for so many > others...i > > > > really am. But I guess my thinking was flawed. I have to > rethink > > > > autism for my son.> > > > > > > > Thanks everyone for the help you offered in the few posts that > I > > > had. > > > > And good luck > > > > > > > > Chris> > > >> > >> >>No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1542 - Release Date: 7/9/2008 6:50 AM