Re: Welcome to PedPID@onelist.com

[Guest guest]

Hi all

New here and going to introduce myself. efore I get startd I just want

to let you all know I am a horrible typist.) *S*

Hi, I am mom to (4). was diagnosised with neutropenia

at 12 months. I have been fighting her hemotologist since then to do

something. With all her illnesses she is not gross and fine motor

delayed and been receiving speech since age 2 and OT and PT this past

year. A couple of months ago I got a 2nd opinion. Her new hem did a

bone marrow biopsy and aspiration along with many blood tests. And

started her on 120 mcg of neupogen 3 times/week.

Among these blood tests were the immunogloblin series and sub classes.

Had the series done when she was 1 and were fine. The sub classes have

been coming back real low. (Not sure what this means.) Not all the

test were back last week. Told us that we will have to see an

immnologist after all the results are in. She also mentioned the use

of IVIG. What also came back were the vaccination tithers. These all

came back neg. No antibodies were ever made. None for the chicken pox

either.

Since not all the esults were in she had as many questions as I did.

We go back next week. She will be testing her blood for B and T cells

and some ther related things. I hate this waiting period. I am not

sure what all this means. Its like I finally get her treatment for one

problem and another is found.

By the way she is allergic to Lorabid, cefzil and zithroax.

Well i look forward to your experiences and support.

(mom to Evan-6 my hockey player, (My little dancer also neutroenic

and immune problems and Abby Rose (2 on the 23rd) she is my terror)

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[Guest guest]

Thanks for the welcome Glad to be a part of it.