Guest guest Posted July 7, 1999 Report Share Posted July 7, 1999 from Autumn (Mark Cd5-Cd19 PID/ Samter's, GERD, A1A) Anyone with any information on rapid weight loss.....PLEASE send it my way. Mark has lost 8 lbs. in the last two weeks. No diarrhea, no vomitting, eating a little less but not to the point of this type of loss. He goes in for a weight check and more labs Friday morning. His physician called us tonight at 9:30pm, he has set up an appointment with us for next week to see Rheumatology at Detroit's Childrens Hospital. The doctor that we are going to see at DCH, GI in Cleveland, and our local immunologist are all very, very concerned about this sudden weight loss. I would appreciate any thoughts. I am really starting to get worried and concerned that something seriously is wrong. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 1999 Report Share Posted July 8, 1999 Autumn: I am sorry to hear about Mark! How long of a period of time has this happened. Alissa dropped 10 pounds in two months but it was tied to her infection rate. She is on three cans of pediasure a day now and has gained back 3 pounds so far. Are you going to have a full work up by your immunologist? We will keep Mark in our prayers and please let us know what is happening? God Bless annette mom to alissa cvid,asthmatic >From: Autti@... >Reply-To: PedPIDonelist >To: scidmail@... >CC: PEDPIDonelist >Subject: HELP! >Date: Thu, 8 Jul 1999 01:43:26 EDT > >From: Autti@... > >from Autumn (Mark Cd5-Cd19 PID/ Samter's, GERD, A1A) > >Anyone with any information on rapid weight loss.....PLEASE send it my way. >Mark has lost 8 lbs. in the last two weeks. No diarrhea, no vomitting, >eating a little less but not to the point of this type of loss. He goes in >for a weight check and more labs Friday morning. His physician called us >tonight at 9:30pm, he has set up an appointment with us for next week to >see >Rheumatology at Detroit's Childrens Hospital. The doctor that we are going >to see at DCH, GI in Cleveland, and our local immunologist are all very, >very >concerned about this sudden weight loss. I would appreciate any thoughts. > >I am really starting to get worried and concerned that something seriously >is >wrong. > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 1999 Report Share Posted July 8, 1999 Autumn: Has Mark's intake of fluids been the same as his output? I know this is a dumb question but sometimes I have to watch my daughter carefully that she intakes enough fluids expecially when she is on so many meds. You certainly have the best of care with your immunologist, that is a real puzzle and certainly alot of weight to drop in two weeks. Will keep you and Mark in our prayers. God BLess annette mom to alissa cvid,asthmatic >From: Autti@... >Reply-To: PedPIDonelist >To: PedPIDonelist >Subject: Re: HELP! >Date: Thu, 8 Jul 1999 15:46:11 EDT > >From: Autti@... > >Dear Annette, > >Mark lost the 8 lbs over the past two weeks. He is followed by two >immunologists and they are being pretty aggressive right now along with >Mark's GI doctor. Mark is to go in tomorrow for another weigh in. Then we >are being sent to the hospital for labs. I will let you know what happens. >Thank you for you kind caring words. > >Dale~we are so blessed to have you in this group, you always seem to say >the >right things!! Thank you for being you~ > >Autumn mom to Mark Cd5-Cd19 PID/ Samter's syndrome, A1A, GERD > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 1999 Report Share Posted July 8, 1999 Dear Annette, Mark lost the 8 lbs over the past two weeks. He is followed by two immunologists and they are being pretty aggressive right now along with Mark's GI doctor. Mark is to go in tomorrow for another weigh in. Then we are being sent to the hospital for labs. I will let you know what happens. Thank you for you kind caring words. Dale~we are so blessed to have you in this group, you always seem to say the right things!! Thank you for being you~ Autumn mom to Mark Cd5-Cd19 PID/ Samter's syndrome, A1A, GERD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 1999 Report Share Posted July 9, 1999 My son, Ben, keeps losing and gaining back the same four pounds for the last 8 months. It seems to coincide with his bouts of infections and diarrhea. He's getting taller but the weight thing is becoming an issue. We see the ped. gastroenterologist Friday to try and deal with the chronic diarrhea. Good luck to you and take care. Becky (,mom to Ben, 21 mo. CVID, asthma) HELP! > From: Autti@... > > from Autumn (Mark Cd5-Cd19 PID/ Samter's, GERD, A1A) > > Anyone with any information on rapid weight loss.....PLEASE send it my way. > Mark has lost 8 lbs. in the last two weeks. No diarrhea, no vomitting, > eating a little less but not to the point of this type of loss. He goes in > for a weight check and more labs Friday morning. His physician called us > tonight at 9:30pm, he has set up an appointment with us for next week to see > Rheumatology at Detroit's Childrens Hospital. The doctor that we are going > to see at DCH, GI in Cleveland, and our local immunologist are all very, very > concerned about this sudden weight loss. I would appreciate any thoughts. > > I am really starting to get worried and concerned that something seriously is > wrong. > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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