Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 , welcom to our group! It sounds as if you are very much on top of things for your daughters. Have you begun any speech or occupational therapy yet? Have you checked with your local intervention service? I assume you are USA. As far as finding a doc to check heavy metals, it's supposed to be a standard of the American Academy of Pediatrics to check heavy metals, but you'll be lucky if your ped even knows the standard autism procedures, much less does it! There is a group, DAN! (Defeat Autism Now) who has a listing of DAN! doctors by state. These doctors are usually up on the current biological approaches to autism, including heavy metals. In case you aren't aware, the process of removing heavy metals is called chelation (pronounced key- la-tion). Some DAN! docs assist in it. If you are interested, there is another group to which I belong, autism-mercury, which is all about chelation therapy. Warning -- chelation is controversial. Other than that, I do know of another place, Pfieffer Treatment Center, in Naperville, Illinois, outside of Chicago, that is a well- known center. They do some biological stuff related to heavy metals. I'd love to go but never been. THey have a website, but I'm not sure the link. If you do a yahoo search you can find it fairly quickly. We look forward to getting to know you! Debi mother to 6 NT, Allie 3 ASD, Dinah 7mo NT so far > I just realized I haven't posted yet and I'm getting all these emails > from this group. > I have 2 daughters, (will be 3 in July) and Brigette (just > turned 15 months). > About 3 months ago, I started noticing changes in Brigette's > behavior. She was starting to avoid eye contact and not looking when > we called her name. Around 11 or 12 months, she first started > babbling, but it was very rare. After awhile, she completely stopped. > Now she just blows raspberries and moans a lot. She's still not > walking but she is standing on her own and furniture walking. She > doesn't really play with toys, she just bangs them against a table or > whatever is near. She also likes to hold a toy or a piece of paper > and shake it, she finds that interesting. When she's holding a > bottle, she's slapping at it while drinking. She slaps at a lot of > things. She's into shaking her head 'no' but she's not waving. The > only thing she imitates is clapping. She does love to be held and > rocked and will hold her arms out to me to pick her up. She used to > get excited when I came into the room and cry when I would leave but > she doesn't do that anymore. > So what does all this tell you? There is no disorders in either mine > or my husband's family. I do have fillings in my mouth that I've had > since I was a child. I'm wondering if maybe I passed mercury to her > during pregnancy. This is something I read about recently doing > research on the internet. She just had her MMR shot last Saturday > which now that I know a lot about it, I regret her getting. > She still smiles and laughs. She loves being tickled and held in the > air. I know she doesn't like her sister. has always been very > mean to her. When she thought we weren't looking, she would hit, > push, kick and jerk toys away from Brigette. I can never leave them > alone for even a second. Usually when gets close, Brigette > moves away or puts down the toy she was holding. Is this > psychological? > Another thing. Sorry, I know this is long. She was born 4 weeks > early. She couldn't breath when she was born but they still gave her > to me and she stayed with me in recovery for about 45 minutes until > my mom noticed she kept making a grunting noise. The nurse took her, > checked her chest and immediately took her to NICU. She was in NICU > for 11 days on a ventilator. At one time, she extubated herself. > The hospital never told me if any damage was done. I assumed there > wasn't since they gave her a brain scan and other tests that I don't > really know much about. > Anyway, we're waiting on a neuro evaluation. Early intervention > specialist is coming next Monday. And the ped dr. ordered a lead, > anemia and thyroid blood test. > What I really want her to have is her heavy metals checked. If my > doctor won't do it, do you know how I can have this done? She's still > real young and I don't know if they will do it at her age. > Has anyone had this done? > Well, thank you for reading. I'm happy I found this group. I hope to > learn a lot from you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 ---Hi --I saw your question re: toxic metal testing. Yes, you can get one done. On the autism-mercury list, they talk about this a lot. DDI is a lab in IL that is good. They use a hair test. Did your daughter also get thimerosal (mercury) in her vaccines. Your doc needs to write a prescription for the testing--Do it soon and no more vaccines!! Also check your home for any other exposures, like lead, arsenic etc--go to the group I mentioned and pose your questions there--It is a more biomedical group and that is what you need the most now. In Autism_in_Girls , Duane and Tracey Pratt <dtpratt@h...> wrote: > Hi > Welcome to the list. My name is Tracey and I live in a small town > in Ontario, Canada. Like you I have two daughters my oldest will be 13 > in July and my youngest, Skylar age 10 1/2, was diagnosed autistic at > age 3. > Sounds like you have a good idea of what you feel your daughter > needs. Early Intervention is great. Have you looked into speech or > occupational therapy? > > Tracey > > l_luv_a_marine wrote: > > > I just realized I haven't posted yet and I'm getting all these emails > > from this group. > > I have 2 daughters, (will be 3 in July) and Brigette (just > > turned 15 months). > > About 3 months ago, I started noticing changes in Brigette's > > behavior. She was starting to avoid eye contact and not looking when > > we called her name. Around 11 or 12 months, she first started > > babbling, but it was very rare. After awhile, she completely stopped. > > Now she just blows raspberries and moans a lot. She's still not > > walking but she is standing on her own and furniture walking. She > > doesn't really play with toys, she just bangs them against a table or > > whatever is near. She also likes to hold a toy or a piece of paper > > and shake it, she finds that interesting. When she's holding a > > bottle, she's slapping at it while drinking. She slaps at a lot of > > things. She's into shaking her head 'no' but she's not waving. The > > only thing she imitates is clapping. She does love to be held and > > rocked and will hold her arms out to me to pick her up. She used to > > get excited when I came into the room and cry when I would leave but > > she doesn't do that anymore. > > So what does all this tell you? There is no disorders in either mine > > or my husband's family. I do have fillings in my mouth that I've had > > since I was a child. I'm wondering if maybe I passed mercury to her > > during pregnancy. This is something I read about recently doing > > research on the internet. She just had her MMR shot last Saturday > > which now that I know a lot about it, I regret her getting. > > She still smiles and laughs. She loves being tickled and held in the > > air. I know she doesn't like her sister. has always been very > > mean to her. When she thought we weren't looking, she would hit, > > push, kick and jerk toys away from Brigette. I can never leave them > > alone for even a second. Usually when gets close, Brigette > > moves away or puts down the toy she was holding. Is this > > psychological? > > Another thing. Sorry, I know this is long. She was born 4 weeks > > early. She couldn't breath when she was born but they still gave her > > to me and she stayed with me in recovery for about 45 minutes until > > my mom noticed she kept making a grunting noise. The nurse took her, > > checked her chest and immediately took her to NICU. She was in NICU > > for 11 days on a ventilator. At one time, she extubated herself. > > The hospital never told me if any damage was done. I assumed there > > wasn't since they gave her a brain scan and other tests that I don't > > really know much about. > > Anyway, we're waiting on a neuro evaluation. Early intervention > > specialist is coming next Monday. And the ped dr. ordered a lead, > > anemia and thyroid blood test. > > What I really want her to have is her heavy metals checked. If my > > doctor won't do it, do you know how I can have this done? She's still > > real young and I don't know if they will do it at her age. > > Has anyone had this done? > > Well, thank you for reading. I'm happy I found this group. I hope to > > learn a lot from you all. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Debi, Thanks for welcoming me and the info on heavy metals. We haven't begun any speech or occupational therapy. The Early Intervention Specialist comes next Monday so we'll get things started soon. We're in Cleveland which I've heard is one of the best places in the world for healthcare. Brigette has an appt with the Cleveland Clinic in June but they are just going to evaluate her and not do the neurological tests. We were able to make an appt at the University Hospital but that is not until Sept. 17. I just cannot wait 4 months to find out what is wrong with my baby. So we're going to try and find someone else. Her pediatrician called us last night and said to have the neuro work done first because she has low muscle tone. I'm starting to think it could be ear related. Sometimes she slaps or pulls at her ears and she's been nodding her head 'no' a lot lately....I mean like shaking it vigorously. I'm wondering if she has fluid build-up. Maybe that is why she doesn't answer to her name or talk? I don't know. I'm just so worried and frustrated and scared. I just want answers and I hate waiting. Anyway, thanks for your reply. I hope you all will be able to put up with me...lol > > I just realized I haven't posted yet and I'm getting all these > emails > > from this group. > > I have 2 daughters, (will be 3 in July) and Brigette (just > > turned 15 months). > > About 3 months ago, I started noticing changes in Brigette's > > behavior. She was starting to avoid eye contact and not looking > when > > we called her name. Around 11 or 12 months, she first started > > babbling, but it was very rare. After awhile, she completely > stopped. > > Now she just blows raspberries and moans a lot. She's still not > > walking but she is standing on her own and furniture walking. She > > doesn't really play with toys, she just bangs them against a table > or > > whatever is near. She also likes to hold a toy or a piece of paper > > and shake it, she finds that interesting. When she's holding a > > bottle, she's slapping at it while drinking. She slaps at a lot of > > things. She's into shaking her head 'no' but she's not waving. > The > > only thing she imitates is clapping. She does love to be held and > > rocked and will hold her arms out to me to pick her up. She used > to > > get excited when I came into the room and cry when I would leave > but > > she doesn't do that anymore. > > So what does all this tell you? There is no disorders in either > mine > > or my husband's family. I do have fillings in my mouth that I've > had > > since I was a child. I'm wondering if maybe I passed mercury to > her > > during pregnancy. This is something I read about recently doing > > research on the internet. She just had her MMR shot last Saturday > > which now that I know a lot about it, I regret her getting. > > She still smiles and laughs. She loves being tickled and held in > the > > air. I know she doesn't like her sister. has always been > very > > mean to her. When she thought we weren't looking, she would hit, > > push, kick and jerk toys away from Brigette. I can never leave > them > > alone for even a second. Usually when gets close, Brigette > > moves away or puts down the toy she was holding. Is this > > psychological? > > Another thing. Sorry, I know this is long. She was born 4 weeks > > early. She couldn't breath when she was born but they still gave > her > > to me and she stayed with me in recovery for about 45 minutes > until > > my mom noticed she kept making a grunting noise. The nurse took > her, > > checked her chest and immediately took her to NICU. She was in > NICU > > for 11 days on a ventilator. At one time, she extubated herself. > > The hospital never told me if any damage was done. I assumed there > > wasn't since they gave her a brain scan and other tests that I > don't > > really know much about. > > Anyway, we're waiting on a neuro evaluation. Early intervention > > specialist is coming next Monday. And the ped dr. ordered a lead, > > anemia and thyroid blood test. > > What I really want her to have is her heavy metals checked. If my > > doctor won't do it, do you know how I can have this done? She's > still > > real young and I don't know if they will do it at her age. > > Has anyone had this done? > > Well, thank you for reading. I'm happy I found this group. I hope > to > > learn a lot from you all. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Hi Welcome to the list. My name is Tracey and I live in a small town in Ontario, Canada. Like you I have two daughters my oldest will be 13 in July and my youngest, Skylar age 10 1/2, was diagnosed autistic at age 3. Sounds like you have a good idea of what you feel your daughter needs. Early Intervention is great. Have you looked into speech or occupational therapy? Tracey l_luv_a_marine wrote: > I just realized I haven't posted yet and I'm getting all these emails > from this group. > I have 2 daughters, (will be 3 in July) and Brigette (just > turned 15 months). > About 3 months ago, I started noticing changes in Brigette's > behavior. She was starting to avoid eye contact and not looking when > we called her name. Around 11 or 12 months, she first started > babbling, but it was very rare. After awhile, she completely stopped. > Now she just blows raspberries and moans a lot. She's still not > walking but she is standing on her own and furniture walking. She > doesn't really play with toys, she just bangs them against a table or > whatever is near. She also likes to hold a toy or a piece of paper > and shake it, she finds that interesting. When she's holding a > bottle, she's slapping at it while drinking. She slaps at a lot of > things. She's into shaking her head 'no' but she's not waving. The > only thing she imitates is clapping. She does love to be held and > rocked and will hold her arms out to me to pick her up. She used to > get excited when I came into the room and cry when I would leave but > she doesn't do that anymore. > So what does all this tell you? There is no disorders in either mine > or my husband's family. I do have fillings in my mouth that I've had > since I was a child. I'm wondering if maybe I passed mercury to her > during pregnancy. This is something I read about recently doing > research on the internet. She just had her MMR shot last Saturday > which now that I know a lot about it, I regret her getting. > She still smiles and laughs. She loves being tickled and held in the > air. I know she doesn't like her sister. has always been very > mean to her. When she thought we weren't looking, she would hit, > push, kick and jerk toys away from Brigette. I can never leave them > alone for even a second. Usually when gets close, Brigette > moves away or puts down the toy she was holding. Is this > psychological? > Another thing. Sorry, I know this is long. She was born 4 weeks > early. She couldn't breath when she was born but they still gave her > to me and she stayed with me in recovery for about 45 minutes until > my mom noticed she kept making a grunting noise. The nurse took her, > checked her chest and immediately took her to NICU. She was in NICU > for 11 days on a ventilator. At one time, she extubated herself. > The hospital never told me if any damage was done. I assumed there > wasn't since they gave her a brain scan and other tests that I don't > really know much about. > Anyway, we're waiting on a neuro evaluation. Early intervention > specialist is coming next Monday. And the ped dr. ordered a lead, > anemia and thyroid blood test. > What I really want her to have is her heavy metals checked. If my > doctor won't do it, do you know how I can have this done? She's still > real young and I don't know if they will do it at her age. > Has anyone had this done? > Well, thank you for reading. I'm happy I found this group. I hope to > learn a lot from you all. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Hi Theresa, Brigette just got her MMR shot on Saturday. The doctor brought up the controversy about thimerosal but I really had no idea what he was talking about and half of what he says I can't understand cause he has such a thick accent. That is why I usually take my husband since he seems to understand him better. I didn't know about all this until I started doing research on autism when I got home from his office. Yes, I really regret letting her get that shot and not asking more questions. She's supposed to get another shot in June. Should I tell him no more shots? Will he allow that? She's getting a lead blood test tomorrow. I will definitely check out the board you suggested. Thank you for telling me about it. > > > > > I just realized I haven't posted yet and I'm getting all these > emails > > > from this group. > > > I have 2 daughters, (will be 3 in July) and Brigette (just > > > turned 15 months). > > > About 3 months ago, I started noticing changes in Brigette's > > > behavior. She was starting to avoid eye contact and not looking > when > > > we called her name. Around 11 or 12 months, she first started > > > babbling, but it was very rare. After awhile, she completely > stopped. > > > Now she just blows raspberries and moans a lot. She's still not > > > walking but she is standing on her own and furniture walking. She > > > doesn't really play with toys, she just bangs them against a > table or > > > whatever is near. She also likes to hold a toy or a piece of > paper > > > and shake it, she finds that interesting. When she's holding a > > > bottle, she's slapping at it while drinking. She slaps at a lot > of > > > things. She's into shaking her head 'no' but she's not waving. > The > > > only thing she imitates is clapping. She does love to be held and > > > rocked and will hold her arms out to me to pick her up. She used > to > > > get excited when I came into the room and cry when I would leave > but > > > she doesn't do that anymore. > > > So what does all this tell you? There is no disorders in either > mine > > > or my husband's family. I do have fillings in my mouth that I've > had > > > since I was a child. I'm wondering if maybe I passed mercury to > her > > > during pregnancy. This is something I read about recently doing > > > research on the internet. She just had her MMR shot last Saturday > > > which now that I know a lot about it, I regret her getting. > > > She still smiles and laughs. She loves being tickled and held in > the > > > air. I know she doesn't like her sister. has always been > very > > > mean to her. When she thought we weren't looking, she would hit, > > > push, kick and jerk toys away from Brigette. I can never leave > them > > > alone for even a second. Usually when gets close, Brigette > > > moves away or puts down the toy she was holding. Is this > > > psychological? > > > Another thing. Sorry, I know this is long. She was born 4 weeks > > > early. She couldn't breath when she was born but they still gave > her > > > to me and she stayed with me in recovery for about 45 minutes > until > > > my mom noticed she kept making a grunting noise. The nurse took > her, > > > checked her chest and immediately took her to NICU. She was in > NICU > > > for 11 days on a ventilator. At one time, she extubated herself. > > > The hospital never told me if any damage was done. I assumed > there > > > wasn't since they gave her a brain scan and other tests that I > don't > > > really know much about. > > > Anyway, we're waiting on a neuro evaluation. Early intervention > > > specialist is coming next Monday. And the ped dr. ordered a lead, > > > anemia and thyroid blood test. > > > What I really want her to have is her heavy metals checked. If my > > > doctor won't do it, do you know how I can have this done? She's > still > > > real young and I don't know if they will do it at her age. > > > Has anyone had this done? > > > Well, thank you for reading. I'm happy I found this group. I > hope to > > > learn a lot from you all. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 --- Brigette has an appt with the Cleveland Clinic in , the waiting can be so frustrating. I don't understand why it takes so long. Have you taken her to the doctor or audiologist to get a look at the ears? Many of our kids have sinus issues; perhaps a nightly dose of Triaminic or Benadryl could help her if she's stuffy. One thing, in case you are not aware, is that many kids with autism have what's known as sensory integration disfunction. One aspect of this is vestibular, or inner ear type stuff. For example, my daughter didn't walk until 17 months old. Turns out she felt as if she was always falling over (probably, she couldn't tell us, just what her therapists were guessing). Other things she would do is crawl, rather than walk, down steps. She hated being up high like on changing tables and diaper decks, and she hated swinging. Of course, she has low muscle tone because she felt safest on the floor, lying on her back, holding her feet in the air with her hands. It's also very normal to be frustrated and scared. Please feel free to post here, we've all been through it. I can tell you that it does get better! It may take a couple of years to begin to see the progress, but it will come. And, autism has a way of presenting new symptoms for several years. For example, Allie would get some symptoms seemingly under control by 2 1/2 yrs but then new symptoms would begin. For example, noises bothered Allie for a while and she would constantly cover her ears. She stopped doing that so much but then began hitting a lot more. HTH, Debi > neurological tests. We were able to make an appt at the University > Hospital but that is not until Sept. 17. I just cannot wait 4 months > to find out what is wrong with my baby. So we're going to try and > find someone else. Her pediatrician called us last night and said to > have the neuro work done first because she has low muscle tone. > I'm starting to think it could be ear related. Sometimes she slaps or > pulls at her ears and she's been nodding her head 'no' a lot > lately....I mean like shaking it vigorously. I'm wondering if she has > fluid build-up. Maybe that is why she doesn't answer to her name or > talk? I don't know. I'm just so worried and frustrated and scared. > I just want answers and I hate waiting. > Anyway, thanks for your reply. I hope you all will be able to put up > with me...lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 ---No problem Kim--My daughter, , is 10 and I knew nothing about autism when she was diagnosed 7 years ago--there wasn't as much info or internet then. My daughter was normal, had speech, did her ABC's, good eye contact but stopped and regressed between 18- 24months. We thought many reasons--we had moved, I was pregnant, her sister was born and had HORRIBLE 24 hour colic, etc. It wasn't until 2 years ago that I heard about thimerosal (50% mercury) being in most of the childhood vaccines and that chronic/or bolus exposure can induce neurological problems. Mercury poisoning mimics many/most symptoms of autism (go to Safeminds website-with google). You are unsure at this point of what is happening but can ask your ped. for a Hair test to determine toxic metal and essential metals. This won't take months but weeks--use Doctor's Data in IL-check their website) most metals clear the blood in weeks--hair shows past exposure (go to mercury-autism ) and read the files. Another thing to try is eliminating certain foods (gluten/casein) and see if her behaviors change(positive). I know this is overwhelming BUT you are at an advantage because your daughter is young and their are treatments that can help if she is on the autistic spectrum. PS--I read this list on/off but rarely post except for vaccines or politics. I do not wish anyone to think that I am saying " bad " things about being " autistic " as some on this list describe themselves as autistic. I have the beleif that the word autism is not correct for all persons--meaning that my daughter and others were neurotypical until vaccines (thimerosal, 163mcg, in our situation) caused my daughter to be injured, poisoned and thus, " mercury-induced " autism. She is unable to talk, uses pictures/gestures, has limited bladder/bowel control, has immune dysfuncion, sensory dysfunction, and requires 24/7 care in that she does not understand danger. Personality wise, she is beautiful, loves to laugh, be tickled, give/get " soft " kisses, firm hugs (sensory) and I'm sure sees/feels life differently. Medically speaking, she has constant yeast overgrowth, bowel problems,food allergies, takes Houston digestive enzymes for " gut " issues, supplements,etc. all as a result of mercury. The theory that is actually being shown to be true is that mercury causes " autism " in about 75% of diagnosed kids (w/varying degrees of severity) and that MMR , 15%, is a subset of kids who develop immune/brain issues (viral). The rest are maternal mercury -Rhogam shots in pregnancy/breastfeeding and/or silver amalgams. So, I look at my daughter as a child who has " mercury induced neurological disability " . This is also the explaination for the epidemic in diagnosed cases, and for ADD as well. It is also being looked at as a huge increase in Altzeimers (flu shots w/thimerosal and leaking, old silver amalgams) and possible bipolar in genetically susc. Read Boyd Haley re thimerosal--It will shock you. I hope your daughter's tests will help you determine what " it " is so you can treat it. And no more vaccines... for now.You can e-mail me personally if you want. Also, the MMR shot has no thimerosal. If you list her vaccines by name and company, that may give an indication of any mercury concern. In Autism_in_Girls , " l_luv_a_marine " <johnandkimmyw@a...> wrote: > Hi Theresa, > Brigette just got her MMR shot on Saturday. The doctor brought up the > controversy about thimerosal but I really had no idea what he was > talking about and half of what he says I can't understand cause he > has such a thick accent. That is why I usually take my husband since > he seems to understand him better. I didn't know about all this until > I started doing research on autism when I got home from his office. > Yes, I really regret letting her get that shot and not asking more > questions. She's supposed to get another shot in June. Should I tell > him no more shots? Will he allow that? > She's getting a lead blood test tomorrow. > I will definitely check out the board you suggested. Thank you for > telling me about it. > > > > > > > > > I just realized I haven't posted yet and I'm getting all these > > emails > > > > from this group. > > > > I have 2 daughters, (will be 3 in July) and Brigette > (just > > > > turned 15 months). > > > > About 3 months ago, I started noticing changes in Brigette's > > > > behavior. She was starting to avoid eye contact and not looking > > when > > > > we called her name. Around 11 or 12 months, she first started > > > > babbling, but it was very rare. After awhile, she completely > > stopped. > > > > Now she just blows raspberries and moans a lot. She's still not > > > > walking but she is standing on her own and furniture walking. > She > > > > doesn't really play with toys, she just bangs them against a > > table or > > > > whatever is near. She also likes to hold a toy or a piece of > > paper > > > > and shake it, she finds that interesting. When she's holding a > > > > bottle, she's slapping at it while drinking. She slaps at a lot > > of > > > > things. She's into shaking her head 'no' but she's not waving. > > The > > > > only thing she imitates is clapping. She does love to be held > and > > > > rocked and will hold her arms out to me to pick her up. She > used > > to > > > > get excited when I came into the room and cry when I would > leave > > but > > > > she doesn't do that anymore. > > > > So what does all this tell you? There is no disorders in either > > mine > > > > or my husband's family. I do have fillings in my mouth that > I've > > had > > > > since I was a child. I'm wondering if maybe I passed mercury to > > her > > > > during pregnancy. This is something I read about recently doing > > > > research on the internet. She just had her MMR shot last > Saturday > > > > which now that I know a lot about it, I regret her getting. > > > > She still smiles and laughs. She loves being tickled and held > in > > the > > > > air. I know she doesn't like her sister. has always been > > very > > > > mean to her. When she thought we weren't looking, she would hit, > > > > push, kick and jerk toys away from Brigette. I can never leave > > them > > > > alone for even a second. Usually when gets close, > Brigette > > > > moves away or puts down the toy she was holding. Is this > > > > psychological? > > > > Another thing. Sorry, I know this is long. She was born 4 weeks > > > > early. She couldn't breath when she was born but they still > gave > > her > > > > to me and she stayed with me in recovery for about 45 minutes > > until > > > > my mom noticed she kept making a grunting noise. The nurse took > > her, > > > > checked her chest and immediately took her to NICU. She was in > > NICU > > > > for 11 days on a ventilator. At one time, she extubated herself. > > > > The hospital never told me if any damage was done. I assumed > > there > > > > wasn't since they gave her a brain scan and other tests that I > > don't > > > > really know much about. > > > > Anyway, we're waiting on a neuro evaluation. Early intervention > > > > specialist is coming next Monday. And the ped dr. ordered a > lead, > > > > anemia and thyroid blood test. > > > > What I really want her to have is her heavy metals checked. If > my > > > > doctor won't do it, do you know how I can have this done? She's > > still > > > > real young and I don't know if they will do it at her age. > > > > Has anyone had this done? > > > > Well, thank you for reading. I'm happy I found this group. I > > hope to > > > > learn a lot from you all. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Abby would sit on a sit & spin for hours if we let her. I get dizzy just looking at her. LOL Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 kara can spin and spin and never get dizzy, quite a phenomenom!!! and quite common with autistic kids, that has to do with the inner ear too. I,m not sure about triaminic. or cold stuff will help...has she had seizures? > --- Brigette has an appt with the Cleveland Clinic in > , the waiting can be so frustrating. I don't understand why > it takes so long. Have you taken her to the doctor or audiologist to > get a look at the ears? Many of our kids have sinus issues; perhaps > a nightly dose of Triaminic or Benadryl could help her if she's > stuffy. > > One thing, in case you are not aware, is that many kids with autism > have what's known as sensory integration disfunction. One aspect of > this is vestibular, or inner ear type stuff. For example, my > daughter didn't walk until 17 months old. Turns out she felt as if > she was always falling over (probably, she couldn't tell us, just > what her therapists were guessing). Other things she would do is > crawl, rather than walk, down steps. She hated being up high like on > changing tables and diaper decks, and she hated swinging. Of course, > she has low muscle tone because she felt safest on the floor, lying > on her back, holding her feet in the air with her hands. > > It's also very normal to be frustrated and scared. Please feel free > to post here, we've all been through it. I can tell you that it does > get better! It may take a couple of years to begin to see the > progress, but it will come. And, autism has a way of presenting new > symptoms for several years. For example, Allie would get some > symptoms seemingly under control by 2 1/2 yrs but then new symptoms > would begin. For example, noises bothered Allie for a while and she > would constantly cover her ears. She stopped doing that so much but > then began hitting a lot more. > > HTH, > Debi > > > > >> neurological tests. We were able to make an appt at the University >> Hospital but that is not until Sept. 17. I just cannot wait 4 > months >> to find out what is wrong with my baby. So we're going to try and >> find someone else. Her pediatrician called us last night and said > to >> have the neuro work done first because she has low muscle tone. >> I'm starting to think it could be ear related. Sometimes she slaps > or >> pulls at her ears and she's been nodding her head 'no' a lot >> lately....I mean like shaking it vigorously. I'm wondering if she > has >> fluid build-up. Maybe that is why she doesn't answer to her name > or >> talk? I don't know. I'm just so worried and frustrated and scared. >> I just want answers and I hate waiting. >> Anyway, thanks for your reply. I hope you all will be able to put > up >> with me...lol > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Do you to be in the Cleveland Ohio? If so you may be to want to look into another yahoo group too under Autism Ohio. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 My missy is of age 9 and still loves to stand up and spin self non stop. She loved her sit and spin as a younger child way past the age of being able to sit on it effectively. She never seems to get dizzy either. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 We are practically neighbours!! LOL Tracey l_luv_a_marine wrote: > Thanks for the welcome Tracey. Hey, you are right across the lake > from me. lol > > > > > > > I just realized I haven't posted yet and I'm getting all these > emails > > > from this group. > > > I have 2 daughters, (will be 3 in July) and Brigette (just > > > turned 15 months). > > > About 3 months ago, I started noticing changes in Brigette's > > > behavior. She was starting to avoid eye contact and not looking > when > > > we called her name. Around 11 or 12 months, she first started > > > babbling, but it was very rare. After awhile, she completely > stopped. > > > Now she just blows raspberries and moans a lot. She's still not > > > walking but she is standing on her own and furniture walking. She > > > doesn't really play with toys, she just bangs them against a > table or > > > whatever is near. She also likes to hold a toy or a piece of paper > > > and shake it, she finds that interesting. When she's holding a > > > bottle, she's slapping at it while drinking. She slaps at a lot of > > > things. She's into shaking her head 'no' but she's not waving. > The > > > only thing she imitates is clapping. She does love to be held and > > > rocked and will hold her arms out to me to pick her up. She used > to > > > get excited when I came into the room and cry when I would leave > but > > > she doesn't do that anymore. > > > So what does all this tell you? There is no disorders in either > mine > > > or my husband's family. I do have fillings in my mouth that I've > had > > > since I was a child. I'm wondering if maybe I passed mercury to > her > > > during pregnancy. This is something I read about recently doing > > > research on the internet. She just had her MMR shot last Saturday > > > which now that I know a lot about it, I regret her getting. > > > She still smiles and laughs. She loves being tickled and held in > the > > > air. I know she doesn't like her sister. has always been > very > > > mean to her. When she thought we weren't looking, she would hit, > > > push, kick and jerk toys away from Brigette. I can never leave > them > > > alone for even a second. Usually when gets close, Brigette > > > moves away or puts down the toy she was holding. Is this > > > psychological? > > > Another thing. Sorry, I know this is long. She was born 4 weeks > > > early. She couldn't breath when she was born but they still gave > her > > > to me and she stayed with me in recovery for about 45 minutes > until > > > my mom noticed she kept making a grunting noise. The nurse took > her, > > > checked her chest and immediately took her to NICU. She was in > NICU > > > for 11 days on a ventilator. At one time, she extubated herself. > > > The hospital never told me if any damage was done. I assumed there > > > wasn't since they gave her a brain scan and other tests that I > don't > > > really know much about. > > > Anyway, we're waiting on a neuro evaluation. Early intervention > > > specialist is coming next Monday. And the ped dr. ordered a lead, > > > anemia and thyroid blood test. > > > What I really want her to have is her heavy metals checked. If my > > > doctor won't do it, do you know how I can have this done? She's > still > > > real young and I don't know if they will do it at her age. > > > Has anyone had this done? > > > Well, thank you for reading. I'm happy I found this group. I hope > to > > > learn a lot from you all. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 " Greetings, fellow Aspergians! I have seen the truth! Ok, OK. Maybe not, but I do have AS! Peace. " Hello, and welcome to the group. Adminisrtator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 Greetings and welcome, Katinasgrl. Raven Co-Administrator > > Greetings, fellow Aspergians! I have seen the truth! Ok, OK. Maybe > not, but I do have AS! Peace. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 > Greetings, fellow Aspergians! I have seen the truth! Ok, OK. Maybe > not, but I do have AS! Peace. > Looks like you have a sticky Send button as well. ;-) (I got four copies of your post.) I'm new here myself but have been lurking for a week or so now. Self- diagnosed, and online tested, Aspie with a daughter on the spectrum as well. -- Mike See with eyes unclouded, think with mind uncluttered, act with heart unchained! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Welcome to the list! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 " I'm new here myself but have been lurking for a week or so now. Self- diagnosed, and online tested, Aspie with a daughter on the spectrum as well. " Welcome Mike. Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 Mike wrote: " ... <snip> ... I'm new here myself but have been lurking for a week or so now. Self-diagnosed, and online tested, Aspie with a daughter on the spectrum as well. " Welcome, Mike. A word of advice -- do NOT let anyone in the real world find out you are AS as long as you have a child in school. The school board will leverage that against you and may even go as far as to attempt to have your parental rights severed if you advocate too loudly on behalf of your child/ren with Autism. Raven Co-Administrator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 They certainly do play dirty tricks and not just limited to school boards. About 10 years ago I bought a new car. Word around the neighborhood was that, because I didn't seem to have a job, that I was using and dealing drugs and that was how I bought the car. I don't know who started that rumor nor do I particularly care. A time later when one of the neighbors who had relations in Alabama found out I was telling the truth about running the family business and the other legal things on the side, their attitude really changed. People who wouldn't talk to me before were suddenly all smiles and chatty. I didn't buy it though because I remember that they believed the rumors over the truth when I told it to them. It is also funny that, even so, I don't get invited to neighborhood functions and get togethers, even though the neighbors on both sides of me would, and one of them is a newcomer. Still, I did find it amusing that after I bought my new car that within a month, practically everyone on the street had a new car too. Most of them were SUV's or something fancier than basic Toyota Camry that I bought. mimi wrote: "I second that NT's play dirty tricks!"They most assuredly do and then they use whatever they can lay theirhands on and misuse and abuse them as weapons against the person whois kind and gentle.RavenPlanning your summer road trip? Check out AOL Travel Guides. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 I'm not too worried about it, but you are right. If an allegation like that can stick, it can be a real problem. I know that they say a lot of things about me, but that's just how it is. One reason I don't care about them is that I used to help them out from time to time, but if I ever needed help, they didn't return the favor. Well, I will admit that after Hurricane Isabel, one of the neighbors did come over this his chainsaw and help cut up the trees that were in the yard, but that's about it. Only one of the neighbors I really like and he's a WWII Navy veteran that I have known all of my life. People can be strange alright. The folks in Alabama know who I am, but most of them are still standoffish. The ones I work with are cool though and that's what counts. I'll tell you a funny story. I was down there are few years ago around the time of high school graduation, a little before really. The house I usually stay in is in town and belongs to an estate of a deceased woman my lawyer manages. That house is usually empty, but they use it for certain functions and they let clients stay in it too. It makes more sense for me to stay there in town and close to the shops and all rather than at my place miles away from anything, particularly since I hate driving. Anyway, that time they were having some kind of party for some of the girls from the only private school in the area. Some kind of catillian or other silly debutante ball kind of thing, which was really odd since it was just the girls and their mothers, like they didn't know each other anyway. Well, the year before they did the same thing and I stayed away from the house because I didn't want to get caught up in it. This year, however, I decided to go back and upstairs to the guest room. Now the funny part. When I walked in in my usual jeans, T-shirt, light jacket and baseball cap, they looked at me about like a martian walked in, giggling, keeping a distance and all that. I said hello and went upstairs. A little while later I decided I needed something from the kitchen which was downstairs. So, I quietly went downstairs and went through the TV room rather than the dining room where the formal affairs had been held. They all looked pretty much the same, but I was delayed talking to my lawyer's wife a few minutes, she's really chatty. By the time I got away and headed back upstairs, I noticed that most of the girls had removed their kind of jacket things so they were bare shouldered and, well, you've probably seen those fancy dresses. They also smiled more and didn't run away like before. Turned out they had been told who I was. When they realized I owned a timber company, well, I might still have been a martian to them, but suddenly not so bad of one. I found it really amusing and just went on back upstairs and stayed there until they left. Not the first time that kind of thing has happened though. Maybe if one of them had a family that also had a timber company or other means I wouldn't have been put off by that show. You probably should casually find out where that came from because in times of trouble that source will likely be your worst enemy unfortunately. Once accusation of something like terrorism or being a pedophile and everything you have is likely thrown out the window. I don't trust people one bit. (With some exceptions.)Planning your summer road trip? Check out AOL Travel Guides. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 An amusing list I'll get to in a minute. According to the IRS, I'm a farmer. That's fine with me because truth be told that's what I am. I am also typical for a farmer, which is to say "Land rich but cash poor." That means my assets are all in land. They might be worth a lot, but my income is middle class. Sure, I could sell my land or take out mortgages and hock it to the gills, but that would mean I lose the land (if I defaulted on the mortgages) and then I would have only the cash. Once the cash was gone I would have nothing. This has happened to many people in the area, including some family. They sell the land and within two years all the cash is gone and they have nothing, except maybe debt. 1) Not really because I already have things arranged in case that happens. The town doesn't get anything. 2) I don't really have any business connections, nor am I interesting in playing those games. My land manager has some connections that he uses to my advantage, though, such as getting loads from my land to the mills, but that doesn't always work. 3) Ain't gonna happen. 4) Not likely either since I despise politicians. 5) Even less likely because I have even less use for them. By celebrities I am referring to the Paris Hiltons and Hollywood set. I do sort of know a couple of local celebs, but they are down to earth people and most people don't care that I know them. 6) Not likely to happen either because I don't have that kind of disposable wealth. On the other hand, it is known that if someone caused me to lose what I have, that I would hunt them down and kill them, followed by killing myself because I will not go to prison. Trust me, that makes people squirm even more than the threat of legal action. Of course, I hope it never comes to that because I'd rather not actually kill anyone at all. Land values are skewed like that. My land typically is worth around that, $1,500 to $2,000 an acre or so, depending on the value of the timber on it, how far along it is, structures on the land, etc. The values will probably rise before long because of the urban sprawl coming from Mobile and the new highway that is coming through, 15 years or so after the incompetent highway department started it. I don't see that as a good thing because that only means more taxes that I will have to pay and there will be pressure from outsiders for me to sell. They aren't going to get it, but there is no telling what kind of dirty tricks them might pull to force my hand. I've seen that done before. As for the rest: 1) The shouldn't hold their breaths. Even if I had an interest in parties, why should I hold one for people who hold me in low regard? 2) I don't quite follow that, but since I'm not that rich and don't have connections, there must be another reason for all that. 3) If I actually fit that bill, they could just say "hello." I tend to agree with your last statement. I'm not concerned about those people not having anything to do with me. The parties tend to be boring affairs full of boring people eating snobby food they normally wouldn't touch and drinking too much wine. In a message dated 4/10/2008 7:38:43 P.M. Eastern Daylight Time, no_reply writes: Just a few comments on this. Their attitude changed because they discovered you were a business owner, and, in their minds, potentially rich. (After all, if you can afford not to "get a real job" as the saying is, your business must be thriving). Planning your summer road trip? Check out AOL Travel Guides. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 I made a separate post for this. A week or two ago I was watching one of those real life crime shows, FBI Files or something like that, and they had a really amazing story about a murderer. It small town in Texas or Arkansas, somewhere like that. This fellow comes into town and works at the funeral home. He was a real sweet talker, knew how to comfort people just right, was always around helping people out and so on. Well, there was also this rich widow. Her husband made a fortune in oil and died recently. This 90 year old woman was known as mean and kinda nasty, very fussy about her money and didn't often leave the house. Turns out that somehow or other, the new guy worked his way into being her assistant of sorts. Soon after he gets into that, he was giving out money all over the place. The trophy was about to close shortly before kids softball season ended, so he gave it enough money to stay up through the season. The church needed money, he was there. He gave out money left at right, possibly a million or more. Of course, it was several months before people realized they hadn't seen the old woman in a while. The man said she was sick and things like that and in an out of town hospital under an assumed name. So, the police finally went to the old widow's house, broke in and found her dead body in the freezer. They went to the man's house and arrested him. Now here is the amusing part. Almost no one in town believed that he did it, even after he gave a confession. Even the Church of all places held rallies and visited him in prison because he was such a good man. And so on it went even though the man was convicted of the crime. I find that very interesting. This man was seen as good and popular because he gave people money and a little time, the time coming before he had access to the money. So what if he shot mean old woman no one liked in the back 3 times with a .22 rifle when she caught on to the fact that he was stealing her money from under her nose? He was shelling out the cash! People can really be amazing at times. In a message dated 4/10/2008 7:38:43 P.M. Eastern Daylight Time, no_reply writes: 2) That you may have business connections that could be of use to them someday.3) That you may be able to loan them money or given them financial advice when they need it.Planning your summer road trip? Check out AOL Travel Guides. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 mimi wrote: " I second that NT's play dirty tricks! " They most assuredly do and then they use whatever they can lay their hands on and misuse and abuse them as weapons against the person who is kind and gentle. Raven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 > > > > > Co-Administrator > > > I second that NT's play dirty tricks! > Fortunately so do I. When I was younger my parents fought and won against one of the most corrupt school boards in IL - District 220 in Barrington. So needless to say I've learned quite a bit of what I need to do if they cause me problems. For instance we make just enough that I could quit my job, get a part-time job to cover the utilities, and spend the rest of my days making trouble for their organization. And as for being AS they probably already have guessed by now. Though there's no public diagnosis anywhere thankfully. One thing they _do_ know is that they don't want to make me angry. As far as I'm concerned all my personal rules go out the window when it's a matter of my family's future or survival. The gloves come off. Regardless they hate my wife and I already because we actually make them stick to things. Their current annoyance is trying to get rid of the aide that my daughter actually makes progress with. They annoyed her into giving notice and leaving, she was gone a week to find another job, there was a week of spring break, now they won't let her come back. They've been citing bogus union rules and a ton of other excuses. My wife has been prodding them and they've been giving her the runaround. Now _I_ am going to get involved. And I can use the necessary tool for the situation be it hammer or screwdriver so to speak. And I've already gone up against them and won. The trick is to be in command at the IEP. They often forget that they work for us not the other way around. And if they do manage to sever my parental rights I am not against making this a highly public issue just like my parents did back in the day while I put my child into a private school. -- Mike See with eyes unclouded, think with mind uncluttered, act with heart unchained! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2008 Report Share Posted April 11, 2008 " Regardless they hate my wife and I already because we actually make them stick to things. Their current annoyance is trying to get rid of the aide that my daughter actually makes progress with. They annoyed her into giving notice and leaving, she was gone a week to find another job, there was a week of spring break, now they won't let her come back. " " They've been citing bogus union rules and a ton of other excuses. My wife has been prodding them and they've been giving her the runaround. " I trained to be a teacher in the state of Illinois, and though I am certified, I never completed the final student teaching because I elected to change career paths. There ARE in fact union rules that govern these things as a matter of fact, but I am not clear on what the union rules actually are. I DO know that if the EA requests to be moved, she can be, and there is nothign the school can do about it. In the situation you describe, it sounds to me like she would have stayed had the school not bothered her so. So if there is a way to patch things up between them, perhaps you would stand a chance at getting her back. But let's say that you cannot. By law, if your child is considered special needs and has a diagnosis given by medical professionals, then the district may be obligated to, within reason, provide for those needs. The operative words in the previous sentence are " may " and " within reason. " " May " means that there is a base minimum of entitlements that are afforded to your child, and district policy " may " add to those requirements in their own policies. You should have no problem being able to hold the district to state requirements, but holding the district to their own requirements will be harded. They can cite " funding availablity " or lack thereof as a reason for not being able to provide what they say they will provide in their requirements. " Within reason " is a state and district thing. It means that if your district would have to provide services at an expense that would significantly lower their ability to educate other students in their district, then they can forgo giving your child what they need. This clause usually applies to amounts in the high tens of thousands of dollars and greater. Certainly what your child needs is LESS than what the upper tends of thousands of dollars can provide. In the case of district funding, it is irrelevant what THEIR financial problems are. If your son is entitled to services, they are obligated to acquire the funding. In the matter of EAs, it does not matter what issues they may have going between themselves and the union. If your son is entitled to an EA, then they must provide one for you. As far as I know, however, they are NOT REQUIRED to provide you with the EA of your choice UNLESS you can prove that A) The the present EA is a danger to your child That the present EA is in anyway preventing your child from becoming educated C) That the training that other EAs have is insufficient to effectively provide the educational assistance that your son needs. Arguing point C may be a good route for you to embark on. I would caution you, however, that what I am giving you is NOT advice. Merely opinion based on what I have heard anecdotally. You may wish to get legal representation on this, and I would say for sure that, if you have not already, research all federal, state, county, city, and district requirements for special needs education. Your best weapon against the Board is not only knowing what they know, but knowing everything they are SUPPOSED to know. Best wishes to you as you embark on this struggle. Administrator Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.