Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 Fibro isn't autoimmune but celiac is - which can also cause "clubbing" - celiac is also found with a multitude of other autoimmune type conditions. Chris I dont think that Fibro is an autoimmune disease bulldoggergal.. its a syndrome but its not caused from our body turning on itself.. Your clubbing of your fingertips is typically a result of a lung or heart disorder... bulldoggergal <bulldoggergal> wrote: I finally went to the gastro last week...it's been several years since I've seen him although the internists have always check my liver enzymes and all has been fine.I've had HepC for 20yrs now along with the other fun autoimmune illnesses...Fibro/CFIDS, etc.It's funny how things change with each year of research and patient experience (I guess). I've always told all my docs about the Mixed Cryo but none of them have seemed to know what it is or didn't care about it...now the Gastro seems as, if not more concerned about the Cryo than the HepC.Then he notices that my fingers are "clubbed"...could be because of the HepC or having to do with the kidneys, circulatory/heart, pretty much anything. Has anyone had this clubbed fingers and/or toes?Also, he did a viral count, still at 1 million as I was 10 years ago. He also did a AFP test (? fetal protein) which is a tumor marker test...for cancer? Has anyone had this test done?He doesn't want to treat me without another biopsy (it's been 10 years since the last one) because he's worried about the psychiatric issues...I'm still waiting for the blood test results that were supposed to be back last week...I hate the wait!!!Jackie Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 Can you explain what you mean by "clubbed fingers".? Waiting is hard, it seems all we do is wait for some test or the other to come back, which they finally do.. Hang In.. bulldoggergal wrote: I finally went to the gastro last week...it's been several years since I've seen him although the internists have always check my liver enzymes and all has been fine.I've had HepC for 20yrs now along with the other fun autoimmune illnesses...Fibro/CFIDS, etc.It's funny how things change with each year of research and patient experience (I guess). I've always told all my docs about the Mixed Cryo but none of them have seemed to know what it is or didn't care about it...now the Gastro seems as, if not more concerned about the Cryo than the HepC.Then he notices that my fingers are "clubbed"...could be because of the HepC or having to do with the kidneys, circulatory/heart, pretty much anything. Has anyone had this clubbed fingers and/or toes?Also, he did a viral count, still at 1 million as I was 10 years ago. He also did a AFP test (? fetal protein) which is a tumor marker test...for cancer? Has anyone had this test done?He doesn't want to treat me without another biopsy (it's been 10 years since the last one) because he's worried about the psychiatric issues...I'm still waiting for the blood test results that were supposed to be back last week...I hate the wait!!! Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 I’ve also got cryo and rheumatoid arthritis in my hands. My fingers have gotten somewhat strange looking over the last 5 years or so. I don’t know what you mean by “clubbed,” but mine swell & become inflamed so I guess you could mean something like that. Do you also have RA? It can do strange things to your fingers. Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of bulldoggergal Sent: Monday, February 18, 2008 8:06 PM To: Hepatitis_C_Central Subject: The waiting game... I finally went to the gastro last week...it's been several years since I've seen him although the internists have always check my liver enzymes and all has been fine. I've had HepC for 20yrs now along with the other fun autoimmune illnesses...Fibro/CFIDS, etc. It's funny how things change with each year of research and patient experience (I guess). I've always told all my docs about the Mixed Cryo but none of them have seemed to know what it is or didn't care about it...now the Gastro seems as, if not more concerned about the Cryo than the HepC. Then he notices that my fingers are " clubbed " ...could be because of the HepC or having to do with the kidneys, circulatory/heart, pretty much anything. Has anyone had this clubbed fingers and/or toes? Also, he did a viral count, still at 1 million as I was 10 years ago. He also did a AFP test (? fetal protein) which is a tumor marker test...for cancer? Has anyone had this test done? He doesn't want to treat me without another biopsy (it's been 10 years since the last one) because he's worried about the psychiatric issues... I'm still waiting for the blood test results that were supposed to be back last week...I hate the wait!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 Here is one of many links that come up when I searched the internet: http://www.nlm.nih.gov/medlineplus/ency/imagepages/18127.htm > I finally went to the gastro last week...it's been several years > since I've seen him although the internists have always check my > liver enzymes and all has been fine. > > I've had HepC for 20yrs now along with the other fun autoimmune > illnesses...Fibro/CFIDS, etc. > > It's funny how things change with each year of research and patient > experience (I guess). I've always told all my docs about the Mixed > Cryo but none of them have seemed to know what it is or didn't care > about it...now the Gastro seems as, if not more concerned about the > Cryo than the HepC. > > Then he notices that my fingers are " clubbed " ...could be because of > the HepC or having to do with the kidneys, circulatory/heart, pretty > much anything. Has anyone had this clubbed fingers and/or toes? > > Also, he did a viral count, still at 1 million as I was 10 years > ago. He also did a AFP test (? fetal protein) which is a tumor > marker test...for cancer? Has anyone had this test done? > > He doesn't want to treat me without another biopsy (it's been 10 > years since the last one) because he's worried about the psychiatric > issues... > > I'm still waiting for the blood test results that were supposed to be > back last week...I hate the wait!!! > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 I had never heard of it before either but he went straight to them. I posted a link but you can google it and see what it says. I have a positive test for RA, along with positives for many of other tests such as the ANA, EBV, etc...but the only symptoms for RA would be my " bunions/flat feet " . I had both of my feet operated on at the same time to fix them and the surgery failed in both of them. My mom also had the same surgery and one of hers failed. The doc said the two of us were the only ones that has happened to...she also has Fibro, osteo, etc. Is the AFP test common for HepC blood tests? > > I've also got cryo and rheumatoid arthritis in my hands. My fingers have > gotten somewhat strange looking over the last 5 years or so. I don't know > what you mean by " clubbed, " but mine swell & become inflamed so I guess you > could mean something like that. Do you also have RA? It can do strange > things to your fingers. > > > > Dorothy > > > > _____ > > From: Hepatitis_C_Central > [mailto:Hepatitis_C_Central ] On Behalf Of bulldoggergal > Sent: Monday, February 18, 2008 8:06 PM > To: Hepatitis_C_Central > Subject: The waiting game... > > > > I finally went to the gastro last week...it's been several years > since I've seen him although the internists have always check my > liver enzymes and all has been fine. > > I've had HepC for 20yrs now along with the other fun autoimmune > illnesses...Fibro/CFIDS, etc. > > It's funny how things change with each year of research and patient > experience (I guess). I've always told all my docs about the Mixed > Cryo but none of them have seemed to know what it is or didn't care > about it...now the Gastro seems as, if not more concerned about the > Cryo than the HepC. > > Then he notices that my fingers are " clubbed " ...could be because of > the HepC or having to do with the kidneys, circulatory/heart, pretty > much anything. Has anyone had this clubbed fingers and/or toes? > > Also, he did a viral count, still at 1 million as I was 10 years > ago. He also did a AFP test (? fetal protein) which is a tumor > marker test...for cancer? Has anyone had this test done? > > He doesn't want to treat me without another biopsy (it's been 10 > years since the last one) because he's worried about the psychiatric > issues... > > I'm still waiting for the blood test results that were supposed to be > back last week...I hate the wait!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 I dont think that Fibro is an autoimmune disease bulldoggergal.. its a syndrome but its not caused from our body turning on itself.. Your clubbing of your fingertips is typically a result of a lung or heart disorder... bulldoggergal wrote: I finally went to the gastro last week...it's been several years since I've seen him although the internists have always check my liver enzymes and all has been fine.I've had HepC for 20yrs now along with the other fun autoimmune illnesses...Fibro/CFIDS, etc.It's funny how things change with each year of research and patient experience (I guess). I've always told all my docs about the Mixed Cryo but none of them have seemed to know what it is or didn't care about it...now the Gastro seems as, if not more concerned about the Cryo than the HepC.Then he notices that my fingers are "clubbed"...could be because of the HepC or having to do with the kidneys, circulatory/heart, pretty much anything. Has anyone had this clubbed fingers and/or toes?Also, he did a viral count, still at 1 million as I was 10 years ago. He also did a AFP test (? fetal protein) which is a tumor marker test...for cancer? Has anyone had this test done?He doesn't want to treat me without another biopsy (it's been 10 years since the last one) because he's worried about the psychiatric issues...I'm still waiting for the blood test results that were supposed to be back last week...I hate the wait!!!Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 its just great that we all are inputting information so we all can learnsmalk50@... wrote: Fibro isn't autoimmune but celiac is - which can also cause "clubbing" - celiac is also found with a multitude of other autoimmune type conditions. In a message dated 2/18/2008 10:23:27 P.M. Central Standard Time, redjaxjm writes: I dont think that Fibro is an autoimmune disease bulldoggergal.. its a syndrome but its not caused from our body turning on itself.. Your clubbing of your fingertips is typically a result of a lung or heart disorder... bulldoggergal <bulldoggergal> wrote: I finally went to the gastro last week...it's been several years since I've seen him although the internists have always check my liver enzymes and all has been fine.I've had HepC for 20yrs now along with the other fun autoimmune illnesses...Fibro/CFIDS, etc.It's funny how things change with each year of research and patient experience (I guess). I've always told all my docs about the Mixed Cryo but none of them have seemed to know what it is or didn't care about it...now the Gastro seems as, if not more concerned about the Cryo than the HepC.Then he notices that my fingers are "clubbed"...could be because of the HepC or having to do with the kidneys, circulatory/heart, pretty much anything. Has anyone had this clubbed fingers and/or toes?Also, he did a viral count, still at 1 million as I was 10 years ago. He also did a AFP test (? fetal protein) which is a tumor marker test...for cancer? Has anyone had this test done?He doesn't want to treat me without another biopsy (it's been 10 years since the last one) because he's worried about the psychiatric issues...I'm still waiting for the blood test results that were supposed to be back last week...I hate the wait!!!Jackie Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 How is celiac diagnosed? smalk50@... wrote: Fibro isn't autoimmune but celiac is - which can also cause "clubbing" - celiac is also found with a multitude of other autoimmune type conditions. In a message dated 2/18/2008 10:23:27 P.M. Central Standard Time, redjaxjm writes: I dont think that Fibro is an autoimmune disease bulldoggergal.. its a syndrome but its not caused from our body turning on itself.. Your clubbing of your fingertips is typically a result of a lung or heart disorder... bulldoggergal <bulldoggergal> wrote: I finally went to the gastro last week...it's been several years since I've seen him although the internists have always check my liver enzymes and all has been fine.I've had HepC for 20yrs now along with the other fun autoimmune illnesses...Fibro/CFIDS, etc.It's funny how things change with each year of research and patient experience (I guess). I've always told all my docs about the Mixed Cryo but none of them have seemed to know what it is or didn't care about it...now the Gastro seems as, if not more concerned about the Cryo than the HepC.Then he notices that my fingers are "clubbed"...could be because of the HepC or having to do with the kidneys, circulatory/heart, pretty much anything. Has anyone had this clubbed fingers and/or toes?Also, he did a viral count, still at 1 million as I was 10 years ago. He also did a AFP test (? fetal protein) which is a tumor marker test...for cancer? Has anyone had this test done?He doesn't want to treat me without another biopsy (it's been 10 years since the last one) because he's worried about the psychiatric issues...I'm still waiting for the blood test results that were supposed to be back last week...I hate the wait!!!Jackie Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 The tests have arrived...the CBC was fine except for the elevated WBC (16K) but that is because of my missing spleen (the doc says) The Cryo test came back even though they told me their lab could NOT due the test because they didn't have the proper equipment(?)...and it came back negative. I know this is a very sensitive test and I've had it done two times in the past by two different docs, two different labs, and both came back positive. Can the Cryo go away if the HepC is still active? My viral load was 1 million...has been that for a while (5yrs) now. The AFP (alphafetoprotein) test came back elevated...it is used for many different things but detection of cirrhosis and HCC is one of them. The TTP causes the body to start attacking and destroying its platelets and red blood cells. I've had it three times. The first time my platelets were at an undetectable level and my RBC was down to 4. Plasmapherisis and massive amounts of prednisone and time and prayer is the way to get it to go into remission. I guess I'm headed back for a liver biopsy...grrrrrrrrrrrr > > I finally went to the gastro last week...it's been > several years > > since I've seen him although the internists have always check my > > liver enzymes and all has been fine. > > > > I've had HepC for 20yrs now along with the other fun autoimmune > > illnesses... illnesses...<WBR > > > > It's funny how things change with each year of research and patient > > experience (I guess). I've always told all my docs about the Mixed > > Cryo but none of them have seemed to know what it is or didn't care > > about it...now the Gastro seems as, if not more concerned about the > > Cryo than the HepC. > > > > Then he notices that my fingers are " clubbed " ... Then he notices tha > > the HepC or having to do with the kidneys, circulatory/ the He > pretty > > much anything. Has anyone had this clubbed fingers and/or toes? > > > > Also, he did a viral count, still at 1 million as I was 10 years > > ago. He also did a AFP test (? fetal protein) which is a tumor > > marker test...for cancer? Has anyone had this test done? > > > > He doesn't want to treat me without another biopsy (it's been 10 > > years since the last one) because he's worried about the > psychiatric > > issues... > > > > I'm still waiting for the blood test results that were supposed to > be > > back last week...I hate the wait!!! > > > > > > > > > > > > > > Jackie > > > > > > > > > > Jackie > > > > > > > **************Ideas to please picky eaters. Watch video on AOL Living. > (http://living.aol.com/video/how-to-please-your-picky-eater/rachel- campos-duffy/ > 2050827?NCID=aolcmp00300000002598) > Quote Link to comment Share on other sites More sharing options...
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