Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 Hi, I am out of town until Monday May 26th. I will reply to emails on Tuesday. Have a safe and beautiful Memorial Day Weekend! On May 25, 2008, at 4:44 AM, DownSyndromeInfoExchange wrote: DownSyndromeInfoExchange DownSyndromeInfoExchange Messages In This Digest (7 Messages) 1. Re: Digest Number 1524 From: Spizzirri 2a. Re: Potty training From: Jill 2b. Re: Potty training From: Jill 2c. Re: Potty training From: Almeida 3a. Understanding the differences and similarities of MDS and Ds From: Sherry 3b. Re: Understanding the differences and similarities of MDS and Ds From: McElwee 4. Some Things are Worth Waiting For From: Kathy Ratkiewicz View All Topics | Create New Topic Messages 1. Re: Digest Number 1524 Posted by: " Spizzirri" jessica@... jessspiz Sat May 24, 2008 3:56 am (PDT) Hi, I am out of town until Monday May 26th. I will reply to emails on Tuesday. Have a safe and beautiful Memorial Day Weekend! On May 24, 2008, at 4:44 AM, DownSyndromeInfoExchange wrote: Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) 2a. Re: Potty training Posted by: "Jill" thrill@... arlendoggy Sat May 24, 2008 6:23 am (PDT) Yes, I'm sure you're right. I am the one that needs to be consistent and just bite the bullet and ditch all of the diapers and pull-ups. It's easier for her and allows her control this way and it's easier for me--easier doesn't mean better. My new motto--once school is out anyway! Thanks. [DownSyndromeInfoExchange] Understanding the differences and similarities of MDS and Ds Hi Everyone For the next few days I will be talking about the similarities and differences between mosaic Down syndrome and Down syndrome. I realize that this topic comes up often and there are many misconceptions concerning MDS/Ds. So, I hopefully will be able to help everyone understand what MDS is and how it compares to Down syndrome. I think many will find this information surprising! Please visit http://mosaicmoments.today.com/ to read up on these and other topics of interest. Thanks Kristy Colvin IMDSA President ____________________________________________________ International Mosaic Down Syndrome Association PH: 1- Toll Free: 1-888-MDS-LINK www.imdsa.com Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (3) 4. Some Things are Worth Waiting For Posted by: "Kathy Ratkiewicz" Kathy_R@... k_ratkiewicz Sat May 24, 2008 3:15 pm (PDT) This is from a blog called " Wait Time " , which is a blog to 'help health care providers shorten wait time ' for patients. http://waittimes.blogspot.com/2008/05/some-things-are-worth-waiting-for.html Back as resident we had a 30 year old man come in for a bunch of extractions (I'll call him ). was born with trisomy 21 (Down's syndrome) and all of the associated complications associate with the genetic abnormality, not the least of which was a severe cardiac defect, a bleeding disorder (von Willebrand's disease) and development delay. Where a normal oxygen level is 97-99% 's was 50-60%. Even this minor surgery was not taken lightly (he had multiple abscesses and the concern was that it would affect his heart) so cardiology, anaesthesia, hematology and several other specialties became involved. Despite 's health concerns, however, he was the sweetest, nicest person I'd had the pleasure of meeting with a heart of gold. His mother stayed with him continuously. showed up for the OR with an E.T. doll for security and kept it with him his entire hospital stay. He thanked us everyday, would not let us leave his room after morning rounds without a hug and was an all around pleasure to care for. Anyway, after the extractions and anaesthetic he stayed on the ward for close to a week as we tried to get his oxygen levels back to normal. Everything was going OK until post-op day six when I was called to the ward and found my friend in dire straights and his mother screaming " he's dieing " . had developed a pulmonary embolism which lowered his oxygen levels even further, decompensating his fragile heart and within 10 minutes it had killed him. Jump forward 15 years and I'm running around trying to keep up one day when I walked into a room to be faced by a 30 year old female with Down's (I'll call her Deborah - not her real name). The first words out of her mouth where " sorry I'm late Dr. Furst but I had to have my lunch and brush my teeth before I came " . It's easy to look at the day and worry about running 15 or 20 minutes behind but it is memories and people like & Deborah that remind me why we work so hard to make health care accessible to people. Some things are definitely worth waiting for. Posted by Ian Furst http://www.waittimes.blogspot.com at 5:30 AM <http://waittimes.blogspot.com/2008/05/some-things-are-worth-waiting-for.htm l> <http://www.blogger.com/email-post.g?blogID=4088879684924541194 & postID=74457 15480871362978> http://www.blogger.com/img/icon18_email.gif <http://www.blogger.com/post-edit.g?blogID=4088879684924541194 & postID=744571 5480871362978> http://www.blogger.com/img/icon18_edit_allbkg.gif Labels: compassion <http://waittimes.blogspot.com/search/label/compassion> Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) Recent Activity 2 New Members Visit Your Group Yahoo! Health Achy Joint? Common arthritis myths debunked. Meditation and Lovingkindness A Yahoo! Group to share and learn. Sitebuilder Build a web site quickly & easily with Sitebuilder. Need to Reply? Click one of the "Reply" links to respond to a specific message in the Daily Digest. 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