Re: is loss of speech.....

[Guest guest]

No, my son's speech did not return. It was only a few words and not very clear. That was several years ago when TD-LDN first came on the scene. I honestly don't know to this day if it was the LDN. My son had several "windows" of speech where he would say some words and had some word approximations. Then they would disappear. It could have just been a coincidence on the timing but it did occur less than a week into the smallest dose of TD-LDN.

My son is a tough nut kid. We have done many, many interventions (including ABA)over the years and he is still severely affected by autism and Nonverbal. He also has CVID, Hypothroidism, and PANDAS.

Pamela

[Guest guest]

I'm sorry Pamela. Thank you for sharing this. We are also noticing the words

decrease

into the first week of LDN. I think I might stop it because if we continue and

lose more

words I would feel awful. He's gone from talking in mostly two word combos

(though very

unclear and poor pronounciation) to single words or grunting and groaning just

within the

week of starting LDN.

Thanks again.

gfcfmom

>

> No, my son's speech did not return. It was only a few words and not very

clear. That

was several years ago when TD-LDN first came on the scene. I honestly don't

know to this

day if it was the LDN. My son had several " windows " of speech where he would

say some

words and had some word approximations. Then they would disappear. It could

have just

been a coincidence on the timing but it did occur less than a week into the

smallest dose

of TD-LDN.

>

> My son is a tough nut kid. We have done many, many interventions (including

ABA)over

the years and he is still severely affected by autism and Nonverbal. He also

has CVID,

Hypothroidism, and PANDAS.

>

> Pamela

>

[Guest guest]

What is LDN?

Re: is loss of speech.....

I'm sorry Pamela. Thank you for sharing this. We are also noticing the words decrease into the first week of LDN. I think I might stop it because if we continue and lose more words I would feel awful. He's gone from talking in mostly two word combos (though very unclear and poor pronounciation) to single words or grunting and groaning just within the week of starting LDN. Thanks again.gfcfmom>> No, my son's speech did not return. It was only a few words and not very clear. That was several years ago when TD-LDN first came on the scene. I honestly don't know to this day if it was the LDN. My son had several "windows" of speech where he would say some words and had some word approximations. Then they would

disappear. It could have just been a coincidence on the timing but it did occur less than a week into the smallest dose of TD-LDN. > > My son is a tough nut kid. We have done many, many interventions (including ABA)over the years and he is still severely affected by autism and Nonverbal. He also has CVID, Hypothroidism, and PANDAS. > > Pamela>

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[Guest guest]

TD-LDN = transdermal low dose naltraxone.

Pamela

[Guest guest]

have you ever had him checked for Landau Kleffner syndrom, it is consistant for progression and regression as well?specifially effecting lang

Recovering from Autism is a marathon NOT a sprint, but FULLY possible! Read more about it on my BLOGs athttp://www.myspace.com/christelking

Re: is loss of speech.....

No, my son's speech did not return. It was only a few words and not very clear. That was several years ago when TD-LDN first came on the scene. I honestly don't know to this day if it was the LDN. My son had several "windows" of speech where he would say some words and had some word approximations. Then they would disappear. It could have just been a coincidence on the timing but it did occur less than a week into the smallest dose of TD-LDN.

My son is a tough nut kid. We have done many, many interventions (including ABA)over the years and he is still severely affected by autism and Nonverbal. He also has CVID, Hypothroidism, and PANDAS.

Pamela

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[Guest guest]

I sw this and it freaks me for you...I would stop if that were my

kiddo esp given Pamelas experience and if possible I would put him on

broth and easy to digest foods and up the oils and probiotics for the

next several days...and use prefered food if you are going to give

them to encourage words and only give for words words words...good

luck.

> >

> > No, my son's speech did not return. It was only a few words and

not very clear. That

> was several years ago when TD-LDN first came on the scene. I

honestly don't know to this

> day if it was the LDN. My son had several " windows " of speech

where he would say some

> words and had some word approximations. Then they would

disappear. It could have just

> been a coincidence on the timing but it did occur less than a week

into the smallest dose

> of TD-LDN.

> >

> > My son is a tough nut kid. We have done many, many interventions

(including ABA)over

> the years and he is still severely affected by autism and

Nonverbal. He also has CVID,

> Hypothroidism, and PANDAS.

> >

> > Pamela

> >

>

[Guest guest]

What is LDN? My daughter is on Valtrex about 3wks.....last week we heard more speech/language and the past few days almost nothing. I just assumed it was the regression everyone was talking about. Is it? I'm starting to freak out alittle reading some of these posts. Thanksdiatplay wrote: I sw this and it freaks me for you...I would stop if that were my kiddo esp given Pamelas experience and if possible I would put him on broth

and easy to digest foods and up the oils and probiotics for the next several days...and use prefered food if you are going to give them to encourage words and only give for words words words...good luck. > >> > No, my son's speech did not return. It was only a few words and not very clear. That > was several years ago when TD-LDN first came on the scene. I honestly don't know to this > day if it was the LDN. My son had several "windows" of speech where he would say some > words and had some word approximations. Then they would disappear. It could have just > been a coincidence on the timing but it did occur less than a week into the smallest dose > of TD-LDN. > > > > My son is a tough nut kid. We have done many, many interventions (including ABA)over > the years and he is still severely affected by autism and Nonverbal. He also has CVID, > Hypothroidism, and PANDAS. > > > > Pamela> >>

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[Guest guest]

Thanks. I have stopped the LDN cream - I am totally freaked out, hoping it's

just a crazy

die off phase with all my heart. Time will tell in a few days I guess.

> > >

> > > No, my son's speech did not return. It was only a few words and

> not very clear. That

> > was several years ago when TD-LDN first came on the scene. I

> honestly don't know to this

> > day if it was the LDN. My son had several " windows " of speech

> where he would say some

> > words and had some word approximations. Then they would

> disappear. It could have just

> > been a coincidence on the timing but it did occur less than a week

> into the smallest dose

> > of TD-LDN.

> > >

> > > My son is a tough nut kid. We have done many, many interventions

> (including ABA)over

> > the years and he is still severely affected by autism and

> Nonverbal. He also has CVID,

> > Hypothroidism, and PANDAS.

> > >

> > > Pamela

> > >

> >

>

[Guest guest]

The Anne Connolly test is a test for brain inflammation. It is common for it to be positive among tough nuts or Nonresponder kids. (like mine)

Pamela