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All I can say is, " WOW! " . Wonderfully written, and very emotional for

me. It's like living all the past 15 years in a minute! Thanks so

much, Jackie.

>

> Here ,, for everyone,, here is the letter to those without HVC..

>

> Letter to People Without Hepatitis & Liver Disease

> Authored by Bek Oberin

>

> Having Hepatitis means many things change, and a lot of them

are invisible. Unlike having cancer or being hurt in an accident,

most people do not understand even a little about HCV and its

effects, and of those that think they know, many are actually mis-

informed. In the spirit of informing those who wish to understand ...

These are the things that I would like you to understand about me

before you judge me... Please understand that being sick doesn't mean

I'm not still a human being. I have to spend most of my day in

considerable pain and exhaustion, and if you visit I probably don't

seem like much fun to be with, but I'm still me stuck inside this

body. I still worry about life and work and my family and friends,

and most of the time I'd still like to hear you talk about yours too.

>

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You're very welcome,, I didnt write it but I've kept it because it made so much sense to me when I was first diagnosed and my parents didnt understand that I was sick because I didnt look sick,, even up till the time my father died, he never believed that I was as sick as I was.. and sometimes now, my mom still doesnt get it,, Rick Kipp wrote: All I can say is, "WOW!". Wonderfully written, and very emotional for me. It's like living all the past 15 years in a minute! Thanks so much, Jackie. >> Here ,, for everyone,, here is the letter to those without HVC..> > Letter to People Without Hepatitis & Liver Disease> Authored by Bek Oberin> > Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't

seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. >Jackie

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Wonderful letter. I can’t begin to think about how

many times people have said I was looking better.

" Running

is to dogs what dancing is to people.

It is

their way to get into the rhythm of the universe. "

~Stanley

Coren~

" I did then what I knew then and when I knew better, I did

better. "

~Maya Angelou~

From:

Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Jackie

on

Sent: Saturday, March 08, 2008 7:22 PM

To: Hepatitis_C_Central

Subject: Here is the letter to those without HCV

Here ,, for everyone,, here is the letter to those without

HVC..

Letter to People Without Hepatitis & Liver Disease

Authored by Bek Oberin

Having Hepatitis means many things

change, and a lot of them are invisible. Unlike having cancer or being hurt

in an accident, most people do not understand even a little about HCV and its

effects, and of those that think they know, many are actually mis-informed.

In the spirit of informing those who wish to understand ... These are the

things that I would like you to understand about me before you judge me...

Please understand that being sick doesn't mean I'm not still a human being. I

have to spend most of my day in considerable pain and exhaustion, and if you

visit I probably don't seem like much fun to be with, but I'm still me stuck

inside this body. I still worry about life and work and my family and

friends, and most of the time I'd still like to hear you talk about yours

too.

Please understand the difference between

" happy " and " healthy " . When you've got the flu you

probably feel miserable with it, but I've been sick for years. I can't be

miserable all the time, in fact I work hard at not being miserable. So if

you're talking to me and I sound happy, it means I'm happy. That's all. It

doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm

getting better, or any of those things. Please, don't say, " Oh, you're

sounding better! " . I am not sounding better, I am sounding happy. If you

want to comment on that, you're welcome.

Please understand that being able to stand up for

ten minutes, doesn't necessarily mean that I can stand up for twenty minutes,

or an hour. And, just because I managed to stand up for thirty minutes

yesterday doesn't mean that I can do the same today. With a lot of diseases

you're either paralyzed, or you can move. With this one it gets more

confusing.

Please repeat the above paragraph substituting,

" sitting " , " walking " , " thinking " , " being

sociable " and so on ... it applies to everything. That's what Hepatitis

does to you. Please understand that HCV or HBV is variable. It's quite

possible (for me, it's common) that one day I am able to walk to the park and

back, while the next day I'll have trouble getting to the kitchen. Please

don't attack me when I'm ill by saying, " But you did it before! " ,

if you want me to do something then ask if I can. In a similar vein, I may

need to cancel an invitation at the last minute, if this happens please do

not take it personally. Please understand that " getting out and doing

things " does not make me feel better. Telling me that I need a

treadmill, or that I just need to loose (or gain)weight, get this exercise

machine, join this gym, try these classes... may frustrate me to tears, and

is not correct... if I was capable of doing these things, don't you know that

I would? I am working with my doctor and physical therapist and am already

doing the excercise and diet that I am suppose to do. Another statement that

hurts is, " You just need to push yourself more, exercise harder... "

Obviously HCV deals directly with muscles, and because our muscles don't

repair themselves the way your muscles do, this does far more damage than

good and could result in recovery time in days or weeks or months from a

single activity. Also, Hepatitis may cause secondary depression (wouldn't you

get depressed if you were hurting and exhausted for years on end!?) but it is

not created by depression. Please understand that if I say I have to sit

down/lie down/take these pills now, that I do have to do it right now - it

can't be put off or forgotten just because I'm out for the day (or whatever).

Hepatitis does not forgive.

If you want to suggest a cure to me, don't. It's not

because I don't appreciate the thought, and it's not because I don't want to

get well. It's because I have had almost every single one of my friends

suggest one at one point or another. At first I tried them all, but then I

realized that I was using up so much energy trying things that I was making

myself sicker, not better. If there was something that cured, or even helped,

all people with Hepatitis then we'd know about it. This is not a drug-company

conspiracy, there is worldwide networking (both on and off the Internet)

between people with Hepatitis if something worked we would KNOW.

If after reading that, you still want to suggest a

cure, then do it, but don't expect me to rush out and try it. I'll take what

you said and discuss it with my doctor.

In many ways I depend on you - people who are not

sick - I need you to visit me when I am too sick to go out... Sometimes I

need you help me with the shopping, cooking or cleaning. I may need you to

take me to the doctor, or to the physical therapist. I need you on a

different level too ... you're my link to the outsideworld... if you don't

come to visit me, then I might not get to see you... and, as much as it's

possible, I need you to understand me.

Signed Tiredly with Love,

All Us Heppers

Jackie

No virus found in this incoming message.

Checked by AVG.

Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14

AM

No virus found in this outgoing message.

Checked by AVG.

Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM

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Or the infamous, "you don't LOOK sick".. That one freezes me. I have found most of my friends and preferred family right here among folks who understand and care.. Sheena Matchinsky wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis means many things change, and

a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel

miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and

is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll

take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM No virus found in this outgoing message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM

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Yeah, been there, done that. Don't you want to hit them on the head and say "you could have had a V-8" ya dummy. My illness does not show on the outside. But I know what I feel on the inside. So bite me. LOL Love JanetSheena wrote: Or the infamous, "you don't LOOK sick".. That one freezes

me. I have found most of my friends and preferred family right here among folks who understand and care.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did

better." ~Maya Angelou~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most

of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're

welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting

to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could

result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there

was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the

outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM No virus found in this outgoing message.Checked by

AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber

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Great letter,....I'd like to see this in the 'files-section' as well.

>

> Here ,, for everyone,, here is the letter to those without HVC..

>

> Letter to People Without Hepatitis & Liver Disease

> Authored by Bek Oberin

>

> Having Hepatitis means many things change, and a lot of them

are invisible. Unlike having cancer or being hurt in an accident,

most people do not understand even a little about HCV and its

effects, and of those that think they know, many are actually mis-

informed. In the spirit of informing those who wish to understand ...

These are the things that I would like you to understand about me

before you judge me... Please understand that being sick doesn't mean

I'm not still a human being. I have to spend most of my day in

considerable pain and exhaustion, and if you visit I probably don't

seem like much fun to be with, but I'm still me stuck inside this

body. I still worry about life and work and my family and friends,

and most of the time I'd still like to hear you talk about yours too.

>

> Please understand the difference between " happy "

and " healthy " . When you've got the flu you probably feel miserable

with it, but I've been sick for years. I can't be miserable all the

time, in fact I work hard at not being miserable. So if you're

talking to me and I sound happy, it means I'm happy. That's all. It

doesn't mean that I'm not in a lot of pain, or extremely tired, or

that I'm getting better, or any of those things. Please, don't

say, " Oh, you're sounding better! " . I am not sounding better, I am

sounding happy. If you want to comment on that, you're welcome.

>

> Please understand that being able to stand up for ten minutes,

doesn't necessarily mean that I can stand up for twenty minutes, or

an hour. And, just because I managed to stand up for thirty minutes

yesterday doesn't mean that I can do the same today. With a lot of

diseases you're either paralyzed, or you can move. With this one it

gets more confusing.

>

> Please repeat the above paragraph

substituting, " sitting " , " walking " , " thinking " , " being sociable " and

so on ... it applies to everything. That's what Hepatitis does to

you. Please understand that HCV or HBV is variable. It's quite

possible (for me, it's common) that one day I am able to walk to the

park and back, while the next day I'll have trouble getting to the

kitchen. Please don't attack me when I'm ill by saying, " But you did

it before! " , if you want me to do something then ask if I can. In a

similar vein, I may need to cancel an invitation at the last minute,

if this happens please do not take it personally. Please understand

that " getting out and doing things " does not make me feel better.

Telling me that I need a treadmill, or that I just need to loose (or

gain)weight, get this exercise machine, join this gym, try these

classes... may frustrate me to tears, and is not correct... if I was

capable of doing these things, don't you know that I would? I am

working

> with my doctor and physical therapist and am already doing the

excercise and diet that I am suppose to do. Another statement that

hurts is, " You just need to push yourself more, exercise harder... "

Obviously HCV deals directly with muscles, and because our muscles

don't repair themselves the way your muscles do, this does far more

damage than good and could result in recovery time in days or weeks

or months from a single activity. Also, Hepatitis may cause secondary

depression (wouldn't you get depressed if you were hurting and

exhausted for years on end!?) but it is not created by depression.

Please understand that if I say I have to sit down/lie down/take

these pills now, that I do have to do it right now - it can't be put

off or forgotten just because I'm out for the day (or whatever).

Hepatitis does not forgive.

>

> If you want to suggest a cure to me, don't. It's not because I

don't appreciate the thought, and it's not because I don't want to

get well. It's because I have had almost every single one of my

friends suggest one at one point or another. At first I tried them

all, but then I realized that I was using up so much energy trying

things that I was making myself sicker, not better. If there was

something that cured, or even helped, all people with Hepatitis then

we'd know about it. This is not a drug-company conspiracy, there is

worldwide networking (both on and off the Internet) between people

with Hepatitis if something worked we would KNOW.

>

> If after reading that, you still want to suggest a cure, then

do it, but don't expect me to rush out and try it. I'll take what you

said and discuss it with my doctor.

>

> In many ways I depend on you - people who are not sick - I

need you to visit me when I am too sick to go out... Sometimes I need

you help me with the shopping, cooking or cleaning. I may need you to

take me to the doctor, or to the physical therapist. I need you on a

different level too ... you're my link to the outsideworld... if you

don't come to visit me, then I might not get to see you... and, as

much as it's possible, I need you to understand me.

>

> Signed Tiredly with Love,

> All Us Heppers

>

>

>

>

>

>

>

>

>

> Jackie

>

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Well said, I just walked away from more than half the people I've known all of my life, family included.. Whatever... The rest I didn't bother to tell... Janet wrote: Yeah, been there, done that. Don't you want to hit them on the head and say "you could have had a V-8" ya dummy. My illness

does not show on the outside. But I know what I feel on the inside. So bite me. LOL Love JanetSheena <mom4possums2002> wrote: Or the infamous, "you don't LOOK sick".. That one freezes me. I have found most of my friends and preferred family right here among folks who understand and care.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis

means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've

got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing.

Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may

frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and

try it. I'll take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM No virus found in this outgoing message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber

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I think I have it in the files section but if I don't I will put it in there. Love JanetDUG wrote: Great letter,....I'd like to see this in the 'files-section' as well.>> Here ,, for everyone,, here is the letter to those without HVC..> > Letter to People Without Hepatitis & Liver

Disease> Authored by Bek Oberin> > Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. > > Please understand the difference between "happy" and "healthy". When

you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. > > Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. > > Please repeat the above paragraph

substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I

would? I am working> with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. > > If you want to suggest a cure to me, don't. It's not because

I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. > > If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor. > > In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with

the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. > > Signed Tiredly with Love,> All Us Heppers> > > > > > > > > > Jackie>"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber

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This is something that's frustrated me also. I can be absolutely beat with fatigue, knot in my stomach, sore all over, but stilll look 'ok' to everyone. I guess I'm lucky that my family understands a bit, but I worry more about work. I have this FMLA and have taken some days off, but I dont trust any workplace to do the right thing. I feel like I might have given myself too much interferon this last shot, like possibly I didn't push the plunger up to 180 mcg. I have a fever, just every side effect is worse. I had to take today off work as I knew I didn't need to b e pushing around equipment that costs three times what I make in a year! All I need is to run a half million dollar microscope into a wall!! MikeSheena wrote: Or the infamous, "you don't LOOK sick".. That one freezes me. I have found most of my friends and preferred family right here among folks who understand and care.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis means many things change, and

a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel

miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and

is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll

take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM No virus found in this outgoing message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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This is something that's frustrated me also. I can be absolutely beat with fatigue, knot in my stomach, sore all over, but stilll look 'ok' to everyone. I guess I'm lucky that my family understands a bit, but I worry more about work. I have this FMLA and have taken some days off, but I dont trust any workplace to do the right thing. I feel like I might have given myself too much interferon this last shot, like possibly I didn't push the plunger up to 180 mcg. I have a fever, just every side effect is worse. I had to take today off work as I knew I didn't need to b e pushing around equipment that costs three times what I make in a year! All I need is to run a half million dollar microscope into a wall!! MikeSheena wrote: Or the infamous, "you don't LOOK sick".. That one freezes me. I have found most of my friends and preferred family right here among folks who understand and care.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis means many things change, and

a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel

miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and

is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll

take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM No virus found in this outgoing message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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Mike There were times when I too would give myself a fuller dose of INF.. I was supposed to give myself .5 and occasionally, I'd draw up all of it and inject it all,, and actually, while I dont recommend doing that, I THINK that it actually helped me to clear the virus.. it gets tricky and sometimes I just fel like I had to slam it a little extra..lol.m human wrote: This is something that's frustrated me also. I can be absolutely beat with fatigue, knot in my stomach, sore all over, but stilll look

'ok' to everyone. I guess I'm lucky that my family understands a bit, but I worry more about work. I have this FMLA and have taken some days off, but I dont trust any workplace to do the right thing. I feel like I might have given myself too much interferon this last shot, like possibly I didn't push the plunger up to 180 mcg. I have a fever, just every side effect is worse. I had to take today off work as I knew I didn't need to b e pushing around equipment that costs three times what I make in a year! All I need is to run a half million dollar microscope into a wall!! MikeSheena <mom4possums2002> wrote: Or the infamous, "you don't LOOK sick".. That one freezes me. I have found most

of my friends and preferred family right here among folks who understand and care.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did

better." ~Maya Angelou~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most

of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're

welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting

to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could

result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there

was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the

outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM No virus found in this outgoing message.Checked by

AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie

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Wow Jackie!! I've shot powders that I had no idea the real origin of and people thought of it as fearlessness, but that takes some real bravery!! MikeJackie on wrote: Mike There were times when I too would give myself a fuller dose of INF.. I was supposed to give myself .5 and occasionally, I'd draw up all of it and inject it all,, and actually, while I dont recommend doing that, I THINK that it actually helped me to clear the virus.. it gets tricky and sometimes I

just fel like I had to slam it a little extra..lol.m human <heethun666> wrote: This is something that's frustrated me also. I can be absolutely beat with fatigue, knot in my stomach, sore all over, but stilll look 'ok' to everyone. I guess I'm lucky that my family understands a bit, but I worry more about work. I have this FMLA and have taken some days off, but I dont trust any workplace to do the right thing. I feel like I might have given myself too much interferon this last shot, like possibly I didn't push the plunger up to 180 mcg. I have a fever, just every side effect is worse. I had to take today off work as I knew I didn't need to b e pushing around equipment that costs three times what I make in a year! All I need is to run a half million dollar microscope into a wall!!

MikeSheena <mom4possums2002> wrote: Or the infamous, "you don't LOOK sick".. That one freezes me. I have found most of my friends and preferred family right here among folks who understand and care.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of

Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a

little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being

miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the

above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and

physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't.

It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM No virus found in this outgoing message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie

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Hi, Mike! What an image of you and the maching whamming the wall. You

deserve a Dilbert front panel award, in living color! Not really making

light of you problems, but that just hit me in the head! LOL

>

> This is something that's frustrated me also. I can be absolutely beat

with fatigue, knot in my stomach, sore all over, but stilll look 'ok' to

everyone. I guess I'm lucky that my family understands a bit, but I

worry more about work. I have this FMLA and have taken some days off,

but I dont trust any workplace to do the right thing.

>

> I feel like I might have given myself too much interferon this last

shot, like possibly I didn't push the plunger up to 180 mcg. I have a

fever, just every side effect is worse. I had to take today off work as

I knew I didn't need to b e pushing around equipment that costs three

times what I make in a year! All I need is to run a half million dollar

microscope into a wall!!

>

> Mike

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Well, I was bound and determined to kill this virus,, haha,, but as I said, I DONT recommend it and that might very well be the reason I have such bad auto-immune issuesm human wrote: Wow Jackie!! I've shot powders that I had no idea the real origin of and people thought of it as fearlessness, but that takes some real bravery!! MikeJackie on <redjaxjm> wrote: Mike There were times when I too would give myself a fuller dose of INF.. I was supposed to give myself .5 and occasionally, I'd draw up all of it and inject it all,, and actually, while I dont recommend doing that, I THINK that it actually helped me to clear the virus.. it gets tricky and sometimes I just fel like I had to slam it a little extra..lol.m human <heethun666> wrote: This is something that's frustrated me also. I can be absolutely beat with fatigue, knot in my stomach, sore all over, but stilll look 'ok' to everyone. I guess I'm lucky that my family understands a bit, but I worry more about work. I have this FMLA and have taken some days off, but I dont trust any workplace to do the right thing. I feel like I might have

given myself too much interferon this last shot, like possibly I didn't push the plunger up to 180 mcg. I have a fever, just every side effect is worse. I had to take today off work as I knew I didn't need to b e pushing around equipment that costs three times what I make in a year! All I need is to run a half million dollar microscope into a wall!! MikeSheena <mom4possums2002> wrote: Or the infamous, "you don't LOOK sick".. That one freezes me. I have found most of my friends and preferred family right here among folks who understand and care.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to

spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to

comment on that, you're welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and

back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!", if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles

do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy

trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Hepatitis then we'd know about it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the

physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you... and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008

10:14 AM No virus found in this outgoing message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie Looking for last minute shopping deals? Find them fast with Yahoo! Search. Jackie

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LOL , It would be a major Homer Simpsonesque "Doh" kind of moment , woudln't it? lol MikeRick Kipp wrote: Hi, Mike! What an image of you and the maching whamming the wall. You deserve a Dilbert front panel award, in living color! Not really making light of you problems, but that just hit me in the head! LOL>> This is something that's frustrated me also. I can be absolutely beat with fatigue, knot in my stomach, sore all over, but stilll look 'ok' to everyone. I guess I'm lucky that my family understands a bit, but I worry more about work. I have this FMLA and have taken some days off, but I dont trust any workplace to do the right thing.> > I feel like I might have given myself too much interferon this last shot, like possibly I didn't push the plunger up to 180 mcg. I have a fever, just every side effect is worse. I had to take today off work as I knew I didn't need to b e pushing around equipment that costs three times what I make in a year! All I need is to run a half million dollar microscope into a wall!!> > Mike

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, I had people say that I was looking better when I was at my most ill! They really did not want to accept the fact that I was not well or they thought that by saying that that I would feel better??? Steph

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Some days are diamonds, some days are sure coal, Hang in, Mike, this, too, shall pass.. m human wrote: This is something that's frustrated me also. I can be absolutely beat with fatigue, knot in my stomach, sore all over, but stilll look 'ok' to everyone. I guess I'm lucky that my family understands a bit, but I worry more about

work. I have this FMLA and have taken some days off, but I dont trust any workplace to do the right thing. I feel like I might have given myself too much interferon this last shot, like possibly I didn't push the plunger up to 180 mcg. I have a fever, just every side effect is worse. I had to take today off work as I knew I didn't need to b e pushing around equipment that costs three times what I make in a year! All I need is to run a half million dollar microscope into a wall!! MikeSheena <mom4possums2002> wrote: Or the infamous, "you don't LOOK sick".. That one freezes me. I have found most of my friends and preferred family right here among folks

who understand and care.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: Wonderful letter. I can’t begin to think about how many times people have said I was looking better. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ "I did then what I knew then and when I knew better, I did better." ~Maya Angelou~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, March 08, 2008 7:22 PMTo: Hepatitis_C_Central Subject: Here is the letter to those without HCV Here ,, for everyone,, here is the letter to those without

HVC.. Letter to People Without Hepatitis & Liver DiseaseAuthored by Bek Oberin Having Hepatitis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about HCV and its effects, and of those that think they know, many are actually mis-informed. In the spirit of informing those who wish to understand ... These are the things that I would like you to understand about me before you judge me... Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit I probably don't seem

like much fun to be with, but I'm still me stuck inside this body. I still worry about life and work and my family and friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time, in fact I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please, don't say, "Oh, you're sounding better!". I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for ten minutes, doesn't necessarily mean that I can stand up for twenty minutes, or an hour. And, just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one it gets more confusing. Please repeat the above paragraph substituting, "sitting", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what Hepatitis does to you. Please understand that HCV or HBV is variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!",

if you want me to do something then ask if I can. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please do not take it personally. Please understand that "getting out and doing things" does not make me feel better. Telling me that I need a treadmill, or that I just need to loose (or gain)weight, get this exercise machine, join this gym, try these classes... may frustrate me to tears, and is not correct... if I was capable of doing these things, don't you know that I would? I am working with my doctor and physical therapist and am already doing the excercise and diet that I am suppose to do. Another statement that hurts is, "You just need to push yourself more, exercise harder..." Obviously HCV deals directly with muscles, and because our muscles don't repair themselves the way your muscles do, this does far more damage than good and could result in recovery time in days or weeks or months from a single activity. Also, Hepatitis

may cause secondary depression (wouldn't you get depressed if you were hurting and exhausted for years on end!?) but it is not created by depression. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm out for the day (or whatever). Hepatitis does not forgive. If you want to suggest a cure to me, don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because I have had almost every single one of my friends suggest one at one point or another. At first I tried them all, but then I realized that I was using up so much energy trying things that I was making myself sicker, not better. If there was something that cured, or even helped, all people with Hepatitis then we'd know about

it. This is not a drug-company conspiracy, there is worldwide networking (both on and off the Internet) between people with Hepatitis if something worked we would KNOW. If after reading that, you still want to suggest a cure, then do it, but don't expect me to rush out and try it. I'll take what you said and discuss it with my doctor. In many ways I depend on you - people who are not sick - I need you to visit me when I am too sick to go out... Sometimes I need you help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the physical therapist. I need you on a different level too ... you're my link to the outsideworld... if you don't come to visit me, then I might not get to see you...

and, as much as it's possible, I need you to understand me. Signed Tiredly with Love,All Us Heppers Jackie No virus found in this incoming message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008 10:14 AM No virus found in this outgoing message.Checked by AVG.Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 3/8/2008

10:14 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage.

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Mike, I had days that were pure he!!. Some days were better, but not many. It's a thing to be endured with the rainbow at the end (or the carrot on the stick) firmly in view. Sorry you feel soo bad.

Sharon in NW Washington

Life isn't about how to survive the storm, but about how to dance in the rain.

RE: Here is the letter to those without HCV

Some days are diamonds, some days are sure coal,

Hang in, Mike, this, too, shall pass..

m human wrote:

This is something that's frustrated me also. I can be absolutely beat with fatigue, knot in my stomach, sore all over, but stilll look 'ok' to everyone. I guess I'm lucky that my family understands a bit, but I worry more about work. I have this FMLA and have taken some days off, but I dont trust any workplace to do the right thing.

I feel like I might have given myself too much interferon this last shot, like possibly I didn't push the plunger up to 180 mcg. I have a fever, just every side effect is worse. I had to take today off work as I knew I didn't need to b e pushing around equipment that costs three times what I make in a year! All I need is to run a half million dollar microscope into a wall!!

MikeSheena <mom4possums2002> wrote:

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My people, including hubby, thought I was just a whiny baby.....making too much of a much smaller thing.

Sharon in NW Washington

Life isn't about how to survive the storm, but about how to dance in the rain.

Re: Here is the letter to those without HCV

, I had people say that I was looking better when I was at my most ill! They really did not want to accept the fact that I was not well or they thought that by saying that that I would feel better???

Steph

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Mike,

I don't know if you took a higher dose or not, but when I was on

Pegasys sometimes I would have almost no reaction and other times it

would hit me like a brick.

It seems to be the nature of interferon.

LEE

> Wonderful letter. I can't begin to think about how many

times people have said I was looking better.

>

>

>

>

> " Running is to dogs what dancing is to people.

> It is their way to get into the rhythm of the universe. "

> ~Stanley Coren~

>

> " I did then what I knew then and when I knew better, I did

better. "

>

> ~Maya Angelou~

>

>

> From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Jackie

on

> Sent: Saturday, March 08, 2008 7:22 PM

> To: Hepatitis_C_Central

> Subject: Here is the letter to those without

HCV

>

>

>

> Here ,, for everyone,, here is the letter to those

without HVC..

>

>

>

> Letter to People Without Hepatitis & Liver Disease

> Authored by Bek Oberin

>

> Having Hepatitis means many things change, and a lot of them

are invisible. Unlike having cancer or being hurt in an accident,

most people do not understand even a little about HCV and its

effects, and of those that think they know, many are actually mis-

informed. In the spirit of informing those who wish to understand ...

These are the things that I would like you to understand about me

before you judge me... Please understand that being sick doesn't mean

I'm not still a human being. I have to spend most of my day in

considerable pain and exhaustion, and if you visit I probably don't

seem like much fun to be with, but I'm still me stuck inside this

body. I still worry about life and work and my family and friends,

and most of the time I'd still like to hear you talk about yours too.

>

>

> Please understand the difference between " happy "

and " healthy " . When you've got the flu you probably feel miserable

with it, but I've been sick for years. I can't be miserable all the

time, in fact I work hard at not being miserable. So if you're

talking to me and I sound happy, it means I'm happy. That's all. It

doesn't mean that I'm not in a lot of pain, or extremely tired, or

that I'm getting better, or any of those things. Please, don't

say, " Oh, you're sounding better! " . I am not sounding better, I am

sounding happy. If you want to comment on that, you're welcome.

>

>

> Please understand that being able to stand up for ten minutes,

doesn't necessarily mean that I can stand up for twenty minutes, or

an hour. And, just because I managed to stand up for thirty minutes

yesterday doesn't mean that I can do the same today. With a lot of

diseases you're either paralyzed, or you can move. With this one it

gets more confusing.

>

>

> Please repeat the above paragraph

substituting, " sitting " , " walking " , " thinking " , " being sociable " and

so on ... it applies to everything. That's what Hepatitis does to

you. Please understand that HCV or HBV is variable. It's quite

possible (for me, it's common) that one day I am able to walk to the

park and back, while the next day I'll have trouble getting to the

kitchen. Please don't attack me when I'm ill by saying, " But you did

it before! " , if you want me to do something then ask if I can. In a

similar vein, I may need to cancel an invitation at the last minute,

if this happens please do not take it personally. Please understand

that " getting out and doing things " does not make me feel better.

Telling me that I need a treadmill, or that I just need to loose (or

gain)weight, get this exercise machine, join this gym, try these

classes... may frustrate me to tears, and is not correct... if I was

capable of doing these things, don't you know that I would? I am

working

> with my doctor and physical therapist and am already doing the

excercise and diet that I am suppose to do. Another statement that

hurts is, " You just need to push yourself more, exercise harder... "

Obviously HCV deals directly with muscles, and because our muscles

don't repair themselves the way your muscles do, this does far more

damage than good and could result in recovery time in days or weeks

or months from a single activity. Also, Hepatitis may cause secondary

depression (wouldn't you get depressed if you were hurting and

exhausted for years on end!?) but it is not created by depression.

Please understand that if I say I have to sit down/lie down/take

these pills now, that I do have to do it right now - it can't be put

off or forgotten just because I'm out for the day (or whatever).

Hepatitis does not forgive.

>

>

> If you want to suggest a cure to me, don't. It's not because I

don't appreciate the thought, and it's not because I don't want to

get well. It's because I have had almost every single one of my

friends suggest one at one point or another. At first I tried them

all, but then I realized that I was using up so much energy trying

things that I was making myself sicker, not better. If there was

something that cured, or even helped, all people with Hepatitis then

we'd know about it. This is not a drug-company conspiracy, there is

worldwide networking (both on and off the Internet) between people

with Hepatitis if something worked we would KNOW.

>

>

> If after reading that, you still want to suggest a cure, then

do it, but don't expect me to rush out and try it. I'll take what you

said and discuss it with my doctor.

>

>

> In many ways I depend on you - people who are not sick - I

need you to visit me when I am too sick to go out... Sometimes I need

you help me with the shopping, cooking or cleaning. I may need you to

take me to the doctor, or to the physical therapist. I need you on a

different level too ... you're my link to the outsideworld... if you

don't come to visit me, then I might not get to see you... and, as

much as it's possible, I need you to understand me.

>

>

> Signed Tiredly with Love,

> All Us Heppers

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Jackie

>

>

>

> No virus found in this incoming message.

> Checked by AVG.

> Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date:

3/8/2008 10:14 AM

>

>

> No virus found in this outgoing message.

> Checked by AVG.

> Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date:

3/8/2008 10:14 AM

>

>

>

>

>

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as some of you know my dad is now since dec in nursing home for a few reasons, his disabilitys, illness, and my illness he demands constant care which includes pulling him out of bed and washing him,. thats all ill say, i just got off the phone with him and again he said when am i coming home i feel so bad, i really do and i told him you think i look good i cut me hair im still bubbly etc, but you dont know what i deal with it . he says well when i call you dont answer the phone, i tole him cause im depressed and isolating i just dont wanna, its really tough i feel bad, i just cant lift him and care for him, and keep me going, i wouldnt make it, i told him i weaited years to do this treatment and im doing it, im sorry Ruggio wrote: , I had people say that I was looking better when I was at my most ill! They really did not want to accept the fact that I was not well or they thought that by saying that that I would feel better??? Steph Never miss a thing. Make Yahoo your homepage.

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Honey, you cannot accept this guilt upon yourself. YOU NEED to tell him that when HE can walk, when HE can get to the bathroom by himself, when HE can dress himself, THEN and ONLY THEN can he come home.. PERIOD.. Once you get this into his head, he will stop making you feel guilty.. I went through the same thing with my father and he used to say to me that he didnt move up to where I live to spend the rest of his life in a nursing home.. I had to explain to him that HIS HEALTH had changed and NO ONE had control over that, but that he needed 24 hour care that I just could not do.. He didnt like it but he accepted it.joyceann silva wrote: as some of you know my dad is now since dec in nursing home for a few reasons, his disabilitys, illness, and my illness he demands constant care which includes pulling him out of bed and washing him,. thats all ill say, i just got off the phone with him and again he said when am i coming home i feel so bad, i really do and i told him you think i look good i cut me hair im still bubbly etc, but you dont know what i deal with it . he says well when i call you dont answer the phone, i tole him cause im depressed and isolating i just dont wanna, its really tough i feel bad, i just cant lift him and care for him, and keep me going, i wouldnt make it, i told him i weaited years to do this treatment and im doing it, im sorry Ruggio <thestephanier> wrote: , I had people say that I was looking better when I was at my most ill! They really did not want to accept the fact that I was not well or they thought that by saying that that I would feel better??? Steph Never miss a thing. Make Yahoo your homepage. Never miss a thing. Make Yahoo your homepage. Jackie

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i know, thanks, i am trying, and it is guilt, Jackie on wrote: Honey, you cannot accept this guilt upon yourself. YOU NEED to tell him that when HE can walk, when HE can get to the bathroom by himself, when HE can dress himself, THEN and ONLY THEN can he come home.. PERIOD.. Once you get this into his head, he will stop making you feel guilty.. I went through the same thing with my father and he used to say to me that he didnt move up to where I live to spend the rest of his life in a nursing home.. I had to explain to him

that HIS HEALTH had changed and NO ONE had control over that, but that he needed 24 hour care that I just could not do.. He didnt like it but he accepted it.joyceann silva <mepurplegee> wrote: as some of you know my dad is now since dec in nursing home for a few reasons, his disabilitys, illness, and my illness he demands constant care which includes pulling him out of bed and washing him,. thats all ill say, i just got off the phone with him and again he said when am i coming home i feel so bad, i really do and i told him you think i look good i cut me hair im still bubbly etc, but you dont know what i deal with it . he says well when i call you dont answer the phone, i tole him cause im depressed and isolating i just dont wanna, its really tough i feel bad, i just cant lift him and care for him, and keep me going, i wouldnt make it, i

told him i weaited years to do this treatment and im doing it, im sorry Ruggio <thestephanier> wrote: , I had people say that I was looking better when I was at my most ill! They really did not want to accept the fact that I was not well or they thought that by saying that that I would feel better??? Steph Never miss a thing. Make Yahoo your homepage. Never miss a thing. Make Yahoo your homepage. Jackie

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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Stop and ask yourself honey,, WHY do you feel guilty? Is it because you feel that you dont deserve to do treatment and to get well? Would your father behave this way if the tables were turned and you were in the nursing home so that he could do treatment to get well? You have to just 'let go' of that guilt, it will not serve to help you in any way.. and it might keep you from being successful with tx.. Before you start tx, you MUST say to yourself that YOU DESERVE to do this tx and YOU DESERVE to get well,, PERIOD.. say it to yourself as many times as you need to every day until YOU BELIEVE IT! We;'re here for you hon,, you're gonna do it..joyceann silva wrote: i know, thanks, i am trying, and it is guilt, Jackie on <redjaxjm> wrote: Honey, you cannot accept this guilt upon yourself. YOU NEED to tell him that when HE can walk, when HE can get to the bathroom by himself, when HE can dress himself, THEN and ONLY THEN can he come home.. PERIOD.. Once you get this into his head, he will stop making you feel guilty.. I went through the same thing with my father and he used to say to me that he didnt move up to where I live to spend the rest of his life in a nursing home.. I had to explain to him that HIS HEALTH had changed and NO ONE had control over that, but that he needed 24 hour care that I just could not do.. He didnt like it but

he accepted it.joyceann silva <mepurplegee> wrote: as some of you know my dad is now since dec in nursing home for a few reasons, his disabilitys, illness, and my illness he demands constant care which includes pulling him out of bed and washing him,. thats all ill say, i just got off the phone with him and again he said when am i coming home i feel so bad, i really do and i told him you think i look good i cut me hair im still bubbly etc, but you dont know what i deal with it . he says well when i call you dont answer the phone, i tole him cause im depressed and isolating i just dont wanna, its really tough i feel bad, i just cant lift him and care for him, and keep me going, i wouldnt make it, i told him i weaited years to do this treatment and im doing it, im sorry Ruggio

<thestephanier> wrote: , I had people say that I was looking better when I was at my most ill! They really did not want to accept the fact that I was not well or they thought that by saying that that I would feel better??? Steph Never miss a thing. Make Yahoo your homepage. Never miss a thing. Make Yahoo your homepage. Jackie Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie

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That had to be rough, Joyce, but we all have to do what is best at the time. Take care of you, hon, it's not forever.. joyceann silva wrote: as some of you know my dad is now since dec in nursing home for a few reasons, his disabilitys, illness, and my illness he demands constant care which includes pulling him out of bed and washing him,. thats all ill say, i just got off the phone with him and again he said when am i coming home i feel so

bad, i really do and i told him you think i look good i cut me hair im still bubbly etc, but you dont know what i deal with it . he says well when i call you dont answer the phone, i tole him cause im depressed and isolating i just dont wanna, its really tough i feel bad, i just cant lift him and care for him, and keep me going, i wouldnt make it, i told him i weaited years to do this treatment and im doing it, im sorry Ruggio <thestephanier> wrote: , I had people say that I was looking better when I was at my most ill! They really did not want to accept the fact that I was not well or they thought that by saying that that I would feel better??? Steph Never miss a thing. Make Yahoo your homepage. Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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