Re: : question about milk...

[Guest guest]

----- Original Message -----

From: diatplay

===>Our original dan! did allergy and peptide tests and found no allergies/peptides to any foods. She said the tests missed 20%. We never had any serious gut issues although she would run on her tiptoes, didn't walk on them, just when she ran. Not sure this was related to gut issues or vision problems as it stopped with clo. So we did a trial of the diet and she got worse and lost language and we take a loss of language as serious as we do a high fever, it is a warning sign that something is wrong. Put her back on the milk, language came back, huge dark circles disappeared as did the crying jags.

On the Parent Effectiveness Rating 2% of parents reported their child got worse on the diet, rare but still there. I have run into a few other children like her and they are usually urged to push on with the diet, effective for some, disastrous for a few. Because milk and wheat are the two hardest foods to digest it's my thinking that a lot of kids aren't allergic or have peptides but that they improve when it's withdrawn because it gives the gut a rest, other's clearly benefit from the withdrawal of milk/wheat and for those kids, it's the right call.

There seems to be a mind set that wants to ignore what happened to her but that's the same mindset that says that most kids tolerate vaccines and the lack of concern over the ones who cannot. There was talk about supplementing the 15 or so things she was low in that milk provided, but why if she wasn't allergic/intolerant to milk? So we found the best milk we could. She never craved milk or drank it to excess. A clue to her may be in her blood type, which is B+, not the typical A or O found in most ASD kids. I have run into other parents of B+ (a rare blood type) kids who had no trouble with milk, not sure if this is relevant.

Again, nothing is true for every single one of our kids. They do say that observation of the child is the best lab test there is and I say when there is a discrepancy between the testing and the real live kid in front of you, believe the kid.

I have never heard of a kid needing milk who was on the spectrum. Very interesting. I have read Nourishing Traditions and the realmilk info is interesting as well...Matt is being supped with methionine among other things...how did you ever figure out that you child could tolerate milk? Did she have leaky gut as paret of her autism - I thought it was a big part of all kids' autism. Matt no longer has dark circles most of the time, but his belly is still bloated, U am torn about giving him got milk yogurt even bc of the HUGE anti dairy sentiment out there....he loves the yogurt of course. So,did you just try it out and watch for signs of intolerance or did a practioner lead you to understand you had to bring in raw dairy?

[Guest guest]

Mackie is an O...I think I read that type does not do well with

dairy. Bummer. ANd the Body Evology diet seems to be geared to what

they say, anyway, the As need. Matt will not eat the things that O

types need...like green leafy vegs and beef...sigh. Di

>

>

> ----- Original Message -----

> From: diatplay

>

> ===>Our original dan! did allergy and peptide tests and found no

allergies/peptides to any foods. She said the tests missed 20%. We

never had any serious gut issues although she would run on her

tiptoes, didn't walk on them, just when she ran. Not sure this was

related to gut issues or vision problems as it stopped with clo. So

we did a trial of the diet and she got worse and lost language and we

take a loss of language as serious as we do a high fever, it is a

warning sign that something is wrong. Put her back on the milk,

language came back, huge dark circles disappeared as did the crying

jags.

>

> On the Parent Effectiveness Rating 2% of parents reported their

child got worse on the diet, rare but still there. I have run into a

few other children like her and they are usually urged to push on

with the diet, effective for some, disastrous for a few. Because

milk and wheat are the two hardest foods to digest it's my thinking

that a lot of kids aren't allergic or have peptides but that they

improve when it's withdrawn because it gives the gut a rest, other's

clearly benefit from the withdrawal of milk/wheat and for those kids,

it's the right call.

>

> There seems to be a mind set that wants to ignore what happened

to her but that's the same mindset that says that most kids tolerate

vaccines and the lack of concern over the ones who cannot. There was

talk about supplementing the 15 or so things she was low in that milk

provided, but why if she wasn't allergic/intolerant to milk? So we

found the best milk we could. She never craved milk or drank it to

excess. A clue to her may be in her blood type, which is B+, not the

typical A or O found in most ASD kids. I have run into other parents

of B+ (a rare blood type) kids who had no trouble with milk, not sure

if this is relevant.

>

> Again, nothing is true for every single one of our kids. They do

say that observation of the child is the best lab test there is and I

say when there is a discrepancy between the testing and the real live

kid in front of you, believe the kid.

>

>

>

>

> I have never heard of a kid needing milk who was on the spectrum.

Very

> interesting. I have read Nourishing Traditions and the realmilk

info

> is interesting as well...Matt is being supped with methionine

among

> other things...how did you ever figure out that you child could

> tolerate milk? Did she have leaky gut as paret of her autism - I

> thought it was a big part of all kids' autism. Matt no longer has

dark

> circles most of the time, but his belly is still bloated, U am

torn

> about giving him got milk yogurt even bc of the HUGE anti dairy

> sentiment out there....he loves the yogurt of course. So,did you

just

> try it out and watch for signs of intolerance or did a practioner

lead

> you to understand you had to bring in raw dairy?

>