Re: Welcome, New Member, Teo Mihalcea [from Romania ]'s /Case History

[Guest guest]

>

> Dear Teo,

> On behalf of all our members, welcome to our Erythema Nodosum Group!

>

Thank you

> I think you are our first member from Romania. I am very impressed

with

> the medical care you received. Probably the most excellent care for

EN I

> have seen so far. Do you have national health care there? You speak

> excellent English!

Yes, we do have national health care here. But I always thought our

health care system is not as good as it should be.

In fact, we do have good doctors. But the hospitals and clinics are

poor, the medical staff is not payed enough, so the situation is not

very comfortable when you go to the doctor.

>

> You hve a very strong family history of conditons that are related

to

> EN, so that is why your dr. was interested in it. Your Mother had EN

> while pregnant with you (mine too) and your Dad has related

disorders.

> You may have a genertic prdispostion to EN, but since so little

medical

> research for EN is going on, we don't know much about it.

I still hope I didn't inherit much from my parents from this point of

vue. I'm also thinking about my 2 yrs old child...

>

> Your middle ear infection was treated with antibiotics, so we can

also

> wonder if that infection triggered the EN. EN can take weeks to

manifest

> as a hypersensitivity allergic response.

EN happened about 8 weeks after ear infection. I wonder too.

>

> Dapsone has been very effective for some with EN and other skin

> conditions. Our

> cured member Ovais from India had wonderful success with it. It

does,

> however trigger EN in some people.

I'm happy to hear that Dapsone did cure people with EN. That means my

doctors know something. I'm a little angry because the first one

wouldn't explain to me what happens. I am stubborn, I like to know

and to have things under control, so the fact that he didn't talk

made me suspicious about his medical capabilities.

I'm not sure Dapsone triggered the last nodule. It might have been

just a coincidence. Should I risk and take Disulone again ?

I'd still like to know what triggered my EN. The second dermatologist

told me that it might have been an external trigger, but then my EN

entered in a self-feeding process. And that's why I should take

imunomodulators drugs. Anyway the second doctor instructed me to have

some more tests. I'll do that next week or after.

>

> Potassium iodide (SSKI) is also a good drug to try, and will work

> quickly if it works at all. But it also may cause a rash. No drug is

> universal in it's ability to help EN.

>

> I have never used medications, but I get (bed)rest and use

compression

> stockings. Cool compresses can help to.

Since when do you have EN and why don't you take drugs ?

> EN usually takes weeks to

> months to resolve, so try to be patient.

I am patient, I am not stressed anymore, since I read on the internet

that it could take months to resolve.

Anyway, I'm not used to wear short skirts so it doesn't bother me as

long as it doesn't hurt.

Well, my ankles are swelling, so I can wear only sport shoes, but it

is not a big deal either.

>

> Please note, I am not a medcial professional. Everything I have

told you

> I learned from this group or read online. Please ask any specific

> questions, and our members can assist from their own experience and

> research.

>

> Welcome to our friendly Group!

Thanks again

>

> Love,

>

> idiopathic EN '68

Best regards,

Teodora

[Guest guest]

Hi Teo,

Yes, please keep us posted on the results of other tests.

I've had EN for 38 years now.

I was not properly diagnosed for the first 5 years, so I figured out

how to treat it myself with bedrest, and elastic bandages. I was not

offered drugs as the Dr. said I had " bug bites " . When I was properly

diagnosed I was told I have a mild case, and to continue doing my non

drug treatment as I went into remission without medications.

I sign off with the yr. of my first EN episode. I have had over 100

episodes by now.

Love,

idiopathic EN '68

[Guest guest]

Oh, my God, , your EN is older than me !

I didn't know it can last so long. It seems forever.

I hope everybody finds a cure, a way out, because I read that for some

people EN is really painful.

Have a nice and painless week,

Teo