Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 I think you are thinking of the Shrek movie.. Jackie on wrote: yeah, but didnt donkey marry that dragon?Sheena <mom4possums2002> wrote: I knew which one you are referring to, and he was the bad guy, lol.. Jackie on <redjaxjm> wrote: hahaha,, I'd forgotten about Puff,, so,, until I remembered this, I only remembered one dragon, the one on Shrek,, lol,, but I guess Im bad, cuz I really enjoyed sticking those pins into my two headed dragon! I DID,, Sheena <mom4possums2002> wrote: Don't know, either, I LIKE Dragons and bought a stuffed green one (like Puff the magic Dragon) and visualized him fighting the virus.. He'll win yet, Puff is special.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: I don’t know, but that’s a good question! Does anybody know? "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Friday, March 14, 2008 6:03 PMTo: Hepatitis_C_Central Subject: Re: Visualizations dumb question that i allways wanted to ask, why is hep c called fighting the dragon???? No virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.21.7/1328 - Release Date: 3/13/2008 11:31 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie Looking for last minute shopping deals? Find them fast with Yahoo! Search. Jackie Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 yep, thats what I said...lolSheena wrote: I think you are thinking of the Shrek movie.. Jackie on <redjaxjm> wrote: yeah, but didnt donkey marry that dragon?Sheena <mom4possums2002> wrote: I knew which one you are referring to, and he was the bad guy, lol.. Jackie on <redjaxjm> wrote: hahaha,, I'd forgotten about Puff,, so,, until I remembered this, I only remembered one dragon, the one on Shrek,, lol,, but I guess Im bad, cuz I really enjoyed sticking those pins into my two headed dragon! I DID,, Sheena <mom4possums2002> wrote: Don't know, either, I LIKE Dragons and bought a stuffed green one (like Puff the magic Dragon) and visualized him fighting the virus.. He'll win yet, Puff is special.. Sheena Matchinsky <michaelboxernest (DOT) net> wrote: I don’t know, but that’s a good question! Does anybody know? "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Friday, March 14, 2008 6:03 PMTo: Hepatitis_C_Central Subject: Re: Visualizations dumb question that i allways wanted to ask, why is hep c called fighting the dragon???? No virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.21.7/1328 - Release Date: 3/13/2008 11:31 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie Looking for last minute shopping deals? Find them fast with Yahoo! Search. Jackie Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Thanks! " Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe. " ~Stanley Coren~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of anne Sent: Saturday, March 15, 2008 4:31 PM To: Hepatitis_C_Central Subject: Re: Visualizations I went trolling the net for some kind of explanation to this. Seems it means different things to different people but here's a selection of quotes. Something may resonate with you..... " The dragon can sleep for thousands of years, just as the Hepatitis C virus can " sleep " undetected without symptoms for 10-30 yrs. .... this " stealth " disease, known in the hepatitis online community as " the dragon " . The hepatitis C virus is referred to as the " dragon " because of its silent, mysterious nature. It can be a potentially deadly disease. It can hide (sleep) for decades without someone knowing they have it. It is like an internal fire burning, affecting your liver and other body systems and at anytime can cause havoc to one's health. " The dragon is a metaphor, the virus attacking your liver. Hence you we all want to slay the dragon. " I found that Hep C has a nick name. The Sleeping Dragon. " " In Chinese medicine, the liver is represented by a dragon and is said to store anger. " May your Dragon sleep gently in the fight against Hepatitis C ... Luv anne No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1329 - Release Date: 3/14/2008 12:33 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 The nurse practitioner that set me up the first time told me she didn’t care so much about eating protein, just so long as I ate. Since I’d heard that protein was ideal and since I have an overwhelming “thing” for cheese, it was a no-brainer for me! So many doctors today are just going through the motions. They don’t remember you from the last visit. It’s up to you to make yourself “memorable” and demand the care you deserve. I know sometimes, it’s just easier to let it slide – but it’s your future and even your life that’s at stake. Don’t let them forget to do anything. Ultimately, it’s your responsibility. It’s not often that we find a doctor that “clicks” with us so we just have to work with what we’ve got unless they’re negligent of course. With the knowledge you gain here, you can always be one-up on an overloaded doctor. Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Matchinsky Sent: Sunday, March 16, 2008 7:28 AM To: Hepatitis_C_Central Subject: RE: Visualizations I’ve had two doctors- the first was a gastroenterologist and he was supposed to be the top HCV man in the Midwest. The doctor I have now is a hepatic specialist. I was never told about fat or protein with riba. The first one never told me I should lose weight! He never told me I had fatty liver disease, either. I think his practice is overloaded. They forgot to do the 4 week labs for my last treatment and oh boy was my new doctor pissed. I was undetectable at 4 weeks on my first treatment, but we’ll never know for sure about the second. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Well it sounds like your doc is too busy..and unfortunately YOU are the one who suffers from that,, You dont get adequate care when he is too busy.. I think that that is the ONE MAIN REASON that we have this group here,, to make sure everyone knows what they need to know... If I can find my sheet from the RN who taught our class, Ill scan it and and post it,, with all my notes that she told us,, I listened carefully and took notes, and I did everything exactly as they said and I cleared.... but I also had to research info for myself because my gastro was very very, did I say very arrogant!!! I finally fired him and went back to my PCP...as he was the ONLY one who really cared about if I cleared or not and the ONLY one who was willing to treat my side effects and listened to me... Matchinsky wrote: I’ve had two doctors- the first was a gastroenterologist and he was supposed to be the top HCV man in the Midwest. The doctor I have now is a hepatic specialist. I was never told about fat or protein with riba. The first one never told me I should lose weight! He never told me I had fatty liver disease, either. I think his practice is overloaded. They forgot to do the 4 week labs for my last treatment and oh boy was my new doctor pissed. I was undetectable at 4 weeks on my first treatment, but we’ll never know for sure about the second. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on Sent: Saturday, March 15, 2008 2:44 PM To: Hepatitis_C_Central Subject: RE: Visualizations Didnt the nurse from your doc's office tell you about the Riba and fat? The nurse who did our 'shot' clinic was adamant about it ,, Matchinsky <michaelboxernest (DOT) net> wrote: Thanks for the tips! I forgot to take Tylenol. I hadn’t known about the fat with Riba. "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on Sent: Friday, March 14, 2008 5:19 PM To: Hepatitis_C_Central Subject: Re: Visualizations Well ,, lets keep our positive thoughts going for SVR this time for you! Dont forget to drink you FILTERED water and take tylenol 30 min before your shot and then again a couple of hours afterwards,, keep the severe sides in check.. and dont forget to eat a small amount of fat when you take your Riba,, just a teas of peanut butter, cream cheese etc on some toast will help.. If you dont get enough Protein, you will fight nausea so the peanut butter or cream cheese has both fat and pro in it ,, it was my lifesaver on tx! No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1328 - Release Date: 3/13/2008 11:31 AM Jackie No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1329 - Release Date: 3/14/2008 12:33 PM No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1329 - Release Date: 3/14/2008 12:33 PM Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 I think it's very important for the spouse to go to the dr visits. Like you, my husband would forget a couple of things to ask or maybe not remember everything. So, I go, take notes, ask questions, and visit until we feel we're ready to leave. The doc refers to me as 'the boss', in a loving way. I stayed behind last visit to get some paperwork and he patted me on the back on the way out and told me: "You're doing a good thing, here.". So, don't be afraid to take your spouse, a friend, a cousin, or someone you trust to help you remember and get all the info you can. FOUR MORE WEEKS AFTER THIS WEEK ON TX FOR MY HUSBAND'S 2nd time thru!!!!!!!!!!!!!!!! We're pumped, altho, he does ache. He has worked 6 days a week through the whole treatment. He does force water. So, I guess the work brings some extra soreness and is expected. But, he wants to stay as active as possible, then comes home and rests up for the next day...4 MORE WEEKS!!!!!!! ) We hope this is the last tx for him.... Love to all, Dianna Re: Visualizations Wy wife always joins me at the Dr.'s appointments. They often "shudder" at her site, because she's always carrying that 5" x 7" mini legal pad, with a full list of fresh questions! It works, because they know we've been researching and have valid questions. Plus, my wife won't leave until all is fully explained! (We also have a pretty good Dr. who now has 2 way conversations with us!)I agree with you, Dorothy. It's really up to us patients to question and force a dialog. A list is great cause you forget less.>> The nurse practitioner that set me up the first time told me she didn't care> so much about eating protein, just so long as I ate. Since I'd heard that> protein was ideal and since I have an overwhelming "thing" for cheese, it> was a no-brainer for me!> > > > So many doctors today are just going through the motions. They don't> remember you from the last visit. It's up to you to make yourself> "memorable" and demand the care you deserve. I know sometimes, it's just> easier to let it slide - but it's your future and even your life that's at> stake. Don't let them forget to do anything. Ultimately, it's your> responsibility.> > > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Does anyone remember Pet's Dragon? He was a good dragon....:-) Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 A good plase to go is Cedars Sinai in Los Angeles. It is the tranplant team there and 3 specialize in treating Hep c etc. They have a team that works your case. The PA assigned to me was available everyday, returned my calls in less than an hour. called me every Friday with my blood test results that I had every Thurday on Friday to discuss and make any changes if needed. Made sure that I had the Procrit in my possession so that when I needed it I had it. At one point I spoke to here and within 15 minutes she called me back to make sure I was ok because I did not sound good to her ( I sounded like I was going to cry, and I did). Even now (I have been off treatment since end of July, I think) she called a couple of weeks ago and sent me script for an ultra sound because it had been 6 months since my last one. I feel very luck to have such great Doctors. If anyone lives in the Los Angeles area I highly recommemen them! Srry about the ramble! R Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Yes PETE'S Dragon,, my sons favorite movie,, his name was Elliott! There were days I had to watch that movie 4 or 5 times in a row!!! I still remember most of the words,, lol Ruggio wrote: Does anyone remember Pet's Dragon? He was a good dragon....:-) Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 I recall the movie, he also reminded me of Puff. I think the green Dragons are the good ones. Ruggio wrote: Does anyone remember Pet's Dragon? He was a good dragon....:-) Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 oops Pete Dragon! Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 We knew who you meant, girlfriend.. Ruggio wrote: oops Pete Dragon! Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Me too! My step daughter watched it over and over and over again. I knew every word and song in the film. Steph Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 He's gone this a way, He's gone that a way, he's up a tree, I think,, Oh Petey, Oh Petey,, lol,, was a great film for kids,, Ruggio wrote: Me too! My step daughter watched it over and over and over again. I knew every word and song in the film. Steph Never miss a thing. Make Yahoo your homepage. Jackie Quote Link to comment Share on other sites More sharing options...
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