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Sue - re: test

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Sue W. -

Sorry it took so long to reply... crazy week... Boy, I wish I had some

idea which test your doc was talking about. I can't even begin to think

about what that would be.... I was under the impression that there were

very few ways, if any at all, to figure out who would have this for

life, in whom it would be progressive, etc. I've kind of assumed mine

would be for life, since it started progressing rapidly later in life.

And I know sometimes you can have transient phenomena of

infancy/toddlerhood... but I didn't know there were any temporary

classifications beyond toddlerhood. If you find out anything more from

him, I'd love to hear it. Sorry I couldn't be of more help. Barb?

Ursula? Any thoughts???

Take care,

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