Re: FW: PedPID email list-Tracey

[Guest guest]

Hi Tracey,

Thanks for the note. SLE is systemic lupus erythmatosous (sp?) better known

as just lupus. Mine is the systemic kind in that it affects organs besides

the skin. It is an autoimmune disease where the immune system kind of turns

on itself. I have arthritis, pleurisy and neurological symptoms from the

lupus. That's kind of it in a nutshell.

has had the hypog. for a long time. Her last infusion was in 1992.

I really wish we could do it again since it helped so much. I would watch

her in the hospital and it was like her whole countenance changed in a course

of several hours. She usually looks pale and tired, but after an infusion,

her coloring is much better and she just looks, well, healthy.

I really believe that following up on 's immune problem is the key

to getting her better - if not well, then better. And we will take anything

we can get! LOL!

Take care...

Betsy ( 13 - seizure disorder, hypogammaglobulinemia, autism,

developmental delay)

[Guest guest]

Betsy-

Hi! My name is Mika. I am a 13 year old with hypogammagobulinemia, and I was

wondering if maybe me and could write back and forth. I really

don't have any teenagers with hypogammagobulinemia to write to. I would

really like to have someone that knows what I am talking about. My e-mail is

mifounta@...

Oh yeah my middle name is .

Mika

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