Re: PANDAS IVIG & chelation..high metals caused my sons immune dysfunction??

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-Thanks Bridget for the reply...

Yes, I think we will have to do IVIG with chelation to see the best

results...I don't want to waste the IVIG if the metals are still

high!-- In mb12 valtrex , " filmei " wrote:

>

>

> ,

>

> This is our experience, knowing they all are different. High

> functioning Aspie dd soon to be 13.

>

> This is very complicated and I don't know what your IgG testing

shows

> to support IVIG.

>

> So, My dd was diagnosed with a very low IgG 1, which is considered

a

> CVID diagnosis (Common Variable Immune Deficiency). We got our IVIG

> covered under insurance for a CVID diagnoses, not a spectrum

diagnosis.

>

> Funny thing tho, CVID, you are usually very ill often, which my dd

was

> not(which, from research, usually, a viral overlaod problem)

>

> So, we gave it a shot for the year of the coverage. My thoughts,

> chelate with it also.

>

> Our research on IgG 1 deficiencies, for very low IgG 1, came up

> with " toxins, bacteria and viruses " which is the basis of many of

the

> Autism deficiencies.

>

> Did IVIG help, yes! But it was no miracle cure. But iy helped

> immensely, but didn't " hold " . I wish we had started Ca EDTA

>>>>>AT

> THE SAME TIME. I can not emphasize that enough.

>

> Many believe that that is too hard on the bio system to do both at

the

> same time. But I wish I had done them both at the same time, and we

> would have been farther along.

>

> Because my dd could never tolerate any of the supplements UNTIL we

> started IVIG and chelation.

>

> Our Insurance rx ran out on the IVIG and now we are doing the Ca

EDTA,

> and I am so disheartened I didn't do both.

>

> I now realize our biggest issue is not so much the metals which are

> coming out, but a virus ( or many viruses) and I need to do a viral

> protocol with the chelation.

>

> Just our experience here.

>

> I believe the IVIG did help here immune system. Enough for us to

> recognize there was more here that IVIG could not help.

>

> What's even funny, when I give her the metal supplements after

> chelation, she gets worse not better.....

>

> Bridget

>

>

>

>

>

> >

> > I was reading Andy Cutlers book and realized that my sons immune

> > dysfunction could be related to the fact that he is high in

metals

> > right now..we had a porphyrins test and he came back high in

> > mercury/lead /arsenic..so I started thinking that the IVIG won't

work

> > unless we take care of the metals issue too!!!

> > SO now I am wondering which came first.. the immune issues or the

> > metals since I feel one caused the other...

> > Any ideas or experience with this??

> > I appreciate any help as my son is a MESS and has gotten worse

since

> we

> > started bio-med treatments..I just cut back on his supplements

> (thanks,

> > Kerrie!) since I feel something was making him worse!

> > We are supposed to get IVIG on Sunday ....yippeee

> >

> >

>