Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 - I wish the CT had yielded more positive results. Please let us know when it's scheduled and I'm keeping your family and you especially in my thoughts and prayers. Hugs and kisses in abundance. Please let me know if there is anything I can do. Ursula Holleman Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I left kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) ICQ # 28592349 http://www.icq.com PedPID email list archives http://www.netpage.org/PedPID/_PedPID/ PedPID email list introductions http://www.netpage.org/PedPID/_PedPID/introduction.htm Mass email concerning Hi all, Sorry for the mass email, but I am tired and do not feel like emailing each person individually right now. had his MRI today and the news is not the best it could be. First of all he threw up the sedation 4 times and they almost gave up but I convinced them to just put it in a bottle with formula and they agreed, and he was out by the time he finished 4 ounces. The results of the MRI, he has a large hole in the left side of his brain that is taking up a very large portion of it and pushing the brain towards the outside. The solution, they are going to put in a second shunt on the left side. I guess the good news is is that there was only one large area and not 9 cysts like they said could have been there. Anyhow, the doctor is going to email me later today or tomorrow and let me know when the surgery will be. We are shooting for next week or the week after before school starts. Any prayers for would be very appreciated about now. And I normally do not ask, but a couple for me would be great too, this is all starting to wear me down a bit. A little strength would be welcome right now. Toodles for now!!!!!! , wife to Preston, mother to Shelbie 8, Mandy 3 and 14 months Moderator of Military EFMs, IVH-Hydrocephalus, NewView and NICU Families Registered Chat for Preemies Friends and Family. ---------------------------------------------------------------------------- ---------------------------------------------- HEART-----Heart, intellect, awareness, mind, inner person, inner feelings, deepest thoughts, inner self. --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 1999 Report Share Posted August 4, 1999 Tracey, Sorry to hear that is going to need surgery. Paryers to him and you. You needn't ask for yourself. You are going through soo much and are under a great eal of stress. You need prayers also. Did they give the hydrochloride? erin was too old for that. They gave her something else. And I will not let her have it again.They too were going to give up and reschedule. They had to give her the maxium dose. She was fighting it. She couldn't even walk for 24 hours after. Let us know something. God Bless === and (neutropenic and immune deficent) mom to Evan 6, 4 and Abby Rose (almost 2) _____________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 1999 Report Share Posted August 4, 1999 Thanks Becky. , wife to Preston, mother to Shelbie 8, Mandy 3 and 14 months Moderator of Military EFMs, IVH-Hydrocephalus, NewView and NICU Families Registered Chat for Preemies Friends and Family. ---------------------------------------------------------------------------- ---------------------------------------------- HEART-----Heart, intellect, awareness, mind, inner person, inner feelings, deepest thoughts, inner self. Re: Mass email concerning > > >Prayers for you and . Many prayers.Becky > Mass email concerning > > >> >> >> Hi all, >> Sorry for the mass email, but I am tired and do not feel like emailing >each >> person individually right now. >> had his MRI today and the news is not the best it could be. First >of >> all he threw up the sedation 4 times and they almost gave up but I >convinced >> them to just put it in a bottle with formula and they agreed, and he was >out >> by the time he finished 4 ounces. The results of the MRI, he has a large >> hole in the left side of his brain that is taking up a very large portion >of >> it and pushing the brain towards the outside. The solution, they are >going >> to put in a second shunt on the left side. I guess the good news is is >that >> there was only one large area and not 9 cysts like they said could have >been >> there. Anyhow, the doctor is going to email me later today or tomorrow >and >> let me know when the surgery will be. We are shooting for next week or >the >> week after before school starts. Any prayers for would be very >> appreciated about now. And I normally do not ask, but a couple for me >would >> be great too, this is all starting to wear me down a bit. A little >strength >> would be welcome right now. >> >> Toodles for now!!!!!! >> >> , wife to Preston, mother to Shelbie 8, Mandy 3 and 14 months >> Moderator of Military EFMs, IVH-Hydrocephalus, NewView and NICU Families >> Registered Chat for Preemies Friends and Family. >> ------------------------------------------------------------------------- - >-- >> ---------------------------------------------- >> HEART-----Heart, intellect, awareness, mind, inner person, inner >feelings, >> deepest thoughts, inner self. >> >> >> >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 1999 Report Share Posted August 5, 1999 Prayers for you and . Many prayers.Becky Mass email concerning > > > Hi all, > Sorry for the mass email, but I am tired and do not feel like emailing each > person individually right now. > had his MRI today and the news is not the best it could be. First of > all he threw up the sedation 4 times and they almost gave up but I convinced > them to just put it in a bottle with formula and they agreed, and he was out > by the time he finished 4 ounces. The results of the MRI, he has a large > hole in the left side of his brain that is taking up a very large portion of > it and pushing the brain towards the outside. The solution, they are going > to put in a second shunt on the left side. I guess the good news is is that > there was only one large area and not 9 cysts like they said could have been > there. Anyhow, the doctor is going to email me later today or tomorrow and > let me know when the surgery will be. We are shooting for next week or the > week after before school starts. Any prayers for would be very > appreciated about now. And I normally do not ask, but a couple for me would > be great too, this is all starting to wear me down a bit. A little strength > would be welcome right now. > > Toodles for now!!!!!! > > , wife to Preston, mother to Shelbie 8, Mandy 3 and 14 months > Moderator of Military EFMs, IVH-Hydrocephalus, NewView and NICU Families > Registered Chat for Preemies Friends and Family. > -------------------------------------------------------------------------- -- > ---------------------------------------------- > HEART-----Heart, intellect, awareness, mind, inner person, inner feelings, > deepest thoughts, inner self. > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 1999 Report Share Posted August 6, 1999 Dear Tracey, Just read your letter regarding 's MRI results and his up and coming surgery for a second shunt. I have a very close friend who has a child who has multiple health challenges including a shunt and many revisions. My prayers are certainly with you and right now...please know I am thinking of you and praying that all goes well. Sincerely, Autumn mom to Mark Cd5-Cd19 PID/ GERD, A1A, Samter's Quote Link to comment Share on other sites More sharing options...
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