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Adult DS w/OCD

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Many of you have young children with DS, but I am a parent with a

young adult who suffers with severe chronic OCD with tactile issues.

She destroys her clothing on a daily basis (loose threads are an

issue). My goal is to find assistance in seeking proper treatment

and/or support from other parents whose child also has this

affliction. Yes, OCD is a trait of DS, but usually once adolescents

strikes the behaviors become more severe and the stresses in their

lives increase - just like any normal being. Routines are drastically

changed upon exiting the school run program therefore.... Here's

where I blame the lack of government funding programs in order to

assist the adults in their everyday living.

Through my search on many forums I have struggled to find support

within this age group because of her age. Lest we forget that the

adults are the ones who have pioneered the way for the younger

generation to have all the resources and advantages available to them

today. Physicians are more knowledgeable today, but many release

their patients after the age of 18, therefore.... DS clinics for

adults are few and far between.

Even my local DSG chapter caters to the young, neglecting the young

adult who so desperately needs these services. The NDSC welcomes

success stories but forgets about those parents whose child/adult has

a dual-diagnosis.

So my real question is are there any other parents out there whose

young adults has OCD and if so what methods have been successful?

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