Guest guest Posted June 28, 2008 Report Share Posted June 28, 2008 Were you ever able to figure out why it worked for you and therefore which ones it might or might not? Ours is a toe walker and gut kid, never hand flapped post the diet changes...he is a go with the flow type too...believe me I wish it would work for Matt, we would do it in a heartbeat....what made you decide it would be a good intervention and low risk? How recovered was your son when he tried it? Di > > > > > > > > > > > > > > I just saw my DAN! and my son has PANDAS and there seems to be > > > no > > > > > > > change in him after IVIG..supplements. .she suggested HBOT..I'd > > > > > like > > > > > > > tohear from others if this is worth the $$$ or just a way to get > > > > > > folks > > > > > > > to use her chamber in her office? > > > > > > > > > > > > > > > > > > > > > > > > > We did 200 dives of soft chamber mild HBOT 1-1 1/2 hrs./day he was > > > > > > doing great more eye contact, awareness better, skin color good,a > > > > > happy > > > > > > child then started valtrex while doing HBOT he then got chronic > > > > > strep > > > > > > (2-3 different kinds of strep in his gut. > > > > > > now he has all symptoms of PANDAS he continued getting worse we > > > > > found > > > > > > out oxygen was feeding the strep so we immediately stopped. Now he > > > > > is > > > > > > on zithro. > > > > > > How many IVIG treatments did he have? I read sometimes several > > > > > > treatments before seeing positives with some kids. > > > > > > We are staying away from the HBOT while battling strep. > > > > > > Carole > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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