RE: Trying to get Brie to Phoenix to meet with Dr. Dobyns, Dr Chang, and Dr. Walsh

[Guest guest]

I do not think this is the correct forum for asking for donations. We all are

here for the same reason and struggle getting all the special thing our kids

need. I know it is difficult and just want this to be an open forum to freely

share and vent.

Diane

Sent from Samsung Conquerâ„¢ 4G

briesgram wrote:

We need your help! My granddaughter, Brie, was born with a rare congenital brain

malformation called Polymicrogyria (PMG). There are only a handful of doctors in

the country that have expertise in PMG. And the best of the best will be at the

FCM Convention in Phoenix June 14-17th. We need YOUR help to get them there!

ANY amount you can spare would help us to get this opportunity to see them. You

see there are NO PMG doctors anywhere at all in the South East! And this

convention only happens once every TWO years!

Brie needs to see Dr. Dobyns as he can help us to know how best to treat her

specific type (still unknown at this time) and how to best make a treatment plan

for her.

Due to a change in the family's circumstances, our family needs YOUR help to get

Brie and her mom and dad to Phoenix in only TWO (2) weeks!

Please help, if you can!

With Utmost Appreciation,

Catrina Byrge

http://www.gofundme.com/p6vmk

[Guest guest]

Catrina,I agree with Diane.... it`s difficult for everybody and everybody would

like to consult with Dr. Dobyns.Let`s keep our place free, so that we can talk

and share openly to each others.

To: polymicrogyria

From: deszone25@...

Date: Sun, 10 Jun 2012 14:58:14 -0400

Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

I do not think this is the correct forum for asking for donations. We all

are here for the same reason and struggle getting all the special thing our kids

need. I know it is difficult and just want this to be an open forum to freely

share and vent.

Diane

Sent from Samsung Conquer™ 4G

briesgram wrote:

We need your help! My granddaughter, Brie, was born with a rare congenital brain

malformation called Polymicrogyria (PMG). There are only a handful of doctors in

the country that have expertise in PMG. And the best of the best will be at the

FCM Convention in Phoenix June 14-17th. We need YOUR help to get them there!

ANY amount you can spare would help us to get this opportunity to see them. You

see there are NO PMG doctors anywhere at all in the South East! And this

convention only happens once every TWO years!

Brie needs to see Dr. Dobyns as he can help us to know how best to treat her

specific type (still unknown at this time) and how to best make a treatment plan

for her.

Due to a change in the family's circumstances, our family needs YOUR help to get

Brie and her mom and dad to Phoenix in only TWO (2) weeks!

Please help, if you can!

With Utmost Appreciation,

Catrina Byrge

http://www.gofundme.com/p6vmk

[Guest guest]

Please accept my apologies if I made anyone uncomfortable. In our FaceBook

groups we support one another's financial needs as we can so I didn't realize

that it was faux pas here.

Also, I inadvertently sent email to my contacts via my Outlook from pmgawareness

email account.

Again, I apologize for making anyone uncomfortable.

Sincerely,

Catrina Byrge

Sent from my iPhone

>

> Catrina,I agree with Diane.... it`s difficult for everybody and everybody

would like to consult with Dr. Dobyns.Let`s keep our place free, so that we can

talk and share openly to each others.

>

>

>

>

> To: polymicrogyria

> From: deszone25@...

> Date: Sun, 10 Jun 2012 14:58:14 -0400

> Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> I do not think this is the correct forum for asking for donations. We all

are here for the same reason and struggle getting all the special thing our kids

need. I know it is difficult and just want this to be an open forum to freely

share and vent.

>

> Diane

>

>

>

> Sent from Samsung Conquer� 4G

>

>

>

> briesgram wrote:

>

>

>

> We need your help! My granddaughter, Brie, was born with a rare congenital

brain malformation called Polymicrogyria (PMG). There are only a handful of

doctors in the country that have expertise in PMG. And the best of the best will

be at the FCM Convention in Phoenix June 14-17th. We need YOUR help to get them

there!

>

>

>

> ANY amount you can spare would help us to get this opportunity to see them.

You see there are NO PMG doctors anywhere at all in the South East! And this

convention only happens once every TWO years!

>

>

>

> Brie needs to see Dr. Dobyns as he can help us to know how best to treat her

specific type (still unknown at this time) and how to best make a treatment plan

for her.

>

>

>

> Due to a change in the family's circumstances, our family needs YOUR help to

get Brie and her mom and dad to Phoenix in only TWO (2) weeks!

>

>

>

> Please help, if you can!

>

>

>

> With Utmost Appreciation,

>

> Catrina Byrge

>

>

>

> http://www.gofundme.com/p6vmk

>

>

>

>

[Guest guest]

I totally agree. My granddaughter Brie is also located on the east coast and

her specific type is also un-diagnosed. I would love for her to be able to see

such a highly recommended specialist. I am sure we all would. But I don't feel

this is the place to ask donations.

Thanks Diane!

Sharon Krasyk

Administrative Assistant

to the General Manager

[cid:image001.gif@...]

________________________________

From: polymicrogyria [mailto:polymicrogyria ] On

Behalf Of Diane

Sent: Sunday, June 10, 2012 2:58 PM

To: polymicrogyria

Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

I do not think this is the correct forum for asking for donations. We all are

here for the same reason and struggle getting all the special thing our kids

need. I know it is difficult and just want this to be an open forum to freely

share and vent.

Diane

Sent from Samsung Conquer 4G

briesgram <catrina1118@...<mailto:catrina1118%40gmail.com>> wrote:

We need your help! My granddaughter, Brie, was born with a rare congenital brain

malformation called Polymicrogyria (PMG). There are only a handful of doctors in

the country that have expertise in PMG. And the best of the best will be at the

FCM Convention in Phoenix June 14-17th. We need YOUR help to get them there!

ANY amount you can spare would help us to get this opportunity to see them. You

see there are NO PMG doctors anywhere at all in the South East! And this

convention only happens once every TWO years!

Brie needs to see Dr. Dobyns as he can help us to know how best to treat her

specific type (still unknown at this time) and how to best make a treatment plan

for her.

Due to a change in the family's circumstances, our family needs YOUR help to get

Brie and her mom and dad to Phoenix in only TWO (2) weeks!

Please help, if you can!

With Utmost Appreciation,

Catrina Byrge

http://www.gofundme.com/p6vmk

[Guest guest]

Okay I apologized! What more can I do?? On Facebook we support each others

fundraisers so I did NOT realize it was an issue!

I'm sorry!!!!

Sent from my iPhone

> I totally agree. My granddaughter Brie is also located on the east coast and

her specific type is also un-diagnosed. I would love for her to be able to see

such a highly recommended specialist. I am sure we all would. But I don't feel

this is the place to ask donations.

>

> Thanks Diane!

>

> Sharon Krasyk

> Administrative Assistant

> to the General Manager

>

> [cid:image001.gif@...]

> ________________________________

> From: polymicrogyria [mailto:polymicrogyria ]

On Behalf Of Diane

> Sent: Sunday, June 10, 2012 2:58 PM

> To: polymicrogyria

> Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

>

> I do not think this is the correct forum for asking for donations. We all are

here for the same reason and struggle getting all the special thing our kids

need. I know it is difficult and just want this to be an open forum to freely

share and vent.

> Diane

>

> Sent from Samsung Conquer 4G

>

> briesgram <catrina1118@...<mailto:catrina1118%40gmail.com>> wrote:

>

> We need your help! My granddaughter, Brie, was born with a rare congenital

brain malformation called Polymicrogyria (PMG). There are only a handful of

doctors in the country that have expertise in PMG. And the best of the best will

be at the FCM Convention in Phoenix June 14-17th. We need YOUR help to get them

there!

>

> ANY amount you can spare would help us to get this opportunity to see them.

You see there are NO PMG doctors anywhere at all in the South East! And this

convention only happens once every TWO years!

>

> Brie needs to see Dr. Dobyns as he can help us to know how best to treat her

specific type (still unknown at this time) and how to best make a treatment plan

for her.

>

> Due to a change in the family's circumstances, our family needs YOUR help to

get Brie and her mom and dad to Phoenix in only TWO (2) weeks!

>

> Please help, if you can!

>

> With Utmost Appreciation,

> Catrina Byrge

>

> http://www.gofundme.com/p6vmk

>

>

[Guest guest]

Catrina has already addressed this with an apology and explanation...I think we

can end this thread.

 

________________________________

To: " polymicrogyria " <polymicrogyria >

Sent: Tuesday, June 12, 2012 11:14 AM

Subject: RE: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

 

I totally agree. My granddaughter Brie is also located on the east coast and her

specific type is also un-diagnosed. I would love for her to be able to see such

a highly recommended specialist. I am sure we all would. But I don't feel this

is the place to ask donations.

Thanks Diane!

Sharon Krasyk

Administrative Assistant

to the General Manager

[cid:image001.gif@...]

________________________________

From: polymicrogyria [mailto:polymicrogyria ] On

Behalf Of Diane

Sent: Sunday, June 10, 2012 2:58 PM

To: polymicrogyria

Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

I do not think this is the correct forum for asking for donations. We all are

here for the same reason and struggle getting all the special thing our kids

need. I know it is difficult and just want this to be an open forum to freely

share and vent.

Diane

Sent from Samsung Conquer 4G

briesgram <catrina1118@...<mailto:catrina1118%40gmail.com>> wrote:

We need your help! My granddaughter, Brie, was born with a rare congenital brain

malformation called Polymicrogyria (PMG). There are only a handful of doctors in

the country that have expertise in PMG. And the best of the best will be at the

FCM Convention in Phoenix June 14-17th. We need YOUR help to get them there!

ANY amount you can spare would help us to get this opportunity to see them. You

see there are NO PMG doctors anywhere at all in the South East! And this

convention only happens once every TWO years!

Brie needs to see Dr. Dobyns as he can help us to know how best to treat her

specific type (still unknown at this time) and how to best make a treatment plan

for her.

Due to a change in the family's circumstances, our family needs YOUR help to get

Brie and her mom and dad to Phoenix in only TWO (2) weeks!

Please help, if you can!

With Utmost Appreciation,

Catrina Byrge

http://www.gofundme.com/p6vmk

[Guest guest]

Catrina I believe I`ve writen my opinion before you apologize, so no more

issues at all.I can understand you didn`t realize and I`m glad we can express

our opinions freely.We are all in same boat.... a friendly hug.maria

To: polymicrogyria

From: catrina1118@...

Date: Tue, 12 Jun 2012 11:28:05 -0400

Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

Okay I apologized! What more can I do?? On Facebook we support each others

fundraisers so I did NOT realize it was an issue!

I'm sorry!!!!

Sent from my iPhone

> I totally agree. My granddaughter Brie is also located on the east coast and

her specific type is also un-diagnosed. I would love for her to be able to see

such a highly recommended specialist. I am sure we all would. But I don't feel

this is the place to ask donations.

>

> Thanks Diane!

>

> Sharon Krasyk

> Administrative Assistant

> to the General Manager

>

> [cid:image001.gif@...]

> ________________________________

> From: polymicrogyria [mailto:polymicrogyria ]

On Behalf Of Diane

> Sent: Sunday, June 10, 2012 2:58 PM

> To: polymicrogyria

> Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

>

> I do not think this is the correct forum for asking for donations. We all are

here for the same reason and struggle getting all the special thing our kids

need. I know it is difficult and just want this to be an open forum to freely

share and vent.

> Diane

>

> Sent from Samsung Conquer 4G

>

> briesgram <catrina1118@...<mailto:catrina1118%40gmail.com>> wrote:

>

> We need your help! My granddaughter, Brie, was born with a rare congenital

brain malformation called Polymicrogyria (PMG). There are only a handful of

doctors in the country that have expertise in PMG. And the best of the best will

be at the FCM Convention in Phoenix June 14-17th. We need YOUR help to get them

there!

>

> ANY amount you can spare would help us to get this opportunity to see them.

You see there are NO PMG doctors anywhere at all in the South East! And this

convention only happens once every TWO years!

>

> Brie needs to see Dr. Dobyns as he can help us to know how best to treat her

specific type (still unknown at this time) and how to best make a treatment plan

for her.

>

> Due to a change in the family's circumstances, our family needs YOUR help to

get Brie and her mom and dad to Phoenix in only TWO (2) weeks!

>

> Please help, if you can!

>

> With Utmost Appreciation,

> Catrina Byrge

>

> http://www.gofundme.com/p6vmk

>

>

[Guest guest]

Catrina,

I also commented before I seen the apology. It was not meant to be mean, but I

thought this was a place we could express our opinions openly and honestly. We

all love our babies and want the best for them. Wishing your Brie all the best!

Sharon Krasyk

Administrative Assistant

to the General Manager

[cid:image001.gif@...]

________________________________

From: polymicrogyria [mailto:polymicrogyria ] On

Behalf Of a Luz

Sent: Tuesday, June 12, 2012 11:15 PM

To: PMGGRoup

Subject: RE: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

Catrina I believe I`ve writen my opinion before you apologize, so no more issues

at all.I can understand you didn`t realize and I`m glad we can express our

opinions freely.We are all in same boat.... a friendly hug.maria

To: polymicrogyria <mailto:polymicrogyria%40yahoogroups.com>

From: catrina1118@...<mailto:catrina1118%40gmail.com>

Date: Tue, 12 Jun 2012 11:28:05 -0400

Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

Okay I apologized! What more can I do?? On Facebook we support each others

fundraisers so I did NOT realize it was an issue!

I'm sorry!!!!

Sent from my iPhone

On Jun 12, 2012, at 11:14 AM, Sharon Krasyk

<skrasyk@...<mailto:skrasyk%40riteaid.com>> wrote:

> I totally agree. My granddaughter Brie is also located on the east coast and

her specific type is also un-diagnosed. I would love for her to be able to see

such a highly recommended specialist. I am sure we all would. But I don't feel

this is the place to ask donations.

>

> Thanks Diane!

>

> Sharon Krasyk

> Administrative Assistant

> to the General Manager

>

> [cid:image001.gif@...<mailto:image001.gif%4001CD488C.67980610>]

> ________________________________

> From: polymicrogyria <mailto:polymicrogyria%40yahoogroups.com>

[mailto:polymicrogyria <mailto:polymicrogyria%40yahoogroups.com>]

On Behalf Of Diane

> Sent: Sunday, June 10, 2012 2:58 PM

> To: polymicrogyria <mailto:polymicrogyria%40yahoogroups.com>

> Subject: Re: Trying to get Brie to Phoenix to meet with Dr.

Dobyns, Dr Chang, and Dr. Walsh

>

> I do not think this is the correct forum for asking for donations. We all are

here for the same reason and struggle getting all the special thing our kids

need. I know it is difficult and just want this to be an open forum to freely

share and vent.

> Diane

>

> Sent from Samsung Conquer 4G

>

> briesgram

<catrina1118@...<mailto:catrina1118%40gmail.com><mailto:catrina1118%40gmai\

l.com>> wrote:

>

> We need your help! My granddaughter, Brie, was born with a rare congenital

brain malformation called Polymicrogyria (PMG). There are only a handful of

doctors in the country that have expertise in PMG. And the best of the best will

be at the FCM Convention in Phoenix June 14-17th. We need YOUR help to get them

there!

>

> ANY amount you can spare would help us to get this opportunity to see them.

You see there are NO PMG doctors anywhere at all in the South East! And this

convention only happens once every TWO years!

>

> Brie needs to see Dr. Dobyns as he can help us to know how best to treat her

specific type (still unknown at this time) and how to best make a treatment plan

for her.

>

> Due to a change in the family's circumstances, our family needs YOUR help to

get Brie and her mom and dad to Phoenix in only TWO (2) weeks!

>

> Please help, if you can!

>

> With Utmost Appreciation,

> Catrina Byrge

>

> http://www.gofundme.com/p6vmk

>

>