Some sad new ... Please say a prayer

[Guest guest]

I just got a message from a friend, her son passed

away late Sunday night.

I was hoping if you all can say a prayer for him. HE

was handsome 5 yo boy named . He has

been struggling all year from complication of

congential neutropenia aka kostmann's syndrome. He

had a BMT but his body rejected it. Hespent the past

9 months in PICU. His little body just couldn't fight

anymore. Please, please say a prayer for him and his

family. His mom is really having a hard time. She is

feeling guilty. I can't even imagine the pain she is

feeling.

I gave all mine a big hug especially . Please

give all your lil' pumpkin's a extra big hug and thank

god that they are still with us.

Thank you for listening and the prayers. This has

really hit me hard.

=====

and

(congential neutropenia, hypogammaglobulinemia, chronic sinusitis and

leukopenia)

mom to Evan 6, 4 and Abby Rose 2