Guest guest Posted May 28, 2012 Report Share Posted May 28, 2012 Hello everybody, I am Kenan from İstanbul/Turkey. My little angel Kerem is 15 moths old. Diagnosed with PMG when he was 3 months. He had his first seizure those days. It came with harlequin effect. The left side of his face was red, the other side was normal. A few days later, after MRI we learned that he is a PMG kid. It was really hard to slow down the seizures. At the beginning we had two or three in a week. We started with Luminaletten, then Depakin, Keppra, Topamax etc. Now it seems that we have seizures once in a month. But we use Luminaletten 60 mg/day, Frisium 30 mg/day and Topamax 75 mg/day. Like most of the kids he has hypotania. He can not sit up or crawl. But he can roll an smile to his dad. He is very handsome by the way.. Our physician told about Theratogs. I know that it is produced in US. Does anybody use it?  Does it really work or any comments else? It is great to find you and i will be very pleased if anybody post something about it Thanks Kenan Quote Link to comment Share on other sites More sharing options...
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