Re: Reply from Dr. Gail regarding Congenital CMV related illne

[Guest guest]

Thank you Catrina for sharing this email.

polymicrogyria on Monday, July 02, 2012 at 8:37 AM -0700 wrote:

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>

>

>Hi all, I am copying you all with Dr. Gail's reply as to how long CMV can

>continue to affect our kids!

>

>Hi Catrina,

>

>Children born with congenital CMV may continue to have ongoing problems into

>adulthood. In our longitudual study, that has been ongoing for 30 years, we

>have had our patients and study subjects have progression of their hearing

>loss into their late teens and into their mid twenties.

>Eye disease progression occurs in some patients also in late childhood.

>If the child born with congenital CMV has neurologic involvement, then the

>effects can be a life time of challenges.

>The liver and low platelets and other problems of their body usually resolve

>in the first few months to year of life, but the neuorological and sensory

>problems are usually lifelong.

>Antiviral treatment in the first months of life helps to reduce the hearing

>loss progression an d improve developmental milestones, etc.

>

>I hope this helps answer your question.

>

>Gail Demmler Jarrosp, M.D.

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>

>

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[Guest guest]

My pleasure. I am even more excited that she has agreed to join our PMGA Medical

Advisory Board! She has a wealth of knowledge and will be a great asset to our

Organization!

> >

> >

> >

> >Hi all, I am copying you all with Dr. Gail's reply as to how long CMV can

> >continue to affect our kids!

> >

> >Hi Catrina,

> >

> >Children born with congenital CMV may continue to have ongoing problems into

> >adulthood. In our longitudual study, that has been ongoing for 30 years, we

> >have had our patients and study subjects have progression of their hearing

> >loss into their late teens and into their mid twenties.

> >Eye disease progression occurs in some patients also in late childhood.

> >If the child born with congenital CMV has neurologic involvement, then the

> >effects can be a life time of challenges.

> >The liver and low platelets and other problems of their body usually resolve

> >in the first few months to year of life, but the neuorological and sensory

> >problems are usually lifelong.

> >Antiviral treatment in the first months of life helps to reduce the hearing

> >loss progression an d improve developmental milestones, etc.

> >

> >I hope this helps answer your question.

> >

> >Gail Demmler Jarrosp, M.D.

> >

> >

> >

> >

> >

>