Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 Helen... has gone off IVIG 3 times.. and each time he was well for a few months and then became much sicker.. I hope this isnt the case for Matt but infections start recurring, dont hesitate to make them start again.. will not be taken off now for a few more years.. Hope you are feeling well yourself.. you are still in our prayers.. Michele - mom to (13) IgG def, selective antibody def, asthma, migraines HBDOEM@... wrote: > From: HBDOEM@... > > Helen Mom to Matt(13yo)CVID > > Matt just popped his head in and asked if I was reading the mail from IDF. > How curious I thought. He wanted to know if some kids ever have a year of > IVIG and then go off. How curious I thought. I'm doing ok mom he says. Only > today I started blowing my nose. I informed him that I did not know if any of > the " pumpkins " ever went off IVIG. I told him that it seemed to me so many of > you deal with sooo much more than we do (maybe that's my denial, I don't > know). He wondered if there were any kids his age out there that were doing > ok off IVIG. How interesting I think. A new level of acceptance and curiosity > for him. Maybe I will follow. > > So, for any who may or may not be out there, Matt's wondering and someday > may want to chat. > > Thanks for your thoughts and time. Off to bed. Helen > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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