Guest guest Posted October 6, 1999 Report Share Posted October 6, 1999 Ursula: Sorry to hear about Macey not feeling well. I hope the flumadine works well for her. I hope her neuro goes well also. Please let us know how she is doing! Give her a big hug from alissa!!When you have a moment (ha Ha!) is flumadine like amantadine? It cuts the viral into half life, or from repication? Sorry to be stupid? But you are always on the latest stuff, thanks, try and get some rest and will keep Macey in our prayers! God Bless, annette and alissa > >Reply-To: PedPIDonelist >To: " PedPID - onelist " <PedPIDonelist> >Subject: The Flu >Date: Wed, 6 Oct 1999 16:15:09 -0400 > >We took Macey in to see the ped Monday morning because she had this awful >rash on her arms and legs and had been complaining of stomach aches, slept >all the time and when she was awake was just miserable. Crying all the >time, she actually bit this weekend. > >Ped did a mono spot test and cbc. mono spot was negative, cbc showed high >lymphs. Ped said it was viral and to wait and see and call if anything >happened. I was ok with that and we left. On the way home in the car the >immunologist called to go over the CT results. He made a comment about >tracking me down and I told him we were returning from the peds, macey was >sick with something viral. He asked me what all happened at the peds and >what symptoms she had. He said it was probably the flu and called in >Flumadine. She was on this last year when she had the flu and it worked >great. > >So I got home, turned around to call the ped and let her know that he >called >me, not the other way around, and had started her on the med. Thankfully I >got to speak to the nurse. it's difficult having so many people follow >her. > >Then Tuesday night she had a fever and diarrhea. So we've stopped the >lactulose and it looks like it is the flu. She stayed home from school >again today and may go tomorrow. The Flumadine wiped that fever right out >with alittle Tylenol and she hasn't pooped again. > >Her endocrinologist called today and they increased her DDAVP to twice a >day. This might help with the constipation and headaches. But we have to >watch her sodium intake for the next several days. > >Autumn - when will Mark have his next MRI? Was there a reason they did it >without contrast the first time? Let us know what's happening. > >Well back to work. Love to all. >Ursula Holleman >Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I left >kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) >ICQ # 28592349 >http://www.icq.com > >PedPID email list archives >http://www.netpage.org/PedPID/_PedPID/ > >PedPID email list introductions >http://www.netpage.org/PedPID/_PedPID/introduction.htm > > > > >------------------------------------------------------------------------ >This forum is open to parents and caregivers of children diagnosed with a >Primary Immune Deficiency. Opinions or medical advice stated here are the >sole responsibility of the poster and should not be taken as professional >advice. ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 1999 Report Share Posted October 6, 1999 Thank you Ursula: We just found it in the PDR,(just got an updated one and it helps) will keep it handy when Alissa infects this year. Thank you for bringing up all these wonderful choices in drug treatment. My brother who I am working for now part time thinks you are pretty wonderful along with the other moms that keep eachother informed and the wonderful support you all give. He wishes he could prescribe a email list along with his treatment plans!!!!!!!!!!!!!! Hope Macey is resting better! annette and alissa > >Reply-To: PedPIDonelist >To: <PedPIDonelist> >Subject: RE: The Flu >Date: Wed, 6 Oct 1999 21:30:39 -0400 > >it is but the consensus is now is that the Flumadine (can't recall the real >name) does not have the CNS effects that the amantadine does. I have an >article somewhere online that shows this. Her ped tried to put her on >Symmetrel (amantadine) one time and the immuno promptly vetoed that. let >me >know if you want the article. > >Ursula - & Macey (4 yr old w/CVID) mom > > > The Flu > >Date: Wed, 6 Oct 1999 16:15:09 -0400 > > > >We took Macey in to see the ped Monday morning because she had this awful > >rash on her arms and legs and had been complaining of stomach aches, >slept > >all the time and when she was awake was just miserable. Crying all the > >time, she actually bit this weekend. > > > >Ped did a mono spot test and cbc. mono spot was negative, cbc showed >high > >lymphs. Ped said it was viral and to wait and see and call if anything > >happened. I was ok with that and we left. On the way home in the car >the > >immunologist called to go over the CT results. He made a comment about > >tracking me down and I told him we were returning from the peds, macey >was > >sick with something viral. He asked me what all happened at the peds and > >what symptoms she had. He said it was probably the flu and called in > >Flumadine. She was on this last year when she had the flu and it worked > >great. > > > >So I got home, turned around to call the ped and let her know that he > >called > >me, not the other way around, and had started her on the med. Thankfully >I > >got to speak to the nurse. it's difficult having so many people follow > >her. > > > >Then Tuesday night she had a fever and diarrhea. So we've stopped the > >lactulose and it looks like it is the flu. She stayed home from school > >again today and may go tomorrow. The Flumadine wiped that fever right >out > >with alittle Tylenol and she hasn't pooped again. > > > >Her endocrinologist called today and they increased her DDAVP to twice a > >day. This might help with the constipation and headaches. But we have >to > >watch her sodium intake for the next several days. > > > >Autumn - when will Mark have his next MRI? Was there a reason they did >it > >without contrast the first time? Let us know what's happening. > > > >Well back to work. Love to all. > >Ursula Holleman > >Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I >left > >kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) > >ICQ # 28592349 > >http://www.icq.com > > > >PedPID email list archives > >http://www.netpage.org/PedPID/_PedPID/ > > > >PedPID email list introductions > >http://www.netpage.org/PedPID/_PedPID/introduction.htm > > > > > > > > > >------------------------------------------------------------------------ > >This forum is open to parents and caregivers of children diagnosed with a > >Primary Immune Deficiency. Opinions or medical advice stated here are >the > >sole responsibility of the poster and should not be taken as professional > >advice. > ><< text3.html >> > >This forum is open to parents and caregivers of children diagnosed with a >Primary Immune Deficiency. Opinions or medical advice stated here are the >sole responsibility of the poster and should not be taken as professional >advice. > > >------------------------------------------------------------------------ >This forum is open to parents and caregivers of children diagnosed with a >Primary Immune Deficiency. Opinions or medical advice stated here are the >sole responsibility of the poster and should not be taken as professional >advice. ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 1999 Report Share Posted October 6, 1999 We took Macey in to see the ped Monday morning because she had this awful rash on her arms and legs and had been complaining of stomach aches, slept all the time and when she was awake was just miserable. Crying all the time, she actually bit this weekend. Ped did a mono spot test and cbc. mono spot was negative, cbc showed high lymphs. Ped said it was viral and to wait and see and call if anything happened. I was ok with that and we left. On the way home in the car the immunologist called to go over the CT results. He made a comment about tracking me down and I told him we were returning from the peds, macey was sick with something viral. He asked me what all happened at the peds and what symptoms she had. He said it was probably the flu and called in Flumadine. She was on this last year when she had the flu and it worked great. So I got home, turned around to call the ped and let her know that he called me, not the other way around, and had started her on the med. Thankfully I got to speak to the nurse. it's difficult having so many people follow her. Then Tuesday night she had a fever and diarrhea. So we've stopped the lactulose and it looks like it is the flu. She stayed home from school again today and may go tomorrow. The Flumadine wiped that fever right out with alittle Tylenol and she hasn't pooped again. Her endocrinologist called today and they increased her DDAVP to twice a day. This might help with the constipation and headaches. But we have to watch her sodium intake for the next several days. Autumn - when will Mark have his next MRI? Was there a reason they did it without contrast the first time? Let us know what's happening. Well back to work. Love to all. Ursula Holleman Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I left kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) ICQ # 28592349 http://www.icq.com PedPID email list archives http://www.netpage.org/PedPID/_PedPID/ PedPID email list introductions http://www.netpage.org/PedPID/_PedPID/introduction.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 1999 Report Share Posted October 6, 1999 it is but the consensus is now is that the Flumadine (can't recall the real name) does not have the CNS effects that the amantadine does. I have an article somewhere online that shows this. Her ped tried to put her on Symmetrel (amantadine) one time and the immuno promptly vetoed that. let me know if you want the article. Ursula - & Macey (4 yr old w/CVID) mom The Flu >Date: Wed, 6 Oct 1999 16:15:09 -0400 > >We took Macey in to see the ped Monday morning because she had this awful >rash on her arms and legs and had been complaining of stomach aches, slept >all the time and when she was awake was just miserable. Crying all the >time, she actually bit this weekend. > >Ped did a mono spot test and cbc. mono spot was negative, cbc showed high >lymphs. Ped said it was viral and to wait and see and call if anything >happened. I was ok with that and we left. On the way home in the car the >immunologist called to go over the CT results. He made a comment about >tracking me down and I told him we were returning from the peds, macey was >sick with something viral. He asked me what all happened at the peds and >what symptoms she had. He said it was probably the flu and called in >Flumadine. She was on this last year when she had the flu and it worked >great. > >So I got home, turned around to call the ped and let her know that he >called >me, not the other way around, and had started her on the med. Thankfully I >got to speak to the nurse. it's difficult having so many people follow >her. > >Then Tuesday night she had a fever and diarrhea. So we've stopped the >lactulose and it looks like it is the flu. She stayed home from school >again today and may go tomorrow. The Flumadine wiped that fever right out >with alittle Tylenol and she hasn't pooped again. > >Her endocrinologist called today and they increased her DDAVP to twice a >day. This might help with the constipation and headaches. But we have to >watch her sodium intake for the next several days. > >Autumn - when will Mark have his next MRI? Was there a reason they did it >without contrast the first time? Let us know what's happening. > >Well back to work. Love to all. >Ursula Holleman >Macey's mom (4 yr. old with CVID, asthma, GERD, sinus disease, grade I left >kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) >ICQ # 28592349 >http://www.icq.com > >PedPID email list archives >http://www.netpage.org/PedPID/_PedPID/ > >PedPID email list introductions >http://www.netpage.org/PedPID/_PedPID/introduction.htm > > > > >------------------------------------------------------------------------ >This forum is open to parents and caregivers of children diagnosed with a >Primary Immune Deficiency. Opinions or medical advice stated here are the >sole responsibility of the poster and should not be taken as professional >advice. ><< text3.html >> This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
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