The search for the ultimate Ped

[Guest guest]

Capri the search went rather well. After weeding out all the area peds who

had never heard of PID and then doing face to face interviews my husband and

I decided on a nice young female pediatrician (Macey's first female doc

besides Laurie Myers, who she sees so rarely anyway). She is two years out

of residency and has seen or at least had in her residency, all of Macey's

peculiarities. We had a nice first visit with her and Macey Wednesday, at

which Macey decided to have some fever. She is very open to the idea of

diagnostic testing, frequent CBC's and cultures since Macey isn't

symptomatic of bacterial infections usually. She has already reached our

immunologist and chatted with him about Macey's history and I hope to hear

from her tomorrow about testing that needs to be scheduled. She has another

PID patient (XLA) and seems very comfortable with everything a PID child

involves.

There is a wonderful letter from the recent NEJM on the PedPID home page

about disease management of a chronic illness patient.

The article had several good points.

http://www.nejm.org/content/1999/0340/0015/1202.asp

So I think we've found a real keeper. I'm cautiously optimistic. Thanks

for asking. Macey's had the stomach burning and pains but also has a

history of reflux. She gets Pepcid which calms her stomach and the burning

isn't as bad. But it is a constant thing for her.

Ursula Holleman

Macey's mom (3 yr. old with CVID, asthma, GERD, sinus disease, grade I left

kidney reflux, Sensory Integration Disorder)

ICQ # 28592349

http://www.icq.com

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