Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 ther is an arguement that seizure medications stop the brain being able to work its way out of seizure activity my brother had 'turns' for about six months in adolesence but they went away. no medication i was aware of. the neural trimming from puberty is a tremendously destructive process and is why all this aba stuff without getting the supplement side sorted out is a waste of time, children just regress during puberty and end up in an institution. i have been having some suspect moles for skin cancer cut out recntly and it sure makes one appreciate how medical intervtions can go the wrong way. punch biopsies are very dangerous, if the punch through melanoma they can push the cells deeper, it is best to get a mole completey excised. also the best preventaive treament for melanoma is to freeze any non cancerous moles that may one day give troubel but doctors wont freeze pigmented moles cause of liablity. the moement you go into a doctors office your probablity of getting a disease and needing permanent treatment goes up by ten fold i would say. interstingly a young asd adult i know who has been going backwards for a year now has responded to retinyl palimate and vitamin d... he he mmr problem i think. so i would say theres a huge number of kids with sub clinical measles from mmr that just cuts in on puberty. > After reading an article published in the Advocate magazine on adolescence and autism, I think my daughter may be suffering from seizures brought on by puberty. She meets the 3 criteria of what Dr. Edelson states as possible signs of seizure activity: 1. Exhibiting behaviors problems, such as aggression, self-injury, and severe tantrums; 2. Making little or no academic gains after doing well during childhood; and 3. Losing some behavioral and/or cognitive gains. > I am contacting my daughter's neurologists about having a 24 EEG done to check for this seizure possibility. Has anyone on this list have their child go through this procedure? My daughter has had the typical 2 hour ones done over the years, but never an overnight test. Any advice would be greatly appreciated. > Thanks, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Hi Pennie, She hasn't had one that we are aware of, but has has facial or head movements that we quite weren't sure of just being her tics associated with autism or silent seizures. However, the article states that with autism adolesecents may experience seizures during puberty which may be due to hormonal changes in the body. For many kids they are minor and typically not detected by simple observations. And as has had a progressional backslide ever since she turned 12 and her behavior and lack of academic progress met the observational signs that were listed in this article, I felt we should test for this possibility before pursuing other options. Thanks for responding, Re: 24 hour EEG > We didnt end up having to do it but if its the same procedure Abby's > neurologist was going to use then you have to push a button each time you > think she is having a seizure, maybe its not the same test, it is a form of a > EEG though. Has your daughter had seizures before? Abby had one when she was > 4 years old. She stopped breathing for 30 minutes. If it wasent for a > paramedic named she would be here. Never figured out what caused the > seizure and never had another since. Hope she doesnt have a problem during > puberty.Hope all goes well with your daughter. > > Pennie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 when is going to have the EEG? I am anxious to know what they find. Pennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Dear , Thank you for your insights. I really don't want to resort to medication. I have tried everything naturally for to help her through this puberty issue. However, her aggression, severe mood swings and tantrums and her loss of academic skills is really scaring me. This has been going on for nearly 2 years now. Re: 24 hour eeg > ther is an arguement that seizure medications stop the brain being > able to work its way out of seizure activity > > my brother had 'turns' for about six months in adolesence but they > went away. no medication i was aware of. > > the neural trimming from puberty is a tremendously destructive > process and is why all this aba stuff without getting the supplement > side sorted out is a waste of time, children just regress during > puberty and end up in an institution. > > i have been having some suspect moles for skin cancer cut out > recntly and it sure makes one appreciate how medical intervtions can > go the wrong way. punch biopsies are very dangerous, if the punch > through melanoma they can push the cells deeper, it is best to get a > mole completey excised. also the best preventaive treament for > melanoma is to freeze any non cancerous moles that may one day give > troubel but doctors wont freeze pigmented moles cause of liablity. > > the moement you go into a doctors office your probablity of getting > a disease and needing permanent treatment goes up by ten fold i would > say. > > > interstingly a young asd adult i know who has been going backwards > for a year now has responded to retinyl palimate and vitamin d... > he he mmr problem i think. so i would say theres a huge number of > kids with sub clinical measles from mmr that just cuts in on puberty. > > > > > > After reading an article published in the Advocate magazine on > adolescence and autism, I think my daughter may be suffering from > seizures brought on by puberty. She meets the 3 criteria of what Dr. > Edelson states as possible signs of seizure activity: 1. Exhibiting > behaviors problems, such as aggression, self-injury, and severe > tantrums; 2. Making little or no academic gains after doing well > during childhood; and 3. Losing some behavioral and/or cognitive > gains. > > I am contacting my daughter's neurologists about having a 24 > EEG done to check for this seizure possibility. Has anyone on this > list have their child go through this procedure? My daughter has had > the typical 2 hour ones done over the years, but never an overnight > test. Any advice would be greatly appreciated. > > Thanks, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 what about this vinpocetine that valentina scharpf is using? it sounds like some general issue, somethings not right, yeast, metals transport, etc. virus? http://www.betterlife.com/prod_home_page.asp?prod_id=9650 retinyl palimate and vitamin d also i figure tdoays kids are starved of not just vitamin d but other factors that are made with sunlight on the skin, the sunlight that makes all that stuff is the intense burning sun and a couple of minutes full body exposure around midday in summer gives much much more of these factors and less cancer risk imo than the stupid advice to put sunscreens on which only shield uvb and not uva(which is equally as dangerous as uvb) thus cutting out vitamin d which has anti tumour activity.............. is she taking no fenol? > > > After reading an article published in the Advocate magazine on > > adolescence and autism, I think my daughter may be suffering from > > seizures brought on by puberty. She meets the 3 criteria of what Dr. > > Edelson states as possible signs of seizure activity: 1. Exhibiting > > behaviors problems, such as aggression, self-injury, and severe > > tantrums; 2. Making little or no academic gains after doing well > > during childhood; and 3. Losing some behavioral and/or cognitive > > gains. > > > I am contacting my daughter's neurologists about having a 24 > > EEG done to check for this seizure possibility. Has anyone on this > > list have their child go through this procedure? My daughter has had > > the typical 2 hour ones done over the years, but never an overnight > > test. Any advice would be greatly appreciated. > > > Thanks, > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Keep me posted. Pennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Hi Pennie, I contacted my pediatrician and they'd rather I get the script from her Neuro. Because of the holiday today, I didn't call him. So within the next few days I should know when will have this test. Thanks for asking, Re: 24 hour EEG > when is going to have the EEG? I am anxious to know what they find. > Pennie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 Dear le, Do you mean you had to keep your daughter awake for 24 hours for the EEG when you said sleep deprived? How were you able to accomplish this? 24 hour eeg > Hi, My daughter had the 24 hour sleep deprieved E.E.G ,and the 2 30 minute > one's. showed nothing although she did better than I thought should would on > the over night the results showed nothing so its almost not worth putting > them threw if your not 95% sure its a seizure go with your heart it is if > nothing else peace of mind, and like all the other tests I have had for > Noelle negative results kinda of frustating! Just my thoughts good-luck > le > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2003 Report Share Posted January 22, 2003 Glad you were able to get the test done. When do you get the results back? Pennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 I've had several of them done with Hope. I just take some of her favorite toys, books, and videos with us. Check with the hospital where it's being done and see if they have a vcr you can use while you're there. Once you check in they'll show you to a room. Then the EEG techs will come in and get started hooking up all the wires. Once they're hooked up they'll wrap his head up like a turban and the panel where the wires hook into the machine will go into a belt pack that he can wear. After that, the nurses will occasionally come check on him, check vitals and such, but other than that it's just sit around, play watch tv and sleep. The last time Hope had one, we had a party in her room. I had her Wiggles video with us and some of the younger kids on the floor heard the music. They wanted to come watch too. So she had company. ;-) Toni [ ] 24 Hour EEG Has anyone done a 24 hour EEG for their child? If so - what can we expect? How have you prepared your child (he's 3.8 years old). Thanks - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi , My daughter has done this twice, one of which turned into a 48 hour one. I'm assuming your doing this in-patient in a pediatric ward of a hospital? My daughter's first one was done in a sleep clinic atmosphere and her second was in-patient at a children's hospital. Let me know what questions you have and what atmosphere the EEG is to be done and I can better address you as to what to expect and what to ask them about, etc. Tammy in Oregon [ ] 24 Hour EEG Has anyone done a 24 hour EEG for their child? If so - what can we expect? How have you prepared your child (he's 3.8 years old). Thanks - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Lindsey had one and she had a blast lol! I know thats probably rare though. I brought all this new stuff for the hospital stay,things we could do and watch. The staff loved her, she was singing A LOT. You would think she was singing for an audience and she was,but she didn't know it I think I showed her a picture what the " stickers " would be like,so she was prepared.I told her in a fun way what it would be like. She does have sensory issues,so I was thinking it would be horrible,but it wasn't. I hope yours goes well too. Lindsey was 4 or 5 years old. Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 We just recently had one done for 6 days in the hospital and my son did great. We have also had ambulatory ones done which are much better. Just be sure to bring toys, books, play dough or crafts that you can do while in a contained space because they may have a video cam on and you can't move alot. The one we just did was at Cleveland Clinic and they had nintendo which was great. Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 I am sorry list, I forgot to mention I live in the Chicagoland area. So I am looking for a neurologist in Illinois, preferably around Chicago area. Thankyou all so much for your heartwarming responses thus far. Also, my son has been in a verbal behavior program for 1 1/2 years. We have made awesome progress, he is just not with talking. God bless! Dawn Scissors0@... Quote Link to comment Share on other sites More sharing options...
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