Re: *now American Express

[Guest guest]

I voted too, but I will admit, only after I found out you did not have to be a member to do so.

   Jules Romero

-- *now American Express RE: [DownSyndromeInfoExchange] N.D.S.R.O Site

I voted for it back when you first posted it, too, . I don’t understand it either..we ran into a similar problem when we were trying to get people to sign the petition to require docs to give accurate information about Ds to expectant parents.

On the other hand,,I know that people just get busy sometimes and think that they will do whatever it is later,,then maybe they just forget. BUT…it will take ALL of us to change things…every little bit helps.

KathyR

From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Carol in ILSent: Sunday, August 24, 2008 3:41 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] N.D.S.R.O Site

I did as well ..... and of course went and voted myself. I do feel your frustration though........it takes so little in this case, no money, nos stamps, you don't even have to leave the chair you are sitting in.I don't get it, but then I don't get a lot of things!! ;o)

Carol in IL

AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me.

Join our Down Syndrome information group -

http://health.groups.yahoo.com/group/DownSyndromeInfoExchange/

Listen to oldest dd's music http://www.myspace.com/vennamusic

[DownSyndromeInfoEx change] N.D.S.R.O SiteTo: DownSyndromeInfoExc hange@yahoogroup s.comDate: Thursday, August 21, 2008, 9:35 PM

Hello everyone!!!This is my first post since joining this group though some of you already know me. At the urging of some wonderful people as well as the disgust at some of the disrespect I've seen against our kids and the stories I've heard where parents just sit down and take the garbage thrown at them by school systems and what not "praying" for resolution I decided to start the NATIONAL DOWN'S SYNDROME RIGHTS ORGANIZATION. In response to some of the emails I've received today let me first say that when I spent the time making the banner I went buy information where it was stated as "DOWN'S". A few said there was no apostrophe so I changed the text to reflect that as "DOWNS". Others have stated there is no "S" at all in it. Because it took me over two hours to get the banner right and any of the spellings is correct somewhere I am going with "DOWN'S". Here is where I kick in. Does everyone think whether a damn apostrophe exist or not is more important than the fact below on my site I have shown a small amount of THE RUDE AND OFFENSIVE RETARD SHIRTS CAFE PRESS IS SELLING????? ????????? ????????? I know some think it well intentioned but the site is up and will reflect the " 'S" so let's move on to larger matters!!!! Feel free to put your thumb over the apostrophe and the "S" if it makes you feel better!I have 2 children with Down's Syndrome and am sick and tired of my kids and others like them getting jerked around by the system and society. If Cafe Press were to sell shirts with a picture of Buckwheat from the Little Rascals and a red circle and line through it or using a caption with "NI**ER" they would be shut down inside of a day. Why the hell should this company and those that put these shirts up make money at the expense of OUR CHILDREN"S SELF RESPECT AND DIGNITY????? ?????My goal is to enlist parents also tired of this and, eventually, harness our collective strength to have the same respect shown for our kids. I'm not a man who pulls punches or takes crap. If you want to back someone who is soft spoken and polite then I guess I'm not your guy. Unfortunately we live in a world where hiding behind a bible and praying for God to fix things isn't going to cut it. Sometimes it takes someone rough around the edges who isn't afraid to get their hands dirty to play on the same level as the scum attacking our kids. This is who I am.I want to make clear and will only say this ONCE. I have nothing against religions or the bible. I have my own set of religious beliefs but that is a personal matter between God and myself and I refuse to pander using the religious angle. If someone is in need or a cause needs help I don't care what your religious beliefs are or if they exist at all. The focus for me is on our beautiful kids and not if or how you worship God. The main people behind Cafe Press may be church goers. Makes no difference to me. Right is right and disrespect to our children is disrespect. I will be updating the site with goals and hope to find at least 5 others to serve as a board of directors. We will be filing for non-profit status and, until then, I will finance this best I can on my own funds. It would not be appropriate for me to seek donations until our non-profit status is granted so you will not see a way to make donations... ....though it will come in the future!!! LOL!!!As for Cafe Press I've already spoke to them and they've politely told me they don't give a damn so I have a list of radio stations in their area of San Mateo, CA I will seek to gain time on one or more talk shows and do them. In the meantime I will seek some time on local talk radio in my area in the Mid-West. I am open to suggestions on anything as long as it has nothing to do with apostrophe's and "S's" and you can flog or applaud my efforts publicly here or privately at adminndsro (DOT) com This is who I am and what my organization stands for. As the board members are appointed and we gain more structure more formal guidelines and mandates will be in place. I only ask your support, not necessarily because I'm such a "nice guy" but because I am willing to stand up and work my God given big mouth on behalf of ALL of our children to give them a better today and better tomorrow, one battle at a time.Thanks for reading and I hope we can work together.Bill