Welcome, New Member, Lynn/ Case History

[Guest guest]

Dear ,On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added your information to our "Member Medical History" Files on the Group site and posted it below.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you can also go to the Erythema Nodosum Group Site :http://health.groups.yahoo.com/group/erythema_nodosum_Group/ whenever you like by logging on with your Yahoo ID and secret password.You do not have to have the group emails delivered to be a member here.I've had EN since I was 21. I just turned 59. Three yrs. ago I started to do online research to see if anything new had been discovered since I was diagnosed. That was the beginning of our EN Group. I hope that we will get EN research funded to discover effective treatments or cures for EN. If we don't do it ourselves, it doesn't look like it will be done for us. We have a huge collection of " EN Group members Case Histories" as well as a "Database" of meds we take and how well they work--also a "Cured Members File", so lots of info here for you to explore at our Group site! Welcome to our Friendly Group!Love,Idiopathic EN 1968******** Lynn's Case History10/3/061. Your name and age: 242. Your location: Valley Cottage, New York3. Your email address: bella820@...4. Your Yahoo ID Bella820 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. I was diagnosed with Erythema Nodosum about 3 years ago. It first started with warm red bumps on my lower leg. Now I get the red bumps all over my body, usually on my arms, legs, and back. These bumps are very painful and feel like black and blues. Shortly after the bumps appear on my body my throat usually hurts and I have to go to the Doctor for antibiotics. I also usually have a fever and a lot of joint pain. I usually feel like I have the flu. From time to time my ankles are swollen and that is also very painful. I feel that the more stressed out I am the worse I continue to get. 6. List any other health conditions.Heidel Hernia (acid reflux disease) 7. State what medications or treatments you take for EN, and their effectiveness: Doxcylcine (Lyme disease medication) ( I am not too sure if this medication helps me but I am currently taking it. Steroids (Usually the steroids help but I do not wish to be on them for long periods of time) Pain Killers/Muscle Relaxers ( I only take them when the pain is so uncomfortable). 8. When did you first get erythema nodosum or PG? about 3 years ago. 9. How long have you had erythema nodosum or PG? 3 years (on and off). 10. Do you agree to treat all EN members with respect? Yes. 11.Do you agree to post NO advertisements for any products or services? Yes. 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) A friend was doing research for me and came across this Support Group. I would really love to hear other people's story and learn more about the disease. I am curious to learn about any new treatments that they might have maybe to prevent from having these outbursts. I am also interested in learning anything I can do to prevent future episodes.