anyone else have pann everywhere?

[Guest guest]

I just need to vent. I have lupus panniculitis. Doctor reminded me I

said this is no fun it used to be called lupus profundus. I see most

postings as legs. I have it in my inside elbows, biceps, underamrs,

breasts, ribs, abdomen, buttocks, legs you practically name it and I

will feel and find it there. Some have burned like hot charcoal others

I just find. Like when the bicep will hurt rub or touch and I can

feel them, others are so visible they stick out not all get black and

blue. The one the my family dr injected yesterday turns all colors,

ends up green after black and blue... I am on oxygen now. had dr fill

out a prescript so that I can fly and he listed reason for oxygen as

intersistial lung disease. probably didn't spell that right. I have

this pain in the eye once a neurologist called it cluster headache. I

read on that I do not drink or smoke.......I am female. I think they

do not believe me. my " cluster headaache " diagnosed in 1992 was

checked by opthomologist a month ago and I have a eye hemmorage. I go

back to her tomorrow for a one month follow-up. Gotta go diurtic is

kicking in..~jan

[Guest guest]

Gosh, Jan, that's just awful. I really feel bad for you.

I have interstitial (sp???) lung disease. I'm not even sure what it means,

though.

I don't have lupus panniculitis. Does that mean you have lupus?

Good luck.

Joan

---- Jan wrote:

> I just need to vent. I have lupus panniculitis. Doctor reminded me I

> said this is no fun it used to be called lupus profundus. I see most

> postings as legs. I have it in my inside elbows, biceps, underamrs,

> breasts, ribs, abdomen, buttocks, legs you practically name it and I

> will feel and find it there. Some have burned like hot charcoal others

> I just find. Like when the bicep will hurt rub or touch and I can

> feel them, others are so visible they stick out not all get black and

> blue. The one the my family dr injected yesterday turns all colors,

> ends up green after black and blue... I am on oxygen now. had dr fill

> out a prescript so that I can fly and he listed reason for oxygen as

> intersistial lung disease. probably didn't spell that right. I have

> this pain in the eye once a neurologist called it cluster headache. I

> read on that I do not drink or smoke.......I am female. I think they

> do not believe me. my " cluster headaache " diagnosed in 1992 was

> checked by opthomologist a month ago and I have a eye hemmorage. I go

> back to her tomorrow for a one month follow-up. Gotta go diurtic is

> kicking in..~jan

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