Re:Families Welcome Spotlight on Down Syndrome

[Guest guest]

> Dr. Mobley, who heads the Down Syndrome Clinic at Lucile Packard

> Children's Hospital in Palo Alto, said that until recently, trisomy 21

> children were not given the kind of medical treatment that typical kids

> received. As a result, they lived until their early 20s.

>

> " I was a resident at Stanford in 1976, and I was working at a hospital and

> caring for a beautiful girl with Down syndrome who was about 12, " said

> Mobley. " Because she had Down syndrome, it was impossible to get a surgeon

> to operate on her. They let her perforate her appendix.

Can you imagine? Makes me think about that movie Q.

Hope

[Guest guest]

Yeah..remember Baby Doe? I think it was in the 80’s . A

baby was born with Ds and esophageal atresia, and the parents won the ‘right’

to refuse surgery and let him starve to death.

From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of Hope

Sent: Monday, September 15, 2008 6:15 AM

To: DownSyndromeInfoExchange

Subject: [DownSyndromeInfoExchange] Re:Families Welcome Spotlight on

Down Syndrome

> Dr. Mobley, who heads the Down Syndrome Clinic at Lucile

Packard

> Children's Hospital in Palo Alto, said that until recently, trisomy 21

> children were not given the kind of medical treatment that typical kids

> received. As a result, they lived until their early 20s.

>

> " I was a resident at Stanford in 1976, and I was working at a

hospital and

> caring for a beautiful girl with Down syndrome who was about 12, "

said

> Mobley. " Because she had Down syndrome, it was impossible to get a

surgeon

> to operate on her. They let her perforate her appendix.

Can you imagine? Makes me think about that movie Q.

Hope

_._,___

[Guest guest]

I remember it well. Esophageal Atresia is entirely treatable.

It still makes my heart sad.

, Mom to Phoebe

3 Ds and cystic fibrosis, and Nolan

6, speech delay

Proud wife to Steve,

the love of my life...

phoebe updates here

“A mind is

a fire to be kindled, not a vessel to be filled.”

—Plutarch (46-137), historian, biographer, essayist

“When

there is no enemy within, the enemies outside cannot hurt you.”

—African Proverb

From: DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of Kathy

Ratkiewicz

Sent: Monday, September 15, 2008 3:02 PM

To: DownSyndromeInfoExchange

Subject: RE: [DownSyndromeInfoExchange] Re:Families Welcome Spotlight on

Down Syndrome

Yeah..remember Baby Doe? I think it was

in the 80’s . A baby was born with Ds and esophageal atresia, and the parents

won the ‘right’ to refuse surgery and let him starve to death.

From:

DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ]

On Behalf Of Hope

Sent: Monday, September 15, 2008 6:15 AM

To: DownSyndromeInfoExchange

Subject: [DownSyndromeInfoExchange] Re:Families Welcome Spotlight on

Down Syndrome

> Dr. Mobley, who heads the Down Syndrome Clinic at Lucile

Packard

> Children's Hospital in Palo Alto, said that until recently, trisomy 21

> children were not given the kind of medical treatment that typical kids

> received. As a result, they lived until their early 20s.

>

> " I was a resident at Stanford in 1976, and I was working at a

hospital and

> caring for a beautiful girl with Down syndrome who was about 12, "

said

> Mobley. " Because she had Down syndrome, it was impossible to get a

surgeon

> to operate on her. They let her perforate her appendix.

Can you imagine? Makes me think about that movie Q.

Hope

_._,___