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Brief ONLINE Surveys-Researcher & Mom to boys with DD Invites Parent's Help

January 8, 2004

Welcome! Thank you for your interest in our research. Please click the link to

go to the website in which English and Spanish versions are available

http://langston.osu-tulsa.okstate.edu/vthomas

I am a doctoral candidate in the Human Development and Family Science Program at

Oklahoma State University. Our focus is on early identification of children who

have developmental disabilities. My dissertation advisor, Dr. Self,

and I are particularly interested in identifying developmental disabilities in

infants and toddlers to increase early interventions. As the parent of two boys

who have significant development disabilities and as a behavioral health

professional, I feel driven to help.

We have developed a screening tool for parents of young children, based upon

other screening tools, expert reviews and a pilot study. The purpose of this

research is to gather information that may be helpful in developing an effective

survey that may be used by parents to help check their child's development.

Research is a major step toward successful treatments.

Although the questions in this survey are personal, all information is 100%

anonymous. We will not collect ANY identifying information. Your help is

important. We hope our research will increase awareness and research with

populations' at-risk for developmental disabilities.

We invite you to participate in our study. The criteria for participation are as

follows: One or more children between the ages of 12 months to 18 years of

age who have received a diagnosis by a health care professional of one of the

following;

Autism

Down Syndrome

Fragile X Syndrome

Fragile X Premutation r

Asperger Syndrome

Pervasive Developmental Disorder (PDD-NOS)

No disabilities and have undergone DNA tests to rule out Fragile X Syndrome

, Ph.D., (candidate), MS, RN, BC

Oklahoma State University Human Development and Family Science

700 N. Greenwood NCB 358

Tulsa, Oklahoma 74106

(918) 594-8082 (Office)

tveness@...

Self, Ph.D., Professor

Oklahoma State University

Human Development and Family Sciences

HES RM 226A

Stillwater, Oklahoma 74078

(405) 744-8348 (Office)

(405) 744-2800 (Fax)

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