Not panicking.....but HELP!

August 28, 2008

Background.....

Freddie started crawling up stairs last year. This was after having mastered the

stairs already (milestone). We got the pediatrician to refer Freddie to a

neurologist. The neurologist ordered a spine MRI. Freddie had it last week. The

Neurologist just called. Freddie has something called Fatty Filum :

Anyone out there had any dealings with this? The doc said it's not specific to

kids/adults with DS. He has referred Freddie to a neurosurgeon. I understand wht

it is and how to treat it. I just want to hear parental experience if possible.

Thanks

nna

Mommy to Freddie 6 yrs

Full Inclusion Kindy

The Will of God will never take you where the Grace of God will not protect you.

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