RE: Meltdown at PPCD school evaluation

[Guest guest]

I remember those meltdowns well and I'm sorry you are feeling down. I

think it will get a little easier with maturity (at least my guys at

almost 6 are handling it better than a few years ago) but I still feel

like someone is hitting me in the stomach every time I see them with NT

kids. Their delay especially in social interactions becomes so much

more amplified and apparent that I usually end up crying, too...I hope

that you'll be feeling better soon!

{{{{{{HUGS}}}}}}

[Guest guest]

thank you so much. I guess it never really gets to an acceptable level

knowing that your child is struggling.

>

> I remember those meltdowns well and I'm sorry you are feeling down. I

> think it will get a little easier with maturity (at least my guys at

> almost 6 are handling it better than a few years ago) but I still

feel

> like someone is hitting me in the stomach every time I see them with

NT

> kids. Their delay especially in social interactions becomes so much

> more amplified and apparent that I usually end up crying, too...I

hope

> that you'll be feeling better soon!

> {{{{{{HUGS}}}}}}

>

[Guest guest]

You're right, we've all been there. We will also be there again because

it's part of the grief cycle. There's stages like anger, frustration,

sadness, accusing, acceptance. They all come and go at different times in

relation to different events or triggers. They can occur in any order and

you can hit a stage multiple times. I learned about it in the NAMI Visions

for Tomorrow courses, which I highly recommend!

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Cookie

Sent: Wednesday, January 09, 2008 3:05 PM

To: Texas-Autism-Advocacy

Subject: Meltdown at PPCD school evaluation

It happened, and I was informed by my ECI person that it is rough on

Autistic children, and it was. I was hoping that our pre-evaluation

for PPCD would be ok, yet knowing it could be stressful on my son. I

felt that I was prepared. However, my son had a meltdown because it

was so fast and furious. They would give him a puzzle, then he would

do it, then they'd take it away and move on. We'l, we all know you

can't do that with autistic kids. They have to make peace with their

toys. It was really bad.

We had to forego the ear and eye exams, but I have already had those

done privately. But what surprised me was my reaction, not during

it, but after it was all over and I had dropped my son off to

Mother's Day Out. I went to get something to eat, and pretty much

broke down at the table crying. It just reminds me that my son is

different, he is not the same, and he is certainly not 'normal'. It

also reminds me that he needs 'structured school', 5 days a week,

year-round, not 9 months. This Christmas really kicked his heiney

without a routine.

I'm not asking you to reply to this post. I'm just posting to get it

out of my system. I'm grateful that you read it though, and I know

you have ALL gone through the identical situation. God bless you

too.

[Guest guest]

I've just checked the NAMI website for Vision For Tomorrow info.

I've sent an inquiry and hope to have something soon about a course

in this area.

I think that the grief cycle fits well here. We just have hopes and

dreams of our little son to be 'normal' whatever that means, but it

was very real for us this one time that he is not like other

children, yet he's a whole lot like other autistic children.

>

> You're right, we've all been there. We will also be there again

because

> it's part of the grief cycle. There's stages like anger,

frustration,

> sadness, accusing, acceptance. They all come and go at different

times in

> relation to different events or triggers. They can occur in any

order and

> you can hit a stage multiple times. I learned about it in the NAMI

Visions

> for Tomorrow courses, which I highly recommend!

>

>

>

> Tonya

>

>

>

> From: Texas-Autism-Advocacy

> [mailto:Texas-Autism-Advocacy ] On Behalf Of Cookie

> Sent: Wednesday, January 09, 2008 3:05 PM

> To: Texas-Autism-Advocacy

> Subject: Meltdown at PPCD school evaluation

>

>

>

> It happened, and I was informed by my ECI person that it is rough

on

> Autistic children, and it was. I was hoping that our pre-evaluation

> for PPCD would be ok, yet knowing it could be stressful on my son.

I

> felt that I was prepared. However, my son had a meltdown because it

> was so fast and furious. They would give him a puzzle, then he

would

> do it, then they'd take it away and move on. We'l, we all know you

> can't do that with autistic kids. They have to make peace with

their

> toys. It was really bad.

>

> We had to forego the ear and eye exams, but I have already had

those

> done privately. But what surprised me was my reaction, not during

> it, but after it was all over and I had dropped my son off to

> Mother's Day Out. I went to get something to eat, and pretty much

> broke down at the table crying. It just reminds me that my son is

> different, he is not the same, and he is certainly not 'normal'. It

> also reminds me that he needs 'structured school', 5 days a week,

> year-round, not 9 months. This Christmas really kicked his heiney

> without a routine.

>

> I'm not asking you to reply to this post. I'm just posting to get

it

> out of my system. I'm grateful that you read it though, and I know

> you have ALL gone through the identical situation. God bless you

> too.

>

>

>

>

>

>

[Guest guest]

I know, it's hard when it slaps you in the face! Don't lose hope though!

Many children with autism make amazing progress. Our son is nothing like

what he was at 3. Sure, he still has autism & some of its quirks, but he

has come so very, very far.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Cookie

Sent: Saturday, January 12, 2008 1:35 AM

To: Texas-Autism-Advocacy

Subject: Re: Meltdown at PPCD school evaluation

I've just checked the NAMI website for Vision For Tomorrow info.

I've sent an inquiry and hope to have something soon about a course

in this area.

I think that the grief cycle fits well here. We just have hopes and

dreams of our little son to be 'normal' whatever that means, but it

was very real for us this one time that he is not like other

children, yet he's a whole lot like other autistic children.

>

> You're right, we've all been there. We will also be there again

because

> it's part of the grief cycle. There's stages like anger,

frustration,

> sadness, accusing, acceptance. They all come and go at different

times in

> relation to different events or triggers. They can occur in any

order and

> you can hit a stage multiple times. I learned about it in the NAMI

Visions

> for Tomorrow courses, which I highly recommend!

>

>

>

> Tonya

>

>

>

> From: Texas-Autism-Advocacy

<mailto:Texas-Autism-Advocacy%40yahoogroups.com>

> [mailto:Texas-Autism-Advocacy

<mailto:Texas-Autism-Advocacy%40yahoogroups.com> ] On Behalf Of Cookie

> Sent: Wednesday, January 09, 2008 3:05 PM

> To: Texas-Autism-Advocacy

<mailto:Texas-Autism-Advocacy%40yahoogroups.com>

> Subject: Meltdown at PPCD school evaluation

>

>

>

> It happened, and I was informed by my ECI person that it is rough

on

> Autistic children, and it was. I was hoping that our pre-evaluation

> for PPCD would be ok, yet knowing it could be stressful on my son.

I

> felt that I was prepared. However, my son had a meltdown because it

> was so fast and furious. They would give him a puzzle, then he

would

> do it, then they'd take it away and move on. We'l, we all know you

> can't do that with autistic kids. They have to make peace with

their

> toys. It was really bad.

>

> We had to forego the ear and eye exams, but I have already had

those

> done privately. But what surprised me was my reaction, not during

> it, but after it was all over and I had dropped my son off to

> Mother's Day Out. I went to get something to eat, and pretty much

> broke down at the table crying. It just reminds me that my son is

> different, he is not the same, and he is certainly not 'normal'. It

> also reminds me that he needs 'structured school', 5 days a week,

> year-round, not 9 months. This Christmas really kicked his heiney

> without a routine.

>

> I'm not asking you to reply to this post. I'm just posting to get

it

> out of my system. I'm grateful that you read it though, and I know

> you have ALL gone through the identical situation. God bless you

> too.

>

>

>

>

>

>

[Guest guest]

How old is your son, Tonya? That is very encouraging.

> >

> > You're right, we've all been there. We will also be there again

> because

> > it's part of the grief cycle. There's stages like anger,

> frustration,

> > sadness, accusing, acceptance. They all come and go at different

> times in

> > relation to different events or triggers. They can occur in any

> order and

> > you can hit a stage multiple times. I learned about it in the

NAMI

> Visions

> > for Tomorrow courses, which I highly recommend!

> >

> >

> >

> > Tonya

> >

> >

> >

> > From: Texas-Autism-Advocacy

> <mailto:Texas-Autism-Advocacy%40yahoogroups.com>

> > [mailto:Texas-Autism-Advocacy

> <mailto:Texas-Autism-Advocacy%40yahoogroups.com> ] On Behalf Of

Cookie

> > Sent: Wednesday, January 09, 2008 3:05 PM

> > To: Texas-Autism-Advocacy

> <mailto:Texas-Autism-Advocacy%40yahoogroups.com>

> > Subject: Meltdown at PPCD school

evaluation

> >

> >

> >

> > It happened, and I was informed by my ECI person that it is rough

> on

> > Autistic children, and it was. I was hoping that our pre-

evaluation

> > for PPCD would be ok, yet knowing it could be stressful on my

son.

> I

> > felt that I was prepared. However, my son had a meltdown because

it

> > was so fast and furious. They would give him a puzzle, then he

> would

> > do it, then they'd take it away and move on. We'l, we all know

you

> > can't do that with autistic kids. They have to make peace with

> their

> > toys. It was really bad.

> >

> > We had to forego the ear and eye exams, but I have already had

> those

> > done privately. But what surprised me was my reaction, not during

> > it, but after it was all over and I had dropped my son off to

> > Mother's Day Out. I went to get something to eat, and pretty much

> > broke down at the table crying. It just reminds me that my son is

> > different, he is not the same, and he is certainly not 'normal'.

It

> > also reminds me that he needs 'structured school', 5 days a week,

> > year-round, not 9 months. This Christmas really kicked his heiney

> > without a routine.

> >

> > I'm not asking you to reply to this post. I'm just posting to get

> it

> > out of my system. I'm grateful that you read it though, and I

know

> > you have ALL gone through the identical situation. God bless you

> > too.

> >

> >

> >

> >

> >

> >