Re: Re: lace

[Guest guest]

re: med bills, for the future, sign up for CLASS and any other program

available. check out www.dads.state.tx.us or call for more info.

the waiting lists are several years long but if you don't sign up your number

will never be called.

keep a notebook of everyone and every organization that you contact, dates,

times, names and general description of how the conversation went. if you have

a cell phone use that number for call backs and do whatever you have to to keep

the number on. land line numbers can change depending on where you move to (if

you have to move) and if it's turned off you may not be able to get that number

back once you get the phone back on. also, sometimes the power, gas, phone

companies can give you a break if you have a doctor's letter to submit - you'll

still have to pay the bill but they might set you up on deferment plan - doesn't

hurt to ask.

if you are a member of a church, don't be shy, ask for help.

you can check out the social security website and figure the amt you would

qualify for based on household income and number of family members. sometimes

ssi can take months to come through. if you do qualify, medicaid is retroactive

for at least 30 days.

whatever you do, take notes. your head is swimming right now and there is no

way you can remember every detail and you will need the details in the coming

months and years.

asccnagla wrote:

I second the suggestion of taking an advocate to school with you.

Many small school districts are at a complete loss of what to do with

ASD kids, they need training, they need a consultant and they need

someone to remind them of what the law says. If what school is doing

is not meeting your son's needs, they have to develop a program that

will meet his needs, taking him home everyday is not it either.

Sounds like they need a consultant preferably a behavior analyst to

come in, do a proper functional behavior assessment (FBA) and come up

with a good Behavior intervention plan (BIP).

Write a letter requesting an ARD meeting, keep a copy for yourself.

When you get to the ARD take an advocate with you and request an FBA

to deal with behavior.

http://www.danasview.net/token.htm

Here is good websites to learn about biomedical treatment and

behavior:

http://www.autismwebsite.com/ari/treatment/form34q.htm

http://www.talkaboutcuringautism.org/medical/parents-role.htm

http://adamsautism.org/Advice/BioTreatmentChecklist.doc

Nagla

> >

> > Hi,

> >

> > My name is Ann and I have a son (Braden)that was recently

diagnosed

> with high functioning autistic disorder. He also has petitmal

> seizures and I have been really overwhelmed with all of this and

> don't really know what to do next. My family is falling apart and I

> have had to quit my job. I thought " Hey find a group online to get

> some advice. " and my stress level isn't helping much either. I am

> watching my world crash down around me and everytime I try to get

> help I get a door shut in my face. It has gotten to the point where

> the school doesn't want to deal with his disorder and ask me to

come

> get him from school all the time. I have filed for SSI and haven't

> had any luck, don't know if he will even qualify. My medical bills

> are through the roof and we are going to be evicted by the end of

the

> month. If anyone knows of some programs or good doctors to help me

> that would be great. Thanks!

> >

> > Sincerely,

> > Ann

> > New Boston, TX

> >

> >

> >

>

__________________________________________________________

> ______________

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now.

> http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

> >

[Guest guest]

We have had several ARD Meetings, when they asked me to hold my son back a year

I told them " no " . I said he can do the work he just needs someone to help him do

it one on one. They said that is not possible in this district, they just don't

have the staff. So I have to go to school with him, to monitor his behavior and

take him home if the teacher cannot handle him.

TY,

Ann

Re: lace

I second the suggestion of taking an advocate to school with you.

Many small school districts are at a complete loss of what to do with

ASD kids, they need training, they need a consultant and they need

someone to remind them of what the law says. If what school is doing

is not meeting your son's needs, they have to develop a program that

will meet his needs, taking him home everyday is not it either.

Sounds like they need a consultant preferably a behavior analyst to

come in, do a proper functional behavior assessment (FBA) and come up

with a good Behavior intervention plan (BIP).

Write a letter requesting an ARD meeting, keep a copy for yourself.

When you get to the ARD take an advocate with you and request an FBA

to deal with behavior.

http://www.danasview.net/token.htm

Here is good websites to learn about biomedical treatment and

behavior:

http://www.autismwebsite.com/ari/treatment/form34q.htm

http://www.talkaboutcuringautism.org/medical/parents-role.htm

http://adamsautism.org/Advice/BioTreatmentChecklist.doc

Nagla

> >

> > Hi,

> >

> > My name is Ann and I have a son (Braden)that was recently

diagnosed

> with high functioning autistic disorder. He also has petitmal

> seizures and I have been really overwhelmed with all of this and

> don't really know what to do next. My family is falling apart and I

> have had to quit my job. I thought " Hey find a group online to get

> some advice. " and my stress level isn't helping much either. I am

> watching my world crash down around me and everytime I try to get

> help I get a door shut in my face. It has gotten to the point where

> the school doesn't want to deal with his disorder and ask me to

come

> get him from school all the time. I have filed for SSI and haven't

> had any luck, don't know if he will even qualify. My medical bills

> are through the roof and we are going to be evicted by the end of

the

> month. If anyone knows of some programs or good doctors to help me

> that would be great. Thanks!

> >

> > Sincerely,

> > Ann

> > New Boston, TX

> >

> >

> >

>

______________________________________________________________________

> ______________

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now.

> http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

> >

[Guest guest]

New Boston is approx. 20 miles outside of Texarkana.

>

> Where exactly is New Boston?

>

> I am here to help if I can...

>

> nna

>

> nna Bond, M.Ed., ATP

> Special Education Consultant

> Autism Specialist

> RESNA Certified Assistive Technology Practitioner

>

> No virus found in this outgoing message.

> Checked by AVG Free Edition.

> Version: 7.5.516 / Virus Database: 269.19.2 - Release Date: 1/12/2008

> 12:00

> AM

>

>

[Guest guest]

Northeast corner of Texas, 20 miles west of Texarkana, AR/TX Border. We are on

Interstate I-30

Ann

Re: lace

Where exactly is New Boston?

I am here to help if I can...

nna

nna Bond, M.Ed., ATP

Special Education Consultant

Autism Specialist

RESNA Certified Assistive Technology Practitioner

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.19.2 - Release Date: 1/12/2008 12:00

AM

[Guest guest]

It's on Interstate 30 east of Mt. Pleasant - but before you hit Texarkana.

Beautiful country!

trisha rice

Re: lace

Where exactly is New Boston?

I am here to help if I can...

nna

nna Bond, M.Ed., ATP

Special Education Consultant

Autism Specialist

RESNA Certified Assistive Technology Practitioner

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.19.2 - Release Date: 1/12/2008 12:00

AM

[Guest guest]

Hi Ann!

You definitely need an advocate involved from what you write. Nagla and

nna, who have already responded, are both good advocates. I'd trust

them with my son's education. They are probably the closest to you too.

There were a couple of red flags in your post. Your school can not hold

your son back for lack of someone to assist him. You also shouldn't have to

go to school with him. If his behavior is a problem, your school should do

an FBA (Functional Behavioral Assessment). This is in the Federal Law, IDEA

2004. In a nutshell, a FBA looks at what happens before, during & after the

behavior then makes a guess about why the behavior is happening. After that

a BIP (Behavior Intervention Plan) is written. A more detailed description

is available at http://cecp.air.org. Look in the left frame under " Mini

Webs " .

If your school gives you problems about this, you might get some support

from your local TBSI (TX Behavior Support Initiative) contact.

http://www.txbsi.org . This was started by TEA and run through the ESCs.

Each ESC is independent and some are more family-friendly than others.

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Ann

Sent: Monday, January 14, 2008 11:30 PM

To: Texas-Autism-Advocacy

Subject: Re: Re: lace

We have had several ARD Meetings, when they asked me to hold my son back a

year I told them " no " . I said he can do the work he just needs someone to

help him do it one on one. They said that is not possible in this district,

they just don't have the staff. So I have to go to school with him, to

monitor his behavior and take him home if the teacher cannot handle him.

TY,

Ann

[Guest guest]

Yes it is very beautiful but unfortunately there is not services available for

autistic children and I cannot find ABA therapy down here.

Re: lace

Where exactly is New Boston?

I am here to help if I can...

nna

nna Bond, M.Ed., ATP

Special Education Consultant

Autism Specialist

RESNA Certified Assistive Technology Practitioner

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.19.2 - Release Date: 1/12/2008 12:00

AM

[Guest guest]

Tonya,

Thank you for the advice, I just don't know where to start. I went to the doctor

yesterday and sat with my doctor crying for an hour. She sat there and listened

to me and told me I need to move closer to where I can receive better care for

children with autism, because they just don't offer services here. I mean we are

losing our home, and about to lose our car as well. It just seems like we keep

getting kicked in the face. I have dealt with hatred from people who don't

understand and I want to protect him from all the negative that he is going to

encounter. Everywhere I turn there is some parent or person judging you or your

child without knowing all the facts first. I feel like finding a hole and

crawling inside just to get away. She recommended me trying a anti-depressent. I

asked her if it would make my life better and my son's life as well. She told me

No but it will help with all the anxiety. I don't feel I need medication to make

me feel better. I

need someone to listen to my problem and help me find a better solution to it.

I feel so alone like I am in a dark room with no way to escape. I have been

crying for days and I know my son thinks it is his fault and it's not. But I

feel like I am loosing my mind. I had to send my youngest daughter to stay with

my mother up north because I can't get daycare for her or take her to the school

with me. I miss her so much and I want her back home. But I can't be in two

places at once and my husband can't quit his job. We just don't have the money

to survive. I am at a lose for words and the walls keep crashing down around me.

But thank you for listening. I read this on the side of my coffee cup today from

starbucks and this sent me over the edge today.

Every 20 minutes-less time than it will take you to drink your coffee-another

child is diagnosed with autism. It's much more common than people think, with 1

out of every 150 children diagnosed. Learn the early warning signs of autism and

if you're concerned about your child's development, talk to your doctor. Early

intervention could make a big difference in your child's future. Bob ,

Co-founder, Autism Speaks, www.autismspeaks.org

I feel like I failed my son when I couldn't get him diagnosed until he was six,

instead of two or three years ago. I mean why did it take so long? Did I not

push hard enough? I feel like I have failed my own son.

Sincerely,

Ann M

Re: Re: lace

We have had several ARD Meetings, when they asked me to hold my son back a

year I told them " no " . I said he can do the work he just needs someone to

help him do it one on one. They said that is not possible in this district,

they just don't have the staff. So I have to go to school with him, to

monitor his behavior and take him home if the teacher cannot handle him.

TY,

Ann

[Guest guest]

My heart and prayers go out to you. I wish I had an answer, but please know

that your are trying your best and that is all any of us can do.

Ann wrote: Tonya,

Thank you for the advice, I just don't know where to start. I went to the doctor

yesterday and sat with my doctor crying for an hour. She sat there and listened

to me and told me I need to move closer to where I can receive better care for

children with autism, because they just don't offer services here. I mean we are

losing our home, and about to lose our car as well. It just seems like we keep

getting kicked in the face. I have dealt with hatred from people who don't

understand and I want to protect him from all the negative that he is going to

encounter. Everywhere I turn there is some parent or person judging you or your

child without knowing all the facts first. I feel like finding a hole and

crawling inside just to get away. She recommended me trying a anti-depressent. I

asked her if it would make my life better and my son's life as well. She told me

No but it will help with all the anxiety. I don't feel I need medication to make

me feel better. I

need someone to listen to my problem and help me find a better solution to it. I

feel so alone like I am in a dark room with no way to escape. I have been crying

for days and I know my son thinks it is his fault and it's not. But I feel like

I am loosing my mind. I had to send my youngest daughter to stay with my mother

up north because I can't get daycare for her or take her to the school with me.

I miss her so much and I want her back home. But I can't be in two places at

once and my husband can't quit his job. We just don't have the money to survive.

I am at a lose for words and the walls keep crashing down around me. But thank

you for listening. I read this on the side of my coffee cup today from starbucks

and this sent me over the edge today.

Every 20 minutes-less time than it will take you to drink your coffee-another

child is diagnosed with autism. It's much more common than people think, with 1

out of every 150 children diagnosed. Learn the early warning signs of autism and

if you're concerned about your child's development, talk to your doctor. Early

intervention could make a big difference in your child's future. Bob ,

Co-founder, Autism Speaks, www.autismspeaks.org

I feel like I failed my son when I couldn't get him diagnosed until he was six,

instead of two or three years ago. I mean why did it take so long? Did I not

push hard enough? I feel like I have failed my own son.

Sincerely,

Ann M

Re: Re: lace

We have had several ARD Meetings, when they asked me to hold my son back a

year I told them " no " . I said he can do the work he just needs someone to

help him do it one on one. They said that is not possible in this district,

they just don't have the staff. So I have to go to school with him, to

monitor his behavior and take him home if the teacher cannot handle him.

TY,

Ann

[Guest guest]

You DID NOT fail your son!

I have a friend that was very active and involved and her son still didn’t

get the AS diagnosis until 5th or 6th grade.

Our son wasn’t diagnosed until 3 even though I began asking the pediatrician

for answers when he was 1 to 1 ½. Even once he was diagnosed, I argued that

it wasn’t autism for another couple of years so everyone goes through trials

on the way to getting help for their child. It’s NOT a failure on anyone’s

part. We all do the best we can and that is all that can be expected from

us. No one has the right to say different!

I’m sorry that you’ve had have your family separated. I can’t begin to

imagine how hard that must be.

Someone suggested contacting your local MHMR. I want to second that. Not

only can they help with resources, they can help you get a grip on the

crying and dark feelings you wrote about. One very important thing I

learned at the NAMI Visions for Tomorrow classes (

<http://www.namitexas.org> www.namitexas.org) is that you can’t care for

your child long-term unless you take care of yourself too. This list is

full of good people who will listen and give you ideas, but sometimes that’s

not enough. Please take care of your health too. MHMR operates off of a

sliding scale. From what you’ve said about your finances, it may even be

free to you. Definitely worth looking into.

http://webds.dshs.state.tx.us/mhservices/default.asp?strMHA=1

Tonya

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Ann

Sent: Saturday, January 19, 2008 4:45 AM

To: Texas-Autism-Advocacy

Subject: Re: Re: lace

Tonya,

Thank you for the advice, I just don't know where to start. I went to the

doctor yesterday and sat with my doctor crying for an hour. She sat there

and listened to me and told me I need to move closer to where I can receive

better care for children with autism, because they just don't offer services

here. I mean we are losing our home, and about to lose our car as well. It

just seems like we keep getting kicked in the face. I have dealt with hatred

from people who don't understand and I want to protect him from all the

negative that he is going to encounter. Everywhere I turn there is some

parent or person judging you or your child without knowing all the facts

first. I feel like finding a hole and crawling inside just to get away. She

recommended me trying a anti-depressent. I asked her if it would make my

life better and my son's life as well. She told me No but it will help with

all the anxiety. I don't feel I need medication to make me feel better. I

need someone to listen to my problem and help me find a better solution to

it. I feel so alone like I am in a dark room with no way to escape. I have

been crying for days and I know my son thinks it is his fault and it's not.

But I feel like I am loosing my mind. I had to send my youngest daughter to

stay with my mother up north because I can't get daycare for her or take her

to the school with me. I miss her so much and I want her back home. But I

can't be in two places at once and my husband can't quit his job. We just

don't have the money to survive. I am at a lose for words and the walls keep

crashing down around me. But thank you for listening. I read this on the

side of my coffee cup today from starbucks and this sent me over the edge

today.

Every 20 minutes-less time than it will take you to drink your

coffee-another child is diagnosed with autism. It's much more common than

people think, with 1 out of every 150 children diagnosed. Learn the early

warning signs of autism and if you're concerned about your child's

development, talk to your doctor. Early intervention could make a big

difference in your child's future. Bob , Co-founder, Autism Speaks,

www.autismspeaks.org

I feel like I failed my son when I couldn't get him diagnosed until he was

six, instead of two or three years ago. I mean why did it take so long? Did

I not push hard enough? I feel like I have failed my own son.

Sincerely,

Ann M

Re: Re: lace

We have had several ARD Meetings, when they asked me to hold my son back a

year I told them " no " . I said he can do the work he just needs someone to

help him do it one on one. They said that is not possible in this district,

they just don't have the staff. So I have to go to school with him, to

monitor his behavior and take him home if the teacher cannot handle him.

TY,

Ann