Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 First off, you have come to the right place for support and information. There is no better group anywhere for Autism Knowledge than right here. Having said that, you are going to be overwhelmed, but in a good way, with all the responses and support you will get. I know that there are people who will give you some serious answers and get-results-quick advice, which is what you need. For the record, you may have to get a lawyer to help you with SSI, but wait until they refuse you. Also, most moms of Autistic children cannot work because of having to manage their child's illness, so you are certainly not alone there. Another thing, you need an Advocate (a heavyhitter!) to go with you to your school to straighten things out. I'm sure someone will know somebody near you that can assist. Also, I'm not sure where New Boston is, but I have a pediatric neurologist that can probably see you, if needed. More importantly, he may be able to help end your vicious cycle of medical bills. His specialty is Autism and he is one of the best in Houston through UT Health Science Center. His name is Dr. Frye. There are organizations that will give you an emergency $3,000 grant to help out on medical expenses if you are uninsured. If someone else doesn't give you the info, email me back and I will try and locate. Phamaceutical Companies set aside so many drugs for people who cannot afford them. You just have to contact them directly. It will be alot to absorbed, and you may get varied opinions here, but you will always get plenty of advice to apply to your specific situation. > > Hi, > > My name is Ann and I have a son (Braden)that was recently diagnosed with high functioning autistic disorder. He also has petitmal seizures and I have been really overwhelmed with all of this and don't really know what to do next. My family is falling apart and I have had to quit my job. I thought " Hey find a group online to get some advice. " and my stress level isn't helping much either. I am watching my world crash down around me and everytime I try to get help I get a door shut in my face. It has gotten to the point where the school doesn't want to deal with his disorder and ask me to come get him from school all the time. I have filed for SSI and haven't had any luck, don't know if he will even qualify. My medical bills are through the roof and we are going to be evicted by the end of the month. If anyone knows of some programs or good doctors to help me that would be great. Thanks! > > Sincerely, > Ann > New Boston, TX > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 I second the suggestion of taking an advocate to school with you. Many small school districts are at a complete loss of what to do with ASD kids, they need training, they need a consultant and they need someone to remind them of what the law says. If what school is doing is not meeting your son's needs, they have to develop a program that will meet his needs, taking him home everyday is not it either. Sounds like they need a consultant preferably a behavior analyst to come in, do a proper functional behavior assessment (FBA) and come up with a good Behavior intervention plan (BIP). Write a letter requesting an ARD meeting, keep a copy for yourself. When you get to the ARD take an advocate with you and request an FBA to deal with behavior. http://www.danasview.net/token.htm Here is good websites to learn about biomedical treatment and behavior: http://www.autismwebsite.com/ari/treatment/form34q.htm http://www.talkaboutcuringautism.org/medical/parents-role.htm http://adamsautism.org/Advice/BioTreatmentChecklist.doc Nagla > > > > Hi, > > > > My name is Ann and I have a son (Braden)that was recently diagnosed > with high functioning autistic disorder. He also has petitmal > seizures and I have been really overwhelmed with all of this and > don't really know what to do next. My family is falling apart and I > have had to quit my job. I thought " Hey find a group online to get > some advice. " and my stress level isn't helping much either. I am > watching my world crash down around me and everytime I try to get > help I get a door shut in my face. It has gotten to the point where > the school doesn't want to deal with his disorder and ask me to come > get him from school all the time. I have filed for SSI and haven't > had any luck, don't know if he will even qualify. My medical bills > are through the roof and we are going to be evicted by the end of the > month. If anyone knows of some programs or good doctors to help me > that would be great. Thanks! > > > > Sincerely, > > Ann > > New Boston, TX > > > > > > > ______________________________________________________________________ > ______________ > > Be a better friend, newshound, and > > know-it-all with Yahoo! Mobile. Try it now. > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Where exactly is New Boston? I am here to help if I can... nna nna Bond, M.Ed., ATP Special Education Consultant Autism Specialist RESNA Certified Assistive Technology Practitioner No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.2 - Release Date: 1/12/2008 12:00 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Dear Ann, We are listening and always will. Check with your local County Health Dept to see if any free mental health services are available for you. Sometimes just talking to someone can help. My husband suffers from anxiety and none of the meds did him any good, but a good talk therapist helps tremendously. I even go with him on occasion and it has strengthened our marriage. You must miss your daughter terribly. I can't imagine how it hurts. I pray she can come back to you and your husband soon. As for your son, you have to let the past go. We also had so many signs, but kept being put off by his pediatrician and others. He is getting help now and doing pretty well. I know many people are very proud and don't like to ask for assistance,but have you looked into public assistance? It is there (sometimes) for people like you who are really trying, but having a hard time.Can you move somewhere closer to family where services are available (and maybe some childcare help)? Could your husband find work there?? I hope you don't think I am trying to tell you what to do. I am just brainstorming and trying to come up with ideas. It is sometimes very hard for us to see clearly when everything is crashing down. Good Luck! > > Tonya, > > Thank you for the advice, I just don't know where to start. I went to the doctor yesterday and sat with my doctor crying for an hour. She sat there and listened to me and told me I need to move closer to where I can receive better care for children with autism, because they just don't offer services here. I mean we are losing our home, and about to lose our car as well. It just seems like we keep getting kicked in the face. I have dealt with hatred from people who don't understand and I want to protect him from all the negative that he is going to encounter. Everywhere I turn there is some parent or person judging you or your child without knowing all the facts first. I feel like finding a hole and crawling inside just to get away. She recommended me trying a anti-depressent. I asked her if it would make my life better and my son's life as well. She told me No but it will help with all the anxiety. I don't feel I need medication to make me feel better. I > need someone to listen to my problem and help me find a better solution to it. I feel so alone like I am in a dark room with no way to escape. I have been crying for days and I know my son thinks it is his fault and it's not. But I feel like I am loosing my mind. I had to send my youngest daughter to stay with my mother up north because I can't get daycare for her or take her to the school with me. I miss her so much and I want her back home. But I can't be in two places at once and my husband can't quit his job. We just don't have the money to survive. I am at a lose for words and the walls keep crashing down around me. But thank you for listening. I read this on the side of my coffee cup today from starbucks and this sent me over the edge today. > Every 20 minutes-less time than it will take you to drink your coffee-another child is diagnosed with autism. It's much more common than people think, with 1 out of every 150 children diagnosed. Learn the early warning signs of autism and if you're concerned about your child's development, talk to your doctor. Early intervention could make a big difference in your child's future. Bob , Co-founder, Autism Speaks, www.autismspeaks.org > > I feel like I failed my son when I couldn't get him diagnosed until he was six, instead of two or three years ago. I mean why did it take so long? Did I not push hard enough? I feel like I have failed my own son. > > Sincerely, > Ann M > > > Re: Re: lace > > > > We have had several ARD Meetings, when they asked me to hold my son back a > year I told them " no " . I said he can do the work he just needs someone to > help him do it one on one. They said that is not possible in this district, > they just don't have the staff. So I have to go to school with him, to > monitor his behavior and take him home if the teacher cannot handle him. > > TY, > Ann > > > > > > Quote Link to comment Share on other sites More sharing options...
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