Re: hi all we're back

[Guest guest]

: Glad you had a wonderful trip, hope you don't have the jet lag we

did when we came in from Holland.

HOpe Zach is feeling better,

God Bless,

annette and alissa

>

>Reply-To: PedPIDonelist

>To: PedPIDonelist

>Subject: hi all we're back

>Date: Sat, 04 Dec 1999 10:42:37 -0500

>

>Hi all,

>

>We're back from a great trip. We had such a good time. Zach had a " cold "

>but I truely think that's all. He was stuffy but it didn't slow him down.

>We had infusion yesterday (the day we came home) so hopefully it'll kick

>in.

>London an Paris are both such beautiful cities. Hopefully we'll get a

>chance to visit them again.

>

>I've sort of skimmed through the e-mails to catch up. Welcome to some the

>new pumpkins. Autumn, we're still praying. I hope that things go well for

>the second surgery. I don't know if if I've ever mentioned it or not, but

>my Mom was the first patient to ever have her esophagus totally removed and

>had her stomach attached with her stomach now verticle. This was many many

>years ago. She had several surguries prior to that one and nothing worked.

>The Dr's were origionally going to remove part of the colin to replace the

>esophagus, but when they got in there, things were so bad they opted for

>this experimental surgery. She had a g-tube for a year, but now things

>fine. So with all this in mind, I'm very hopefull for .

>

>Urs, things are quite hectic for you as well. Hope all goes well, keep us

>posted. Sorry I missed you when you came to Atl. Let me know the next

>time

>you come.

>

>I know that there are tons of people I'm missing, so prayers and well

>wishes

>to all.

>

>Quentin, about the extra grams, I was told that once they open a bottle, it

>must be used w/in 24 hrs. When Zach was on 8g, (now he's on a full 10) our

>hospital would schedule us on the same day as 2 other ivig patients. That

>way they had much less waste. So I guess the only thing that you can do is

>talk w/the phamacist at the hospital to see if there are any others getting

>the same product & try to work it out so that none/little is wasted.

>

>Good to be home,

>

>Wife to Tom, Mom to 7 yr Zach, ???(don't know the specific type) PID, GERD,

>chronic sinusitis, IVIG

>

>

>------------------------------------------------------------------------

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

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