Treatment

[Guest guest]

You must be talking to the wrong people!!

There are so many people who breeze through treatment!

I just finished and my problems were

pre-existing. My arthritis flared up, for instance. Please don’t think

that HCV tx is horrible – it can have some pain-in-the-ass side effects

and yes, some people have lasting problems, but so many people don’t

experience any lasting problems at all. And the longer you wait to tx, the

older you get and the harder it could be since you could start having problems

either just plain-old “age related” or related to the HCV that you

could have prevented with earlier tx.

Instead of the horror stories, you’ll

hear some success stories here. I consider myself to be one!

Dorothy

From:

Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On

Behalf Of samanthascott23

Sent: Friday, February 29, 2008

3:59 AM

To:

Hepatitis_C_Central

Subject:

treatment

I have heard so many horror stories about treatment.

Does anyone come

out of treatment unscathed, or does every person deal with devastating

long term side effects? Anyone come out normal at the other end?

[Guest guest]

I have treated 5 times and I am still unscathed by the treatment . My thyroid is normal and I don't have any treatment related problems .

treatment

I have heard so many horror stories about treatment. Does anyone comeout of treatment unscathed, or does every person deal with devastatinglong term side effects? Anyone come out normal at the other end?

[Guest guest]

Now wait Liz,, you have had to stop the last two times because the treatment caused anemia which caused heart issues as well as the death of part of your colon... and you've not cleared,, so I dont think you can clearly say that you are 'unscathed'... it didnt kill you thank God,, but it also didnt work....elizabethnv1 wrote: I have treated 5 times and I am still unscathed by the treatment . My thyroid is normal and I don't have any treatment related problems . treatment I have heard so many horror stories about treatment. Does anyone comeout of treatment unscathed, or does every person deal with devastatinglong term side effects? Anyone come out normal at the other end? Jackie

[Guest guest]

Well , WE will be here for you,, you'll make it and maybe this time you'll be able to reach SVR... Matchinsky wrote: I start my third treatment today. It will be 72 weeks of

daily injections, plus the pills. But I have a positive attitude about this treatment. Fighting the dragon. m "Running is to dogs what dancing is to people. It is their way to get into the rhythm of the universe." ~Stanley Coren~ No virus found in this outgoing message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.7/1328 - Release Date: 3/13/2008 11:31 AM

Jackie

[Guest guest]

Hi Jackie,

Thanks for all the great information, on the tx and side effects.

you are a success story indeed, I'm very happy for you.

Well Jackie I am going to give it a shot, no pun intended. Only by

Gods grace will I be able to get through this but I will stick it out

and Pray that I will go into remission so that I might live to tell

others of God's victory over the enemy who has been working overtime

on me for over 40 years but yet has not brought me down. I must admit

this one really shook my being as it has with everyone else who has it

I know. I just couldn't NOT try to achieve remission. I have always

had a positive attitude on life so I guess this seems to be part of it

at this point in my life. It has taken me about six months to get to

this point after going into denial when first told so this is progress.

Now to work on doing the tx.

So from what I understand here after 12 weeks hopefully it has dropped

two log and that I am undetectable, If not I guess a person is SOL at

that point. I could see where this would be a big encouragement giving

incentive to continue with the treatment. As my Daughter says you

could find Joy within the misery of doing the tx at that point.Amen to

that.

It seems this Doctor is willing to work with me on rx. He is a GI guy

and I thought about going to another Dr. , a specialist but I know

what the outcome will be. Even so my thoughts are to find a specialist

in the Los Angeles area to see. I have been trying to take notes on

the drugs taken for side effects so I can discuss this with him on my

next visit.

Oh and I need to find out about this SSRI you mentioned.And you

mentioned lots of water?

Jackie you asked about the grade of inflammation. Im not sure what

that is but my paper work says...Chronic hepatitis , consistent with

hepatitis C, with grade 2-3 activity and stage 2-3 fibrosis. Mild

mixed micro and macrovesicular steatosis without steatohepatitis.

There are a lot of other numbers and info, AST (SGOT) 75 high, ALT

(SGPT) 86 high. Are there other numbers I should mention that are

important?

Sorry to ramble, thanks for the information and encouragement.

Steve in Ca.

Good morning,

>

> This is Steve again from Ca.

> I got through my bio and got the results.

> I have geno 1a and im stage 2-3 with a VL count of 2,190,000 and my

> log10 was around 6.354. I dont have the paperwork in front of me.

>

> Well the doctor want me to start treatment. Are there others out there

> that have went into remission with geno 1a at stage 2-3?

> I realize geno 2 has a higher success rate for remission.

> Ive had it 37 years already, some have said maybe it might not be

> worth it to start treatment. I guess Im looking for success stories to

> see if I want to go through this or not.

>

> These newsgroups have been a blessing. Ive learned a lot from

> everyone, thanks for the encouragement in getting through my bio.

>

> Blessings to all,

>

> Steve in Ca.

>

>

>

>

>

>

> Jackie

>

[Guest guest]

Hi Sheena,

Yes I would guess there are lots of 1 's here. I have faith I can be

one of the 40%....I am trying to find out everything I can on how to

take care of myself before and during tx. Thanks for the words of

encouragement Sheena.

It sounds like Vertex would be a good thing if it cuts down tx time.

This must be one of the drugs that are waiting on the FDA approval

Ive heard about.

Blessings to you,

Steve in Ca.

> Good morning,

>

> This is Steve again from Ca.

> I got through my bio and got the results.

> I have geno 1a and im stage 2-3 with a VL count of 2,190,000 and my

> log10 was around 6.354. I dont have the paperwork in front of me.

>

> Well the doctor want me to start treatment. Are there others out there

> that have went into remission with geno 1a at stage 2-3?

> I realize geno 2 has a higher success rate for remission.

> Ive had it 37 years already, some have said maybe it might not be

> worth it to start treatment. I guess Im looking for success stories to

> see if I want to go through this or not.

>

> These newsgroups have been a blessing. Ive learned a lot from

> everyone, thanks for the encouragement in getting through my bio.

>

> Blessings to all,

>

> Steve in Ca.

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

[Guest guest]

Hi Steve, I haven' t found any better place to be for good thoughts and encouragement. I am hoping to try again soon, who knows we may be starting our battle at the same time. Hugs, Sheena n6tt wrote: Hi Sheena,Yes I would guess there are lots of 1 's here. I have faith I can beone of the 40%....I am trying to find out everything I can on how totake care of myself before and during tx. Thanks for the words ofencouragement Sheena.It sounds like Vertex would be a good thing if it cuts down tx time.This must be one of the drugs that are waiting on the FDA approvalIve heard about. Blessings to you,Steve in Ca.> Good morning,> > This is Steve again from Ca.> I got through my bio and got the results.> I have geno 1a and im stage 2-3 with a VL count of 2,190,000 and my> log10 was around 6.354. I dont have the paperwork in front of me.> > Well the doctor want me to start treatment. Are there others out there> that have went into remission with geno 1a at stage 2-3?> I realize geno 2 has a higher success rate for remission.> Ive had it 37 years already, some have said maybe it might not be> worth it to start treatment. I guess Im looking for success stories to> see if I want to go through this or not.> > These newsgroups have been a blessing. Ive learned a lot from> everyone, thanks for the encouragement in getting through my

bio.> > Blessings to all,> > Steve in Ca.> > > > > > > ---------------------------------> Never miss a thing. Make Yahoo your homepage.>

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

I

haven’t posted lately because I hate being negative, and that’s

where I’ve been at. I’ve been sick, but I don’t want

newcomers to get the idea that treatment is the same for everyone.

My

hemoglobin has been dropping like a rock, so today I re-start Procrit.

Fighting

the Dragon

No virus found in this outgoing message.

Checked by AVG.

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[Guest guest]

Hey , We are here for the good times and the bad. Don't ever feel like you can't be yourself here. If you want to bitch,moan,vent or just ramble that is what a support group is for. Beside as the other lady owners call me, I am the boss lady here. So there you have my permission to do all of the above. *smile* Love Janet Matchinsky wrote: I haven’t posted lately because I hate being negative, and that’s where I’ve been at. I’ve been sick, but I don’t want newcomers to get the idea that treatment is the same for everyone. My hemoglobin has been dropping like a rock, so today I re-start Procrit. Fighting the Dragon No virus found in this outgoing message.Checked by AVG.Version:

7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber

[Guest guest]

Janet, I have been writing and no one seems to want to write back. I was going to ask this the other day but thought it was kind of silly. Please give some info. P

Re: Treatment

Hey ,

We are here for the good times and the bad.

Don't ever feel like you can't be yourself here. If you want to bitch,moan,vent or just ramble that is what a support group is for.

Beside as the other lady owners call me, I am the boss lady here. So there you have my permission to do all of the above.

*smile*

Love

Janet Matchinsky <michaelboxernest (DOT) net> wrote:

I haven¢t posted lately because I hate being negative, and that¢s where I¢ve been at. I¢ve been sick, but I don¢t want newcomers to get the idea that treatment is the same for everyone.

My hemoglobin has been dropping like a rock, so today I re-start Procrit.

Fighting the Dragon

No virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

[Guest guest]

It is like that sometimes. I put in the post about how I got fat. And I figure that I would get a lot of post about that. But I just got a couple. Dang, I figure I would be overloaded with post from the Hepatitis group. But nope. Now in my other groups, a family group and a behavioral group I am in I got all kinds of questions and such. LOL Tell you what next time you post, I will make sure that I answer and sometimes that gets the ball rolling. Love Janet Putman wrote: Janet, I have been writing and no one seems to want to write back. I was going to ask this the other day but thought it was kind of silly. Please give some info.

P Re: TreatmentHey ,We are here for the good times and the bad.Don't ever feel like you can't be yourself here. If you want to bitch,moan,vent or just ramble that is what a support group is for. Beside as the other lady owners call me, I am the boss lady here. So there you have my permission to do all of the above.*smile*LoveJanet Matchinsky wrote:I haven¢t posted lately because I hate being negative, and that¢s where I¢ve been at. I¢ve been sick, but I don¢t want newcomers to get the idea that treatment is the same for everyone.My hemoglobin has been dropping like a rock, so today I re-start Procrit.Fighting the DragonNo virus found in this outgoing

message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"Frederick Faber____________________________________________________________________________________Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber

[Guest guest]

hon, I think I've answered every post you've made??.. Sometimes ppl get busy and dont always write back but we do try.. I will make more of an effort to make sure to answer your posts,, Im sorry if I missed any of them..hugsjax Putman wrote: Janet, I have been writing and no one seems to want to write back. I was going to ask this the other day but thought it was kind of silly. Please give some info. P Re: TreatmentHey ,We are here for the good times and the bad.Don't ever feel like you can't be yourself here. If you want to bitch,moan,vent or just ramble that is what a

support group is for. Beside as the other lady owners call me, I am the boss lady here. So there you have my permission to do all of the above.*smile*LoveJanet Matchinsky wrote: I haven¢t posted lately because I hate being negative, and that¢s where I¢ve been at. I¢ve been sick, but I don¢t want newcomers to get the idea that treatment is the same for everyone. My hemoglobin has been dropping like a rock, so today I re-start Procrit. Fighting the DragonNo virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"Frederick Faber ____________________________________________________________________________________Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJJackie

[Guest guest]

, I've read all your posts and what you say is pertinent, but I just was not a part of the discussion at the time, and did not answer. I will endeavor to involve myself more, I just tend to answer in spurts. Sharon in NW Washington Knitting is...time and love made tangible. Alison Hyde Re: TreatmentIt is like that sometimes. I put in the post about how I got fat. And I figure that I would get a lot of post about that. But I just got a couple.Dang, I figure I would be overloaded with post from the Hepatitis group. But nope. Now in my other groups, a family group and a behavioral group I am in I got all kinds of questions and such. LOLTell you what next time you post, I will make sure that I answer and sometimes that gets the ball rolling. LoveJanet Putman wrote:Janet, I have been writing and no one seems to want to write back. I was going to ask this the other day but thought it was kind of silly. Please give some info. P

[Guest guest]

Most of us went through the same thing and many, myself included, drop away when the going gets tough. BUT that disallows the supporters the chance to help and keeps you from receiving the support. TAKE ADVANTAGE, most of us are care takers and WANT the chance to help. Hang on, time does pass as you already know.Sharon in NW Washington Knitting is...time and love made tangible. Alison Hyde Re: TreatmentHi Listen honey,, its NOT FAIR to KEEP info from everyone,, WE NEED to make informed decisions and the only way to do so is to know the truth,, positive OR negative.... besides honey, we are here for you and if we dont know how you are doing, we cannot help you!Good luck with the procrit!hugsjax Matchinsky wrote: I haven't posted lately because I hate being negative, and that's where I've been at. I've been sick, but I don't want newcomers to get the idea that treatment is the same for everyone. My hemoglobin has been dropping like a rock, so today I re-start Procrit. Fighting the DragonNo virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM

[Guest guest]

hope your feeling better soon id love to send u a card sned me a priv email if you want and id be glad to Matchinsky wrote: I

haven’t posted lately because I hate being negative, and that’s where I’ve been at. I’ve been sick, but I don’t want newcomers to get the idea that treatment is the same for everyone. My hemoglobin has been dropping like a rock, so today I re-start Procrit. Fighting the Dragon No virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM

[Guest guest]

Me too Sharon, I am kind of the same way. And if someone else has answered the question and I have nothing to add. Well I just read and go on. But I am trying to get better at replying. Love JanetSHARON CROSBY wrote: , I've read all your posts and what you

say is pertinent, but I just was not a part of the discussion at the time, and did not answer. I will endeavor to involve myself more, I just tend to answer in spurts. Sharon in NW Washington Knitting is...time and love made tangible. Alison Hyde Re: Treatment It is like that sometimes. I put in the post about how I got fat. And I figure that I would get a lot of post about that. But I just got a couple. Dang, I figure I would be overloaded with post from the Hepatitis group. But nope. Now in my other groups, a family group and a behavioral group I am in I got all kinds of questions and such. LOL Tell you what next time you post, I will make sure that I answer and sometimes that gets the ball rolling. Love Janet Putman <maryp108> wrote: Janet, I have been writing and no one seems to want to write back. I was going to ask this the other day but thought it was kind of silly. Please give some info.

P "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber

[Guest guest]

Sorry to hear that, . I hated the

Procrit, but it did make a difference. And there were weeks when I couldn’t

wait for the Procrit shot day to come around.

Hope you’re feeling better soon, Dorothy

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On

Behalf Of Matchinsky

Sent: Monday, April 14, 2008 3:52

PM

To:

Hepatitis_C_Central

Subject:

Treatment

I haven’t

posted lately because I hate being negative, and that’s where I’ve been

at. I’ve been sick, but I don’t want newcomers to get the idea that

treatment is the same for everyone.

My hemoglobin has been dropping like a rock, so today I re-start Procrit.

Fighting

the Dragon

No virus

found in this outgoing message.

Checked by AVG.

Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008

9:26 AM

[Guest guest]

I am so sorry that you are feeling so bad . But I do understand about not wanting to scare the new people since everyone reacts differently. I was so very sick during treatment but I never posted for that reason. The procrit shoud make you feeling better. I sure hope so....

between 0000-00-00 and 9999-99-99

[Guest guest]

I agree with both of you BUT.. ITS VERY IMPORTANT that people realize that this treatment is NOT without risks... and in order for ppl to make a REAL INFORMED decision, they have to know all the information... just my 2 cents, loljax Ruggio wrote: I am so sorry that you are feeling so bad . But I do understand about not wanting to scare the new people since everyone reacts differently. I was so very sick during treatment but I never posted for that reason. The procrit shoud make you feeling

better. I sure hope so.... between 0000-00-00 and 9999-99-99 Jackie

[Guest guest]

I had wondered how you were doing, , I'm so glad that you posted. You have many here to support you, many that care, and as for newcomers, it's really best they know it's not always an easy road.. I hope the Procrit helps you greatly. Hugs, Sheena Matchinsky wrote: I haven’t posted lately because I hate being negative, and that’s where I’ve been at. I’ve been sick, but I don’t want newcomers to get the idea that treatment is the same for everyone. My hemoglobin has been dropping like a rock,

so today I re-start Procrit. Fighting the Dragon No virus found in this outgoing message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.22.13/1377 - Release Date: 4/14/2008 9:26 AM

between 0000-00-00 and 9999-99-99