New poll for Plagiocephaly

[Guest guest]

Enter your vote today! Check out the new poll for the Plagiocephaly

group:

CONTROL GROUP - Choose each of the

following that pertain to the CONTROL

CHILD. The choices are mainly

concerning behaviour and development.

o Teeth grinding

o TMJ/jaw problems

o Colic

o Recurrent ear infections

o Delay in gross motor skills

o Delay in fine motor skills

o Delay in speech development

o Slept/Sat in car seat or bouncy chair for extended periods of time

o Prone Sleeper (on tummy)

o Supine Sleeper (on back)

o Side Sleeper

o Dislikes tummy time

o Cervical spine subluxation

To vote, please visit the following web page:

polls/Plagiocephaly

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the eGroups

web site listed above.

Thanks!

[Guest guest]

Hmmm, I don't think that poll is worded right because we were speaking of

" treatment, " not " diagnosis. "

In our situation, the " diagnosis " was, of course, " visual. " However, we

needed the x-ray to find out what kind of " treatment " would work for my

daughter -- " sutures open " = DOC band or " sutures closed " = surgery.

Maybe that's where part of the confusion is coming into play. Of course, her

plagio is also " severe, " so that may be another reason for the x-ray. I

think the poll is an interesting idea, however, the way it's worded does not

support or deny the discussion which it resulted from.

-Krista (Mallory's Mommy)

[Guest guest]

Krista:

Any of the mentioned tests in the poll would diagnose whether

the child has plagiocephaly or craniosynostosis.

Treatment for plagio. is some sort of helmet therapy, and treatment

for cranio. is surgery.

Make sense now?

Is anyone else confused?

Kendra

KLATIL6508@... wrote:

Hmmm, I don't think that poll is worded right

because we were speaking of

"treatment," not "diagnosis."

In our situation, the "diagnosis" was, of course, "visual."

However, we

needed the x-ray to find out what kind of "treatment" would work

for my

daughter -- "sutures open" = DOC band or

"sutures closed" = surgery.

Maybe that's where part of the confusion is coming into play.

Of course, her

plagio is also "severe," so that may be another reason for the

x-ray. I

think the poll is an interesting idea, however, the way it's worded

does not

support or deny the discussion which it resulted from.

-Krista (Mallory's Mommy)

[Guest guest]

I guess I looked at the poll as what diagnostic tool was used to

determine the plagiocephaly diagnosis, hence the treatment using

repositioning, bands or helmets.

Craniosynostosis is a diagnosis based on fused sutures using visual,

x-ray, CT scan, MRI or ultrasound, and the appropriate treatment for

cranio is surgery. Plagiocephlay is diagnosed based on sutures not

being fused using visual, x-ray, CT scan, MRI or ultrasound, and the

appropriate treatment includes repositioning or modeling helmets or

bands. They are two different conditions which have different

treatments.

Do you mean " visual " diagnosis but needing an x-ray to confirm or

deny the " visual " diagnosis? Had the sutures been fused on the x-

ray, the diagnosis would have changed to craniosynostosis and surgery

would have been the appropriate treatment.

At least that's what I thought about the poll and the subject.

Tami

> Hmmm, I don't think that poll is worded right because we were

speaking of

> " treatment, " not " diagnosis. "

>

> In our situation, the " diagnosis " was, of course, " visual. "

However, we

> needed the x-ray to find out what kind of " treatment " would work

for my

> daughter -- " sutures open " = DOC band or " sutures closed " =

surgery.

> Maybe that's where part of the confusion is coming into play. Of

course, her

> plagio is also " severe, " so that may be another reason for the x-

ray. I

> think the poll is an interesting idea, however, the way it's worded

does not

> support or deny the discussion which it resulted from.

>

> -Krista (Mallory's Mommy)

[Guest guest]

Kendra,

I wasn't confused. You did that poll to try and prove your point--that tests

are not necessary in diagnosing plagio, and I'm saying that the way the poll

is worded does not prove or deny your point. My daughter has positional

plagio, we knew that before we brought her to the neurosurgeon, and then

after seeing her he agreed that she did. However, before prescribing the

band, we had to have her head x-rayed to make sure the sutures were still

open, otherwise the band wouldn't do any good and surgery would be necessary.

That is standard procedure for that doctor. He assumed that her sutures

were still open, but x-rays were the only way to know for sure. He is very

thorough and wants to be sure that his patients receive the appropriate

treatment. For that, I am thankful.

-Krista

[Guest guest]

Krista:

I did not make the poll to prove a point. I made it to satisfy

a number of people's curiosity (including mine!). I don't make it

a habit to try to make people feel foolish. This is a question that

continually comes up in this group, so I thought it would be nice to provide

some numbers.

I didn't ever say that testing was not necessary. That is the

doctor's decision to make. My doctor was comfortable making a diagnosis

without X-rays, etc., and many others are comfortable doing the same.

I simply said that some doctors do it, and some don't. If there were

that many doctors out there making false diagnosis', and putting helmets

on babies that require surgery, it would be THE LAW to have CT Scans done

before treatment.

Kendra

KLATIL6508@... wrote:

Kendra,

I wasn't confused. You did that poll to try and prove your

point--that tests

are not necessary in diagnosing plagio, and I'm saying that the

way the poll

is worded does not prove or deny your point. My daughter

has positional

plagio, we knew that before we brought her to the neurosurgeon,

and then

after seeing her he agreed that she did. However, before

prescribing the

band, we had to have her head x-rayed to make sure the sutures

were still

open, otherwise the band wouldn't do any good and surgery would

be necessary.

That is standard procedure for that doctor. He assumed that

her sutures

were still open, but x-rays were the only way to know for sure.

He is very

thorough and wants to be sure that his patients receive the appropriate

treatment. For that, I am thankful.

-Krista