Re: Public Advocay and Plagiocephaly

[Guest guest]

Hi,

I don't know if this is much help to you or not, but I read that

plagio used to occur in 1 in 300 births before the back to sleep

campaign, since the back to sleep campaign it is 1 in 60 births. You

can find so much information about plagio on the

www.plagicephaly.org

www.cappskids.org

www.cranialtech.com

web sites. everything you need to know can be found on those sites.

I'm sure there are more sites on the web, these are the 3 that come

to mind. Please let us know your end result of your hand out!

PS the plaigo petition has good info too

http://www.petitiononline.com/0799/petition.html

> I have been very inspired by the NBC letters and the reports of

> Plagio Police. So, I am trying to do a little public advocacy

myself

> by making a flyer to pass out to the Mother's Groups in my area.

>

> But I have been having trouble finding information about what the

> actual number of cases of Plagiocephaly is every year. Then it

> occurred to me that nobody is tracking this phenomenon and the

> outcomes of these children.

>

> I think the NIH, CDC, and SIDS task force should be studying this

> more closely. Is seems like they have a head-in-the-sand attitude

> about it - after all a flat head can't compare to infant death!

>

> But let's face it- our helmeted babies are walking (crawling),

> billboards. I am concerned that 3rd hand gossip will cause more and

> more parents to put their children on their backs to sleep. No one

> wants to see happen.

>

> Ultimately, I think unless they start monitoring the number of

> Plagiocephaly cases, the severity, the treatment and the outcomes,

> there is going to be bad information about both Plagiocephaly and

> SIDS.

>

> I am going to start working on contacting these organizations, but

I

> wanted to see if you all had an other input or statistics or

> critiques to arm me before I set forth!

[Guest guest]

Way to go. This is a terrific thing you are doing. Check out the

sights directed you to, I'm sure you'll get lots of good &

accurate information ther. Did she give you

www.plagiocephaly.org/support? Probably, but wanted to make sure you

check it out.

She is right, last I heard it is 1 in 300 babies has plagio now.

Good luck.

Debbie Abby's mom DOCgrad

MI

>

> > I have been very inspired by the NBC letters and the reports of

> > Plagio Police. So, I am trying to do a little public advocacy

> myself

> > by making a flyer to pass out to the Mother's Groups in my area.

> >

> > But I have been having trouble finding information about what the

> > actual number of cases of Plagiocephaly is every year. Then it

> > occurred to me that nobody is tracking this phenomenon and the

> > outcomes of these children.

> >

> > I think the NIH, CDC, and SIDS task force should be studying this

> > more closely. Is seems like they have a head-in-the-sand attitude

> > about it - after all a flat head can't compare to infant death!

> >

> > But let's face it- our helmeted babies are walking (crawling),

> > billboards. I am concerned that 3rd hand gossip will cause more

and

> > more parents to put their children on their backs to sleep. No

one

> > wants to see happen.

> >

> > Ultimately, I think unless they start monitoring the number of

> > Plagiocephaly cases, the severity, the treatment and the

outcomes,

> > there is going to be bad information about both Plagiocephaly and

> > SIDS.

> >

> > I am going to start working on contacting these organizations,

but

> I

> > wanted to see if you all had an other input or statistics or

> > critiques to arm me before I set forth!