Re: Re: developmental delays to

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Tort does not always cause gross developmental delays. seems to be somewhat behind but is excelling in other areas of her development. It all depends on the child. PT is very vital to tort, , but if you don't notice a tilt anymore and he is really straight you might not have to worry about it. has been in PT for almost a month now and has been doing very well. Home exercises are also vital to recovery and are really the foundation for a good recovery. If you think about it...if you only do one session a week for an hour of formal PT and don't do anything the other remaining days and hours you won't be gaining much progress. I urge you to call your local Early Intervention service and see what they can do about evaluating just for your own peace of mind. This is a free service and he is eligible until he's 3 years of age. The therapist comes to our house which is very nice.

Taryn

Indiana

Re: Re: developmental delays

I have a question...does tort always cause gross developmental delays? B/c the cranial facial dr and Charlotte at CT both agree that has or had tort and with the pictures Cranial Tech took before he got his helmet..he did have a slight tilt...but he is doing everything on time or early. He sat up on his own at around 6 months. He started crawling at about 7 months. He's now standing and walking while holding on to the furniture which he started at 8 months..and he's now 8 1/2 months. He can turn his head both ways...he used to pull up his shoulder a little when looking to the left..but i don't notice him doing that anymore and i don't notice a tilt..but then i didn't really notice it before either. Also, no one ever recommended PT for him....the cranial dr gave us some exercises to do with each diaper change..but that's it. And i have to admit i got very lazy doing those exercises....and i'm not sure if his tort is resolved or not. Does everyone with tort go to PT? Mom to For more plagio info

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Do you have any pictures you can share of that show a tilt or does he look pretty straight in pictures usually?

Taryn

Indiana

Re: Re: developmental delays

,Wow..we definitely have a similar situation. And i don't know who to believe..lol. I have to say that i really don't see a tilt with ...and he seems to be fine...but then i don't want to take the chance that it will get worse and i didn't do the right thing for him. My husband thinks that is fine and doesn't have tort...b/c he can do everything fine. We both did the exercises for a while...but we both have pretty much slacked off in doing them. And last time we went to the cranial facial dr (the one that gave us the exercises to do) he had look to the left and said that he is doing it fine...and i didn't think at the time to ask him if we are supposed to continue with the exercises. I know it doesn't hurt to do them..if anythjing they help..but he doesn't like it when we do the exercises..and i just figure if he is ok why make him upset for no reason..but then part of me is like..what if it gets worse and i thought nothing was wrong and so i made it worse...so i don't know. I guess i'll talk to the dr next time and see what she says...Mom to justinIn a message dated 10/7/2002 12:05:40 PM Eastern Daylight Time, tkbel@... writes:

-I have had the same questions before. We are in a very similar situation. My son is 6.5 months old and has mild tort. He has a slight tilt but full ROM, and has been reaching his milestones on time or early. We too were given stretches to do by the plastic surgeon who prescribed his STARband. I was not totally comfortable with doing this all myself, so I asked his ped if we should have a referral to see a PT, and he said no. He even went as far as to say "it will work itself out, he does his own PT with his everyday activities, it is nothing to worry about", so he did not even see the value in continuing the at-home stretches. I was very surprised at his attitude, since he was the one who recommended the band for 's plagio, and was very knowledgable about that. I just don't know who to believe... are the stretches necessary or not? I know that they can't hurt so we still do them, but like you, we are not fully compliant with the recommended number of times per day. I know that this really did not answer any of your questions, but I thought I would just share our similar situations.,For more plagio info

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In a message dated 10/8/2002 1:15:21 AM Eastern Daylight Time, devynskye1@... writes:

I urge you to call your local Early Intervention service and see what they can do about evaluating just for your own peace of mind. This is a free service and he is eligible until he's 3 years of age. The therapist comes to our house which is very nice.

Thanks Taryn. I was just curious as to why no one mentioned PT at all to me. Not the cranial facial dr...not cranial tech. The cranial dr gave me exercises to do at home..but didn't make a big issue out of it at all.

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In a message dated 10/8/2002 1:17:55 AM Eastern Daylight Time, devynskye1@... writes:

Do you have any pictures you can share of that show a tilt or does he look pretty straight in pictures usually?

Taryn

Indiana

I don't know..i'll have to look. I have the ones from cranial tech that shows a slight tilt...but i think he doesn't have that tilt anymore...i'll have to take a picture and see...

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In a message dated 10/8/2002 10:39:06 AM Eastern Daylight Time, devynskye1@... writes:

You are doing the right thing and we are all here for you no matter what. It always helps to know you are not alone and believe me, sweetie, we are all a great team if you ask me!!!

Thanks Taryn. I was very lucky in the fact that my ped noticed the plagio right away...and told me to go to a specialist. I was ready to go too. So luckily i didn't have to fight with her at all (i don't have an hmo anyway) but it was easier having my ped there to back me up. I am very glad i found this group....everyone is so supportive. I've been here i think since May i think and i'm so grateful to everyone..they helped me through this whole process. Now is almost done and i'm so happy.

[Guest guest]

I have found that doctors just take the wait and see approach about tort as they do about plagio. It's not big deal, right? Well, if it wasn't a big deal why are we all here? There are currently over 700 people who belong to the tort group so you tell me? The sad thing is if this happened more to doctors' children as a whole we wouldn't have to fight to get the right care for our children. The ped who dx left a week later. We started seeing another ped in her practice and when I told him I was getting PT for just the initial look on his face was what did it for me. He looked at me like I was the dumbest first-time mom he had ever seen and told me it would fix itself. Well, here we are over 2 months later and getting her helmet and PT is progressing. You are definitely doing the right thing. Follow your mommy instincts. No one knows what's better for than you do. Right now we have switched peds who took one look and feel at 's head and was referring us. I couldn't believe it. The other ped didn't even look at her or pick her up. That was another thing that really bothered me. You are doing the right thing and we are all here for you no matter what. It always helps to know you are not alone and believe me, sweetie, we are all a great team if you ask me!!!

Taryn and

Indiana

Thanks Taryn. I was just curious as to why no one mentioned PT at all to me. Not the cranial facial dr...not cranial tech. The cranial dr gave me exercises to do at home..but didn't make a big issue out of it at all.

[Guest guest]

You were very lucky indeed. We had to switch peds just to get taken care of. It is a lot easier having your ped agree because if not it's an uphill battle. I was actually fortunate enough to have a chiro friend of mine talk to our current ped who had a patient in her practice with cranio who was treated with surgery. I was relieved to be able to get established with her and be listened to for a change. I am so glad to hear is doing well.

Taryn and

Indiana

Thanks Taryn. I was very lucky in the fact that my ped noticed the plagio right away...and told me to go to a specialist. I was ready to go too. So luckily i didn't have to fight with her at all (i don't have an hmo anyway) but it was easier having my ped there to back me up. I am very glad i found this group....everyone is so supportive. I've been here i think since May i think and i'm so grateful to everyone..they helped me through this whole process. Now is almost done and i'm so happy. For more plagio info