Re: Lucille Packard Children's Cranial Facial Clinic

[Guest guest]

Hi Jack,

I can't tell you anything about the Lucille Packard Children's

Cranial Facial Clinic. But I can tell you how my first vistit was

with a specialist. I had CT scans done before her acutal appointment.

We went in, he looked at her scans, felt her head, and told me my

baby had a perfect head! It was a total joke. So I took her to

another neurosurgeron who told me, yes has plagio, but a

helmet wouldn't help her. So off I went with a very heavy heart. But

thanks to this board, I didn't give up. I took her to Cranial Tech

for a free evaluation. Charlotte, looked at her head, felt her head

and then told me that, , could definitely benefit from a band.

I then got a script from my pediatrician.

The first visit really isn't that big of a deal. BUT... I have read

of some parents that have taken there child into a place, and were

casted that same day. I guess it all depends on the place you go.

Hopefully someone here will have used the place you are going to and

will let you know what to expect. Just stick to your guns!!!

> Hi,

> I just joined the group yesterday. I booked an appointment at the

> Lucille Packard Children's Cranial Facial Clinic for Wednesday

> Morning. Has anyone had any experience going to the Lucille

Packard

> Children's Cranial Facial Clinic. Who are the best doctors? Who

> should I avoid? What should I expect regarding a first time

visit?

> My son is 6.5 months old and has very noticeable flattening

in

> the back of his head. We are very frightened and sad that this

> happened and just want it corrected as much as possible. I am going

> to push for a band or a helmet despite any suggestions by doctors

to

> the contrary. Any information you give would be well appreciated.

>

> Thank you for creating this group

> Jack

> Sara

>

[Guest guest]

When I went to the LP clinic with our son Dr. Lorenz and his nurse

Elaine looked at his head for a few minutes, talked to us and then

sent us over to the Orthotist.

So, I don't think they are reluctant to prescribe helmets if

neccessary! I know you are frightened about your son's health, but I

urge you to use them as a resource. You don't follow their

reccomendations, but you should find out what they are reccomending

and their reasons before you push for a helmet.

When you say " back of his head " is it right at the back or sort of on

the corner of the head?

> Hi,

> I just joined the group yesterday. I booked an appointment at the

> Lucille Packard Children's Cranial Facial Clinic for Wednesday

> Morning. Has anyone had any experience going to the Lucille

Packard

> Children's Cranial Facial Clinic. Who are the best doctors? Who

> should I avoid? What should I expect regarding a first time

visit?

> My son is 6.5 months old and has very noticeable flattening

in

> the back of his head. We are very frightened and sad that this

> happened and just want it corrected as much as possible. I am going

> to push for a band or a helmet despite any suggestions by doctors

to

> the contrary. Any information you give would be well appreciated.

>

> Thank you for creating this group

> Jack

> Sara

>

[Guest guest]

Jack:

I'm not familiar with this particular clinic, but hopefully another

member is and will offer input.

Check out www.plagiocephaly.org/support then go to " questions for

the dr " . There is a great list of printable questions to take to

your appt with you to ask the specialist.

I took my daughter to a ped. neurosurgeon, at her appt., he took

pictures of every angle of her head, discussed helmet therapy in

detail with us and checked over Abby's head.

Good luck at your appt tomorrow - please let us know how it goes.

Debbie Abby's mom DOCgrad

MI

> Hi,

> I just joined the group yesterday. I booked an appointment at the

> Lucille Packard Children's Cranial Facial Clinic for Wednesday

> Morning. Has anyone had any experience going to the Lucille

Packard

> Children's Cranial Facial Clinic. Who are the best doctors? Who

> should I avoid? What should I expect regarding a first time

visit?

> My son is 6.5 months old and has very noticeable flattening

in

> the back of his head. We are very frightened and sad that this

> happened and just want it corrected as much as possible. I am going

> to push for a band or a helmet despite any suggestions by doctors

to

> the contrary. Any information you give would be well appreciated.

>

> Thank you for creating this group

> Jack

> Sara

>

[Guest guest]

Thanks for the encouragement.

sincerely

jack

sara

andrew

-----Original Message-----From: stripes6060 [mailto:taime@...]Sent: Tuesday, October 08, 2002 5:00 AMPlagiocephaly Subject: Re: Lucille Packard Children's Cranial Facial ClinicHi Jack,I can't tell you anything about the Lucille Packard Children's Cranial Facial Clinic. But I can tell you how my first vistit was with a specialist. I had CT scans done before her acutal appointment. We went in, he looked at her scans, felt her head, and told me my baby had a perfect head! It was a total joke. So I took her to another neurosurgeron who told me, yes has plagio, but a helmet wouldn't help her. So off I went with a very heavy heart. But thanks to this board, I didn't give up. I took her to Cranial Tech for a free evaluation. Charlotte, looked at her head, felt her head and then told me that, , could definitely benefit from a band.I then got a script from my pediatrician.The first visit really isn't that big of a deal. BUT... I have read of some parents that have taken there child into a place, and were casted that same day. I guess it all depends on the place you go.Hopefully someone here will have used the place you are going to and will let you know what to expect. Just stick to your guns!!!> Hi,> I just joined the group yesterday. I booked an appointment at the > Lucille Packard Children's Cranial Facial Clinic for Wednesday > Morning. Has anyone had any experience going to the Lucille Packard > Children's Cranial Facial Clinic. Who are the best doctors? Who > should I avoid? What should I expect regarding a first time visit? > My son is 6.5 months old and has very noticeable flattening in > the back of his head. We are very frightened and sad that this > happened and just want it corrected as much as possible. I am going > to push for a band or a helmet despite any suggestions by doctors to > the contrary. Any information you give would be well appreciated.> > Thank you for creating this group> Jack> Sara> For more plagio info