Public Advocay and Plagiocephaly

[Guest guest]

I have been very inspired by the NBC letters and the reports of

Plagio Police. So, I am trying to do a little public advocacy myself

by making a flyer to pass out to the Mother's Groups in my area.

But I have been having trouble finding information about what the

actual number of cases of Plagiocephaly is every year. Then it

occurred to me that nobody is tracking this phenomenon and the

outcomes of these children.

I think the NIH, CDC, and SIDS task force should be studying this

more closely. Is seems like they have a head-in-the-sand attitude

about it - after all a flat head can't compare to infant death!

But let's face it- our helmeted babies are walking (crawling),

billboards. I am concerned that 3rd hand gossip will cause more and

more parents to put their children on their backs to sleep. No one

wants to see happen.

Ultimately, I think unless they start monitoring the number of

Plagiocephaly cases, the severity, the treatment and the outcomes,

there is going to be bad information about both Plagiocephaly and

SIDS.

I am going to start working on contacting these organizations, but I

wanted to see if you all had an other input or statistics or

critiques to arm me before I set forth!