was: intro,labs, questions Now: HELP PLEASE!

[Guest guest]

I posted the following a few weeks ago. Now I have new questions. If

I understand it correctly the goal of the ATD is to get the T4 in

range and then what? Mine was in range the last tests, but

everything else was still whacky. The last couple of weeks, I have

felt even more HYPER with very much increased anxiety bordering on

panic attacks, breathless feeling, increased heart rate (back up into

the upper 90's mostly except early morning when it is mostly normal

and just plain exhausted. What's up with that, is it normal and just

the cycle of hyper etc? I thought hashitoxicosis was only supposed

to last a couple of months and mine has gone on at least since

January (diagnosed as thyroid problem at that time) and no real

symptoms of HYPO at all. So I guess my main question is what else

can/should be done to bring these symptoms under control? Thanks

for everything....Aundrea

>

> I've been lurking for awhile but decided to post after getting new

> labs today and I'm so confused. I'm 56 female,retired living in NE

> Texas with hubby. Symptoms: very very tired, headache daily,

anxious, > moody, don't sleep well, but want to sleep all the time,

I've only lost 7 pounds, but need to lose more, loose bowels, etc,

> etc...History: went to MD in January with rapid heart rate(120-

140).

> He did blood work, 2 EKG, stress test. Regular blood work with

> Ultra hTSHII showed 0.01, so he ran a total T4 which came back 12.7

> (range 4.5-12)and total T3 which was 262 (range 60-181). He put me

on > Toprol for the heart rate (which helped) and did an uptake scan

with > results of 20.3% at 6hrs and 36.4% at 24 hours, slightly

elevated, no > nodules. Scheduled an appointment with Endo who

diagnosed Hashimoto > with Hashitoxicosis and put me on 10mg

Methimazole. Can post those test results if needed. Did more

bloodwork last week and here's the results:

> ThyroperoxidaseAB: >1000 range<35 (it has been the same since March

> FT4 2.0 range 1.4-3.8 (it was 4 in April)

> FT3 640 range 230-420 (it was 513 in April)

> Thyroglobin he only said normal didn't give me a number on the phone

> (I don't have hard copy yet) but it was 340 in April with a range

of > 2-35

> TSH 0.01(was 0.005 in March)

> He did a TSI but doesn't have the results yet. It was <1 in March.

>

>

[Guest guest]

You still have a Free T3 over range. That would account for your continued symptoms. And the range on that Free T4 test looks like you got the obsolete Free Thyroxine Index, which is less accurate than the Free T4 direct dialysis. I do not have enough information about hashitoxicosis to give you any good advice. It is possible to have both Hashi and Graves. It is also possible to have non-auto-immune hyperthyroidism. I think you need to talk to your doctor about this. Aundrea wrote: I posted the following a few weeks ago. Now I have new questions. If I understand it correctly the goal of the ATD is to get the T4 in range and then what? Mine was in range the last tests, but everything else was still whacky. The last couple of weeks, I have felt even more HYPER with very much increased anxiety bordering on panic attacks, breathless feeling, increased heart rate (back up into the upper 90's mostly except early morning when it is mostly normal and just plain exhausted. What's up with that, is it normal and just the cycle of hyper etc? I thought hashitoxicosis was only supposed to last a couple of months and mine has gone on at least

since January (diagnosed as thyroid problem at that time) and no real symptoms of HYPO at all. So I guess my main question is what else can/should be done to bring these symptoms under control? Thanks for everything....Aundrea>> I've been lurking for awhile but decided to post after getting new > labs today and I'm so confused. I'm 56 female,retired living in NE > Texas with hubby. Symptoms: very very tired, headache daily, anxious, > moody, don't sleep well, but want to sleep all the time, I've only lost 7 pounds, but need to lose more, loose bowels, etc, > etc...History: went to MD in January with rapid heart rate(120-140). > He did blood work, 2 EKG, stress test. Regular blood work with > Ultra hTSHII showed 0.01, so he ran a total T4 which came back 12.7 > (range 4.5-12)and total T3 which was 262 (range 60-181). He put me on > Toprol for the heart rate (which helped) and did

an uptake scan with > results of 20.3% at 6hrs and 36.4% at 24 hours, slightly elevated, no > nodules. Scheduled an appointment with Endo who diagnosed Hashimoto > with Hashitoxicosis and put me on 10mg Methimazole. Can post those test results if needed. Did more bloodwork last week and here's the results:> ThyroperoxidaseAB: >1000 range<35 (it has been the same since March> FT4 2.0 range 1.4-3.8 (it was 4 in April)> FT3 640 range 230-420 (it was 513 in April)> Thyroglobin he only said normal didn't give me a number on the phone> (I don't have hard copy yet) but it was 340 in April with a range of > 2-35> TSH 0.01(was 0.005 in March)> He did a TSI but doesn't have the results yet. It was <1 in March.

[Guest guest]

The symptoms you are describing sound very much like what happened to me,

but way before I was ever diagnosed as thyroid anything. I now know that I

have/had Hashi's, and, in my case, it was likely that I was in toxisosis

when I was having extreme panic attacks. I have also read that I may very

well have been running my adrenal glands into extreme overdrive, in my case,

due to long ongoing emotional turmoil. Then there's the possibility that my

crazy thyroid was driving my adrenal glands into mayhem. I had panic

attacks every single day upon awakening, or rather coming to conciousness in

the morning. I was skinny as a rail, could eat anything I wanted to and ran

anywhere from 4 to 6 or 7 miles every single day, trying to quell the panic

I was feeling constantly. Funny thing is, every single day around 4 p.m.,

it would all go away, just like it never happened. I have never tested my

adrenals, nor had I tested for thyroid autoantibodies at that time, as none

of these doctors would run these tests, so I have no real " proof " of this,

but, in my case, it goes along with every single thing I've read on this

subject, right " with the book " , on people whose FIRST symptoms are a thyroid

in high overdrive plus the adrenal glands being driven to death or driving

the thyroid to death. I am certainly not like that any more, and the day I

was screaming at a doctor on the phone, was the very last day that I was

ever like that. He drew blood that day, as I was shaking and " crashing " ,

felt like I was having a " breakdown " for the first time in my life. The

bloods came back with a stunned hypo thyroid that was in the process of

failing. I never had another panic attack. This was MY particular case and

the way the I started out. I couldn't run from here across the street now.

That was more than 14 yrs ago now. I HATE thyroid disease. You could ask

your doctor about adrenal testing. Also, yes, you need the FREE values of

the thyroid hormones, no doubt. I had the antibody testing for the Hashi

ones, but never had the testing for the ones for Grave's Disease. With ME,

the panic attack adventures and constant " something's chasing me all the

time " thing lasted for more than 6 yrs. Also, I had had a hyst right in the

midst of all of that, that I know was probably handled improperly. More

hormonal upheaval certainly didn't help it all. There are other thyroid

autoantibodies to test for, both stimulating and blocking. Did you ever get

the second result of the second TSI or is that he actually didn't run it

again and maybe just said that it hadn't come back?

was: intro,labs, questions Now: HELP PLEASE!

>I posted the following a few weeks ago. Now I have new questions. If

> I understand it correctly the goal of the ATD is to get the T4 in

> range and then what? Mine was in range the last tests, but

> everything else was still whacky. The last couple of weeks, I have

> felt even more HYPER with very much increased anxiety bordering on

> panic attacks, breathless feeling, increased heart rate (back up into

> the upper 90's mostly except early morning when it is mostly normal

> and just plain exhausted. What's up with that, is it normal and just

> the cycle of hyper etc? I thought hashitoxicosis was only supposed

> to last a couple of months and mine has gone on at least since

> January (diagnosed as thyroid problem at that time) and no real

> symptoms of HYPO at all. So I guess my main question is what else

> can/should be done to bring these symptoms under control? Thanks

> for everything....Aundrea

>>

>> I've been lurking for awhile but decided to post after getting new

>> labs today and I'm so confused. I'm 56 female,retired living in NE

>> Texas with hubby. Symptoms: very very tired, headache daily,

> anxious, > moody, don't sleep well, but want to sleep all the time,

> I've only lost 7 pounds, but need to lose more, loose bowels, etc,

>> etc...History: went to MD in January with rapid heart rate(120-

> 140).

>> He did blood work, 2 EKG, stress test. Regular blood work with

>> Ultra hTSHII showed 0.01, so he ran a total T4 which came back 12.7

>> (range 4.5-12)and total T3 which was 262 (range 60-181). He put me

> on > Toprol for the heart rate (which helped) and did an uptake scan

> with > results of 20.3% at 6hrs and 36.4% at 24 hours, slightly

> elevated, no > nodules. Scheduled an appointment with Endo who

> diagnosed Hashimoto > with Hashitoxicosis and put me on 10mg

> Methimazole. Can post those test results if needed. Did more

> bloodwork last week and here's the results:

>> ThyroperoxidaseAB: >1000 range<35 (it has been the same since March

>> FT4 2.0 range 1.4-3.8 (it was 4 in April)

>> FT3 640 range 230-420 (it was 513 in April)

>> Thyroglobin he only said normal didn't give me a number on the phone

>> (I don't have hard copy yet) but it was 340 in April with a range

> of > 2-35

>> TSH 0.01(was 0.005 in March)

>> He did a TSI but doesn't have the results yet. It was <1 in March.

[Guest guest]

God Bless you ! I don't know how you lived with it so long

without having a break down. You're right about the TSI test, he

didn't do it at all. Said the lab " couldn't even find it in the

book " oh boy...He's my regular MD and I thought if I could just get

the proper tests done, I wouldn't have to search for yet another Dr.

to handle this mess. He is willing to manage me, but basically we're

just waiting until I go Hypo, which I thought wouldn't be that long.

Oh well I guess the search is on for yet another Dr. and just pray he

know something about being Hyper and not just Hypo.......

>

> The symptoms you are describing sound very much like what happened

to me,

> but way before I was ever diagnosed as thyroid anything. I now

know that I

> have/had Hashi's, and, in my case, it was likely that I was in

toxisosis

> when I was having extreme panic attacks. I have also read that I

may very

> well have been running my adrenal glands into extreme overdrive, in

my case,

> due to long ongoing emotional turmoil. Then there's the

possibility that my

> crazy thyroid was driving my adrenal glands into mayhem. I had

panic

> attacks every single day upon awakening, or rather coming to

conciousness in

> the morning. I was skinny as a rail, could eat anything I wanted

to and ran

> anywhere from 4 to 6 or 7 miles every single day, trying to quell

the panic

> I was feeling constantly. Funny thing is, every single day around

4 p.m.,

> it would all go away, just like it never happened. I have never

tested my

> adrenals, nor had I tested for thyroid autoantibodies at that time,

as none

> of these doctors would run these tests, so I have no real " proof "

of this,

> but, in my case, it goes along with every single thing I've read on

this

> subject, right " with the book " , on people whose FIRST symptoms are

a thyroid

> in high overdrive plus the adrenal glands being driven to death or

driving

> the thyroid to death. I am certainly not like that any more, and

the day I

> was screaming at a doctor on the phone, was the very last day that

I was

> ever like that. He drew blood that day, as I was shaking

and " crashing " ,

> felt like I was having a " breakdown " for the first time in my

life. The

> bloods came back with a stunned hypo thyroid that was in the

process of

> failing. I never had another panic attack. This was MY particular

case and

> the way the I started out. I couldn't run from here across the

street now.

> That was more than 14 yrs ago now. I HATE thyroid disease. You

could ask

> your doctor about adrenal testing. Also, yes, you need the FREE

values of

> the thyroid hormones, no doubt. I had the antibody testing for the

Hashi

> ones, but never had the testing for the ones for Grave's Disease.

With ME,

> the panic attack adventures and constant " something's chasing me

all the

> time " thing lasted for more than 6 yrs. Also, I had had a hyst

right in the

> midst of all of that, that I know was probably handled improperly.

More

> hormonal upheaval certainly didn't help it all. There are other

thyroid

> autoantibodies to test for, both stimulating and blocking. Did you

ever get

> the second result of the second TSI or is that he actually didn't

run it

> again and maybe just said that it hadn't come back?

>

>

>

>

>

> was: intro,labs, questions Now:

HELP PLEASE!

>

>

> >I posted the following a few weeks ago. Now I have new questions.

If

> > I understand it correctly the goal of the ATD is to get the T4 in

> > range and then what? Mine was in range the last tests, but

> > everything else was still whacky. The last couple of weeks, I

have

> > felt even more HYPER with very much increased anxiety bordering on

> > panic attacks, breathless feeling, increased heart rate (back up

into

> > the upper 90's mostly except early morning when it is mostly

normal

> > and just plain exhausted. What's up with that, is it normal and

just

> > the cycle of hyper etc? I thought hashitoxicosis was only

supposed

> > to last a couple of months and mine has gone on at least since

> > January (diagnosed as thyroid problem at that time) and no real

> > symptoms of HYPO at all. So I guess my main question is what else

> > can/should be done to bring these symptoms under control? Thanks

> > for everything....Aundrea

> >>

> >> I've been lurking for awhile but decided to post after getting

new

> >> labs today and I'm so confused. I'm 56 female,retired living in

NE

> >> Texas with hubby. Symptoms: very very tired, headache daily,

> > anxious, > moody, don't sleep well, but want to sleep all the

time,

> > I've only lost 7 pounds, but need to lose more, loose bowels,

etc,

> >> etc...History: went to MD in January with rapid heart rate(120-

> > 140).

> >> He did blood work, 2 EKG, stress test. Regular blood work with

> >> Ultra hTSHII showed 0.01, so he ran a total T4 which came back

12.7

> >> (range 4.5-12)and total T3 which was 262 (range 60-181). He put

me

> > on > Toprol for the heart rate (which helped) and did an uptake

scan

> > with > results of 20.3% at 6hrs and 36.4% at 24 hours, slightly

> > elevated, no > nodules. Scheduled an appointment with Endo who

> > diagnosed Hashimoto > with Hashitoxicosis and put me on 10mg

> > Methimazole. Can post those test results if needed. Did more

> > bloodwork last week and here's the results:

> >> ThyroperoxidaseAB: >1000 range<35 (it has been the same since

March

> >> FT4 2.0 range 1.4-3.8 (it was 4 in April)

> >> FT3 640 range 230-420 (it was 513 in April)

> >> Thyroglobin he only said normal didn't give me a number on the

phone

> >> (I don't have hard copy yet) but it was 340 in April with a range

> > of > 2-35

> >> TSH 0.01(was 0.005 in March)

> >> He did a TSI but doesn't have the results yet. It was <1 in

March.

>