(No subject)

[Guest guest]

- my daughter Macey is 4 yrs old. She's had two sets of tubes and

her adenoids out (she has no tonsils that they can find). She also has

eczema (which we use Elocon cream on and take Atarax at night for), asthma

(on Flovent and Singulair) thankfully few if any allergies and has a history

of sinus infections (on Vancenase and Atrovent) but also thankfully her last

sinus CT in September was clear. How old is your daughter? Macey is on

prescriptive Pepcid suspension right now because of a virus in October

upsetting her system. But last year she was on it for GERD. I hope the

Pepcid is able to help her. Macey takes it for stomach aches and

distention. Let us know what the blood work shows. And good luck with the

CT, is it of her stomach? Does she have any problems with diarrhea or

constipation?

Ursula - & Macey (4 yr old w/CVID) mom

[Guest guest]

Dear : Hope your daughter is feeling better and the lab work shows

what is the problem going on. Could one of her medications be giving her a

stomachache or has she been on antibiotics for a long time prophalactically?

take care and I hope things are better for you,

regards,

annette and alissa

>

>Reply-To: PedPIDonelist

>To: PedPIDonelist

>Subject: RE: (no subject)

>Date: Sun, 14 Nov 1999 16:53:04 -0500

>

>I am new to the list, but have been keeping up the best I can the last few

>days. We have had an earlier diagnosis of my daughter having a low IgA

>count. She has had 4 sets of tubes, tonsils and adnoids are already gone,

>she has ecezema, asthma, allergies and chronic sinus infections. Since

>this spring we have also had problems with headaches and stomach problems.

>They told me friday to start giving pepcid ac to her when she goes to bed.

>The doctor also ordered a ct scan friday (second this year) and the

>allergiest had 3 vials of blood drawn. I know I am no where near the

>complications that most of you are, but can anyone offer any suggestions to

>the headaches and stomach aches...thanks

> Hill

>

>

>At 12:48 PM 11/14/1999 -0700, you wrote:

> >

> >

> >Dear Ursula: When I worked for a gastroenterologist, his definition was

> >inflammatory was just worse off shoot of IBS, which could be triggered by

> >emotions or foods that set off the cramping episodes. Either way a BRAT

>diet

> >was the answer when things got out of hand along with a good

>antispasmodic

> >to control the cramping,he also used fiber to control the either

>excessive

> >diaherrea or constipation going on. Hope that helps it kind of a

>simplistic

> >way of looking at it,

> >regards,

> >annette and alissa

> >

> >

> >>

> >>Reply-To: PedPIDonelist

> >>To: <PedPIDonelist>

> >>Subject: RE: (no subject)

> >>Date: Sat, 13 Nov 1999 22:22:03 -0500

> >>

> >>Debbie - I'm operating completely under assumptions here but I guess the

> >>only way to judge severity would be to take xrays and look at any

>breakdown

> >>in joint fibers or muscle tissue. I as her mom go by what she keeps

>from

> >>using by choice or what she gripes about the most on any given day.

>Lately

> >>it's been her ankles and feet. The only thing we've ever seen swell or

> >>have

> >>the redness/fever is her fingers and ankles. We've thought lately of

> >>getting a strip thermometer and laying it across the joints to see if it

> >>would register any fever. May or may not pan out but we're grasping at

> >>straws until the workup is completed. Dr. Harville has gone to Arkansas

>to

> >>head up a BMT center. It was very nice having him work with this since

>he

> >>was also a ped rheumatologist but now it falls to our ped. The current

> >>immuno (Dean Firschein) agrees that PID's are predisposed to autoimmune

> >>problems but hasn't said much else. I know our ped will involve him in

>the

> >>final chit chat about all the decisions. If they decide that JRA is the

> >>problem then I'm sure the local rheumy (ped/adult guy) will be

>consulted.

> >>The ped has talked to us about how the usual med used for inflammation

> >>(Naproxen) is not a good one for her because it causes GI problems and

>she

> >>has a colorful GI history. So for now she gets Advil every 6 hrs. I'm

> >>hoping the aqua therapy starting this week helps (even though its meant

>to

> >>treat something completely different).

> >>

> >>Now, question from me. To Debbie or anyone.. What's the difference

> >>(besides positive pathology results) symptom-wise between Inflammatory

> >>Bowel

> >>and Irritable Bowel? My scopes always come back negative for Crohns and

> >>Celiac but I'm on 4 different meds (Librax, Doxepin, Sal-tropine,

>Kuzyme)

> >>for Irritable Bowel. Last GI appointment (Tuesday) I had finally gained

>a

> >>pound (107 now). Just curious.

> >>

> >>Ursula - & Macey (4 yr old w/CVID) mom

> >>

> >>

> >>

> >>------------------------------------------------------------------------

> >>This forum is open to parents and caregivers of children diagnosed with

>a

> >>Primary Immune Deficiency. Opinions or medical advice stated here are

>the

> >>sole responsibility of the poster and should not be taken as

>professional

> >>advice.

> >><< text3.html >>

> >

> >>This forum is open to parents and caregivers of children diagnosed with

>a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

> >

>

>

>------------------------------------------------------------------------

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

><< text3.html >>

[Guest guest]

Hi !

My son started having migraines at around age 7. He had to be on steroids

for years due to a kidney problem and the steroids may have contributed to

the headaches, but they also run in the family. My daughter also had

migraines and will occasionally start to have one now (she's 25 years old and

has had them since she was around age 9 or 10 I think) but she takes

medication now that pretty much stops them. My son suffered from migraines

until around age 12, if I remember correctly. He's 21 now and hasn't had a

migraine (keep your fingers crossed) for a number of years. So hang in

there. There truly is a light at the end of the tunnel.

Lee

[Guest guest]

Hello Lee,

This has really been a help, posting on the list here. How long did it

take before your son outgrew the headaches?? I just wish someone could

figure out where the " aches " are coming from..Thanks for the info!! Least I

have some light at the end of the tunnel now!! Ya'll have been so great!

thanks

At 08:12 PM 11/15/1999 -0500, you wrote:

>From: Kmeyer1020@...

>

>Hi !

>Welcome! I don't know if this will be any help or not, but my son used to

>have constant stomach problems, a lot of pain, migraine headaches and many,

>many ear infections. The doctors varied on the medication they gave him.

>Often times we had to go to the hospital for the migraines in order for him

>to receive a shot. I'm not sure what finally stopped the stomachaches or

>migraines. He seemed to just outgrow them. Hang in there.

>Lee

>

>>This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

[Guest guest]

Anyone know anything about when to eat fruit? I remember reading somewhere that

it is

best to eat fruit 20 minutes before a meal and not to eat it in combination with

other food

but then I heard that you should eat it after a meal to control blood sugar

levels? I've heard

various things applied to eating protein as well. It was something along the

lines of only

eating meat with vegetables and not to eat it with complex carbs like pasta,

rice, or bread.