Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hello to All...... I am writing this request as I sort of have a unique problem.... I want radiation treatment for my thyroid. I am having a hard time finding a doctor.... Someone on asked a question earlier in June what it was like going from Hypo to Hyper..... In my world it is like experiencing Puberty, Pregnancy and Menopause all at the same time..... Let me give you all a little background on me personally... Most of my Thyroid/Hormonal symptoms are psychological. It has been this way since I was 13. I have been to a lot of Doctors over the last 18 years. Because all of the doctors thought my symptoms were psychological they never took me seriously. Long story short, I found a doctor who took me seriously and gave me Armor to try to see if it would help. Well evidently there are a small percentage of people that go from being Hypo to Hyper when they take thyroid medicine. I am in that group. I went to see my family physician because I was losing my mind and I knew he would help me. He did. He gave me a Beta Blocker and that has stopped all of the psychological symptoms. (If you are Hyper remember this is an option.) I am a lot calmer now and can think some. My family physician thinks I need a thyroid scan. He says it will cost me 2,000.00. Technically I have Thyroiditis. No doctor has ever felt a lump. No one in my family has ever had thyroid cancer. I am afraid because of my symptoms. I want to just end the chances of this ever happening again. I just don't have the money for the scan. I also don't have 4 months to wait for an appointment either. I have trying to get help since Nov 07. I quit my job in Feb because of the Hyper but I have the ability to borrow if I can find a doctor to fix this. I don't want to play with medication because of the symptoms. I just want this to end. So anyone out there know of a doctor that I can see that will kill my thyroid??? I would even be willing to drive a few hours if I know they will help me. If there were any concern for cancer trust me I would be all over the scan but for me I think it would be a waste of money I don't have. Any help is greatly appreciated. Also in my reading I did not find this link posted. This is a good place to find doctors too. http://www.thyroid-info.com/topdrs/texas.htm McKinney Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hi , I've been both hyper (extremely) and hypo (extremely). I know all about the psychological thyroid symptoms because that is how my symptoms usually manifest. However, as a post thyroid radiation person, my suggestion would be to check in to all other options. After the initial 2 month hyper surge that the RAI gave me, I got even sicker. I am a year and half post RAI and am still trying to figure out my thyroid meds. Yes, I do feel better, but I get extremely sick when my thyroid tries to " come back to life. " The problem is, even though some (RAI doesn't kill all) of the thyroid cells are killed, there are still thyroid cells all throughout your body. Another problem I developed with the RAI is that my eustachian tube in my left ear has been blocked, as the radiation ruined the tube. It may not seem like a big deal, but I've lost some hearing and I get motion sick very easily because of it. On the other hand, my sister in law had her thyroid removed surgically and it was a much easier healing process.. About 6 weeks, vs. a year. I'm not saying that RAI doesn't have its place, but I had Graves/Hashimotos and I really wish that I had explored more options. Take care and good luck! --Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 , I personally would research this out. RAI or surgery are big steps. Is the doctor saying you need an ultrasound? If he is, that is a very wise thing to do. It lets them seem how many nodules you have. Then you can have an ultrasound every year to monitor for growth. Symptoms? What exact symptoms are you having. Is your heart pounding, heart palps, etc. Please list your exact symptoms. Remember thyroid is a hormone that is tied into other hormones as well as iron. So if you have adrenal and/or iron issues those can cause you to feel hyper. Please give us labs too. Kate G Hashi's AS Quote Link to comment Share on other sites More sharing options...
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